Publication
2025
- Harrop, E. et al. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 118518. (10.1016/j.socscimed.2025.118518)
- Phillips, R. et al., 2025. Are you afraid of COVID-19? Motivation and engagement in infection–prevention behaviour in a UK community cohort during the first 2 years of the COVID-19 pandemic. British Journal of Health Psychology 30 (4) e70034. (10.1111/bjhp.70034)
- Sha'aban, A. et al. 2025. Coproducing data-driven organisational safety with patients: development and cognitive testing of a multi-setting patient-reported safety concern tool. International Journal for Quality in Health Care 37 (3) mzaf056. (10.1093/intqhc/mzaf056)
- Leggat, F. et al., 2025. Personalisation at the core of success: Process evaluation of the LISTEN randomised controlled trial evaluating a personalised self-management support intervention for people living with Long Covid.. Health Expectations 28 (3) e70270. (10.1111/hex.70270)
- Selman, L. E. et al., 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2), pp.904-931. (10.1177/00302228221144925)
- McFadzean, I. J. et al. 2025. The evolution of patient-reported safety concerns during the COVID-19 pandemic within a series of study questionnaires: a multi-method analysis. International Journal for Quality in Health Care 37 (2) mzaf040. (10.1093/intqhc/mzaf040)
2023
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
2022
- Phillips, R. et al. 2022. Perceived threat of COVID-19, attitudes towards vaccination, and vaccine hesitancy: A prospective longitudinal study in the UK. British Journal of Health Psychology 27 (4), pp.1354-1381. (10.1111/bjhp.12606)
- Heaton-Shrestha, C. et al., 2022. Co-designing personalised self-management support for people living with long Covid: the LISTEN protocol. PLoS ONE 17 (10) e0274469. (10.1371/journal.pone.0274469)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 177. (10.1186/s12904-022-01066-4)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp.1-17. (10.1177/26323524221092456)
- Selman, L. E. et al., 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4), pp.717-729.
- Selman, L. E. et al., 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022 Telford, Englad 24-25 March 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A1. (10.1136/spcare-2022-SCPSC.2)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A6-A7. (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A10-A11. (10.1136/spcare-2021-MCRC.25)
- Byrne, A. et al. 2022. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers pub2. Cochrane Library 2022 (1) CD013440.. (10.1002/14651858.CD013440.pub2)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications(10.1177/02692163221093145)
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Phillips, R. et al., 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) e0258484. (10.1371/journal.pone.0258484)
- Baddeley, E. et al. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5 (5) e12545. (10.1002/rth2.12545)
- Pattern, R. et al., 2021. What are patient perspectives in atypical and idiopathic Parkinson’s disease of the benefits and timing of ACP and palliative care input? A rapid review. Working paper. Cardiff: Cardiff University.
2020
- Torrens-Burton, A. et al. 2020. Lacking pace but not precision: age-related information processing changes in response to a dynamic attentional control task. Brain Sciences 10 (6) 390. (10.3390/brainsci10060390)
2019
- Byrne, A. et al. 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019 (9) CD013440.. (10.1002/14651858.CD013440)
- Davies, J. M. V. et al., 2019. What is the evidence base for the assessment and management of cancer cachexia in adults with incurable pancreatic cancer? A rapid review. Documentation. Cardiff: Cardiff University.
2017
- Torrens-Burton, A. et al. 2017. Perception and reality of cognitive function: information processing speed, perceived memory function, and perceived task difficulty in older adults. Journal of Alzheimer's Disease 60 (4), pp.1601-1609. (10.3233/JAD-170599)
2016
- Haworth, J. et al., 2016. Measuring Information Processing Speed in Mild Cognitive Impairment: Clinical Versus Research Dichotomy. Journal of Alzheimer's Disease 51 (1), pp.263-275. (10.3233/JAD-150791)
Articles
- Harrop, E. et al. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 118518. (10.1016/j.socscimed.2025.118518)
- Phillips, R. et al., 2025. Are you afraid of COVID-19? Motivation and engagement in infection–prevention behaviour in a UK community cohort during the first 2 years of the COVID-19 pandemic. British Journal of Health Psychology 30 (4) e70034. (10.1111/bjhp.70034)
- Sha'aban, A. et al. 2025. Coproducing data-driven organisational safety with patients: development and cognitive testing of a multi-setting patient-reported safety concern tool. International Journal for Quality in Health Care 37 (3) mzaf056. (10.1093/intqhc/mzaf056)
- Leggat, F. et al., 2025. Personalisation at the core of success: Process evaluation of the LISTEN randomised controlled trial evaluating a personalised self-management support intervention for people living with Long Covid.. Health Expectations 28 (3) e70270. (10.1111/hex.70270)
- Selman, L. E. et al., 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2), pp.904-931. (10.1177/00302228221144925)
- McFadzean, I. J. et al. 2025. The evolution of patient-reported safety concerns during the COVID-19 pandemic within a series of study questionnaires: a multi-method analysis. International Journal for Quality in Health Care 37 (2) mzaf040. (10.1093/intqhc/mzaf040)
- Phillips, R. et al. 2022. Perceived threat of COVID-19, attitudes towards vaccination, and vaccine hesitancy: A prospective longitudinal study in the UK. British Journal of Health Psychology 27 (4), pp.1354-1381. (10.1111/bjhp.12606)
- Heaton-Shrestha, C. et al., 2022. Co-designing personalised self-management support for people living with long Covid: the LISTEN protocol. PLoS ONE 17 (10) e0274469. (10.1371/journal.pone.0274469)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 177. (10.1186/s12904-022-01066-4)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp.1-17. (10.1177/26323524221092456)
- Selman, L. E. et al., 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4), pp.717-729.
- Byrne, A. et al. 2022. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers pub2. Cochrane Library 2022 (1) CD013440.. (10.1002/14651858.CD013440.pub2)
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Phillips, R. et al., 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) e0258484. (10.1371/journal.pone.0258484)
- Baddeley, E. et al. 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5 (5) e12545. (10.1002/rth2.12545)
- Torrens-Burton, A. et al. 2020. Lacking pace but not precision: age-related information processing changes in response to a dynamic attentional control task. Brain Sciences 10 (6) 390. (10.3390/brainsci10060390)
- Byrne, A. et al. 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019 (9) CD013440.. (10.1002/14651858.CD013440)
- Torrens-Burton, A. et al. 2017. Perception and reality of cognitive function: information processing speed, perceived memory function, and perceived task difficulty in older adults. Journal of Alzheimer's Disease 60 (4), pp.1601-1609. (10.3233/JAD-170599)
- Haworth, J. et al., 2016. Measuring Information Processing Speed in Mild Cognitive Impairment: Clinical Versus Research Dichotomy. Journal of Alzheimer's Disease 51 (1), pp.263-275. (10.3233/JAD-150791)
Conferences
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Selman, L. E. et al., 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022 Telford, Englad 24-25 March 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A1. (10.1136/spcare-2022-SCPSC.2)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A6-A7. (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A10-A11. (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications(10.1177/02692163221093145)
Monographs
- Pattern, R. et al., 2021. What are patient perspectives in atypical and idiopathic Parkinson’s disease of the benefits and timing of ACP and palliative care input? A rapid review. Working paper. Cardiff: Cardiff University.
- Davies, J. M. V. et al., 2019. What is the evidence base for the assessment and management of cancer cachexia in adults with incurable pancreatic cancer? A rapid review. Documentation. Cardiff: Cardiff University.
Contact Details
[email protected]
+44 29206 87199
Neuadd Meirionnydd, Room 6th Floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS
+44 29206 87199
Neuadd Meirionnydd, Room 6th Floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS