![Elin Baddeley BSc (Hons)](https://profiles-cardiff.imgix.net/attachments/2392?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Overview
I am a qualitative researcher primarily, working in palliative care, with experience of mixed methods and a background in pharmacology. My research interests are: development of core outcome sets, and patient and family experiences of advanced cancer.
Publication
2023
- Retzer, A. et al. 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5(1), article number: vdad096. (10.1093/noajnl/vdad096)
- Baddeley, E. et al. 2023. Understanding the holistic needs of people living with glioma and their caregivers: A thematic analysis of the semi-structured interviews for the COBRA study. Presented at: European Association of Neuro-Oncology (EANO), Rotterdam, 21-24 September 2023, Vol. 25. Vol. S2., (10.1093/neuonc/noad137.194)
- Goedegebuur, J. et al. 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228, pp. 54-60. (10.1016/j.thromres.2023.05.008)
- Bravington, A. et al. 2023. Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction. PLoS ONE 18(8), article number: e0289501. (10.1371/journal.pone.0289501)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
2022
- Bravington, A. et al. 2022. The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: a systematic review. Palliative Medicine 36(9), pp. 1336-1350. (10.1177/02692163221122352)
- Baddeley, E. et al. 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.
- Baddeley, E. et al. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021, Online, 6-8 October 2021, Vol. 24. Vol. Supp.4. Oxford University Press pp. iv2., (10.1093/neuonc/noac200.007)
- Retzer, A. et al. 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022, Vol. 24. Oxford University Press, (10.1093/neuonc/noac200.019)
- Retzer, A. et al. 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12, article number: 57712. (10.1136/bmjopen-2021-057712)
- Baddeley, E. et al. 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study.. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022, Vol. 24. Vol. 2. Oxford Academic pp. ii47., (10.1093/neuonc/noac174.162)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
- Baddeley, E. et al. 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36(6), pp. 895-911. (10.1177/02692163221081331)
- Baddeley, E. et al. 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference, National, 14-15 June 2022.
2021
- Baddeley, E., Torrens-Burton, A., Newman, A., Nelson, A., Pease, N., Nelson, R. and Noble, S. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5(5), article number: e12545. (10.1002/rth2.12545)
2020
- Baddeley, E. et al. 2020. Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ Open 10(6), article number: e039154. (10.1136/bmjopen-2020-039154)
Articles
- Retzer, A. et al. 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5(1), article number: vdad096. (10.1093/noajnl/vdad096)
- Goedegebuur, J. et al. 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228, pp. 54-60. (10.1016/j.thromres.2023.05.008)
- Bravington, A. et al. 2023. Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction. PLoS ONE 18(8), article number: e0289501. (10.1371/journal.pone.0289501)
- Bravington, A. et al. 2022. The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: a systematic review. Palliative Medicine 36(9), pp. 1336-1350. (10.1177/02692163221122352)
- Retzer, A. et al. 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12, article number: 57712. (10.1136/bmjopen-2021-057712)
- Baddeley, E. et al. 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36(6), pp. 895-911. (10.1177/02692163221081331)
- Baddeley, E., Torrens-Burton, A., Newman, A., Nelson, A., Pease, N., Nelson, R. and Noble, S. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5(5), article number: e12545. (10.1002/rth2.12545)
- Baddeley, E. et al. 2020. Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ Open 10(6), article number: e039154. (10.1136/bmjopen-2020-039154)
Conferences
- Baddeley, E. et al. 2023. Understanding the holistic needs of people living with glioma and their caregivers: A thematic analysis of the semi-structured interviews for the COBRA study. Presented at: European Association of Neuro-Oncology (EANO), Rotterdam, 21-24 September 2023, Vol. 25. Vol. S2., (10.1093/neuonc/noad137.194)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
- Baddeley, E. et al. 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.
- Baddeley, E. et al. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021, Online, 6-8 October 2021, Vol. 24. Vol. Supp.4. Oxford University Press pp. iv2., (10.1093/neuonc/noac200.007)
- Retzer, A. et al. 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022, Vol. 24. Oxford University Press, (10.1093/neuonc/noac200.019)
- Baddeley, E. et al. 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study.. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022, Vol. 24. Vol. 2. Oxford Academic pp. ii47., (10.1093/neuonc/noac174.162)
- Baddeley, E. et al. 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference, National, 14-15 June 2022.
Monographs
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
- Baddeley, E., Torrens-Burton, A., Newman, A., Nelson, A., Pease, N., Nelson, R. and Noble, S. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5(5), article number: e12545. (10.1002/rth2.12545)
- Baddeley, E. et al. 2020. Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ Open 10(6), article number: e039154. (10.1136/bmjopen-2020-039154)
Research
My current research interests are as follows: development of core outcome sets, shared decision support tools, and patient and family experiences of living with advanced cancer.
Current research projects:
- Serenity Study - development of a shared decision support tool for deprescribing antithrombotic therapy in advanced cancer patients (2022-present)
- COBra Study - patient reported Core Outcomes in Brain tumour trials (2021 - present)
- Core Outcome Domains for Evaluating Adult Palliative Care Services in Wales (2021 - present) (Co Investigator)
Previous research projects:
- RAMBO Study - Research Assessment outcome measures for Malignant Bowel Obstruction (2019-2021)
- EMPOWER Study - Evaluating a patient designed tool to reduce harm from cancer associated thrombosis (2018-2019)
- Diverse Communities Evaluation Project - Improving access to end of life care for Diverse Communities of Cardiff (2018-2019)
- EAGLE Study - Improving the wellbeing of men by evaluation and addressing the gastrointestinal late effects of radical treatment for prostate cancer (2018)
Grant Funding:
Sivell S, Nelson A, Baddeley E, Islam I. Diverse Communities Evaluation Project - 'Improving access to end of life care for Diverse Communities of Cardiff. Marie Cure Hospice, Cardiff and the Vale, Penarth, £6,000. (2018)
Biography
Education and Qualifications:
- BSc (Hons) Pharmacology, University of Portsmouth, First Class (2017)
- Higher Certificate in Chemistry, Cardiff University, Pass (2014)
Career Overview:
- 2021 - present: Research Associate, Marie Curie Research Centre, Cardiff University
- 2018-2021: Research Assistant, Marie Curie Research Centre, Cardiff University
Contact Details
Specialisms
- cancer
- patient experience