Cyhoeddiad
2023
- Selman, L. E. et al. 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37(4), pp. 586-601. (10.1177/02692163221133665)
- Alam, M. F. et al. 2023. Infliximab versus ciclosporin in steroid resistant acute severe ulcerative colitis: a model-based cost-utility analysis of data from CONSTRUCT pragmatic trial. BMC Health Services Research 23, article number: 226. (10.1186/s12913-023-09233-w)
- Holland-Hart, D., Edwards, M., Mann, M., Longo, M., Byrne, A. and Nelson, A. 2023. 26 A rapid realist review: how shared decision-making approaches and patient aids influence treatment decisions for patients with advanced (non-curative) cancer?. Presented at: The Marie Curie Research Conference 2023, Virtual, 06-10 February 2023. , (10.1136/spcare-2023-MCRC.25)
2022
- Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
- Scott, H. et al. 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 (10.54210/bj.2022.1078)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
- Touray, M. M. L., Cohen, D. R., Williams, S. R. P., Alam, M. F., Groves, S., Longo, M. and Gage, H. 2022. Overweight/obesity and time preference: evidence from a survey among adults in the UK. Obesity Facts 15(3), pp. 428–441. (10.1159/000522651)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
- Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
- Islam, I., Nelson, A., Longo, M. and Byrne, A. 2021. Before the 2020 Pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales. BMC Palliative Care 20(1), article number: 116. (10.1186/s12904-021-00806-2)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
2020
- Longo, M. et al. 2020. Holistic care: the clinical nurse specialist’s role in advanced lung cancer patients. Palliative Medicine 34(Supple), pp. 79-79. (10.1177/0269216320958098)
- Nelson, A. et al. 2020. Chemotherapy decision-making in advanced lung cancer: a prospective qualitative study. BMJ Supportive & Palliative Care (10.1136/bmjspcare-2020-002395)
- Harrop, E. et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34(7), pp. 871-888. (10.1177/0269216320920533)
- Harrop, E. et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19, article number: 29. (10.1186/s12904-020-0532-4)
2019
- Gregory, J. W. et al. 2019. Effectiveness of home or hospital initiation of treatment at diagnosis for children with type 1 diabetes (DECIDE trial): a multicentre individually randomised controlled trial. BMJ Open 9, article number: e032317. (10.1136/bmjopen-2019-032317)
- Newman, A., Longo, M., Edwards, H., Nelson, A., Byrne, A. and Lewis, M. 2019. An evaluation of the Cardiff and Vale University Health Board weekend and bank holiday specialist palliative care clinical nurse specialist service. Project Report. Cardiff: Marie Curie Palliative Care Research Centre.
- Jones, J. K. et al. 2019. Rapid analgesia for pre-hospital hip disruption (RAPID): Findings from a randomised feasibility study. Pilot and Feasibility Studies 5(77), pp. -. (10.1186/s40814-019-0454-1)
2018
- Keen, L. et al. 2018. Use of scratchcards for allocation concealment in a prehospital randomised controlled trial. Emergency Medicine Journal 35, pp. 708-710. (10.1136/emermed-2018-207881)
- Morgan, F. et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8(3), pp. 380-381. (10.1136/bmjspcare-2018-mariecurie.54)
- Longo, M. et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8(3), article number: 371. (10.1136/bmjspcare-2018-mariecurie.30)
- Seddon, K. et al. 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8(3), pp. 374-375. (10.1136/bmjspcare-2018-mariecurie.40)
- Palmieri, M., Morgan, F., Longo, M., Gregory, C., Nelson, A. and Hepburn, J. 2018. 56 Rapid review of dissemination strategies and activities as listed in published protocol papers. BMJ Supportive and Palliative Care 8(3), pp. 381-382. (10.1136/bmjspcare-2018-mariecurie.56)
- Butler, C. C. et al. 2018. Point-of-care urine culture for managing urinary tract infection in primary care: a randomised controlled trial of clinical and cost-effectiveness. British Journal of General Practice 68(669), pp. e268-e278. (10.3399/bjgp18X695285)
2017
- Evans, N. et al. 2017. Using the nominal group technique to involve young people in an evidence synthesis which explored 'risk' in inpatient mental healthcare. Research Involvement and Engagement 3, article number: 16. (10.1186/s40900-017-0069-8)
- Anagnostou, D. et al. 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7(7), article number: e015277. (10.1136/bmjopen-2016-015277)
- Lugg-Widger, F. et al. 2017. Assessing the medium-term impact of a home-visiting programme on child maltreatment in England: protocol for a routine data linkage study. BMJ Open 7, article number: e015728. (10.1136/bmjopen-2016-015728)
- Francis, N. A. et al. 2017. Oral and topical antibiotics for clinically infected eczema in children: a pragmatic randomized controlled trial in ambulatory care. Annals of Family Medicine 15(2), pp. 124-130. (10.1370/afm.2038)
2016
- Francis, N. A. et al. 2016. A randomised placebo-controlled trial of oral and topical antibiotics for children with clinically infected eczema in the community: the ChildRen with Eczema, Antibiotic Management (CREAM) study. Health Technology Assessment 20(19), pp. 1-84. (10.3310/hta20190)
- Macbeth, F. et al. 2016. Randomized phase III trial of standard therapy plus low molecular weight heparin in patients with lung cancer: FRAGMATIC trial. Journal of Clinical Oncology 34(5), pp. 488-494. (10.1200/JCO.2015.64.0268)
2015
- Edwards, D. J., Evans, N., Gillen, E., Longo, M., Pryjmachuk, S., Trainor, G. and Hannigan, B. 2015. What do we know about the risks for young people moving into, through and out of inpatient mental health care? Findings from an evidence synthesis. Child and Adolescent Psychiatry and Mental Health 9, article number: 55. (10.1186/s13034-015-0087-y)
- Hannigan, B., Edwards, D., Evans, N., Gillen, E., Longo, M., Pryjmachuk, S. and Trainor, G. 2015. An evidence synthesis of risk identification, assessment and management for young people using tier 4 inpatient child and adolescent mental health services. Health Services and Delivery Research 3(22), pp. 1-228. (10.3310/hsdr03220)
2012
- Robling, M. R. et al. 2012. The effect of the Talking Diabetes consulting skills intervention on glycaemic control and quality of life in children with type 1 diabetes: cluster randomised controlled trial (DEPICTED study). British Medical Journal 344, article number: e2359. (10.1136/bmj.e2359)
2004
- Cohen, D., Longo, M. F., Hood, K., Edwards, A. G. and Elwyn, G. 2004. Resource effects of training general practitioners in risk communication skills and shared decision making competences. Journal of Evaluation in Clinical Practice 10(3), pp. 439-445. (10.1111/j.1365-2753.2004.00503.x)
Articles
- Selman, L. E. et al. 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37(4), pp. 586-601. (10.1177/02692163221133665)
- Alam, M. F. et al. 2023. Infliximab versus ciclosporin in steroid resistant acute severe ulcerative colitis: a model-based cost-utility analysis of data from CONSTRUCT pragmatic trial. BMC Health Services Research 23, article number: 226. (10.1186/s12913-023-09233-w)
- Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
- Scott, H. et al. 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 (10.54210/bj.2022.1078)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
- Touray, M. M. L., Cohen, D. R., Williams, S. R. P., Alam, M. F., Groves, S., Longo, M. and Gage, H. 2022. Overweight/obesity and time preference: evidence from a survey among adults in the UK. Obesity Facts 15(3), pp. 428–441. (10.1159/000522651)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
- Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
- Islam, I., Nelson, A., Longo, M. and Byrne, A. 2021. Before the 2020 Pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales. BMC Palliative Care 20(1), article number: 116. (10.1186/s12904-021-00806-2)
- Longo, M. et al. 2020. Holistic care: the clinical nurse specialist’s role in advanced lung cancer patients. Palliative Medicine 34(Supple), pp. 79-79. (10.1177/0269216320958098)
- Nelson, A. et al. 2020. Chemotherapy decision-making in advanced lung cancer: a prospective qualitative study. BMJ Supportive & Palliative Care (10.1136/bmjspcare-2020-002395)
- Harrop, E. et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34(7), pp. 871-888. (10.1177/0269216320920533)
- Harrop, E. et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19, article number: 29. (10.1186/s12904-020-0532-4)
- Gregory, J. W. et al. 2019. Effectiveness of home or hospital initiation of treatment at diagnosis for children with type 1 diabetes (DECIDE trial): a multicentre individually randomised controlled trial. BMJ Open 9, article number: e032317. (10.1136/bmjopen-2019-032317)
- Jones, J. K. et al. 2019. Rapid analgesia for pre-hospital hip disruption (RAPID): Findings from a randomised feasibility study. Pilot and Feasibility Studies 5(77), pp. -. (10.1186/s40814-019-0454-1)
- Keen, L. et al. 2018. Use of scratchcards for allocation concealment in a prehospital randomised controlled trial. Emergency Medicine Journal 35, pp. 708-710. (10.1136/emermed-2018-207881)
- Morgan, F. et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8(3), pp. 380-381. (10.1136/bmjspcare-2018-mariecurie.54)
- Longo, M. et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8(3), article number: 371. (10.1136/bmjspcare-2018-mariecurie.30)
- Seddon, K. et al. 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8(3), pp. 374-375. (10.1136/bmjspcare-2018-mariecurie.40)
- Palmieri, M., Morgan, F., Longo, M., Gregory, C., Nelson, A. and Hepburn, J. 2018. 56 Rapid review of dissemination strategies and activities as listed in published protocol papers. BMJ Supportive and Palliative Care 8(3), pp. 381-382. (10.1136/bmjspcare-2018-mariecurie.56)
- Butler, C. C. et al. 2018. Point-of-care urine culture for managing urinary tract infection in primary care: a randomised controlled trial of clinical and cost-effectiveness. British Journal of General Practice 68(669), pp. e268-e278. (10.3399/bjgp18X695285)
- Evans, N. et al. 2017. Using the nominal group technique to involve young people in an evidence synthesis which explored 'risk' in inpatient mental healthcare. Research Involvement and Engagement 3, article number: 16. (10.1186/s40900-017-0069-8)
- Anagnostou, D. et al. 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7(7), article number: e015277. (10.1136/bmjopen-2016-015277)
- Lugg-Widger, F. et al. 2017. Assessing the medium-term impact of a home-visiting programme on child maltreatment in England: protocol for a routine data linkage study. BMJ Open 7, article number: e015728. (10.1136/bmjopen-2016-015728)
- Francis, N. A. et al. 2017. Oral and topical antibiotics for clinically infected eczema in children: a pragmatic randomized controlled trial in ambulatory care. Annals of Family Medicine 15(2), pp. 124-130. (10.1370/afm.2038)
- Francis, N. A. et al. 2016. A randomised placebo-controlled trial of oral and topical antibiotics for children with clinically infected eczema in the community: the ChildRen with Eczema, Antibiotic Management (CREAM) study. Health Technology Assessment 20(19), pp. 1-84. (10.3310/hta20190)
- Macbeth, F. et al. 2016. Randomized phase III trial of standard therapy plus low molecular weight heparin in patients with lung cancer: FRAGMATIC trial. Journal of Clinical Oncology 34(5), pp. 488-494. (10.1200/JCO.2015.64.0268)
- Edwards, D. J., Evans, N., Gillen, E., Longo, M., Pryjmachuk, S., Trainor, G. and Hannigan, B. 2015. What do we know about the risks for young people moving into, through and out of inpatient mental health care? Findings from an evidence synthesis. Child and Adolescent Psychiatry and Mental Health 9, article number: 55. (10.1186/s13034-015-0087-y)
- Hannigan, B., Edwards, D., Evans, N., Gillen, E., Longo, M., Pryjmachuk, S. and Trainor, G. 2015. An evidence synthesis of risk identification, assessment and management for young people using tier 4 inpatient child and adolescent mental health services. Health Services and Delivery Research 3(22), pp. 1-228. (10.3310/hsdr03220)
- Robling, M. R. et al. 2012. The effect of the Talking Diabetes consulting skills intervention on glycaemic control and quality of life in children with type 1 diabetes: cluster randomised controlled trial (DEPICTED study). British Medical Journal 344, article number: e2359. (10.1136/bmj.e2359)
- Cohen, D., Longo, M. F., Hood, K., Edwards, A. G. and Elwyn, G. 2004. Resource effects of training general practitioners in risk communication skills and shared decision making competences. Journal of Evaluation in Clinical Practice 10(3), pp. 439-445. (10.1111/j.1365-2753.2004.00503.x)
Conferences
- Holland-Hart, D., Edwards, M., Mann, M., Longo, M., Byrne, A. and Nelson, A. 2023. 26 A rapid realist review: how shared decision-making approaches and patient aids influence treatment decisions for patients with advanced (non-curative) cancer?. Presented at: The Marie Curie Research Conference 2023, Virtual, 06-10 February 2023. , (10.1136/spcare-2023-MCRC.25)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
Monographs
- Newman, A., Longo, M., Edwards, H., Nelson, A., Byrne, A. and Lewis, M. 2019. An evaluation of the Cardiff and Vale University Health Board weekend and bank holiday specialist palliative care clinical nurse specialist service. Project Report. Cardiff: Marie Curie Palliative Care Research Centre.