![Elin Baddeley BSc (Hons)](https://profiles-cardiff.imgix.net/attachments/2392?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Overview
I am a qualitative researcher primarily, working in palliative care, with experience of mixed methods and a background in pharmacology. My research interests are: development of core outcome sets, and patient and family experiences of advanced cancer.
Publication
2025
- Baddeley, E. et al. 2025. "Who am I to say that I'm not going to take it": patient perspectives on decisions about antithrombotic therapy in the context of advanced cancer. Thrombosis Research: Vascular Obstruction, Hemorrhage and Hemostasis 253 109399. (10.1016/j.thromres.2025.109399)
- Baddeley, E. et al. 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice 12 (3), pp.413-425. npae127. (10.1093/nop/npae127)
- Edwards, M. et al. 2025. Involving patients and the public in cancer associated thrombosis research: a strategy for success.. Thrombosis Update 18 100196. (10.1016/j.tru.2024.100196)
- Staffurth, J. N. et al. 2025. The impact of specialised gastroenterology services for pelvic radiation disease (PRD): Results from the prospective multi-centre EAGLE study. PLoS ONE 20 (1) e0303356. (10.1371/journal.pone.0303356)
2023
- Baddeley, E. et al. 2023. Understanding the holistic needs of people living with glioma and their caregivers: A thematic analysis of the semi-structured interviews for the COBRA study. Presented at: European Association of Neuro-Oncology (EANO) Rotterdam 21-24 September 2023. Vol. 25.Vol. S2. (10.1093/neuonc/noad137.194)
- Bravington, A. et al., 2023. Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction. PLoS ONE 18 (8) e0289501. (10.1371/journal.pone.0289501)
- Goedegebuur, J. et al., 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228 , pp.54-60. (10.1016/j.thromres.2023.05.008)
- Goss, S. et al. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A6-A7. (10.1136/spcare-2023-MCRC.15)
- Retzer, A. et al., 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) vdad096. (10.1093/noajnl/vdad096)
2022
- Baddeley, E. et al. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021 Online 6-8 October 2021. Vol. 24.Vol. Supp.4. Oxford University Press. , pp.iv2. (10.1093/neuonc/noac200.007)
- Baddeley, E. et al. 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36 (6), pp.895-911. (10.1177/02692163221081331)
- Baddeley, E. et al. 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference Prague, Czech Republic 19-22 October 2022.
- Baddeley, E. et al. 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study.. Presented at: European Association of Neuro-Oncology (EANO) Vienna, Austria 15-18 September 2022. Vol. 24.Vol. 2. Oxford Academic. , pp.ii47. (10.1093/neuonc/noac174.162)
- Baddeley, E. et al. 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference National 14-15 June 2022.
- Bravington, A. et al., 2022. The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: a systematic review. Palliative Medicine 36 (9), pp.1336-1350. (10.1177/02692163221122352)
- Goss, S. et al. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report.NHS Wales and Marie Curie Palliative Care Research Centre.
- Retzer, A. et al., 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022 Liverpool 22-24 June 2022. Vol. 24.Oxford University Press(10.1093/neuonc/noac200.019)
- Retzer, A. et al., 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 057712. (10.1136/bmjopen-2021-057712)
2021
- Baddeley, E. et al. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5 (5) e12545. (10.1002/rth2.12545)
2020
Articles
- Baddeley, E. et al. 2020. Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ Open 10 (6) e039154. (10.1136/bmjopen-2020-039154)
- Baddeley, E. et al. 2025. "Who am I to say that I'm not going to take it": patient perspectives on decisions about antithrombotic therapy in the context of advanced cancer. Thrombosis Research: Vascular Obstruction, Hemorrhage and Hemostasis 253 109399. (10.1016/j.thromres.2025.109399)
- Baddeley, E. et al. 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36 (6), pp.895-911. (10.1177/02692163221081331)
- Baddeley, E. et al. 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice 12 (3), pp.413-425. npae127. (10.1093/nop/npae127)
- Baddeley, E. et al. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5 (5) e12545. (10.1002/rth2.12545)
- Bravington, A. et al., 2023. Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction. PLoS ONE 18 (8) e0289501. (10.1371/journal.pone.0289501)
- Bravington, A. et al., 2022. The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: a systematic review. Palliative Medicine 36 (9), pp.1336-1350. (10.1177/02692163221122352)
- Edwards, M. et al. 2025. Involving patients and the public in cancer associated thrombosis research: a strategy for success.. Thrombosis Update 18 100196. (10.1016/j.tru.2024.100196)
- Goedegebuur, J. et al., 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228 , pp.54-60. (10.1016/j.thromres.2023.05.008)
- Retzer, A. et al., 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) vdad096. (10.1093/noajnl/vdad096)
- Retzer, A. et al., 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 057712. (10.1136/bmjopen-2021-057712)
- Staffurth, J. N. et al. 2025. The impact of specialised gastroenterology services for pelvic radiation disease (PRD): Results from the prospective multi-centre EAGLE study. PLoS ONE 20 (1) e0303356. (10.1371/journal.pone.0303356)
Conferences
- Baddeley, E. et al. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021 Online 6-8 October 2021. Vol. 24.Vol. Supp.4. Oxford University Press. , pp.iv2. (10.1093/neuonc/noac200.007)
- Baddeley, E. et al. 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference Prague, Czech Republic 19-22 October 2022.
- Baddeley, E. et al. 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study.. Presented at: European Association of Neuro-Oncology (EANO) Vienna, Austria 15-18 September 2022. Vol. 24.Vol. 2. Oxford Academic. , pp.ii47. (10.1093/neuonc/noac174.162)
- Baddeley, E. et al. 2023. Understanding the holistic needs of people living with glioma and their caregivers: A thematic analysis of the semi-structured interviews for the COBRA study. Presented at: European Association of Neuro-Oncology (EANO) Rotterdam 21-24 September 2023. Vol. 25.Vol. S2. (10.1093/neuonc/noad137.194)
- Baddeley, E. et al. 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference National 14-15 June 2022.
- Goss, S. et al. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A6-A7. (10.1136/spcare-2023-MCRC.15)
- Retzer, A. et al., 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022 Liverpool 22-24 June 2022. Vol. 24.Oxford University Press(10.1093/neuonc/noac200.019)
Monographs
- Goss, S. et al. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report.NHS Wales and Marie Curie Palliative Care Research Centre.
Research
My current research interests are as follows: development of core outcome sets, shared decision support tools, and patient and family experiences of living with advanced cancer.
Current research projects:
- Serenity Study - development of a shared decision support tool for deprescribing antithrombotic therapy in advanced cancer patients (2022-present)
- COBra Study - patient reported Core Outcomes in Brain tumour trials (2021 - present)
- Core Outcome Domains for Evaluating Adult Palliative Care Services in Wales (2021 - present) (Co Investigator)
Previous research projects:
- RAMBO Study - Research Assessment outcome measures for Malignant Bowel Obstruction (2019-2021)
- EMPOWER Study - Evaluating a patient designed tool to reduce harm from cancer associated thrombosis (2018-2019)
- Diverse Communities Evaluation Project - Improving access to end of life care for Diverse Communities of Cardiff (2018-2019)
- EAGLE Study - Improving the wellbeing of men by evaluation and addressing the gastrointestinal late effects of radical treatment for prostate cancer (2018)
Grant Funding:
Sivell S, Nelson A, Baddeley E, Islam I. Diverse Communities Evaluation Project - 'Improving access to end of life care for Diverse Communities of Cardiff. Marie Cure Hospice, Cardiff and the Vale, Penarth, £6,000. (2018)
Biography
Education and Qualifications:
- BSc (Hons) Pharmacology, University of Portsmouth, First Class (2017)
- Higher Certificate in Chemistry, Cardiff University, Pass (2014)
Career Overview:
- 2021 - present: Research Associate, Marie Curie Research Centre, Cardiff University
- 2018-2021: Research Assistant, Marie Curie Research Centre, Cardiff University
Contact Details
Specialisms
- cancer
- patient experience