Yr Athro Jane Hopkinson
(hi/ei)
BSc (Hons) MSc PhD
- Ar gael fel goruchwyliwr ôl-raddedig
Timau a rolau for Jane Hopkinson
Yr Athro Emerita Nyrsio a Gofal Canser
Trosolwyg
Helo. Fy enw i yw Jane Hopkinson, Athro Nyrsio a Gofal Canser Rhyngddisgyblaethol Felindre ac Ymddiriedolwr Gofal Canser Tenovus.
Mae gen i hanes ymchwil sefydledig mewn gofal canser a gofal lliniarol, gyda dros 100 o gyhoeddiadau a adolygwyd gan gymheiriaid. Fy arbenigedd yw gofal cefnogol mewn cachecsia canser, gyda diddordeb arbennig mewn trallod sy'n gysylltiedig â bwyta, gofal maeth a materion i deuluoedd y mae'r syndrom yn effeithio arnynt. Rwyf hefyd wedi cynnal dulliau cymysg ac ymchwil ansoddol gyda phobl hŷn, pobl â nam gwybyddol/dementia, a phobl sy'n agosáu at ddiwedd oes. Ffocws fy ymchwil yw deall anghyfleustra a gwendidau sy'n cyfrannu at anghenion gofal cymhleth. Mae'r wybodaeth hon yn bwysig ar gyfer gofal cefnogol a all wella diogelwch a chydraddoldeb o ran canlyniadau triniaeth a phrofiad cleifion.
Rwy'n arwain Grŵp Ymchwil Canser yr Ysgol Gwyddorau Gofal Iechyd, Prifysgol Caerdydd, Ymddiriedolwr Gofal Canser Tenovus, ac yn cynrychioli nyrsys a gweithwyr gofal iechyd proffesiynol cysylltiedig ar Dîm Arweinyddiaeth Canolfan Ymchwil Canser Cymru (WCRC). Ar hyn o bryd rwy'n aelod o'r National Cancer Research Institute (NCRI) Cancer and Nutrition Collaborative, y Society on Sarcopenia, Cachexia and Wasting Disorders (SCWD), International Association of Supportive Care in Cancer (MASCC), y Coleg Nyrsio Brenhinol (RCN), a'r Pwyllgor Gwybodaeth a Lledaenu, Cymdeithas Ryngwladol Nyrsys mewn Gofal Canser (ISNCC).
Cyhoeddiad
2025
- Koshimoto, S. et al. 2025. Sex-related differences in eating-related distress experienced by patients with advanced cancer. Supportive Care in Cancer 33(3), article number: 241. (10.1007/s00520-025-09302-2)
2024
- Csontos, J., Edwards, D., Gillen, E., Ferreira Semedo, L. and Hopkinson, J. 2024. Intervention combinations within multimodal prehabilitation and their effect on health-related quality of life, fatigue, and adherence in the adult cancer population: an umbrella review protocol. JBI Evidence Synthesis (10.11124/JBIES-23-00253)
- Watts, T. et al. 2024. Access, acceptance and adherence to cancer prehabilitation: a mixed-methods systematic review. Journal of Cancer Survivorship (10.1007/s11764-024-01605-3)
- Gale, N., Jones, U., Rees, T., Hicks, A., Davies, J., Holliday, S. and Hopkinson, J. 2024. A cancer personalised activity and lifestyle tool (CAN-PAL): a codesign study with patients and healthcare professionals. Journal of Clinical Nursing 33(2), pp. 572-579. (10.1111/jocn.16931)
2023
- Hopkinson, J. B. 2023. The role of the nurse in meeting the educational needs for self-care in cachectic cancer patients and their family caregivers: a scoping review. Asia-Pacific Journal of Oncology Nursing 10(1), article number: 100294. (10.1016/j.apjon.2023.100294)
- Amano, K., Hopkinson, J. B., Baracos, V. E. and Mori, N. 2023. Holistic multimodal care for patients with cancer cachexia and their family caregivers. Asia-Pacific Journal of Oncology Nursing 10(Supp 1), article number: 100290. (10.1016/j.apjon.2023.100290)
- Blum, D. et al. 2023. Top ten tips palliative care clinicians should know about cachexia. Journal of Palliative Medicine 26(8), pp. 1133-1138. (10.1089/jpm.2022.0598)
- Amano, K. et al. 2023. Factors associated with practice of multimodal care for cancer cachexia among physicians and nurses engaging in cancer care. JCO Oncology Practice 19(8), pp. 602-609. (10.1200/OP.23.00043)
- Hopkinson, J. B. 2023. Educational needs of self-care in cachectic cancer patients and caregivers. Current Opinion in Oncology 35(4), pp. 254-260. (10.1097/CCO.0000000000000948)
- Ashley, L. et al. 2023. Cancer care for people with dementia: literature overview and recommendations for practice and research. CA: A Cancer Journal for Clinicians 73(3), pp. 320-338. (10.3322/caac.21767)
- Gale, N., Hopkinson, J., Wasley, D. and Byrne, A. 2023. The promotion of homebased physical activity for people with lung and cancer cachexia, a qualitative study of healthcare professionals, patients and carers. Journal of Cancer Survivorship 17, pp. 677-685. (10.1007/s11764-023-01376-3)
- Mathlin, J., Courtier, N. and Hopkinson, J. 2023. Taste changes during radiotherapy for head and neck cancer. Radiography 29(4), pp. 746-751. (10.1016/j.radi.2023.05.004)
- Amano, K. et al. 2023. Development and validation of questionnaires for eating‐related distress among advanced cancer patients and families. Journal of Cachexia, Sarcopenia and Muscle 14(1), pp. 310-325. (10.1002/jcsm.13133)
2022
- Amano, K., Hopkinson, J. and Baracos, V. 2022. Psychological symptoms of illness and emotional distress in advanced cancer cachexia. Current Opinion in Clinical Nutrition and Metabolic Care 25(3), pp. 167-172. (10.1097/MCO.0000000000000815)
- Fry, S., Hopkinson, J. and Kelly, D. 2022. “We’re talking about black men here, there’s a difference” Cultural differences in socialised knowledge of prostate cancer risk: a qualitative research study. European Journal of Oncology Nursing 56, article number: 102080. (10.1016/j.ejon.2021.102080)
- Courtier, N., Armes, J., Smith, A., Radley, L. and Hopkinson, J. 2022. Targeted self-management limits fatigue for women undergoing radiotherapy for early breast cancer: results from the ACTIVE randomised feasibility trial. Supportive Care in Cancer 30, pp. 389-400. (10.1007/s00520-021-06360-0)
2021
- Csontos, J. et al. 2021. Cancer memory mate: implementing a healthcare innovation to support the management of cancer treatments and side effects in people with memory problems in South Wales, UK. Presented at: 2021 UKONS Annual Conference, Virtual, 11-13 November 2021.
- Hopkinson, J. B. 2021. The psychosocial components of multimodal interventions offered to people with cancer cachexia: a scoping review. Asia-Pacific Journal of Oncology Nursing 8(5), pp. 450-461. (10.4103/apjon.apjon-219)
- Maunsell, R., Sodergren, S., Hopkinson, J., Shaw, C., Foster, C. and Wheelwright, S. 2021. Nutritional care in colorectal cancer-what is the state of play?. Colorectal Disease (10.1111/codi.15933)
- Hopkinson, J. et al. 2021. Crisis management for people with dementia at home: mixed-methods case study research to identify critical factors for successful home treatment. Health and Social Care in the Community 29(4), pp. 1072-1082. (10.1111/hsc.13141)
- Hopkinson, J. B. et al. 2021. What happens before, during and after crisis for someone with dementia living at home: a systematic review. Dementia 20(2), pp. 570-612. (10.1177/1471301220901634)
- Hopkinson, J., Watts, T., Abdi, A. and Chivers, E. 2021. What is known about oral nutritional care of patients receiving radiotherapy, chemotherapy or chemoradiotherapy for colorectal cancer? A systematic review and narrative synthesis.. NIHR CRD. Available at: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020178160
2020
- Hopkinson, J., King, A., Courtier, N., Milton, R. and Elias, J. 2020. Potential for identification of memory problems in the cancer clinic to enable improved treatment experience and outcomes: mixed methods case study research. European Journal of Oncology Nursing 48, article number: 101777. (10.1016/j.ejon.2020.101777)
- Hopkinson, J., Kazmi, C., Elias, J., Wheelwright, S., Williams, R. and Russell, A. 2020. Diet and weight management by people with non-metastatic colorectal cancer during chemotherapy: mixed methods research. Colorectal Cancer 9(2), article number: CRC16. (10.2217/crc-2019-0017)
- Fry, S., Kelly, D. and Hopkinson, J. 2020. Using card games to study cultural differences in men’s social talk about prostate cancer. Journal of Advanced Nursing 76(7), pp. 1840-1849. (10.1111/jan.14373)
- Samuriwo, R., Candida, L., Anstey, S., Job, C. and Hopkinson, J. 2020. Nurses' decision-making about cancer patients end of life skin care in Wales: an exploratory mixed method vignette study protocol. BMJ Open 10(7), article number: e034938. (10.1136/bmjopen-2019-034938)
2019
- Amano, K., Baracos, V. and Hopkinson, J. 2019. Integration of palliative, supportive, and nutritional care to alleviate eating-related distress among advanced cancer patients with cachexia and their family members. Critical Reviews in Oncology/Hematology 143, pp. 117-123. (10.1016/j.critrevonc.2019.08.006)
2018
- Hopkinson, J. 2018. Psychosocial support in cancer cachexia syndrome: the evidence for supportedself-management of eating problems during radiotherapy or chemotherapy treatment. Asia-Pacific Journal of Oncology Nursing 5(4), pp. 358-368. (10.4103/apjon.apjon_12_18)
- Courtier, N. et al. 2018. ACTIVE: a randomised feasibility trial of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for early breast cancer: study protocol. Pilot and Feasibility Studies 4, article number: 85. (10.1186/s40814-018-0275-7)
- Samuriwo, R., Henley, J., Anstey, S., Job, C., Williams, D. and Hopkinson, J. 2018. Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory qualitative study. Cardiff University.
- Hopkinson, J. 2018. The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of people with advanced cancer and eating problems. Cancer Nursing 41(2), pp. 131-138. (10.1097/NCC.0000000000000474)
- Latter, S. et al. 2018. Supporting carers to manage pain medication in cancer patients at the end of life: a feasibility trial. Palliative Medicine 32(1), pp. 246-256. (10.1177/0269216317715197)
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Nurse decision making about the delivery of skin care to patients with advanced cancer at the end of life: a qualitative exploratory study. Presented at: Tissue Viability Society Conference, Newcastle, UK, 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Quality improvement in end of life skin care. Nurse decision making about the delivery of skin care to advanced cancer patients at the end of life: exploratory qualitative research. Presented at: European Wound Management Association Virtual Conference (EWMA 2018), Krakow, Poland, 9-11 May 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Developing a decision making tool for nurses to improve end of life skin care for advanced cancer patients: a qualitative exploratory study. Presented at: 20th Annual Meeting of European Pressure Ulcer Advisory Panel (EPUAP 2018), Rome, Italy, 12-14 September 2018.
2017
- Barker, S., Lynch, M. and Hopkinson, J. 2017. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. International Journal Palliative Nursing 23(9), pp. 446-456. (10.12968/ijpn.2017.23.9.446)
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Edwards, D., Carrier, J. and Hopkinson, J. 2017. Assistance at mealtimes in hospital settings and rehabilitation units for patients (>65 years) from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. International Journal of Nursing Studies 69, pp. 100-118. (10.1016/j.ijnurstu.2017.01.013)
- Wheelwright, S. J. et al. 2017. Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. Journal of Pain and Symptom Management 53(2), pp. 232-242. (10.1016/j.jpainsymman.2016.09.010)
2016
- Maddocks, M., Hopkinson, J. and Conibear, J. 2016. Practical multimodal care for cancer cachexia. Current Opinion in Supportive and Palliative Care 10(4), pp. 298-305. (10.1097/SPC.0000000000000241)
- Ngandu, H., Gale, N. and Hopkinson, J. 2016. Non-invasive ventilation in older people with acute respiratory failure: review. European Respiratory Review 25(142), pp. 451-471. (10.1183/16000617.0002-2016)
- Hopkinson, J. B., Milton, R., King, A. and Edwards, D. 2016. People with dementia: what is known about their experience of cancer treatment and cancer treatment outcomes? A systematic review. Psycho-Oncology 25(10), pp. 1137 -1146. (10.1002/pon.4185)
- Field, J., Richardson, A., Hopkinson, J. and Fenlon, D. 2016. Nordic walking as an exercise intervention to reduce pain in women with aromatase inhibitor associated arthralgia: a feasibility study. Journal of Pain and Symptom Management 52(4), pp. 548-559. (10.1016/j.jpainsymman.2016.03.010)
- Courtier, N., Milton, R., King, A., Tope, R., Morgan, S. and Hopkinson, J. 2016. Cancer and dementia: an exploratory study of the experience of cancer treatment in people with dementia. Psycho-Oncology 25(9), pp. 1079-1084. (10.1002/pon.4212)
- Latter, S., Hopkinson, J. B., Richardson, A., Hughes, J. A., Lowson, E. and Edwards, D. 2016. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Supportive and Palliative Care 6(3), pp. 263-275. (10.1136/bmjspcare-2015-000958)
- Edwards, D., Carrier, J. and Hopkinson, J. 2016. Mealtime assistance for older adults in hospital settings and rehabilitation units from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. JBI Database of Systematic Reviews and Implementation Reports 14(9), pp. 261-357. (10.11124/JBISRIR-2016-003100)
- Evans, N. and Hopkinson, J. B. 2016. How action researchers use anxiety to facilitate change in health care. Journal of Clinical Nursing 25(11-12), pp. 1674-1682. (10.1111/jocn.13186)
- Job, C., Anstey, S. and Hopkinson, J. B. 2016. Learning from the experiences of cancer patients and their carers. Cancer Nursing Practice 15(4), pp. 14-20. (10.7748/cnp.15.4.14.s18)
- Edwards, D. J., Anstey, S. V., Kelly, D. M. and Hopkinson, J. B. 2016. An innovation in curriculum content and delivery of cancer education within undergraduate nurse training in the UK. What impact does this have on the knowledge, attitudes and confidence in delivering cancer care?. European Journal of Oncology Nursing 21, pp. 8-16. (10.1016/j.ejon.2015.12.003)
- Preston, N. J. et al. 2016. Strategies designed to help healthcare professionals to recruit participants to research studies. Cochrane Database of Systematic Reviews 2, article number: MR000036. (10.1002/14651858.MR000036.pub2)
- Hopkinson, J. 2016. Food connections: a qualitative exploratory study of weight- and eating-related distress in families affected by advanced cancer. European Journal of Oncology Nursing 20, pp. 87-96. (10.1016/j.ejon.2015.06.002)
- Wheelwright, S., Darlington, A. S., Hopkinson, J. B., Fitzsimmons, D. and Johnson, C. 2016. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliative Medicine 30(2), pp. 149-160. (10.1177/0269216315588743)
- King, A., Hopkinson, J. B. and Milton, R. 2016. Reflections of a team approach to involving people with dementia in research. International Journal of Palliative Nursing 22(1), pp. 372-377. (10.12968/ijpn.2016.22.1.22)
- Wheelwright, S. J., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2016. A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia. BMJ Supportive & Palliative Care 6(3), pp. 307-314. (10.1136/bmjspcare-2014-000680)
2015
- Hopkinson, J. B. 2015. The nursing contribution to the nutritional care of people with cancer cachexia. Proceedings of the Nutrition Society 74(4), pp. 413-418. (10.1017/S0029665115002384)
- Foster, C. et al. 2015. You can't say, 'What about me?' I'm not the one with cancer": information and support needs of relatives. Psycho-Oncology 24(6), pp. 705-711. (10.1002/pon.3716)
- Hopkinson, J. B. 2015. Nutritional support of the elderly cancer patient: the role of the nurse. Nutrition 31(4), pp. 598-602. (10.1016/j.nut.2014.12.013)
- Hopkinson, J. B. et al. 2015. Cancer Carers Medicines Management: a study to develop and test an educational intervention for carers of cancer patients approaching end of life at home [Abstract]. Supportive Care in Cancer 23(1), pp. S61. (10.1007/s00520-015-2712-y)
- Hopkinson, J. B. and Richardson, A. 2015. A mixed-methods qualitative research study to develop a complex intervention for weight loss and anorexia in advanced cancer: the Family Approach to Weight and Eating (FAWE). Palliative Medicine 29(2), pp. 164-176. (10.1177/0269216314556924)
- Edwards, D. J., Carrier, J. A. K. and Hopkinson, J. B. 2015. Assistance at mealtimes in hospital settings and rehabilitation units for older adults from the perspective of patients, families and healthcare professionals: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 13(11), pp. 17-32. (10.11124/jbisrir-2015-2425)
- Wheelwright, S. J., Hopkinson, J. B., Darlington, A., Fitzsimmons, D. F. and Johnson, C. D. 2015. Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]. Journal of Cachexia, Sarcopenia and Muscle 6(4), pp. 471-509. (10.1002/jcsm.12087)
- Samuriwo, R., Anstey, S., Job, C., Coles, B. M., Cleves, A. and Hopkinson, J. B. 2015. The impact of nurse decision making on the pressure ulcer related clinical and quality related outcomes of adult patients in the last six months of life: a systematic review. PROSPERO International Prospective Register of Systematic Reviews, article number: CRD42015026756.
2014
- Hopkinson, J. B. 2014. Challenges to pain medicines management at home: commentary on the Schumacher et al. papers. Journal of Pain and Symptom Management 48(5), pp. 760-761. (10.1016/j.jpainsymman.2014.09.005)
- Aapro, M. et al. 2014. Early recognition of malnutrition and cachexia in the cancer patient: a position paper of a European School of Oncology Task Force. Annals of Oncology 25(8), pp. 1492-1499. (10.1093/annonc/mdu085)
- Latter, S. et al. 2014. Study protocol for a feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life. Working Papers in the Health Sciences 1(8), article number: 3.
- Hopkinson, J. B. 2014. Psychosocial impact of cancer cachexia. Journal of Cachexia, Sarcopenia and Muscle 5(2), pp. 89-94. (10.1007/s13539-014-0142-1)
- Edwards, D. J. and Hopkinson, J. B. 2014. Initiatives for improving the provision of assistance at mealtimes for older adults on hospital wards: a mixed methods systematic review [Poster presentation]. BMJ Supportive & Palliative Care 4, pp. A26-A27. (10.1136/bmjspcare-2014-000654.73.)
- Hopkinson, J. B. et al. 2014. Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication. BMJ Supportive & Palliative Care 4(Supp 1), article number: A7. (10.1136/bmjspcare-2014-000654.18)
2013
- Hane, H., Obeholzer, R., Walker, J., Hopkinson, J. B., de Wolf-Linder, S. and Strasser, F. 2013. Psychosocial consequences of cancer cachexia: the development of an item bank. Journal of Pain and Symptom Management 46(6), pp. 795-806. (10.1016/j.jpainsymman.2013.01.008)
- Oberholzer, R., Hopkinson, J. B., Baumann, K., Omlin, A., Kaasa, S., Fearon, K. C. and Strasser, F. 2013. Psychosocial effects of cancer cachexia: A systematic literature search and qualitative analysis. Journal of Pain and Symptom Management 46(1), pp. 77-95. (10.1016/j.jpainsymman.2012.06.020)
- Hopkinson, J. B., Fenlon, D. R. and Foster, C. L. 2013. Outcomes of a nurse-delivered psychosocial intervention for weight- and eating-related distress in family carers of patients with advanced cancer. International Journal of Palliative Nursing 19(3), pp. 116-123.
- Wheelwright, S., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2013. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Supportive Care in Cancer 21(9), pp. 2625-2636. (10.1007/s00520-013-1881-9)
2012
- Hoffman, C. J., Ersser, S. J. and Hopkinson, J. B. 2012. Mindfulness-based stress reduction in breast cancer: A qualitative analysis. Complementary Therapies in Clinical Practice 18(4), pp. 221-226. (10.1016/j.ctcp.2012.06.008)
- Preston, N. J. et al. 2012. Strategies to increase participant recruitment to research studies by healthcare professionals. The Cochrane Library 2012(9), article number: MR000036. (10.1002/14651858.MR000036)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life and wellbeing in stages 0 to III breast cancer: a randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life, and well-being in Stage 0 to III breast cancer: A randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer [Abstract]. Psycho-Oncology 21(s2), pp. 1-1. (10.10002/pon.3051)
- Hopkinson, J. B., Brown, J. C., Okamoto, I. and Addington-Hall, J. M. 2012. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. Journal of Pain and Symptom Management 43(1), pp. 111-142. (10.1016/j.jpainsymman.2011.03.013)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer. Presented at: Annual Conference of the British Psychosocial Oncology Society: Cancer Survivorship & Rehabilitation, Leeds, UK, 19-20 January 2012.
2011
- Hopkinson, J. B. and Brown, J. C. 2011. Security hunger: An understanding of cancer cachexia-related distress in families. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. and Scott, I. 2011. What do patients eat when living with advanced cancer: Findings from an exploratory trial of the Macmillan Approach to Weight loss and Eating (MAWE). Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. 2011. The clinical management of the emotional aspects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Oberholzer, R., Hopkinson, J. B., Baumann, K. and Omlin, A. 2011. A review on psychosocial effects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. . M. 2011. What to eat when off treatment and living with involuntary weight loss and cancer: a systematic search and narrative review. Supportive Care in Cancer 19(1), pp. 1-17. (10.1007/s00520-010-0964-0)
- Hopkinson, J. B. and Strasser, F. 2011. Psychosocial aspects of nutritional care of cancer patients. In: van Halteren, H. and Jatoi, A. eds. ESMO Handbook of Nutrition and Cancer. ESMO Handbooks Lugano: European Society for Medical Oncology (ESMO) Press, pp. 73-80.
2010
- Hopkinson, J. B., Fenlon, D. R., Okamoto, I., Wright, D. N. M., Scott, I., Addington-Hall, J. M. and Foster, C. 2010. The deliverability, acceptability, and perceived effect of the Macmillan approach to eeight loss and eating difficulties: a Phase II, cluster-randomized, exploratory trial of a psychosocial intervention for weight- and eating-related distress in people with advanced cancer. Journal of Pain and Symptom Management 40(5), pp. 684-695. (10.1016/j.jpainsymman.2010.02.015)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient-carer dyads on symptom experience: A systematic review.. Presented at: 6th European Association of Palliative Care (EAPC) Research Conference, Glasgow, UK, 10-12 June 2010.
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. M. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: a systematic review [Abstract]. Palliative Medicine 24(2), pp. 215. (10.1177/0269216310363376)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: A systematic review. Presented at: Palliative Care Congress, Bournemouth, UK, 10-12 March 2010.
- Hopkinson, J. B. 2010. The emotional aspects of cancer anorexia. Current Opinion in Supportive and Palliative Care 4(4), pp. 254-258. (10.1097/SPC.0b013e32833ef813)
- Del Fabbro, E. et al. eds. 2010. Nutrition and the cancer patient. Oxford: Oxford University Press.
- Hopkinson, J. B. and Bailey, C. 2010. Nutritional care of older people. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 471-476.
- Hawkins, C. et al. 2010. The multi-disciplinary approach to nutritional problems in patients with cancer. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 237-256.
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient -carer dyads on symptom experience: a systematic review. Palliative Medicine 24(4), pp. S36., article number: 106. (10.1177/0269216310366390)
2009
- Foster, C. et al. 2009. Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer. Project Report. [Online]. Macmillan Cancer Support. Available at: http://www.southampton.ac.uk/healthsciences/research/projects/supporting_relatives_an_investigation_into_obstacles_and_aids.page
- Foster, C., Wright, D., Hill, H., Hopkinson, J. B. and Roffe, L. 2009. Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. European Journal of Cancer Care 18(3), pp. 223-247. (10.1111/j.1365-2354.2008.01001.x)
- Hopkinson, J. B. et al. 2009. Overcoming obstacles to conducting trials in the context of palliative care: An exploratory phase II cluster randomised trial to investigate the effectiveness of the ‘Macmillan Approach to Weight loss and Eating difficulties’ (MAWE). Presented at: 11th EAPC Congress, Vienna, Austria, 7-10 May 2009. London, GB, Macmillan Cancer Report.
- Hopkinson, J. B. et al. 2009. A feasibility study: a mixed methods exploratory phase II cluster randomised trail to investigate the effectiveness of the 'Macmillan Approach to Weight loss and Eating difficulties'(MAWE).. Presented at: NCRI Cancer Conference, Birmingham, Birmingham, UK., 4-7 October 2009.
2008
- Hopkinson, J. B. 2008. Carers' influence on diets of people with advanced cancer. Nursing Times 104(12), pp. 28-29.
- Hopkinson, J. B., Wright, D., Foster, C. and Dewey, A. 2008. Correspondence. Letter to the editor. Re: Assessment and monitoring of nutritional status in patients with advanced cancer. IJPN 13 (6) 256-265. International Journal of Palliative Nursing 14(2), pp. 100-101.
- Hopkinson, J. B., Wright, D. N. M. and Foster, C. 2008. Management of weight loss and anorexia. Annals of Oncology 19(Supp7), pp. vii289-vii293. (10.1093/annonc/mdn452)
- Hopkinson, J. B., Foster, C., Roff, L. and Wright, D. N. M. 2008. Carer impact on self-management by people with advanced cancer living with changing eating habits [Oral presentation]. Presented at: 5th Research Forum of the European Association for Palliative Care (EAPC), Trondheim, Norway, 28-31 May 2008, Vol. 22. Vol. 1 supp. pp. 417-418., (10.1177/0269216308091582)
- Hopkinson, J. B. 2008. Change in eating habits. In: Corner, J. and Bailey, C. eds. Cancer nursing: care in context. Oxford: Blackwell, pp. 525-532.
- Hopkinson, J. B. 2008. Patients with advanced cancer used 4 self-action strategies to manage eating-related problems. Evidence Based Nursing 11(2), article number: 61. (10.1136/ebn.11.2.61)
2007
- Walsh, B., Roberts, H. and Hopkinson, J. B. 2007. Emergency hospital admissions for ill-defined conditions amongst older people: a review of the literature. International Journal of Older People Nursing 2(4), pp. 270-277. (10.1111/j.1748-3743.2007.00093.x)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Corner, J., Wright, D., Hopkinson, J. B., Gunaratnam, Y., McDonald, J. W. and Foster, C. 2007. The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study. British Journal of Cancer 96(6), pp. 875-881. (10.1038/sj.bjc.6603662)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Hopkinson, J. B. 2007. Focus on solutions: a health professional's guide. Journal of Advanced Nursing 57(3), pp. 353. (10.1111/j.1365-2648.2007.04196.x)
- Hopkinson, J. B. 2007. Qualitative research practice [Book Review]. Journal of Advanced Nursing 60(6), pp. 708. (10.1111/j.1365-2648.2007.04519_9.x)
- Wright, D. N. M., Corner, J. L., Hopkinson, J. B. and Foster, C. L. 2007. The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9(S2), article number: S3. (10.1186/bcr1801)
- Hopkinson, J. 2007. People with advanced cancer and their care givers in conflict over food. Presented at: 2007 International Nursing Research Conference, Dundee, UK, 1 -4 May 2007The 2007 International Nursing Research Conference: Book of Abstracts.. London: Royal College of Nursing pp. 106.
2006
- Wright, D. N., Hopkinson, J. B., Corner, J. L. and Foster, C. L. 2006. How to involve cancer patients at the end of life as co-researchers. Palliative Medicine 20(8), pp. 821-827. (10.1177/0269216306073110)
- Hopkinson, J. B., Wright, D., McDonald, J. and Corner, J. 2006. The Prevalence of Concern About Weight Loss and Change in Eating Habits in People with Advanced Cancer. Journal of Pain and Symptom Management 32(4), pp. 322-331. (10.1016/j.jpainsymman.2006.05.012)
- Hopkinson, J. B., Wright, D. and Corner, J. 2006. Exploring the experience of weight loss in people with advanced cancer. Journal of Advanced Nursing 54(3), pp. 304-312. (10.1111/j.1365-2648.2006.03818.x)
- Corner, J., Hopkinson, J. B. and Roffe, L. 2006. Experience of health changes and reasons for delay in seeking care: a UK study of the months prior to the diagnosis of lung cancer. Social Science & Medicine 62(6), pp. 1381-1391. (10.1016/j.socscimed.2005.08.012)
- Wright, D., Corner, J., Hopkinson, J. B. and Foster, C. 2006. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expectations 9(1), pp. 3-12. (10.1111/j.1369-7625.2006.00353.x)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2006. Self management and cancer. Proceedings of the British Psychological Society 14(1), pp. 23.
- Hopkinson, J. B. and Corner, J. 2006. Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals. Journal of Pain and Symptom Management 31(4), pp. 293-305. (10.1016/j.jpainsymman.2005.09.005)
- Hopkinson, J. B. 2006. The complete guide to relieving cancer pain and suffering [Book Review]. Journal of Advanced Nursing 56(3), pp. 339. (10.1111/j.1365-2648.2006.04066.x)
2005
- Hopkinson, J. B., Wright, D. N. M. and Corner, J. L. 2005. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliative Medicine 19(7), pp. 532-537. (10.1191/0269216305pm1049oa)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2005. Everyday death: how do nurses cope with caring for dying people in hospital?. International Journal of Nursing Studies 42(2), pp. 125-133. (10.1016/j.ijnurstu.2004.06.004)
- Corner, J., Hopkinson, J. B., Fitzsimmons, D., Barclay, S. and Muers, M. 2005. Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Thorax 60(4), pp. 314-319. (10.1136/thx.2004.029264)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2005. Supporting self management of people affected by cancer: a review of the evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. B. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Project Report. Macmillan Research Unit.
2004
- Hopkinson, J. B. and Amir, Z. 2004. New name, more care. Macmillan Voice 30(6)
2003
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2003. Caring for dying people in hospital. Journal of Advanced Nursing 44(5), pp. 525-533. (10.1046/j.0309-2402.2003.02836.x)
2002
- Hopkinson, J. B. 2002. The hidden benefit: the supportive function of the nursing handover for qualified nurses caring for dying people in hospital. Journal of Clinical Nursing 11(2), pp. 168-175. (10.1046/j.1365-2702.2002.00576.x)
- Hopkinson, J. and Hopkinson, M. 2002. Nursing staff shortages - managing risk at source. Health Care Risk Report, pp. 16-17.
2001
- Hopkinson, J. B. and Hallett, C. E. 2001. Patients’ perceptions of hospice day care: a phenomenological study. International Journal of Nursing Studies 38(1), pp. 117-125. (10.1016/S0020-7489(00)00045-6)
- Hopkinson, J. B. 2001. Facilitating the development of clinical skills in caring for dying people in hospital. Nurse Education Today 21(8), pp. 632-639. (10.1054/nedt.2001.0667)
- Hopkinson, M. and Hopkinson, J. 2001. NHS complaints statistics. Health Care Risk Report 7(6), pp. 16-17.
- Hopkinson, M. and Hopkinson, J. 2001. Risk management in the NHS: adapting risk management techniques for the commercial world. Health Care Risk Report 7(2), pp. 19-20.
- Hopkinson, M. J. and Hopkinson, J. 2001. Adapting risk identification techniques from business. Health Care Risk Report 7(8), pp. 18-19.
- Hopkinson, M. and Hopkinson, J. 2001. Adapting risk treatment techniques from business. Health Care Risk Report 8(1), pp. 16-19.
Articles
- Koshimoto, S. et al. 2025. Sex-related differences in eating-related distress experienced by patients with advanced cancer. Supportive Care in Cancer 33(3), article number: 241. (10.1007/s00520-025-09302-2)
- Csontos, J., Edwards, D., Gillen, E., Ferreira Semedo, L. and Hopkinson, J. 2024. Intervention combinations within multimodal prehabilitation and their effect on health-related quality of life, fatigue, and adherence in the adult cancer population: an umbrella review protocol. JBI Evidence Synthesis (10.11124/JBIES-23-00253)
- Watts, T. et al. 2024. Access, acceptance and adherence to cancer prehabilitation: a mixed-methods systematic review. Journal of Cancer Survivorship (10.1007/s11764-024-01605-3)
- Gale, N., Jones, U., Rees, T., Hicks, A., Davies, J., Holliday, S. and Hopkinson, J. 2024. A cancer personalised activity and lifestyle tool (CAN-PAL): a codesign study with patients and healthcare professionals. Journal of Clinical Nursing 33(2), pp. 572-579. (10.1111/jocn.16931)
- Hopkinson, J. B. 2023. The role of the nurse in meeting the educational needs for self-care in cachectic cancer patients and their family caregivers: a scoping review. Asia-Pacific Journal of Oncology Nursing 10(1), article number: 100294. (10.1016/j.apjon.2023.100294)
- Amano, K., Hopkinson, J. B., Baracos, V. E. and Mori, N. 2023. Holistic multimodal care for patients with cancer cachexia and their family caregivers. Asia-Pacific Journal of Oncology Nursing 10(Supp 1), article number: 100290. (10.1016/j.apjon.2023.100290)
- Blum, D. et al. 2023. Top ten tips palliative care clinicians should know about cachexia. Journal of Palliative Medicine 26(8), pp. 1133-1138. (10.1089/jpm.2022.0598)
- Amano, K. et al. 2023. Factors associated with practice of multimodal care for cancer cachexia among physicians and nurses engaging in cancer care. JCO Oncology Practice 19(8), pp. 602-609. (10.1200/OP.23.00043)
- Hopkinson, J. B. 2023. Educational needs of self-care in cachectic cancer patients and caregivers. Current Opinion in Oncology 35(4), pp. 254-260. (10.1097/CCO.0000000000000948)
- Ashley, L. et al. 2023. Cancer care for people with dementia: literature overview and recommendations for practice and research. CA: A Cancer Journal for Clinicians 73(3), pp. 320-338. (10.3322/caac.21767)
- Gale, N., Hopkinson, J., Wasley, D. and Byrne, A. 2023. The promotion of homebased physical activity for people with lung and cancer cachexia, a qualitative study of healthcare professionals, patients and carers. Journal of Cancer Survivorship 17, pp. 677-685. (10.1007/s11764-023-01376-3)
- Mathlin, J., Courtier, N. and Hopkinson, J. 2023. Taste changes during radiotherapy for head and neck cancer. Radiography 29(4), pp. 746-751. (10.1016/j.radi.2023.05.004)
- Amano, K. et al. 2023. Development and validation of questionnaires for eating‐related distress among advanced cancer patients and families. Journal of Cachexia, Sarcopenia and Muscle 14(1), pp. 310-325. (10.1002/jcsm.13133)
- Amano, K., Hopkinson, J. and Baracos, V. 2022. Psychological symptoms of illness and emotional distress in advanced cancer cachexia. Current Opinion in Clinical Nutrition and Metabolic Care 25(3), pp. 167-172. (10.1097/MCO.0000000000000815)
- Fry, S., Hopkinson, J. and Kelly, D. 2022. “We’re talking about black men here, there’s a difference” Cultural differences in socialised knowledge of prostate cancer risk: a qualitative research study. European Journal of Oncology Nursing 56, article number: 102080. (10.1016/j.ejon.2021.102080)
- Courtier, N., Armes, J., Smith, A., Radley, L. and Hopkinson, J. 2022. Targeted self-management limits fatigue for women undergoing radiotherapy for early breast cancer: results from the ACTIVE randomised feasibility trial. Supportive Care in Cancer 30, pp. 389-400. (10.1007/s00520-021-06360-0)
- Hopkinson, J. B. 2021. The psychosocial components of multimodal interventions offered to people with cancer cachexia: a scoping review. Asia-Pacific Journal of Oncology Nursing 8(5), pp. 450-461. (10.4103/apjon.apjon-219)
- Maunsell, R., Sodergren, S., Hopkinson, J., Shaw, C., Foster, C. and Wheelwright, S. 2021. Nutritional care in colorectal cancer-what is the state of play?. Colorectal Disease (10.1111/codi.15933)
- Hopkinson, J. et al. 2021. Crisis management for people with dementia at home: mixed-methods case study research to identify critical factors for successful home treatment. Health and Social Care in the Community 29(4), pp. 1072-1082. (10.1111/hsc.13141)
- Hopkinson, J. B. et al. 2021. What happens before, during and after crisis for someone with dementia living at home: a systematic review. Dementia 20(2), pp. 570-612. (10.1177/1471301220901634)
- Hopkinson, J., King, A., Courtier, N., Milton, R. and Elias, J. 2020. Potential for identification of memory problems in the cancer clinic to enable improved treatment experience and outcomes: mixed methods case study research. European Journal of Oncology Nursing 48, article number: 101777. (10.1016/j.ejon.2020.101777)
- Hopkinson, J., Kazmi, C., Elias, J., Wheelwright, S., Williams, R. and Russell, A. 2020. Diet and weight management by people with non-metastatic colorectal cancer during chemotherapy: mixed methods research. Colorectal Cancer 9(2), article number: CRC16. (10.2217/crc-2019-0017)
- Fry, S., Kelly, D. and Hopkinson, J. 2020. Using card games to study cultural differences in men’s social talk about prostate cancer. Journal of Advanced Nursing 76(7), pp. 1840-1849. (10.1111/jan.14373)
- Samuriwo, R., Candida, L., Anstey, S., Job, C. and Hopkinson, J. 2020. Nurses' decision-making about cancer patients end of life skin care in Wales: an exploratory mixed method vignette study protocol. BMJ Open 10(7), article number: e034938. (10.1136/bmjopen-2019-034938)
- Amano, K., Baracos, V. and Hopkinson, J. 2019. Integration of palliative, supportive, and nutritional care to alleviate eating-related distress among advanced cancer patients with cachexia and their family members. Critical Reviews in Oncology/Hematology 143, pp. 117-123. (10.1016/j.critrevonc.2019.08.006)
- Hopkinson, J. 2018. Psychosocial support in cancer cachexia syndrome: the evidence for supportedself-management of eating problems during radiotherapy or chemotherapy treatment. Asia-Pacific Journal of Oncology Nursing 5(4), pp. 358-368. (10.4103/apjon.apjon_12_18)
- Courtier, N. et al. 2018. ACTIVE: a randomised feasibility trial of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for early breast cancer: study protocol. Pilot and Feasibility Studies 4, article number: 85. (10.1186/s40814-018-0275-7)
- Hopkinson, J. 2018. The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of people with advanced cancer and eating problems. Cancer Nursing 41(2), pp. 131-138. (10.1097/NCC.0000000000000474)
- Latter, S. et al. 2018. Supporting carers to manage pain medication in cancer patients at the end of life: a feasibility trial. Palliative Medicine 32(1), pp. 246-256. (10.1177/0269216317715197)
- Barker, S., Lynch, M. and Hopkinson, J. 2017. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. International Journal Palliative Nursing 23(9), pp. 446-456. (10.12968/ijpn.2017.23.9.446)
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Edwards, D., Carrier, J. and Hopkinson, J. 2017. Assistance at mealtimes in hospital settings and rehabilitation units for patients (>65 years) from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. International Journal of Nursing Studies 69, pp. 100-118. (10.1016/j.ijnurstu.2017.01.013)
- Wheelwright, S. J. et al. 2017. Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. Journal of Pain and Symptom Management 53(2), pp. 232-242. (10.1016/j.jpainsymman.2016.09.010)
- Maddocks, M., Hopkinson, J. and Conibear, J. 2016. Practical multimodal care for cancer cachexia. Current Opinion in Supportive and Palliative Care 10(4), pp. 298-305. (10.1097/SPC.0000000000000241)
- Ngandu, H., Gale, N. and Hopkinson, J. 2016. Non-invasive ventilation in older people with acute respiratory failure: review. European Respiratory Review 25(142), pp. 451-471. (10.1183/16000617.0002-2016)
- Hopkinson, J. B., Milton, R., King, A. and Edwards, D. 2016. People with dementia: what is known about their experience of cancer treatment and cancer treatment outcomes? A systematic review. Psycho-Oncology 25(10), pp. 1137 -1146. (10.1002/pon.4185)
- Field, J., Richardson, A., Hopkinson, J. and Fenlon, D. 2016. Nordic walking as an exercise intervention to reduce pain in women with aromatase inhibitor associated arthralgia: a feasibility study. Journal of Pain and Symptom Management 52(4), pp. 548-559. (10.1016/j.jpainsymman.2016.03.010)
- Courtier, N., Milton, R., King, A., Tope, R., Morgan, S. and Hopkinson, J. 2016. Cancer and dementia: an exploratory study of the experience of cancer treatment in people with dementia. Psycho-Oncology 25(9), pp. 1079-1084. (10.1002/pon.4212)
- Latter, S., Hopkinson, J. B., Richardson, A., Hughes, J. A., Lowson, E. and Edwards, D. 2016. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Supportive and Palliative Care 6(3), pp. 263-275. (10.1136/bmjspcare-2015-000958)
- Edwards, D., Carrier, J. and Hopkinson, J. 2016. Mealtime assistance for older adults in hospital settings and rehabilitation units from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. JBI Database of Systematic Reviews and Implementation Reports 14(9), pp. 261-357. (10.11124/JBISRIR-2016-003100)
- Evans, N. and Hopkinson, J. B. 2016. How action researchers use anxiety to facilitate change in health care. Journal of Clinical Nursing 25(11-12), pp. 1674-1682. (10.1111/jocn.13186)
- Job, C., Anstey, S. and Hopkinson, J. B. 2016. Learning from the experiences of cancer patients and their carers. Cancer Nursing Practice 15(4), pp. 14-20. (10.7748/cnp.15.4.14.s18)
- Edwards, D. J., Anstey, S. V., Kelly, D. M. and Hopkinson, J. B. 2016. An innovation in curriculum content and delivery of cancer education within undergraduate nurse training in the UK. What impact does this have on the knowledge, attitudes and confidence in delivering cancer care?. European Journal of Oncology Nursing 21, pp. 8-16. (10.1016/j.ejon.2015.12.003)
- Preston, N. J. et al. 2016. Strategies designed to help healthcare professionals to recruit participants to research studies. Cochrane Database of Systematic Reviews 2, article number: MR000036. (10.1002/14651858.MR000036.pub2)
- Hopkinson, J. 2016. Food connections: a qualitative exploratory study of weight- and eating-related distress in families affected by advanced cancer. European Journal of Oncology Nursing 20, pp. 87-96. (10.1016/j.ejon.2015.06.002)
- Wheelwright, S., Darlington, A. S., Hopkinson, J. B., Fitzsimmons, D. and Johnson, C. 2016. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliative Medicine 30(2), pp. 149-160. (10.1177/0269216315588743)
- King, A., Hopkinson, J. B. and Milton, R. 2016. Reflections of a team approach to involving people with dementia in research. International Journal of Palliative Nursing 22(1), pp. 372-377. (10.12968/ijpn.2016.22.1.22)
- Wheelwright, S. J., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2016. A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia. BMJ Supportive & Palliative Care 6(3), pp. 307-314. (10.1136/bmjspcare-2014-000680)
- Hopkinson, J. B. 2015. The nursing contribution to the nutritional care of people with cancer cachexia. Proceedings of the Nutrition Society 74(4), pp. 413-418. (10.1017/S0029665115002384)
- Foster, C. et al. 2015. You can't say, 'What about me?' I'm not the one with cancer": information and support needs of relatives. Psycho-Oncology 24(6), pp. 705-711. (10.1002/pon.3716)
- Hopkinson, J. B. 2015. Nutritional support of the elderly cancer patient: the role of the nurse. Nutrition 31(4), pp. 598-602. (10.1016/j.nut.2014.12.013)
- Hopkinson, J. B. et al. 2015. Cancer Carers Medicines Management: a study to develop and test an educational intervention for carers of cancer patients approaching end of life at home [Abstract]. Supportive Care in Cancer 23(1), pp. S61. (10.1007/s00520-015-2712-y)
- Hopkinson, J. B. and Richardson, A. 2015. A mixed-methods qualitative research study to develop a complex intervention for weight loss and anorexia in advanced cancer: the Family Approach to Weight and Eating (FAWE). Palliative Medicine 29(2), pp. 164-176. (10.1177/0269216314556924)
- Edwards, D. J., Carrier, J. A. K. and Hopkinson, J. B. 2015. Assistance at mealtimes in hospital settings and rehabilitation units for older adults from the perspective of patients, families and healthcare professionals: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 13(11), pp. 17-32. (10.11124/jbisrir-2015-2425)
- Wheelwright, S. J., Hopkinson, J. B., Darlington, A., Fitzsimmons, D. F. and Johnson, C. D. 2015. Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]. Journal of Cachexia, Sarcopenia and Muscle 6(4), pp. 471-509. (10.1002/jcsm.12087)
- Samuriwo, R., Anstey, S., Job, C., Coles, B. M., Cleves, A. and Hopkinson, J. B. 2015. The impact of nurse decision making on the pressure ulcer related clinical and quality related outcomes of adult patients in the last six months of life: a systematic review. PROSPERO International Prospective Register of Systematic Reviews, article number: CRD42015026756.
- Hopkinson, J. B. 2014. Challenges to pain medicines management at home: commentary on the Schumacher et al. papers. Journal of Pain and Symptom Management 48(5), pp. 760-761. (10.1016/j.jpainsymman.2014.09.005)
- Aapro, M. et al. 2014. Early recognition of malnutrition and cachexia in the cancer patient: a position paper of a European School of Oncology Task Force. Annals of Oncology 25(8), pp. 1492-1499. (10.1093/annonc/mdu085)
- Latter, S. et al. 2014. Study protocol for a feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life. Working Papers in the Health Sciences 1(8), article number: 3.
- Hopkinson, J. B. 2014. Psychosocial impact of cancer cachexia. Journal of Cachexia, Sarcopenia and Muscle 5(2), pp. 89-94. (10.1007/s13539-014-0142-1)
- Edwards, D. J. and Hopkinson, J. B. 2014. Initiatives for improving the provision of assistance at mealtimes for older adults on hospital wards: a mixed methods systematic review [Poster presentation]. BMJ Supportive & Palliative Care 4, pp. A26-A27. (10.1136/bmjspcare-2014-000654.73.)
- Hopkinson, J. B. et al. 2014. Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication. BMJ Supportive & Palliative Care 4(Supp 1), article number: A7. (10.1136/bmjspcare-2014-000654.18)
- Hane, H., Obeholzer, R., Walker, J., Hopkinson, J. B., de Wolf-Linder, S. and Strasser, F. 2013. Psychosocial consequences of cancer cachexia: the development of an item bank. Journal of Pain and Symptom Management 46(6), pp. 795-806. (10.1016/j.jpainsymman.2013.01.008)
- Oberholzer, R., Hopkinson, J. B., Baumann, K., Omlin, A., Kaasa, S., Fearon, K. C. and Strasser, F. 2013. Psychosocial effects of cancer cachexia: A systematic literature search and qualitative analysis. Journal of Pain and Symptom Management 46(1), pp. 77-95. (10.1016/j.jpainsymman.2012.06.020)
- Hopkinson, J. B., Fenlon, D. R. and Foster, C. L. 2013. Outcomes of a nurse-delivered psychosocial intervention for weight- and eating-related distress in family carers of patients with advanced cancer. International Journal of Palliative Nursing 19(3), pp. 116-123.
- Wheelwright, S., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2013. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Supportive Care in Cancer 21(9), pp. 2625-2636. (10.1007/s00520-013-1881-9)
- Hoffman, C. J., Ersser, S. J. and Hopkinson, J. B. 2012. Mindfulness-based stress reduction in breast cancer: A qualitative analysis. Complementary Therapies in Clinical Practice 18(4), pp. 221-226. (10.1016/j.ctcp.2012.06.008)
- Preston, N. J. et al. 2012. Strategies to increase participant recruitment to research studies by healthcare professionals. The Cochrane Library 2012(9), article number: MR000036. (10.1002/14651858.MR000036)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life and wellbeing in stages 0 to III breast cancer: a randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life, and well-being in Stage 0 to III breast cancer: A randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer [Abstract]. Psycho-Oncology 21(s2), pp. 1-1. (10.10002/pon.3051)
- Hopkinson, J. B., Brown, J. C., Okamoto, I. and Addington-Hall, J. M. 2012. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. Journal of Pain and Symptom Management 43(1), pp. 111-142. (10.1016/j.jpainsymman.2011.03.013)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. . M. 2011. What to eat when off treatment and living with involuntary weight loss and cancer: a systematic search and narrative review. Supportive Care in Cancer 19(1), pp. 1-17. (10.1007/s00520-010-0964-0)
- Hopkinson, J. B., Fenlon, D. R., Okamoto, I., Wright, D. N. M., Scott, I., Addington-Hall, J. M. and Foster, C. 2010. The deliverability, acceptability, and perceived effect of the Macmillan approach to eeight loss and eating difficulties: a Phase II, cluster-randomized, exploratory trial of a psychosocial intervention for weight- and eating-related distress in people with advanced cancer. Journal of Pain and Symptom Management 40(5), pp. 684-695. (10.1016/j.jpainsymman.2010.02.015)
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. M. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: a systematic review [Abstract]. Palliative Medicine 24(2), pp. 215. (10.1177/0269216310363376)
- Hopkinson, J. B. 2010. The emotional aspects of cancer anorexia. Current Opinion in Supportive and Palliative Care 4(4), pp. 254-258. (10.1097/SPC.0b013e32833ef813)
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient -carer dyads on symptom experience: a systematic review. Palliative Medicine 24(4), pp. S36., article number: 106. (10.1177/0269216310366390)
- Foster, C., Wright, D., Hill, H., Hopkinson, J. B. and Roffe, L. 2009. Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. European Journal of Cancer Care 18(3), pp. 223-247. (10.1111/j.1365-2354.2008.01001.x)
- Hopkinson, J. B. 2008. Carers' influence on diets of people with advanced cancer. Nursing Times 104(12), pp. 28-29.
- Hopkinson, J. B., Wright, D., Foster, C. and Dewey, A. 2008. Correspondence. Letter to the editor. Re: Assessment and monitoring of nutritional status in patients with advanced cancer. IJPN 13 (6) 256-265. International Journal of Palliative Nursing 14(2), pp. 100-101.
- Hopkinson, J. B., Wright, D. N. M. and Foster, C. 2008. Management of weight loss and anorexia. Annals of Oncology 19(Supp7), pp. vii289-vii293. (10.1093/annonc/mdn452)
- Hopkinson, J. B. 2008. Patients with advanced cancer used 4 self-action strategies to manage eating-related problems. Evidence Based Nursing 11(2), article number: 61. (10.1136/ebn.11.2.61)
- Walsh, B., Roberts, H. and Hopkinson, J. B. 2007. Emergency hospital admissions for ill-defined conditions amongst older people: a review of the literature. International Journal of Older People Nursing 2(4), pp. 270-277. (10.1111/j.1748-3743.2007.00093.x)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Corner, J., Wright, D., Hopkinson, J. B., Gunaratnam, Y., McDonald, J. W. and Foster, C. 2007. The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study. British Journal of Cancer 96(6), pp. 875-881. (10.1038/sj.bjc.6603662)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Hopkinson, J. B. 2007. Focus on solutions: a health professional's guide. Journal of Advanced Nursing 57(3), pp. 353. (10.1111/j.1365-2648.2007.04196.x)
- Hopkinson, J. B. 2007. Qualitative research practice [Book Review]. Journal of Advanced Nursing 60(6), pp. 708. (10.1111/j.1365-2648.2007.04519_9.x)
- Wright, D. N. M., Corner, J. L., Hopkinson, J. B. and Foster, C. L. 2007. The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9(S2), article number: S3. (10.1186/bcr1801)
- Wright, D. N., Hopkinson, J. B., Corner, J. L. and Foster, C. L. 2006. How to involve cancer patients at the end of life as co-researchers. Palliative Medicine 20(8), pp. 821-827. (10.1177/0269216306073110)
- Hopkinson, J. B., Wright, D., McDonald, J. and Corner, J. 2006. The Prevalence of Concern About Weight Loss and Change in Eating Habits in People with Advanced Cancer. Journal of Pain and Symptom Management 32(4), pp. 322-331. (10.1016/j.jpainsymman.2006.05.012)
- Hopkinson, J. B., Wright, D. and Corner, J. 2006. Exploring the experience of weight loss in people with advanced cancer. Journal of Advanced Nursing 54(3), pp. 304-312. (10.1111/j.1365-2648.2006.03818.x)
- Corner, J., Hopkinson, J. B. and Roffe, L. 2006. Experience of health changes and reasons for delay in seeking care: a UK study of the months prior to the diagnosis of lung cancer. Social Science & Medicine 62(6), pp. 1381-1391. (10.1016/j.socscimed.2005.08.012)
- Wright, D., Corner, J., Hopkinson, J. B. and Foster, C. 2006. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expectations 9(1), pp. 3-12. (10.1111/j.1369-7625.2006.00353.x)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2006. Self management and cancer. Proceedings of the British Psychological Society 14(1), pp. 23.
- Hopkinson, J. B. and Corner, J. 2006. Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals. Journal of Pain and Symptom Management 31(4), pp. 293-305. (10.1016/j.jpainsymman.2005.09.005)
- Hopkinson, J. B. 2006. The complete guide to relieving cancer pain and suffering [Book Review]. Journal of Advanced Nursing 56(3), pp. 339. (10.1111/j.1365-2648.2006.04066.x)
- Hopkinson, J. B., Wright, D. N. M. and Corner, J. L. 2005. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliative Medicine 19(7), pp. 532-537. (10.1191/0269216305pm1049oa)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2005. Everyday death: how do nurses cope with caring for dying people in hospital?. International Journal of Nursing Studies 42(2), pp. 125-133. (10.1016/j.ijnurstu.2004.06.004)
- Corner, J., Hopkinson, J. B., Fitzsimmons, D., Barclay, S. and Muers, M. 2005. Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Thorax 60(4), pp. 314-319. (10.1136/thx.2004.029264)
- Hopkinson, J. B. and Amir, Z. 2004. New name, more care. Macmillan Voice 30(6)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2003. Caring for dying people in hospital. Journal of Advanced Nursing 44(5), pp. 525-533. (10.1046/j.0309-2402.2003.02836.x)
- Hopkinson, J. B. 2002. The hidden benefit: the supportive function of the nursing handover for qualified nurses caring for dying people in hospital. Journal of Clinical Nursing 11(2), pp. 168-175. (10.1046/j.1365-2702.2002.00576.x)
- Hopkinson, J. and Hopkinson, M. 2002. Nursing staff shortages - managing risk at source. Health Care Risk Report, pp. 16-17.
- Hopkinson, J. B. and Hallett, C. E. 2001. Patients’ perceptions of hospice day care: a phenomenological study. International Journal of Nursing Studies 38(1), pp. 117-125. (10.1016/S0020-7489(00)00045-6)
- Hopkinson, J. B. 2001. Facilitating the development of clinical skills in caring for dying people in hospital. Nurse Education Today 21(8), pp. 632-639. (10.1054/nedt.2001.0667)
- Hopkinson, M. and Hopkinson, J. 2001. NHS complaints statistics. Health Care Risk Report 7(6), pp. 16-17.
- Hopkinson, M. and Hopkinson, J. 2001. Risk management in the NHS: adapting risk management techniques for the commercial world. Health Care Risk Report 7(2), pp. 19-20.
- Hopkinson, M. J. and Hopkinson, J. 2001. Adapting risk identification techniques from business. Health Care Risk Report 7(8), pp. 18-19.
- Hopkinson, M. and Hopkinson, J. 2001. Adapting risk treatment techniques from business. Health Care Risk Report 8(1), pp. 16-19.
Book sections
- Hopkinson, J. B. and Strasser, F. 2011. Psychosocial aspects of nutritional care of cancer patients. In: van Halteren, H. and Jatoi, A. eds. ESMO Handbook of Nutrition and Cancer. ESMO Handbooks Lugano: European Society for Medical Oncology (ESMO) Press, pp. 73-80.
- Hopkinson, J. B. and Bailey, C. 2010. Nutritional care of older people. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 471-476.
- Hawkins, C. et al. 2010. The multi-disciplinary approach to nutritional problems in patients with cancer. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 237-256.
- Hopkinson, J. B. 2008. Change in eating habits. In: Corner, J. and Bailey, C. eds. Cancer nursing: care in context. Oxford: Blackwell, pp. 525-532.
Books
- Del Fabbro, E. et al. eds. 2010. Nutrition and the cancer patient. Oxford: Oxford University Press.
Conferences
- Csontos, J. et al. 2021. Cancer memory mate: implementing a healthcare innovation to support the management of cancer treatments and side effects in people with memory problems in South Wales, UK. Presented at: 2021 UKONS Annual Conference, Virtual, 11-13 November 2021.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Nurse decision making about the delivery of skin care to patients with advanced cancer at the end of life: a qualitative exploratory study. Presented at: Tissue Viability Society Conference, Newcastle, UK, 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Quality improvement in end of life skin care. Nurse decision making about the delivery of skin care to advanced cancer patients at the end of life: exploratory qualitative research. Presented at: European Wound Management Association Virtual Conference (EWMA 2018), Krakow, Poland, 9-11 May 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Developing a decision making tool for nurses to improve end of life skin care for advanced cancer patients: a qualitative exploratory study. Presented at: 20th Annual Meeting of European Pressure Ulcer Advisory Panel (EPUAP 2018), Rome, Italy, 12-14 September 2018.
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer. Presented at: Annual Conference of the British Psychosocial Oncology Society: Cancer Survivorship & Rehabilitation, Leeds, UK, 19-20 January 2012.
- Hopkinson, J. B. and Brown, J. C. 2011. Security hunger: An understanding of cancer cachexia-related distress in families. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. and Scott, I. 2011. What do patients eat when living with advanced cancer: Findings from an exploratory trial of the Macmillan Approach to Weight loss and Eating (MAWE). Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. 2011. The clinical management of the emotional aspects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Oberholzer, R., Hopkinson, J. B., Baumann, K. and Omlin, A. 2011. A review on psychosocial effects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient-carer dyads on symptom experience: A systematic review.. Presented at: 6th European Association of Palliative Care (EAPC) Research Conference, Glasgow, UK, 10-12 June 2010.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: A systematic review. Presented at: Palliative Care Congress, Bournemouth, UK, 10-12 March 2010.
- Hopkinson, J. B. et al. 2009. Overcoming obstacles to conducting trials in the context of palliative care: An exploratory phase II cluster randomised trial to investigate the effectiveness of the ‘Macmillan Approach to Weight loss and Eating difficulties’ (MAWE). Presented at: 11th EAPC Congress, Vienna, Austria, 7-10 May 2009. London, GB, Macmillan Cancer Report.
- Hopkinson, J. B. et al. 2009. A feasibility study: a mixed methods exploratory phase II cluster randomised trail to investigate the effectiveness of the 'Macmillan Approach to Weight loss and Eating difficulties'(MAWE).. Presented at: NCRI Cancer Conference, Birmingham, Birmingham, UK., 4-7 October 2009.
- Hopkinson, J. B., Foster, C., Roff, L. and Wright, D. N. M. 2008. Carer impact on self-management by people with advanced cancer living with changing eating habits [Oral presentation]. Presented at: 5th Research Forum of the European Association for Palliative Care (EAPC), Trondheim, Norway, 28-31 May 2008, Vol. 22. Vol. 1 supp. pp. 417-418., (10.1177/0269216308091582)
- Hopkinson, J. 2007. People with advanced cancer and their care givers in conflict over food. Presented at: 2007 International Nursing Research Conference, Dundee, UK, 1 -4 May 2007The 2007 International Nursing Research Conference: Book of Abstracts.. London: Royal College of Nursing pp. 106.
Monographs
- Hopkinson, J., Watts, T., Abdi, A. and Chivers, E. 2021. What is known about oral nutritional care of patients receiving radiotherapy, chemotherapy or chemoradiotherapy for colorectal cancer? A systematic review and narrative synthesis.. NIHR CRD. Available at: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020178160
- Samuriwo, R., Henley, J., Anstey, S., Job, C., Williams, D. and Hopkinson, J. 2018. Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory qualitative study. Cardiff University.
- Foster, C. et al. 2009. Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer. Project Report. [Online]. Macmillan Cancer Support. Available at: http://www.southampton.ac.uk/healthsciences/research/projects/supporting_relatives_an_investigation_into_obstacles_and_aids.page
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2005. Supporting self management of people affected by cancer: a review of the evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. B. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Project Report. Macmillan Research Unit.
Ymchwil
Prosiectau cyfredol
Prehab cynhwysol (I-Prehab) i fynd i'r afael ag annhegwch mewn canlyniadau canser: ymchwil gwerthuso dulliau cymysg i wella mynediad, derbyn a glynu. Prosiect HSDR: NIHR 151668
Deall a nodi ffyrdd o wneud y gorau o adnabod canser, atgyfeirio a rheoli ar gyfer pobl â dementia mewn gofal sylfaenol a chymunedol: astudiaeth cyfweliad ansoddol. NIHR RfPB
Prosiect datblygu gallu ymchwil nyrs a therapïau Canolfan Ganser Felindre: cynllun Cymrodoriaeth Ymchwil Canser Gofal Iechyd Felindre a ariennir gan Elusen Felindre.
Byddwch yn Barod am Driniaeth - Colorectal Digital (BeTR-C Digital), offeryn gofal iechyd digidol ar gyfer gwell gofal maethol i bobl â chanser colorectal sy'n derbyn triniaeth cemotherapi. Cronfa Kickstart Drosiadol: Cyllid Catalydd.
Bwyta-CIT dilynol: cymeriant llafar a gofal maethol cleifion sy'n derbyn triniaeth anlawfeddygol ar gyfer canser colorectal: adolygiad systematig a synthesis naratif.
Pa ffactorau y dylid eu hystyried wrth wneud penderfyniad ar y cyd â chleifion a gofalwyr i ddechrau a rhoi'r gorau i faeth artiffisial ar ddiwedd oes? Cymrodoriaeth Ymchwil Pan Llundain a gynhaliwyd gan Jennifer McCracken, Dietegydd.
Prosiectau ymchwil diweddar
Rheoli cemotherapi geneuol yn y cartref: astudiaeth achos archwiliadol o ymlyniad triniaeth mewn pobl â chanser sy'n byw yng nghymoedd De-ddwyrain Cymru. Ariannwyd gan: KESS2: Ysgoloriaethau Sgiliau Economi Gwybodaeth, Cronfa Gymdeithasol Ewrop.
Astudiaeth maes ryngwladol ar gyfer dibynadwyedd a dilysrwydd modiwl cachecsia canser EORTC (yr EORTC QLQ-CAX24) a'r QLQ-C30 EORTC ar gyfer asesu ansawdd bywyd mewn cleifion canser â cachecsia. Cyhoeddwyd gan: The European Organization for Research and Treatment of Cancer Quality of Life Group.
Cof Canser Mate: gwerthusiad o lansio a gweithredu arloesedd Felindre i gefnogi triniaeth canser glynu a rheoli sgîl-effeithiau mewn pobl â dementia neu nam gwybyddol mwynach. Cyhoeddwyd gan: Economic and Social Research Council (ESRC IAA).
Gwerthusiad llwybr canser yr ysgyfaint De-ddwyrain Cymru. Ariannwyd gan Macmillan Cancer Support / Ymddiriedolaeth GIG Prifysgol Felindre.
ENeRgy-Q: dadansoddiad ansoddol o brofiad cyfranogwr o'r ymyrraeth amlfoddol a gynigir mewn hap, cam II, treial rhaglen Adsefydlu Ymarfer a Maeth (ENeRgy) yn erbyn gofal safonol mewn pobl â chanser. Ariannwyd gan Gronfa Waddol Ken Fearon.
Cit Cof Canser: datblygu gofal cefnogol i bobl â nam gwybyddol sy'n cael triniaeth canser mewn partneriaeth â Chanolfan Ganser Felindre, Caerdydd. Grant Cynllun Gweithredu Dementia Llywodraeth Cymru.
Eat-CIT: ymchwiliad i lywio cynnwys adnodd ar y we i helpu pobl â chanser i hunanreoli problemau bwyta yn ystod triniaeth cemotherapi. iGrant Gofal Canser Tenovus.
Canfyddiad cleifion o effeithiolrwydd a defnydd halen fel triniaeth llinell gyntaf ar gyfer gor-gronynnu ar eu safle tiwb gastrostomi. Gwobr Ymchwil Cyntaf i Mewn i Dechnoleg gan Judy Wright, Nyrs Maeth Arbenigol.
Prosiect REACT: ymchwiliad i gydrannau gweithredol ymyriad triniaeth cartref arbenigol i atal derbyn cleifion â dementia yn yr ysbyty mewn argyfwng yn y gymuned. Ariannwyd gan: Ymchwil Gofal Iechyd Cymru, Ymchwil ar gyfer Budd Cleifion a'r Cyhoedd
Gwneud penderfyniadau nyrsys ynghylch darparu gofal croen i gleifion â chanser datblygedig ar ddiwedd oes: Astudiaeth seiliedig ar vignette o algorithm gwneud penderfyniadau prototeip. Ariannwyd gan: Cwm Taf/Aneurin Bevan.
Gwneud penderfyniadau nyrsio ynghylch darparu gofal croen i gleifion â chanser datblygedig ar ddiwedd oes: astudiaeth archwiliadol i ddatblygu algorithm cymorth penderfyniadau. Cyhoeddwyd gan: General Nursing Council.
Astudiaeth ddichonoldeb o ymyrraeth ymddygiadol i leihau blinder mewn menywod sy'n cael radiotherapi ar gyfer canser y fron y gellir ei wella. Ariannwyd gan: Grant Arloesedd Tenovus.
Diystyru ac anwybyddu: Ymchwilio i reoli gwrthod gofal mewn pobl â dementia sy'n cael eu derbyn i'r ysbyty sydd â chyflwr acíwt. Cyhoeddwyd gan: National Institute for Health Research (NIHR)
Gwella profiad triniaeth canser cleifion allanol i bobl â dementia comorbid yng Nghymru. Ariannwyd gan: Grant Arloesedd Tenovus
Rheoli Meddyginiaethau Gofalwyr Canser (CCMM): Ymyrraeth addysgol ar gyfer rheoli meddyginiaeth poen mewn cleifion canser ar ddiwedd oes. Cyllidwyd gan: Marie Curie/Dimbleby Cancer Care
Addysgu
Rwy'n addysgu israddedigion ac ôl-raddedigion am berthnasedd ymchwil ar gyfer gwella gofal iechyd ac arloesi.
Bywgraffiad
Mae Jane Hopkinson yn nyrs ac ymchwilydd gofal canser, lliniarol a diwedd oes. Hyfforddodd Jane fel nyrs yn Ysbyty Middlesex Llundain, gan gymhwyso ym 1984, ac yna gweithiodd yn glinigol mewn adsefydlu geriatreg, canser a gofal hosbis cyn cwblhau PhD am ofal diwedd oes ym Mhrifysgol Manceinion, 2001. Mae hi wedi gweithio gyda thimau clinigol ac academaidd mewn lleoliadau ar draws y DU, sy'n cynnwys Ysbyty Christie, Manceinion; Hosbis St Ann Manchester, Uned Ymchwil Macmillan, Prifysgol Southampton a Chanolfan Ganser Felindre, Caerdydd. Dechreuodd ei swydd bresennol fel Athro Nyrsio a Gofal Canser Rhyngddisgyblaethol Felindre yn 2020. Rôl gyda ffocws ar feithrin gallu ymchwil yn y GIG. Gweler https://www.cardiff.ac.uk/news/view/2477706-improving-cancer-care-in-wales-and-beyond
Cymwysterau addysgol
2009: Diploma Ôl-raddedig mewn Treialon Clinigol, Ysgol Hylendid a Meddygaeth Drofannol Llundain
2001: PhD mewn Nyrsio, Prifysgol Manceinion
1997: MSc mewn Nyrsio, Prifysgol Manceinion
1994: BSc Anrh mewn Gwyddorau Cymdeithasol, Y Brifysgol Agored
Cymwysterau proffesiynol
1987: ENB 237 (tystysgrif nyrsio oncoleg) Ysbyty Christie, Manceinion.
1985: RGN a Diploma mewn Nyrsio (Geriatreg) Ysbyty Middlesex, Llundain.
Hanes cyflogaeth
Awst 2020 – : Athro Nyrsio a Gofal Rhyngddisgyblaethol Felindre, Prifysgol Caerdydd
Medi 2011 – Gorffennaf 2020: Athro Nyrsio, Prifysgol Caerdydd
Gorffennaf 2001 - Awst 2011: Cymrawd Ôl Doc, Prifysgol Southampton
Tachwedd 1984 - Jul 2002: Nyrsio clinigol mewn gofal canser, gofal lliniarol a gofal henoed
Apwyntiadau cyfredol
Mawrth 2020 – cyfredol: Aelod o Dîm Arweinyddiaeth Canolfan Ymchwil Canser Cymru
Jul 2019 - cyfredol: Aelod o'r Pwyllgor Datblygu a Lledaenu Gwybodaeth, Cymdeithas Ryngwladol Nyrsys mewn Gofal Canser
Gorffennaf 2018 – cyfredol: Arweinydd ar gyfer Rhwydwaith Ymchwil Nyrs Canser Cymru Gyfan a Gweithwyr Proffesiynol Perthynol i Iechyd. Gweler https://www.walescancerpartnership.com/cancer-nurses-and-ahps-research-network/.
Medi 2017 – cyfredol: Aelod o Ganser a Maeth y Sefydliad Ymchwil Canser Cenedlaethol (NCRI) sy'n Byw gyda Chanser a Thu Hwnt Is-grŵp, Arweinydd Gofal Diwedd Oes.
Medi 2022 - cyfredol: Ymddiriedolwr Gofal Canser Tenovus
Meysydd goruchwyliaeth
Mae gen i ddiddordeb mewn goruchwylio myfyrwyr yn y meysydd canlynol:
- Gofal canser
- Gofal diwedd oes
Ar hyn o bryd rwy'n goruchwylio:
Tidziwe Malinki-Madeya (Nyrs Gymunedol) Gofal diwedd oes i bobl â dementia mewn cartrefi gofal
Ohoud Alnazawi (Addysgwr Nyrsio) Dynwarediad ffyddlondeb Uchel yn addysg myfyrwyr nyrsio israddedig yn Saudi Arabia: astudiaeth dulliau cymysg
Prosiectau'r gorffennol
Cyflawniadau Llwyddiannus 2023:
Fathiyyah Alsomali (Nyrs Canser) Archwiliad o gyfradd rhoi gwaed llinyn i'r banc gwaed cord cenedlaethol yn Saudi Arabia: Ymchwil astudiaeth achos.
Abdiraheem Ali (Fferyllydd) Rheoli cemotherapi geneuol yn y cartref: ymchwil astudiaeth achos dulliau cymysg. KESS2 efrydiaeth.
Myfyrwyr gradd uwch dan oruchwyliaeth i gwblhau'n llwyddiannus: 11 PhD, 1 DClinP, ac 20 o brosiectau MSc empirig. Maent yn cynnwys nyrsys, radiograffwyr, therapyddion galwedigaethol, ffisiotherapyddion, fferyllydd, ac ymchwilydd gwasanaethau iechyd.
Contact Details
Themâu ymchwil
Arbenigeddau
- Ymchwil clinigol cymhwysol
- cancr
- Profiad gofal
- Dulliau ymchwil ansoddol
- Gofal lliniarol