Emeritus Prof Jane Hopkinson
(she/her)
BSc (Hons) MSc PhD RGN
- Available for postgraduate supervision
Teams and roles for Jane Hopkinson
Professor Emerita of Nursing and Cancer Care
Overview
Hello. My name is Jane Hopkinson, Professor Emerita of Nursing and Cancer Care.
My research track record is in cancer and palliative care, with over 100 peer-reviewed publications. My expertise is supportive care in cancer cachexia, with particular interest in eating-related distress, nutritional care and issues for families affected by the syndrome. I have also conducted mixed-methods and qualitative research with older people, people with cognitive impairment/dementia, and people approaching end of life. The focus of my research is understanding symptoms and vulnerabilities that contribute to complex care needs. This knowledge is important for supportive care that can improve safety and equality in treatment outcomes and patient experience.
I am currently a member of the National Institute of Healthcare Research (NIHR) Cancer and Nutrition Collaboration and Chair of the collaboration's Health Equity Interest Group. I am also a member of the Multinational Association of Supportive Care in Cancer (MASCC), European Oncology Society (EONS), and the Royal College of Nursing (RCN).
Publication
2025
- Koshimoto, S. et al. 2025. Sex-related differences in eating-related distress experienced by patients with advanced cancer. Supportive Care in Cancer 33(3), article number: 241. (10.1007/s00520-025-09302-2)
2024
- Csontos, J., Edwards, D., Gillen, E., Ferreira Semedo, L. and Hopkinson, J. 2024. Intervention combinations within multimodal prehabilitation and their effect on health-related quality of life, fatigue, and adherence in the adult cancer population: an umbrella review protocol. JBI Evidence Synthesis (10.11124/JBIES-23-00253)
- Watts, T. et al. 2024. Access, acceptance and adherence to cancer prehabilitation: a mixed-methods systematic review. Journal of Cancer Survivorship (10.1007/s11764-024-01605-3)
- Gale, N., Jones, U., Rees, T., Hicks, A., Davies, J., Holliday, S. and Hopkinson, J. 2024. A cancer personalised activity and lifestyle tool (CAN-PAL): a codesign study with patients and healthcare professionals. Journal of Clinical Nursing 33(2), pp. 572-579. (10.1111/jocn.16931)
2023
- Hopkinson, J. B. 2023. The role of the nurse in meeting the educational needs for self-care in cachectic cancer patients and their family caregivers: a scoping review. Asia-Pacific Journal of Oncology Nursing 10(1), article number: 100294. (10.1016/j.apjon.2023.100294)
- Amano, K., Hopkinson, J. B., Baracos, V. E. and Mori, N. 2023. Holistic multimodal care for patients with cancer cachexia and their family caregivers. Asia-Pacific Journal of Oncology Nursing 10(Supp 1), article number: 100290. (10.1016/j.apjon.2023.100290)
- Blum, D. et al. 2023. Top ten tips palliative care clinicians should know about cachexia. Journal of Palliative Medicine 26(8), pp. 1133-1138. (10.1089/jpm.2022.0598)
- Amano, K. et al. 2023. Factors associated with practice of multimodal care for cancer cachexia among physicians and nurses engaging in cancer care. JCO Oncology Practice 19(8), pp. 602-609. (10.1200/OP.23.00043)
- Hopkinson, J. B. 2023. Educational needs of self-care in cachectic cancer patients and caregivers. Current Opinion in Oncology 35(4), pp. 254-260. (10.1097/CCO.0000000000000948)
- Ashley, L. et al. 2023. Cancer care for people with dementia: literature overview and recommendations for practice and research. CA: A Cancer Journal for Clinicians 73(3), pp. 320-338. (10.3322/caac.21767)
- Gale, N., Hopkinson, J., Wasley, D. and Byrne, A. 2023. The promotion of homebased physical activity for people with lung and cancer cachexia, a qualitative study of healthcare professionals, patients and carers. Journal of Cancer Survivorship 17, pp. 677-685. (10.1007/s11764-023-01376-3)
- Mathlin, J., Courtier, N. and Hopkinson, J. 2023. Taste changes during radiotherapy for head and neck cancer. Radiography 29(4), pp. 746-751. (10.1016/j.radi.2023.05.004)
- Amano, K. et al. 2023. Development and validation of questionnaires for eating‐related distress among advanced cancer patients and families. Journal of Cachexia, Sarcopenia and Muscle 14(1), pp. 310-325. (10.1002/jcsm.13133)
2022
- Amano, K., Hopkinson, J. and Baracos, V. 2022. Psychological symptoms of illness and emotional distress in advanced cancer cachexia. Current Opinion in Clinical Nutrition and Metabolic Care 25(3), pp. 167-172. (10.1097/MCO.0000000000000815)
- Fry, S., Hopkinson, J. and Kelly, D. 2022. “We’re talking about black men here, there’s a difference” Cultural differences in socialised knowledge of prostate cancer risk: a qualitative research study. European Journal of Oncology Nursing 56, article number: 102080. (10.1016/j.ejon.2021.102080)
- Courtier, N., Armes, J., Smith, A., Radley, L. and Hopkinson, J. 2022. Targeted self-management limits fatigue for women undergoing radiotherapy for early breast cancer: results from the ACTIVE randomised feasibility trial. Supportive Care in Cancer 30, pp. 389-400. (10.1007/s00520-021-06360-0)
2021
- Csontos, J. et al. 2021. Cancer memory mate: implementing a healthcare innovation to support the management of cancer treatments and side effects in people with memory problems in South Wales, UK. Presented at: 2021 UKONS Annual Conference, Virtual, 11-13 November 2021.
- Hopkinson, J. B. 2021. The psychosocial components of multimodal interventions offered to people with cancer cachexia: a scoping review. Asia-Pacific Journal of Oncology Nursing 8(5), pp. 450-461. (10.4103/apjon.apjon-219)
- Maunsell, R., Sodergren, S., Hopkinson, J., Shaw, C., Foster, C. and Wheelwright, S. 2021. Nutritional care in colorectal cancer-what is the state of play?. Colorectal Disease (10.1111/codi.15933)
- Hopkinson, J. et al. 2021. Crisis management for people with dementia at home: mixed-methods case study research to identify critical factors for successful home treatment. Health and Social Care in the Community 29(4), pp. 1072-1082. (10.1111/hsc.13141)
- Hopkinson, J. B. et al. 2021. What happens before, during and after crisis for someone with dementia living at home: a systematic review. Dementia 20(2), pp. 570-612. (10.1177/1471301220901634)
- Hopkinson, J., Watts, T., Abdi, A. and Chivers, E. 2021. What is known about oral nutritional care of patients receiving radiotherapy, chemotherapy or chemoradiotherapy for colorectal cancer? A systematic review and narrative synthesis.. NIHR CRD. Available at: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020178160
2020
- Hopkinson, J., King, A., Courtier, N., Milton, R. and Elias, J. 2020. Potential for identification of memory problems in the cancer clinic to enable improved treatment experience and outcomes: mixed methods case study research. European Journal of Oncology Nursing 48, article number: 101777. (10.1016/j.ejon.2020.101777)
- Hopkinson, J., Kazmi, C., Elias, J., Wheelwright, S., Williams, R. and Russell, A. 2020. Diet and weight management by people with non-metastatic colorectal cancer during chemotherapy: mixed methods research. Colorectal Cancer 9(2), article number: CRC16. (10.2217/crc-2019-0017)
- Fry, S., Kelly, D. and Hopkinson, J. 2020. Using card games to study cultural differences in men’s social talk about prostate cancer. Journal of Advanced Nursing 76(7), pp. 1840-1849. (10.1111/jan.14373)
- Samuriwo, R., Candida, L., Anstey, S., Job, C. and Hopkinson, J. 2020. Nurses' decision-making about cancer patients end of life skin care in Wales: an exploratory mixed method vignette study protocol. BMJ Open 10(7), article number: e034938. (10.1136/bmjopen-2019-034938)
2019
- Amano, K., Baracos, V. and Hopkinson, J. 2019. Integration of palliative, supportive, and nutritional care to alleviate eating-related distress among advanced cancer patients with cachexia and their family members. Critical Reviews in Oncology/Hematology 143, pp. 117-123. (10.1016/j.critrevonc.2019.08.006)
2018
- Hopkinson, J. 2018. Psychosocial support in cancer cachexia syndrome: the evidence for supportedself-management of eating problems during radiotherapy or chemotherapy treatment. Asia-Pacific Journal of Oncology Nursing 5(4), pp. 358-368. (10.4103/apjon.apjon_12_18)
- Courtier, N. et al. 2018. ACTIVE: a randomised feasibility trial of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for early breast cancer: study protocol. Pilot and Feasibility Studies 4, article number: 85. (10.1186/s40814-018-0275-7)
- Samuriwo, R., Henley, J., Anstey, S., Job, C., Williams, D. and Hopkinson, J. 2018. Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory qualitative study. Cardiff University.
- Hopkinson, J. 2018. The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of people with advanced cancer and eating problems. Cancer Nursing 41(2), pp. 131-138. (10.1097/NCC.0000000000000474)
- Latter, S. et al. 2018. Supporting carers to manage pain medication in cancer patients at the end of life: a feasibility trial. Palliative Medicine 32(1), pp. 246-256. (10.1177/0269216317715197)
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Nurse decision making about the delivery of skin care to patients with advanced cancer at the end of life: a qualitative exploratory study. Presented at: Tissue Viability Society Conference, Newcastle, UK, 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Quality improvement in end of life skin care. Nurse decision making about the delivery of skin care to advanced cancer patients at the end of life: exploratory qualitative research. Presented at: European Wound Management Association Virtual Conference (EWMA 2018), Krakow, Poland, 9-11 May 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Developing a decision making tool for nurses to improve end of life skin care for advanced cancer patients: a qualitative exploratory study. Presented at: 20th Annual Meeting of European Pressure Ulcer Advisory Panel (EPUAP 2018), Rome, Italy, 12-14 September 2018.
2017
- Barker, S., Lynch, M. and Hopkinson, J. 2017. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. International Journal Palliative Nursing 23(9), pp. 446-456. (10.12968/ijpn.2017.23.9.446)
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Edwards, D., Carrier, J. and Hopkinson, J. 2017. Assistance at mealtimes in hospital settings and rehabilitation units for patients (>65 years) from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. International Journal of Nursing Studies 69, pp. 100-118. (10.1016/j.ijnurstu.2017.01.013)
- Wheelwright, S. J. et al. 2017. Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. Journal of Pain and Symptom Management 53(2), pp. 232-242. (10.1016/j.jpainsymman.2016.09.010)
2016
- Maddocks, M., Hopkinson, J. and Conibear, J. 2016. Practical multimodal care for cancer cachexia. Current Opinion in Supportive and Palliative Care 10(4), pp. 298-305. (10.1097/SPC.0000000000000241)
- Ngandu, H., Gale, N. and Hopkinson, J. 2016. Non-invasive ventilation in older people with acute respiratory failure: review. European Respiratory Review 25(142), pp. 451-471. (10.1183/16000617.0002-2016)
- Hopkinson, J. B., Milton, R., King, A. and Edwards, D. 2016. People with dementia: what is known about their experience of cancer treatment and cancer treatment outcomes? A systematic review. Psycho-Oncology 25(10), pp. 1137 -1146. (10.1002/pon.4185)
- Field, J., Richardson, A., Hopkinson, J. and Fenlon, D. 2016. Nordic walking as an exercise intervention to reduce pain in women with aromatase inhibitor associated arthralgia: a feasibility study. Journal of Pain and Symptom Management 52(4), pp. 548-559. (10.1016/j.jpainsymman.2016.03.010)
- Courtier, N., Milton, R., King, A., Tope, R., Morgan, S. and Hopkinson, J. 2016. Cancer and dementia: an exploratory study of the experience of cancer treatment in people with dementia. Psycho-Oncology 25(9), pp. 1079-1084. (10.1002/pon.4212)
- Latter, S., Hopkinson, J. B., Richardson, A., Hughes, J. A., Lowson, E. and Edwards, D. 2016. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Supportive and Palliative Care 6(3), pp. 263-275. (10.1136/bmjspcare-2015-000958)
- Edwards, D., Carrier, J. and Hopkinson, J. 2016. Mealtime assistance for older adults in hospital settings and rehabilitation units from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. JBI Database of Systematic Reviews and Implementation Reports 14(9), pp. 261-357. (10.11124/JBISRIR-2016-003100)
- Evans, N. and Hopkinson, J. B. 2016. How action researchers use anxiety to facilitate change in health care. Journal of Clinical Nursing 25(11-12), pp. 1674-1682. (10.1111/jocn.13186)
- Job, C., Anstey, S. and Hopkinson, J. B. 2016. Learning from the experiences of cancer patients and their carers. Cancer Nursing Practice 15(4), pp. 14-20. (10.7748/cnp.15.4.14.s18)
- Edwards, D. J., Anstey, S. V., Kelly, D. M. and Hopkinson, J. B. 2016. An innovation in curriculum content and delivery of cancer education within undergraduate nurse training in the UK. What impact does this have on the knowledge, attitudes and confidence in delivering cancer care?. European Journal of Oncology Nursing 21, pp. 8-16. (10.1016/j.ejon.2015.12.003)
- Preston, N. J. et al. 2016. Strategies designed to help healthcare professionals to recruit participants to research studies. Cochrane Database of Systematic Reviews 2, article number: MR000036. (10.1002/14651858.MR000036.pub2)
- Hopkinson, J. 2016. Food connections: a qualitative exploratory study of weight- and eating-related distress in families affected by advanced cancer. European Journal of Oncology Nursing 20, pp. 87-96. (10.1016/j.ejon.2015.06.002)
- Wheelwright, S., Darlington, A. S., Hopkinson, J. B., Fitzsimmons, D. and Johnson, C. 2016. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliative Medicine 30(2), pp. 149-160. (10.1177/0269216315588743)
- King, A., Hopkinson, J. B. and Milton, R. 2016. Reflections of a team approach to involving people with dementia in research. International Journal of Palliative Nursing 22(1), pp. 372-377. (10.12968/ijpn.2016.22.1.22)
- Wheelwright, S. J., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2016. A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia. BMJ Supportive & Palliative Care 6(3), pp. 307-314. (10.1136/bmjspcare-2014-000680)
2015
- Hopkinson, J. B. 2015. The nursing contribution to the nutritional care of people with cancer cachexia. Proceedings of the Nutrition Society 74(4), pp. 413-418. (10.1017/S0029665115002384)
- Foster, C. et al. 2015. You can't say, 'What about me?' I'm not the one with cancer": information and support needs of relatives. Psycho-Oncology 24(6), pp. 705-711. (10.1002/pon.3716)
- Hopkinson, J. B. 2015. Nutritional support of the elderly cancer patient: the role of the nurse. Nutrition 31(4), pp. 598-602. (10.1016/j.nut.2014.12.013)
- Hopkinson, J. B. et al. 2015. Cancer Carers Medicines Management: a study to develop and test an educational intervention for carers of cancer patients approaching end of life at home [Abstract]. Supportive Care in Cancer 23(1), pp. S61. (10.1007/s00520-015-2712-y)
- Hopkinson, J. B. and Richardson, A. 2015. A mixed-methods qualitative research study to develop a complex intervention for weight loss and anorexia in advanced cancer: the Family Approach to Weight and Eating (FAWE). Palliative Medicine 29(2), pp. 164-176. (10.1177/0269216314556924)
- Edwards, D. J., Carrier, J. A. K. and Hopkinson, J. B. 2015. Assistance at mealtimes in hospital settings and rehabilitation units for older adults from the perspective of patients, families and healthcare professionals: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 13(11), pp. 17-32. (10.11124/jbisrir-2015-2425)
- Wheelwright, S. J., Hopkinson, J. B., Darlington, A., Fitzsimmons, D. F. and Johnson, C. D. 2015. Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]. Journal of Cachexia, Sarcopenia and Muscle 6(4), pp. 471-509. (10.1002/jcsm.12087)
- Samuriwo, R., Anstey, S., Job, C., Coles, B. M., Cleves, A. and Hopkinson, J. B. 2015. The impact of nurse decision making on the pressure ulcer related clinical and quality related outcomes of adult patients in the last six months of life: a systematic review. PROSPERO International Prospective Register of Systematic Reviews, article number: CRD42015026756.
2014
- Hopkinson, J. B. 2014. Challenges to pain medicines management at home: commentary on the Schumacher et al. papers. Journal of Pain and Symptom Management 48(5), pp. 760-761. (10.1016/j.jpainsymman.2014.09.005)
- Aapro, M. et al. 2014. Early recognition of malnutrition and cachexia in the cancer patient: a position paper of a European School of Oncology Task Force. Annals of Oncology 25(8), pp. 1492-1499. (10.1093/annonc/mdu085)
- Latter, S. et al. 2014. Study protocol for a feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life. Working Papers in the Health Sciences 1(8), article number: 3.
- Hopkinson, J. B. 2014. Psychosocial impact of cancer cachexia. Journal of Cachexia, Sarcopenia and Muscle 5(2), pp. 89-94. (10.1007/s13539-014-0142-1)
- Edwards, D. J. and Hopkinson, J. B. 2014. Initiatives for improving the provision of assistance at mealtimes for older adults on hospital wards: a mixed methods systematic review [Poster presentation]. BMJ Supportive & Palliative Care 4, pp. A26-A27. (10.1136/bmjspcare-2014-000654.73.)
- Hopkinson, J. B. et al. 2014. Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication. BMJ Supportive & Palliative Care 4(Supp 1), article number: A7. (10.1136/bmjspcare-2014-000654.18)
2013
- Hane, H., Obeholzer, R., Walker, J., Hopkinson, J. B., de Wolf-Linder, S. and Strasser, F. 2013. Psychosocial consequences of cancer cachexia: the development of an item bank. Journal of Pain and Symptom Management 46(6), pp. 795-806. (10.1016/j.jpainsymman.2013.01.008)
- Oberholzer, R., Hopkinson, J. B., Baumann, K., Omlin, A., Kaasa, S., Fearon, K. C. and Strasser, F. 2013. Psychosocial effects of cancer cachexia: A systematic literature search and qualitative analysis. Journal of Pain and Symptom Management 46(1), pp. 77-95. (10.1016/j.jpainsymman.2012.06.020)
- Hopkinson, J. B., Fenlon, D. R. and Foster, C. L. 2013. Outcomes of a nurse-delivered psychosocial intervention for weight- and eating-related distress in family carers of patients with advanced cancer. International Journal of Palliative Nursing 19(3), pp. 116-123.
- Wheelwright, S., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2013. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Supportive Care in Cancer 21(9), pp. 2625-2636. (10.1007/s00520-013-1881-9)
2012
- Hoffman, C. J., Ersser, S. J. and Hopkinson, J. B. 2012. Mindfulness-based stress reduction in breast cancer: A qualitative analysis. Complementary Therapies in Clinical Practice 18(4), pp. 221-226. (10.1016/j.ctcp.2012.06.008)
- Preston, N. J. et al. 2012. Strategies to increase participant recruitment to research studies by healthcare professionals. The Cochrane Library 2012(9), article number: MR000036. (10.1002/14651858.MR000036)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life and wellbeing in stages 0 to III breast cancer: a randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life, and well-being in Stage 0 to III breast cancer: A randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer [Abstract]. Psycho-Oncology 21(s2), pp. 1-1. (10.10002/pon.3051)
- Hopkinson, J. B., Brown, J. C., Okamoto, I. and Addington-Hall, J. M. 2012. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. Journal of Pain and Symptom Management 43(1), pp. 111-142. (10.1016/j.jpainsymman.2011.03.013)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer. Presented at: Annual Conference of the British Psychosocial Oncology Society: Cancer Survivorship & Rehabilitation, Leeds, UK, 19-20 January 2012.
2011
- Hopkinson, J. B. and Brown, J. C. 2011. Security hunger: An understanding of cancer cachexia-related distress in families. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. and Scott, I. 2011. What do patients eat when living with advanced cancer: Findings from an exploratory trial of the Macmillan Approach to Weight loss and Eating (MAWE). Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. 2011. The clinical management of the emotional aspects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Oberholzer, R., Hopkinson, J. B., Baumann, K. and Omlin, A. 2011. A review on psychosocial effects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. . M. 2011. What to eat when off treatment and living with involuntary weight loss and cancer: a systematic search and narrative review. Supportive Care in Cancer 19(1), pp. 1-17. (10.1007/s00520-010-0964-0)
- Hopkinson, J. B. and Strasser, F. 2011. Psychosocial aspects of nutritional care of cancer patients. In: van Halteren, H. and Jatoi, A. eds. ESMO Handbook of Nutrition and Cancer. ESMO Handbooks Lugano: European Society for Medical Oncology (ESMO) Press, pp. 73-80.
2010
- Hopkinson, J. B., Fenlon, D. R., Okamoto, I., Wright, D. N. M., Scott, I., Addington-Hall, J. M. and Foster, C. 2010. The deliverability, acceptability, and perceived effect of the Macmillan approach to eeight loss and eating difficulties: a Phase II, cluster-randomized, exploratory trial of a psychosocial intervention for weight- and eating-related distress in people with advanced cancer. Journal of Pain and Symptom Management 40(5), pp. 684-695. (10.1016/j.jpainsymman.2010.02.015)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient-carer dyads on symptom experience: A systematic review.. Presented at: 6th European Association of Palliative Care (EAPC) Research Conference, Glasgow, UK, 10-12 June 2010.
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. M. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: a systematic review [Abstract]. Palliative Medicine 24(2), pp. 215. (10.1177/0269216310363376)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: A systematic review. Presented at: Palliative Care Congress, Bournemouth, UK, 10-12 March 2010.
- Hopkinson, J. B. 2010. The emotional aspects of cancer anorexia. Current Opinion in Supportive and Palliative Care 4(4), pp. 254-258. (10.1097/SPC.0b013e32833ef813)
- Del Fabbro, E. et al. eds. 2010. Nutrition and the cancer patient. Oxford: Oxford University Press.
- Hopkinson, J. B. and Bailey, C. 2010. Nutritional care of older people. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 471-476.
- Hawkins, C. et al. 2010. The multi-disciplinary approach to nutritional problems in patients with cancer. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 237-256.
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient -carer dyads on symptom experience: a systematic review. Palliative Medicine 24(4), pp. S36., article number: 106. (10.1177/0269216310366390)
2009
- Foster, C. et al. 2009. Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer. Project Report. [Online]. Macmillan Cancer Support. Available at: http://www.southampton.ac.uk/healthsciences/research/projects/supporting_relatives_an_investigation_into_obstacles_and_aids.page
- Foster, C., Wright, D., Hill, H., Hopkinson, J. B. and Roffe, L. 2009. Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. European Journal of Cancer Care 18(3), pp. 223-247. (10.1111/j.1365-2354.2008.01001.x)
- Hopkinson, J. B. et al. 2009. Overcoming obstacles to conducting trials in the context of palliative care: An exploratory phase II cluster randomised trial to investigate the effectiveness of the ‘Macmillan Approach to Weight loss and Eating difficulties’ (MAWE). Presented at: 11th EAPC Congress, Vienna, Austria, 7-10 May 2009. London, GB, Macmillan Cancer Report.
- Hopkinson, J. B. et al. 2009. A feasibility study: a mixed methods exploratory phase II cluster randomised trail to investigate the effectiveness of the 'Macmillan Approach to Weight loss and Eating difficulties'(MAWE).. Presented at: NCRI Cancer Conference, Birmingham, Birmingham, UK., 4-7 October 2009.
2008
- Hopkinson, J. B. 2008. Carers' influence on diets of people with advanced cancer. Nursing Times 104(12), pp. 28-29.
- Hopkinson, J. B., Wright, D., Foster, C. and Dewey, A. 2008. Correspondence. Letter to the editor. Re: Assessment and monitoring of nutritional status in patients with advanced cancer. IJPN 13 (6) 256-265. International Journal of Palliative Nursing 14(2), pp. 100-101.
- Hopkinson, J. B., Wright, D. N. M. and Foster, C. 2008. Management of weight loss and anorexia. Annals of Oncology 19(Supp7), pp. vii289-vii293. (10.1093/annonc/mdn452)
- Hopkinson, J. B., Foster, C., Roff, L. and Wright, D. N. M. 2008. Carer impact on self-management by people with advanced cancer living with changing eating habits [Oral presentation]. Presented at: 5th Research Forum of the European Association for Palliative Care (EAPC), Trondheim, Norway, 28-31 May 2008, Vol. 22. Vol. 1 supp. pp. 417-418., (10.1177/0269216308091582)
- Hopkinson, J. B. 2008. Change in eating habits. In: Corner, J. and Bailey, C. eds. Cancer nursing: care in context. Oxford: Blackwell, pp. 525-532.
- Hopkinson, J. B. 2008. Patients with advanced cancer used 4 self-action strategies to manage eating-related problems. Evidence Based Nursing 11(2), article number: 61. (10.1136/ebn.11.2.61)
2007
- Walsh, B., Roberts, H. and Hopkinson, J. B. 2007. Emergency hospital admissions for ill-defined conditions amongst older people: a review of the literature. International Journal of Older People Nursing 2(4), pp. 270-277. (10.1111/j.1748-3743.2007.00093.x)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Corner, J., Wright, D., Hopkinson, J. B., Gunaratnam, Y., McDonald, J. W. and Foster, C. 2007. The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study. British Journal of Cancer 96(6), pp. 875-881. (10.1038/sj.bjc.6603662)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Hopkinson, J. B. 2007. Focus on solutions: a health professional's guide. Journal of Advanced Nursing 57(3), pp. 353. (10.1111/j.1365-2648.2007.04196.x)
- Hopkinson, J. B. 2007. Qualitative research practice [Book Review]. Journal of Advanced Nursing 60(6), pp. 708. (10.1111/j.1365-2648.2007.04519_9.x)
- Wright, D. N. M., Corner, J. L., Hopkinson, J. B. and Foster, C. L. 2007. The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9(S2), article number: S3. (10.1186/bcr1801)
- Hopkinson, J. 2007. People with advanced cancer and their care givers in conflict over food. Presented at: 2007 International Nursing Research Conference, Dundee, UK, 1 -4 May 2007The 2007 International Nursing Research Conference: Book of Abstracts.. London: Royal College of Nursing pp. 106.
2006
- Wright, D. N., Hopkinson, J. B., Corner, J. L. and Foster, C. L. 2006. How to involve cancer patients at the end of life as co-researchers. Palliative Medicine 20(8), pp. 821-827. (10.1177/0269216306073110)
- Hopkinson, J. B., Wright, D., McDonald, J. and Corner, J. 2006. The Prevalence of Concern About Weight Loss and Change in Eating Habits in People with Advanced Cancer. Journal of Pain and Symptom Management 32(4), pp. 322-331. (10.1016/j.jpainsymman.2006.05.012)
- Hopkinson, J. B., Wright, D. and Corner, J. 2006. Exploring the experience of weight loss in people with advanced cancer. Journal of Advanced Nursing 54(3), pp. 304-312. (10.1111/j.1365-2648.2006.03818.x)
- Corner, J., Hopkinson, J. B. and Roffe, L. 2006. Experience of health changes and reasons for delay in seeking care: a UK study of the months prior to the diagnosis of lung cancer. Social Science & Medicine 62(6), pp. 1381-1391. (10.1016/j.socscimed.2005.08.012)
- Wright, D., Corner, J., Hopkinson, J. B. and Foster, C. 2006. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expectations 9(1), pp. 3-12. (10.1111/j.1369-7625.2006.00353.x)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2006. Self management and cancer. Proceedings of the British Psychological Society 14(1), pp. 23.
- Hopkinson, J. B. and Corner, J. 2006. Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals. Journal of Pain and Symptom Management 31(4), pp. 293-305. (10.1016/j.jpainsymman.2005.09.005)
- Hopkinson, J. B. 2006. The complete guide to relieving cancer pain and suffering [Book Review]. Journal of Advanced Nursing 56(3), pp. 339. (10.1111/j.1365-2648.2006.04066.x)
2005
- Hopkinson, J. B., Wright, D. N. M. and Corner, J. L. 2005. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliative Medicine 19(7), pp. 532-537. (10.1191/0269216305pm1049oa)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2005. Everyday death: how do nurses cope with caring for dying people in hospital?. International Journal of Nursing Studies 42(2), pp. 125-133. (10.1016/j.ijnurstu.2004.06.004)
- Corner, J., Hopkinson, J. B., Fitzsimmons, D., Barclay, S. and Muers, M. 2005. Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Thorax 60(4), pp. 314-319. (10.1136/thx.2004.029264)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2005. Supporting self management of people affected by cancer: a review of the evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. B. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Project Report. Macmillan Research Unit.
2004
- Hopkinson, J. B. and Amir, Z. 2004. New name, more care. Macmillan Voice 30(6)
2003
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2003. Caring for dying people in hospital. Journal of Advanced Nursing 44(5), pp. 525-533. (10.1046/j.0309-2402.2003.02836.x)
2002
- Hopkinson, J. B. 2002. The hidden benefit: the supportive function of the nursing handover for qualified nurses caring for dying people in hospital. Journal of Clinical Nursing 11(2), pp. 168-175. (10.1046/j.1365-2702.2002.00576.x)
- Hopkinson, J. and Hopkinson, M. 2002. Nursing staff shortages - managing risk at source. Health Care Risk Report, pp. 16-17.
2001
- Hopkinson, J. B. and Hallett, C. E. 2001. Patients’ perceptions of hospice day care: a phenomenological study. International Journal of Nursing Studies 38(1), pp. 117-125. (10.1016/S0020-7489(00)00045-6)
- Hopkinson, J. B. 2001. Facilitating the development of clinical skills in caring for dying people in hospital. Nurse Education Today 21(8), pp. 632-639. (10.1054/nedt.2001.0667)
- Hopkinson, M. and Hopkinson, J. 2001. NHS complaints statistics. Health Care Risk Report 7(6), pp. 16-17.
- Hopkinson, M. and Hopkinson, J. 2001. Risk management in the NHS: adapting risk management techniques for the commercial world. Health Care Risk Report 7(2), pp. 19-20.
- Hopkinson, M. J. and Hopkinson, J. 2001. Adapting risk identification techniques from business. Health Care Risk Report 7(8), pp. 18-19.
- Hopkinson, M. and Hopkinson, J. 2001. Adapting risk treatment techniques from business. Health Care Risk Report 8(1), pp. 16-19.
Articles
- Koshimoto, S. et al. 2025. Sex-related differences in eating-related distress experienced by patients with advanced cancer. Supportive Care in Cancer 33(3), article number: 241. (10.1007/s00520-025-09302-2)
- Csontos, J., Edwards, D., Gillen, E., Ferreira Semedo, L. and Hopkinson, J. 2024. Intervention combinations within multimodal prehabilitation and their effect on health-related quality of life, fatigue, and adherence in the adult cancer population: an umbrella review protocol. JBI Evidence Synthesis (10.11124/JBIES-23-00253)
- Watts, T. et al. 2024. Access, acceptance and adherence to cancer prehabilitation: a mixed-methods systematic review. Journal of Cancer Survivorship (10.1007/s11764-024-01605-3)
- Gale, N., Jones, U., Rees, T., Hicks, A., Davies, J., Holliday, S. and Hopkinson, J. 2024. A cancer personalised activity and lifestyle tool (CAN-PAL): a codesign study with patients and healthcare professionals. Journal of Clinical Nursing 33(2), pp. 572-579. (10.1111/jocn.16931)
- Hopkinson, J. B. 2023. The role of the nurse in meeting the educational needs for self-care in cachectic cancer patients and their family caregivers: a scoping review. Asia-Pacific Journal of Oncology Nursing 10(1), article number: 100294. (10.1016/j.apjon.2023.100294)
- Amano, K., Hopkinson, J. B., Baracos, V. E. and Mori, N. 2023. Holistic multimodal care for patients with cancer cachexia and their family caregivers. Asia-Pacific Journal of Oncology Nursing 10(Supp 1), article number: 100290. (10.1016/j.apjon.2023.100290)
- Blum, D. et al. 2023. Top ten tips palliative care clinicians should know about cachexia. Journal of Palliative Medicine 26(8), pp. 1133-1138. (10.1089/jpm.2022.0598)
- Amano, K. et al. 2023. Factors associated with practice of multimodal care for cancer cachexia among physicians and nurses engaging in cancer care. JCO Oncology Practice 19(8), pp. 602-609. (10.1200/OP.23.00043)
- Hopkinson, J. B. 2023. Educational needs of self-care in cachectic cancer patients and caregivers. Current Opinion in Oncology 35(4), pp. 254-260. (10.1097/CCO.0000000000000948)
- Ashley, L. et al. 2023. Cancer care for people with dementia: literature overview and recommendations for practice and research. CA: A Cancer Journal for Clinicians 73(3), pp. 320-338. (10.3322/caac.21767)
- Gale, N., Hopkinson, J., Wasley, D. and Byrne, A. 2023. The promotion of homebased physical activity for people with lung and cancer cachexia, a qualitative study of healthcare professionals, patients and carers. Journal of Cancer Survivorship 17, pp. 677-685. (10.1007/s11764-023-01376-3)
- Mathlin, J., Courtier, N. and Hopkinson, J. 2023. Taste changes during radiotherapy for head and neck cancer. Radiography 29(4), pp. 746-751. (10.1016/j.radi.2023.05.004)
- Amano, K. et al. 2023. Development and validation of questionnaires for eating‐related distress among advanced cancer patients and families. Journal of Cachexia, Sarcopenia and Muscle 14(1), pp. 310-325. (10.1002/jcsm.13133)
- Amano, K., Hopkinson, J. and Baracos, V. 2022. Psychological symptoms of illness and emotional distress in advanced cancer cachexia. Current Opinion in Clinical Nutrition and Metabolic Care 25(3), pp. 167-172. (10.1097/MCO.0000000000000815)
- Fry, S., Hopkinson, J. and Kelly, D. 2022. “We’re talking about black men here, there’s a difference” Cultural differences in socialised knowledge of prostate cancer risk: a qualitative research study. European Journal of Oncology Nursing 56, article number: 102080. (10.1016/j.ejon.2021.102080)
- Courtier, N., Armes, J., Smith, A., Radley, L. and Hopkinson, J. 2022. Targeted self-management limits fatigue for women undergoing radiotherapy for early breast cancer: results from the ACTIVE randomised feasibility trial. Supportive Care in Cancer 30, pp. 389-400. (10.1007/s00520-021-06360-0)
- Hopkinson, J. B. 2021. The psychosocial components of multimodal interventions offered to people with cancer cachexia: a scoping review. Asia-Pacific Journal of Oncology Nursing 8(5), pp. 450-461. (10.4103/apjon.apjon-219)
- Maunsell, R., Sodergren, S., Hopkinson, J., Shaw, C., Foster, C. and Wheelwright, S. 2021. Nutritional care in colorectal cancer-what is the state of play?. Colorectal Disease (10.1111/codi.15933)
- Hopkinson, J. et al. 2021. Crisis management for people with dementia at home: mixed-methods case study research to identify critical factors for successful home treatment. Health and Social Care in the Community 29(4), pp. 1072-1082. (10.1111/hsc.13141)
- Hopkinson, J. B. et al. 2021. What happens before, during and after crisis for someone with dementia living at home: a systematic review. Dementia 20(2), pp. 570-612. (10.1177/1471301220901634)
- Hopkinson, J., King, A., Courtier, N., Milton, R. and Elias, J. 2020. Potential for identification of memory problems in the cancer clinic to enable improved treatment experience and outcomes: mixed methods case study research. European Journal of Oncology Nursing 48, article number: 101777. (10.1016/j.ejon.2020.101777)
- Hopkinson, J., Kazmi, C., Elias, J., Wheelwright, S., Williams, R. and Russell, A. 2020. Diet and weight management by people with non-metastatic colorectal cancer during chemotherapy: mixed methods research. Colorectal Cancer 9(2), article number: CRC16. (10.2217/crc-2019-0017)
- Fry, S., Kelly, D. and Hopkinson, J. 2020. Using card games to study cultural differences in men’s social talk about prostate cancer. Journal of Advanced Nursing 76(7), pp. 1840-1849. (10.1111/jan.14373)
- Samuriwo, R., Candida, L., Anstey, S., Job, C. and Hopkinson, J. 2020. Nurses' decision-making about cancer patients end of life skin care in Wales: an exploratory mixed method vignette study protocol. BMJ Open 10(7), article number: e034938. (10.1136/bmjopen-2019-034938)
- Amano, K., Baracos, V. and Hopkinson, J. 2019. Integration of palliative, supportive, and nutritional care to alleviate eating-related distress among advanced cancer patients with cachexia and their family members. Critical Reviews in Oncology/Hematology 143, pp. 117-123. (10.1016/j.critrevonc.2019.08.006)
- Hopkinson, J. 2018. Psychosocial support in cancer cachexia syndrome: the evidence for supportedself-management of eating problems during radiotherapy or chemotherapy treatment. Asia-Pacific Journal of Oncology Nursing 5(4), pp. 358-368. (10.4103/apjon.apjon_12_18)
- Courtier, N. et al. 2018. ACTIVE: a randomised feasibility trial of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for early breast cancer: study protocol. Pilot and Feasibility Studies 4, article number: 85. (10.1186/s40814-018-0275-7)
- Hopkinson, J. 2018. The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of people with advanced cancer and eating problems. Cancer Nursing 41(2), pp. 131-138. (10.1097/NCC.0000000000000474)
- Latter, S. et al. 2018. Supporting carers to manage pain medication in cancer patients at the end of life: a feasibility trial. Palliative Medicine 32(1), pp. 246-256. (10.1177/0269216317715197)
- Barker, S., Lynch, M. and Hopkinson, J. 2017. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. International Journal Palliative Nursing 23(9), pp. 446-456. (10.12968/ijpn.2017.23.9.446)
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Edwards, D., Carrier, J. and Hopkinson, J. 2017. Assistance at mealtimes in hospital settings and rehabilitation units for patients (>65 years) from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. International Journal of Nursing Studies 69, pp. 100-118. (10.1016/j.ijnurstu.2017.01.013)
- Wheelwright, S. J. et al. 2017. Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. Journal of Pain and Symptom Management 53(2), pp. 232-242. (10.1016/j.jpainsymman.2016.09.010)
- Maddocks, M., Hopkinson, J. and Conibear, J. 2016. Practical multimodal care for cancer cachexia. Current Opinion in Supportive and Palliative Care 10(4), pp. 298-305. (10.1097/SPC.0000000000000241)
- Ngandu, H., Gale, N. and Hopkinson, J. 2016. Non-invasive ventilation in older people with acute respiratory failure: review. European Respiratory Review 25(142), pp. 451-471. (10.1183/16000617.0002-2016)
- Hopkinson, J. B., Milton, R., King, A. and Edwards, D. 2016. People with dementia: what is known about their experience of cancer treatment and cancer treatment outcomes? A systematic review. Psycho-Oncology 25(10), pp. 1137 -1146. (10.1002/pon.4185)
- Field, J., Richardson, A., Hopkinson, J. and Fenlon, D. 2016. Nordic walking as an exercise intervention to reduce pain in women with aromatase inhibitor associated arthralgia: a feasibility study. Journal of Pain and Symptom Management 52(4), pp. 548-559. (10.1016/j.jpainsymman.2016.03.010)
- Courtier, N., Milton, R., King, A., Tope, R., Morgan, S. and Hopkinson, J. 2016. Cancer and dementia: an exploratory study of the experience of cancer treatment in people with dementia. Psycho-Oncology 25(9), pp. 1079-1084. (10.1002/pon.4212)
- Latter, S., Hopkinson, J. B., Richardson, A., Hughes, J. A., Lowson, E. and Edwards, D. 2016. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Supportive and Palliative Care 6(3), pp. 263-275. (10.1136/bmjspcare-2015-000958)
- Edwards, D., Carrier, J. and Hopkinson, J. 2016. Mealtime assistance for older adults in hospital settings and rehabilitation units from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. JBI Database of Systematic Reviews and Implementation Reports 14(9), pp. 261-357. (10.11124/JBISRIR-2016-003100)
- Evans, N. and Hopkinson, J. B. 2016. How action researchers use anxiety to facilitate change in health care. Journal of Clinical Nursing 25(11-12), pp. 1674-1682. (10.1111/jocn.13186)
- Job, C., Anstey, S. and Hopkinson, J. B. 2016. Learning from the experiences of cancer patients and their carers. Cancer Nursing Practice 15(4), pp. 14-20. (10.7748/cnp.15.4.14.s18)
- Edwards, D. J., Anstey, S. V., Kelly, D. M. and Hopkinson, J. B. 2016. An innovation in curriculum content and delivery of cancer education within undergraduate nurse training in the UK. What impact does this have on the knowledge, attitudes and confidence in delivering cancer care?. European Journal of Oncology Nursing 21, pp. 8-16. (10.1016/j.ejon.2015.12.003)
- Preston, N. J. et al. 2016. Strategies designed to help healthcare professionals to recruit participants to research studies. Cochrane Database of Systematic Reviews 2, article number: MR000036. (10.1002/14651858.MR000036.pub2)
- Hopkinson, J. 2016. Food connections: a qualitative exploratory study of weight- and eating-related distress in families affected by advanced cancer. European Journal of Oncology Nursing 20, pp. 87-96. (10.1016/j.ejon.2015.06.002)
- Wheelwright, S., Darlington, A. S., Hopkinson, J. B., Fitzsimmons, D. and Johnson, C. 2016. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliative Medicine 30(2), pp. 149-160. (10.1177/0269216315588743)
- King, A., Hopkinson, J. B. and Milton, R. 2016. Reflections of a team approach to involving people with dementia in research. International Journal of Palliative Nursing 22(1), pp. 372-377. (10.12968/ijpn.2016.22.1.22)
- Wheelwright, S. J., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2016. A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia. BMJ Supportive & Palliative Care 6(3), pp. 307-314. (10.1136/bmjspcare-2014-000680)
- Hopkinson, J. B. 2015. The nursing contribution to the nutritional care of people with cancer cachexia. Proceedings of the Nutrition Society 74(4), pp. 413-418. (10.1017/S0029665115002384)
- Foster, C. et al. 2015. You can't say, 'What about me?' I'm not the one with cancer": information and support needs of relatives. Psycho-Oncology 24(6), pp. 705-711. (10.1002/pon.3716)
- Hopkinson, J. B. 2015. Nutritional support of the elderly cancer patient: the role of the nurse. Nutrition 31(4), pp. 598-602. (10.1016/j.nut.2014.12.013)
- Hopkinson, J. B. et al. 2015. Cancer Carers Medicines Management: a study to develop and test an educational intervention for carers of cancer patients approaching end of life at home [Abstract]. Supportive Care in Cancer 23(1), pp. S61. (10.1007/s00520-015-2712-y)
- Hopkinson, J. B. and Richardson, A. 2015. A mixed-methods qualitative research study to develop a complex intervention for weight loss and anorexia in advanced cancer: the Family Approach to Weight and Eating (FAWE). Palliative Medicine 29(2), pp. 164-176. (10.1177/0269216314556924)
- Edwards, D. J., Carrier, J. A. K. and Hopkinson, J. B. 2015. Assistance at mealtimes in hospital settings and rehabilitation units for older adults from the perspective of patients, families and healthcare professionals: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 13(11), pp. 17-32. (10.11124/jbisrir-2015-2425)
- Wheelwright, S. J., Hopkinson, J. B., Darlington, A., Fitzsimmons, D. F. and Johnson, C. D. 2015. Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]. Journal of Cachexia, Sarcopenia and Muscle 6(4), pp. 471-509. (10.1002/jcsm.12087)
- Samuriwo, R., Anstey, S., Job, C., Coles, B. M., Cleves, A. and Hopkinson, J. B. 2015. The impact of nurse decision making on the pressure ulcer related clinical and quality related outcomes of adult patients in the last six months of life: a systematic review. PROSPERO International Prospective Register of Systematic Reviews, article number: CRD42015026756.
- Hopkinson, J. B. 2014. Challenges to pain medicines management at home: commentary on the Schumacher et al. papers. Journal of Pain and Symptom Management 48(5), pp. 760-761. (10.1016/j.jpainsymman.2014.09.005)
- Aapro, M. et al. 2014. Early recognition of malnutrition and cachexia in the cancer patient: a position paper of a European School of Oncology Task Force. Annals of Oncology 25(8), pp. 1492-1499. (10.1093/annonc/mdu085)
- Latter, S. et al. 2014. Study protocol for a feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life. Working Papers in the Health Sciences 1(8), article number: 3.
- Hopkinson, J. B. 2014. Psychosocial impact of cancer cachexia. Journal of Cachexia, Sarcopenia and Muscle 5(2), pp. 89-94. (10.1007/s13539-014-0142-1)
- Edwards, D. J. and Hopkinson, J. B. 2014. Initiatives for improving the provision of assistance at mealtimes for older adults on hospital wards: a mixed methods systematic review [Poster presentation]. BMJ Supportive & Palliative Care 4, pp. A26-A27. (10.1136/bmjspcare-2014-000654.73.)
- Hopkinson, J. B. et al. 2014. Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication. BMJ Supportive & Palliative Care 4(Supp 1), article number: A7. (10.1136/bmjspcare-2014-000654.18)
- Hane, H., Obeholzer, R., Walker, J., Hopkinson, J. B., de Wolf-Linder, S. and Strasser, F. 2013. Psychosocial consequences of cancer cachexia: the development of an item bank. Journal of Pain and Symptom Management 46(6), pp. 795-806. (10.1016/j.jpainsymman.2013.01.008)
- Oberholzer, R., Hopkinson, J. B., Baumann, K., Omlin, A., Kaasa, S., Fearon, K. C. and Strasser, F. 2013. Psychosocial effects of cancer cachexia: A systematic literature search and qualitative analysis. Journal of Pain and Symptom Management 46(1), pp. 77-95. (10.1016/j.jpainsymman.2012.06.020)
- Hopkinson, J. B., Fenlon, D. R. and Foster, C. L. 2013. Outcomes of a nurse-delivered psychosocial intervention for weight- and eating-related distress in family carers of patients with advanced cancer. International Journal of Palliative Nursing 19(3), pp. 116-123.
- Wheelwright, S., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2013. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Supportive Care in Cancer 21(9), pp. 2625-2636. (10.1007/s00520-013-1881-9)
- Hoffman, C. J., Ersser, S. J. and Hopkinson, J. B. 2012. Mindfulness-based stress reduction in breast cancer: A qualitative analysis. Complementary Therapies in Clinical Practice 18(4), pp. 221-226. (10.1016/j.ctcp.2012.06.008)
- Preston, N. J. et al. 2012. Strategies to increase participant recruitment to research studies by healthcare professionals. The Cochrane Library 2012(9), article number: MR000036. (10.1002/14651858.MR000036)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life and wellbeing in stages 0 to III breast cancer: a randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life, and well-being in Stage 0 to III breast cancer: A randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer [Abstract]. Psycho-Oncology 21(s2), pp. 1-1. (10.10002/pon.3051)
- Hopkinson, J. B., Brown, J. C., Okamoto, I. and Addington-Hall, J. M. 2012. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. Journal of Pain and Symptom Management 43(1), pp. 111-142. (10.1016/j.jpainsymman.2011.03.013)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. . M. 2011. What to eat when off treatment and living with involuntary weight loss and cancer: a systematic search and narrative review. Supportive Care in Cancer 19(1), pp. 1-17. (10.1007/s00520-010-0964-0)
- Hopkinson, J. B., Fenlon, D. R., Okamoto, I., Wright, D. N. M., Scott, I., Addington-Hall, J. M. and Foster, C. 2010. The deliverability, acceptability, and perceived effect of the Macmillan approach to eeight loss and eating difficulties: a Phase II, cluster-randomized, exploratory trial of a psychosocial intervention for weight- and eating-related distress in people with advanced cancer. Journal of Pain and Symptom Management 40(5), pp. 684-695. (10.1016/j.jpainsymman.2010.02.015)
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. M. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: a systematic review [Abstract]. Palliative Medicine 24(2), pp. 215. (10.1177/0269216310363376)
- Hopkinson, J. B. 2010. The emotional aspects of cancer anorexia. Current Opinion in Supportive and Palliative Care 4(4), pp. 254-258. (10.1097/SPC.0b013e32833ef813)
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient -carer dyads on symptom experience: a systematic review. Palliative Medicine 24(4), pp. S36., article number: 106. (10.1177/0269216310366390)
- Foster, C., Wright, D., Hill, H., Hopkinson, J. B. and Roffe, L. 2009. Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. European Journal of Cancer Care 18(3), pp. 223-247. (10.1111/j.1365-2354.2008.01001.x)
- Hopkinson, J. B. 2008. Carers' influence on diets of people with advanced cancer. Nursing Times 104(12), pp. 28-29.
- Hopkinson, J. B., Wright, D., Foster, C. and Dewey, A. 2008. Correspondence. Letter to the editor. Re: Assessment and monitoring of nutritional status in patients with advanced cancer. IJPN 13 (6) 256-265. International Journal of Palliative Nursing 14(2), pp. 100-101.
- Hopkinson, J. B., Wright, D. N. M. and Foster, C. 2008. Management of weight loss and anorexia. Annals of Oncology 19(Supp7), pp. vii289-vii293. (10.1093/annonc/mdn452)
- Hopkinson, J. B. 2008. Patients with advanced cancer used 4 self-action strategies to manage eating-related problems. Evidence Based Nursing 11(2), article number: 61. (10.1136/ebn.11.2.61)
- Walsh, B., Roberts, H. and Hopkinson, J. B. 2007. Emergency hospital admissions for ill-defined conditions amongst older people: a review of the literature. International Journal of Older People Nursing 2(4), pp. 270-277. (10.1111/j.1748-3743.2007.00093.x)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Corner, J., Wright, D., Hopkinson, J. B., Gunaratnam, Y., McDonald, J. W. and Foster, C. 2007. The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study. British Journal of Cancer 96(6), pp. 875-881. (10.1038/sj.bjc.6603662)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Hopkinson, J. B. 2007. Focus on solutions: a health professional's guide. Journal of Advanced Nursing 57(3), pp. 353. (10.1111/j.1365-2648.2007.04196.x)
- Hopkinson, J. B. 2007. Qualitative research practice [Book Review]. Journal of Advanced Nursing 60(6), pp. 708. (10.1111/j.1365-2648.2007.04519_9.x)
- Wright, D. N. M., Corner, J. L., Hopkinson, J. B. and Foster, C. L. 2007. The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9(S2), article number: S3. (10.1186/bcr1801)
- Wright, D. N., Hopkinson, J. B., Corner, J. L. and Foster, C. L. 2006. How to involve cancer patients at the end of life as co-researchers. Palliative Medicine 20(8), pp. 821-827. (10.1177/0269216306073110)
- Hopkinson, J. B., Wright, D., McDonald, J. and Corner, J. 2006. The Prevalence of Concern About Weight Loss and Change in Eating Habits in People with Advanced Cancer. Journal of Pain and Symptom Management 32(4), pp. 322-331. (10.1016/j.jpainsymman.2006.05.012)
- Hopkinson, J. B., Wright, D. and Corner, J. 2006. Exploring the experience of weight loss in people with advanced cancer. Journal of Advanced Nursing 54(3), pp. 304-312. (10.1111/j.1365-2648.2006.03818.x)
- Corner, J., Hopkinson, J. B. and Roffe, L. 2006. Experience of health changes and reasons for delay in seeking care: a UK study of the months prior to the diagnosis of lung cancer. Social Science & Medicine 62(6), pp. 1381-1391. (10.1016/j.socscimed.2005.08.012)
- Wright, D., Corner, J., Hopkinson, J. B. and Foster, C. 2006. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expectations 9(1), pp. 3-12. (10.1111/j.1369-7625.2006.00353.x)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2006. Self management and cancer. Proceedings of the British Psychological Society 14(1), pp. 23.
- Hopkinson, J. B. and Corner, J. 2006. Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals. Journal of Pain and Symptom Management 31(4), pp. 293-305. (10.1016/j.jpainsymman.2005.09.005)
- Hopkinson, J. B. 2006. The complete guide to relieving cancer pain and suffering [Book Review]. Journal of Advanced Nursing 56(3), pp. 339. (10.1111/j.1365-2648.2006.04066.x)
- Hopkinson, J. B., Wright, D. N. M. and Corner, J. L. 2005. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliative Medicine 19(7), pp. 532-537. (10.1191/0269216305pm1049oa)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2005. Everyday death: how do nurses cope with caring for dying people in hospital?. International Journal of Nursing Studies 42(2), pp. 125-133. (10.1016/j.ijnurstu.2004.06.004)
- Corner, J., Hopkinson, J. B., Fitzsimmons, D., Barclay, S. and Muers, M. 2005. Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Thorax 60(4), pp. 314-319. (10.1136/thx.2004.029264)
- Hopkinson, J. B. and Amir, Z. 2004. New name, more care. Macmillan Voice 30(6)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2003. Caring for dying people in hospital. Journal of Advanced Nursing 44(5), pp. 525-533. (10.1046/j.0309-2402.2003.02836.x)
- Hopkinson, J. B. 2002. The hidden benefit: the supportive function of the nursing handover for qualified nurses caring for dying people in hospital. Journal of Clinical Nursing 11(2), pp. 168-175. (10.1046/j.1365-2702.2002.00576.x)
- Hopkinson, J. and Hopkinson, M. 2002. Nursing staff shortages - managing risk at source. Health Care Risk Report, pp. 16-17.
- Hopkinson, J. B. and Hallett, C. E. 2001. Patients’ perceptions of hospice day care: a phenomenological study. International Journal of Nursing Studies 38(1), pp. 117-125. (10.1016/S0020-7489(00)00045-6)
- Hopkinson, J. B. 2001. Facilitating the development of clinical skills in caring for dying people in hospital. Nurse Education Today 21(8), pp. 632-639. (10.1054/nedt.2001.0667)
- Hopkinson, M. and Hopkinson, J. 2001. NHS complaints statistics. Health Care Risk Report 7(6), pp. 16-17.
- Hopkinson, M. and Hopkinson, J. 2001. Risk management in the NHS: adapting risk management techniques for the commercial world. Health Care Risk Report 7(2), pp. 19-20.
- Hopkinson, M. J. and Hopkinson, J. 2001. Adapting risk identification techniques from business. Health Care Risk Report 7(8), pp. 18-19.
- Hopkinson, M. and Hopkinson, J. 2001. Adapting risk treatment techniques from business. Health Care Risk Report 8(1), pp. 16-19.
Book sections
- Hopkinson, J. B. and Strasser, F. 2011. Psychosocial aspects of nutritional care of cancer patients. In: van Halteren, H. and Jatoi, A. eds. ESMO Handbook of Nutrition and Cancer. ESMO Handbooks Lugano: European Society for Medical Oncology (ESMO) Press, pp. 73-80.
- Hopkinson, J. B. and Bailey, C. 2010. Nutritional care of older people. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 471-476.
- Hawkins, C. et al. 2010. The multi-disciplinary approach to nutritional problems in patients with cancer. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 237-256.
- Hopkinson, J. B. 2008. Change in eating habits. In: Corner, J. and Bailey, C. eds. Cancer nursing: care in context. Oxford: Blackwell, pp. 525-532.
Books
- Del Fabbro, E. et al. eds. 2010. Nutrition and the cancer patient. Oxford: Oxford University Press.
Conferences
- Csontos, J. et al. 2021. Cancer memory mate: implementing a healthcare innovation to support the management of cancer treatments and side effects in people with memory problems in South Wales, UK. Presented at: 2021 UKONS Annual Conference, Virtual, 11-13 November 2021.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Nurse decision making about the delivery of skin care to patients with advanced cancer at the end of life: a qualitative exploratory study. Presented at: Tissue Viability Society Conference, Newcastle, UK, 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Quality improvement in end of life skin care. Nurse decision making about the delivery of skin care to advanced cancer patients at the end of life: exploratory qualitative research. Presented at: European Wound Management Association Virtual Conference (EWMA 2018), Krakow, Poland, 9-11 May 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Developing a decision making tool for nurses to improve end of life skin care for advanced cancer patients: a qualitative exploratory study. Presented at: 20th Annual Meeting of European Pressure Ulcer Advisory Panel (EPUAP 2018), Rome, Italy, 12-14 September 2018.
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer. Presented at: Annual Conference of the British Psychosocial Oncology Society: Cancer Survivorship & Rehabilitation, Leeds, UK, 19-20 January 2012.
- Hopkinson, J. B. and Brown, J. C. 2011. Security hunger: An understanding of cancer cachexia-related distress in families. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. and Scott, I. 2011. What do patients eat when living with advanced cancer: Findings from an exploratory trial of the Macmillan Approach to Weight loss and Eating (MAWE). Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. 2011. The clinical management of the emotional aspects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Oberholzer, R., Hopkinson, J. B., Baumann, K. and Omlin, A. 2011. A review on psychosocial effects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient-carer dyads on symptom experience: A systematic review.. Presented at: 6th European Association of Palliative Care (EAPC) Research Conference, Glasgow, UK, 10-12 June 2010.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: A systematic review. Presented at: Palliative Care Congress, Bournemouth, UK, 10-12 March 2010.
- Hopkinson, J. B. et al. 2009. Overcoming obstacles to conducting trials in the context of palliative care: An exploratory phase II cluster randomised trial to investigate the effectiveness of the ‘Macmillan Approach to Weight loss and Eating difficulties’ (MAWE). Presented at: 11th EAPC Congress, Vienna, Austria, 7-10 May 2009. London, GB, Macmillan Cancer Report.
- Hopkinson, J. B. et al. 2009. A feasibility study: a mixed methods exploratory phase II cluster randomised trail to investigate the effectiveness of the 'Macmillan Approach to Weight loss and Eating difficulties'(MAWE).. Presented at: NCRI Cancer Conference, Birmingham, Birmingham, UK., 4-7 October 2009.
- Hopkinson, J. B., Foster, C., Roff, L. and Wright, D. N. M. 2008. Carer impact on self-management by people with advanced cancer living with changing eating habits [Oral presentation]. Presented at: 5th Research Forum of the European Association for Palliative Care (EAPC), Trondheim, Norway, 28-31 May 2008, Vol. 22. Vol. 1 supp. pp. 417-418., (10.1177/0269216308091582)
- Hopkinson, J. 2007. People with advanced cancer and their care givers in conflict over food. Presented at: 2007 International Nursing Research Conference, Dundee, UK, 1 -4 May 2007The 2007 International Nursing Research Conference: Book of Abstracts.. London: Royal College of Nursing pp. 106.
Monographs
- Hopkinson, J., Watts, T., Abdi, A. and Chivers, E. 2021. What is known about oral nutritional care of patients receiving radiotherapy, chemotherapy or chemoradiotherapy for colorectal cancer? A systematic review and narrative synthesis.. NIHR CRD. Available at: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020178160
- Samuriwo, R., Henley, J., Anstey, S., Job, C., Williams, D. and Hopkinson, J. 2018. Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory qualitative study. Cardiff University.
- Foster, C. et al. 2009. Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer. Project Report. [Online]. Macmillan Cancer Support. Available at: http://www.southampton.ac.uk/healthsciences/research/projects/supporting_relatives_an_investigation_into_obstacles_and_aids.page
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2005. Supporting self management of people affected by cancer: a review of the evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. B. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Project Report. Macmillan Research Unit.
Research
PROJECTS IN PROGRESS
Inclusive prehab (I-Prehab) to address inequity in cancer outcomes: mixed-methods evaluation research to enhance access, acceptance and adherence. HSDR project: NIHR 151668
Understanding and identifying ways to optimise cancer recognition, referral, and management for people with dementia in primary and community care: a qualitative interview study. NIHR RfPB. Led by Professor Claire Surr, Leeds Beckett University.
Velindre Cancer Centre nurse and therapies research capacity building project: the Velindre Healthcare Cancer Research Fellowship scheme funded by the Velindre Charity.
COMPLETED PROJECTS 2012-2022
CAN-PAL The codesign of a physical activity and lifestyle tool for people with cancer (CAN-PAL). Funded by Cardiff University Innovation for All.
Be Treatment Ready - Colorectal Digital (BeTR-C Digital), a digital based healthcare tool for improved nutritional care of people with colorectal cancer receiving chemotherapy treatment. Funded by Translational Kickstart Fund: Catalyst funding.
eat-CIT follow-on: oral intake and nutritional care of patients receiving non-surgical treatment for colorectal cancer: a systematic review and narrative synthesis.
What factors should be considered when making a shared decision with patient and carers to commence and discontinue artificial nutrition at end of life?’ A Pan London Research Fellowship held by Jennifer McCracken, Dietitian.
Oral chemotherapy management in the home: an exploratory case study of treatment adherence in people with cancer living in the Valleys of South East Wales. Funded by: KESS2: Knowledge Economy Skills Scholarships, European Social Fund.
An international field study for the reliability and validity of the EORTC cancer cachexia module (the EORTC QLQ-CAX24) and the EORTC QLQ-C30 for assessing quality of life in cancer patients with cachexia. Funded by: The European Organization for Research and Treatment of Cancer Quality of Life Group.
Cancer Memory Mate: an evaluation of the Velindre launch and implementation of an innovation to support cancer treatment adherence and management of side effects in people with dementia or milder cognitive impairment. Funded by: Economic and Social Research Council (ESRC IAA).
South East Wales lung cancer pathway evaluation. A Macmillan Cancer Support/Velindre University NHS Trust award held by Alison Edwards, Clinical Nurse Specialist.
ENeRgy-Q: qualitative analysis of participant experience of the multimodal intervention offered in a randomized, phase II, trial of an Exercise and Nutrition-based Rehabilitation programme (ENeRgy) versus standard care in people with cancer. Funded by the Ken Fearon Endowment Fund.
Cancer Memory Kit: developing supportive care of people with cognitive impairment receiving cancer treatment in partnership with the Velindre Cancer Centre, Cardiff. Welsh Government Dementia Action Plan Grant.
eat-CIT: an investigation to inform the content of a web based resource to help people with cancer to self-manage eating problems during chemotherapy treatment. Funded by Tenovus Cancer Care iGrant.
Patient perception of the effectiveness and use of salt as a first line treatment for overgranulation at their gastrostomy tube site. Tenovus/RCBC Wales First into Research Award held by Judy Wright, Nutrition Nurse Specialist.
REACT project: an investigation of the active components of a specialist home treatment intervention to prevent hospital admission of people with dementia in crisis in the community. Funded by Healthcare Research Wales, Research for Patient and Public Benefit.
Nurses' decision-making about the delivery of skin care to patients with advanced cancer at the end of life: A vignette based study of a prototype decision making algorithm. Funded by Cwm Taf/Aneurin Bevan.
Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory study to develop a decision support algorithm. Funded by General Nursing Council.
Feasibility study of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for curable breast cancer. Funded by Tenovus Innovation Grant.
Underserved and overlooked: Investigating the management of refusal of care in people with dementia admitted to hospital with an acute condition. Funded by National Institute for Health Research (NIHR).
Improving the experience of out-patient cancer treatment for people with comorbid dementia in Wales. Funded by Tenovus Innovation Grant.
Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at the end of life. Funded by Marie Curie/Dimbleby Cancer Care.
Teaching
Jane has supervised 14 doctoral and 27 masters students to successful completion.
Her specialist subject when presenting or writing for clinical and academic audiences is the supportive care of people with eating difficulties and weight loss who are preparing for cancer treatment or approaching end of life.
Biography
Jane Hopkinson is a cancer, palliative and end of life care nurse and researcher. Jane trained as a nurse at The Middlesex Hospital London, qualifying in 1984, and then worked clinically in geriatric rehabilitation, cancer and hospice care prior to completing a PhD about the support of clinical nurses who provide end of life care, University of Manchester, 2001. She has worked with clinical and academic teams in locations across the UK, which include the Christie Hospital, Manchester; St Ann’s Hospice Manchester, Macmillan Research Unit, University of Southampton and the Velindre Cancer Centre, Cardiff. Jane was Velindre Professor of Nursing and Interdisciplinary Cancer Care from 2020 to 2024. A role with focus on building research capacity in the NHS. Please see https://www.cardiff.ac.uk/news/view/2477706-improving-cancer-care-in-wales-and-beyond. She is now Professor Emerita of Nursing and Cancer Care, Cardiff University.
Educational qualifications
2009: Post Graduate Diploma in Clinical Trials, London School of Hygiene & Tropical Medicine
2001: PhD in Nursing, The University of Manchester
1997: MSc in Nursing, The University of Manchester
1994: BSc Hons in Social Science, The Open University
Professional qualifications
1987: ENB 237 (Oncology nursing certificate) The Christie Hospital, Manchester.
1985: RGN and Diploma in Nursing (Geriatrics) The Middlesex Hospital, London.
Current appointments
Sept 2017 – current: Member of the National Institute for Health and Care Research (NIHR) Cancer and Nutrition Collaboration.
Nov 2023 – current: Chair Health Equity Interest Group, NIHR Cancer and Nutrition Collaboration.
Mar 2024 - current: NIHR UK Applied Research Centres (ARC) Funding Committee
Sept 2022 - current: Trustee of Tenovus Cancer Care
Honours and awards
Professor Emeritus Cardiff University
Finalist RCN Nurse of the Year 2024
Professional memberships
Multinational Association of Supportive Care in Cancer (MASCC)
European Oncology Nursing Society (EONS)
Royal College of Nursing (RCN)
Academic positions
Aug 2020 – Sept 2024 : Velindre Professor of Nursing and Interdisciplinary Care, Cardiff University
Sept 2011 – Jul 2020: Professor of Nursing, Cardiff University
Jul 2001 - Aug 2011: Post Doc Fellow, University of Southampton
Nov1984 - Jul 2002: Clinical nursing in cancer care, palliative care and elderly care
Speaking engagements
INTERNATIONAL INVITED PRESENTATIONS 2014-2024
Hopkinson J (Jun 2023) Nurse-led holistic multimodal care for cancer cachexia. Japanese Society for Palliative Medicine, Kobe, Japan.
Hopkinson J (Jan 2023) The role of the nurse in meeting the needs of the cachectic cancer patient and their caregivers. Keio University School of Nursing. Japan.
Hopkinson J (Dec 2022) Educational needs of self-care in cachectic cancer patients and caregivers. Post MASCC meeting 2022. Belgium School of Oncology, Brussels.
Hopkinson J (Jun 2022) Educational Needs and Disparities in Cancer Cachexia Care. MASCC/ISOO 2022. Toronto, Canada.
Hopkinson J (Dec 2021) Psychological aspects of cancer cachexia. 11th International Seminar of the European Palliative Care Research Centre in collaboration with the Norwegian Cancer Society. Norway.
Hopkinson J (Nov 2021) Supportive care in cancer cachexia. Sharing Progress in Cancer Care (SPCC) Online Conference: Avoiding Malnutrition and Cachexia to Improve Patient Outcomes. Switzerland.
Hopkinson J (Apr 2020) Caring for people with dementia receiving cancer treatment: developing Memory Mate, an innovation in nursing care enabled by a clinical-academic research partnership. 3rd World Congress on Nursing and Healthcare, Barcelona, Spain.
Hopkinson J (Apr 2019) The Nourishing Role. Cross Cancer Centre Journal Club, Edmonton, Canada.
Hopkinson J (Jan 2017) Managing the physical, emotional and social impact of cancer anorexia cachexia. Satellite symposium at the 15th Annual British Thoracic Oncology Society (BTOG) Conference Dublin 2017
Hopkinson JB (Oct 2016) Empowerment, self-efficacy, and quality of life with nutritional therapy. ESPEN Congress, Copenhagen, Denmark
Hopkinson JB. (Dec 2015) Quality of life in cachexia – assessment and therapy. 8th Cachexia Conference, Paris, France.
Hopkinson JB (Mar 2015) Invitation to Chair: Debate on parenteral nutrition in advanced cachectic cancer patients. Cachexia and Nutrition in Advanced Cancer Patients: A Multidisciplinary Approach. Barcelona, Spain.
Hopkinson JB (Mar 2015) Eating-related distress of patients and family members. Cachexia and Nutrition in Advanced Cancer Patients: A Multidisciplinary Approach. Barcelona, Spain.
Committees and reviewing
FORMER APPOINTMENTS 2014 to 2024
Oct 2020 - Nov 2022: NIHR Health Services and Delivery Reserach (HS&DR) Funding Committee
Mar 2020 – Sept 2024: Wales Cancer Research Centre Leadership Team member
Jul 2019 - Sept 2024: Member of the Knowledge Development and Dissemination Committee, International Society of Nurses in Cancer Care
Jul 2018 – Sept 2024: Lead for the All Wales Cancer Nurse and Allied Health Professionals Research Network. See https://www.walescancerpartnership.com/cancer-nurses-and-ahps-research-network/
Oct 2015 - Sept 2017: Supportive and palliative care sub-committee, Scientific Committee of the ESMO Congress, Madrid, Spain 2017
Supervisions
I am interested in supervising students in the areas of:
- Cancer care
- End of life care
I currently supervise:
Tidziwe Malinki-Madeya (Community Nurse) End of life care for people with dementia in care homes
Ohoud Alnazawi (Nurse Educator) High Fidelity Simulation in the education of undergraduate nursing students in Saudi Arabia: a mixed methods study
Past projects
Successful completions 2023:
Fathiyyah Alsomali (Cancer Nurse) Exploration of the rate of cord blood donation to the national cord blood bank in Saudi Arabia: Case study research.
Abdiraheem Ali (Pharmacist) Oral chemotherapy management in the home: mixed methods case study research. KESS2 studentship.
Higher degree students supervised to successful completion: 11 PhD, 1 DClinP, and 20 empirical MSc projects. They include nurses, radiographers, occupational therapists, physiotherapists, pharmacist, and a health services researcher.
Contact Details
Research themes
Specialisms
- Applied clinical research
- cancer
- Care experience
- qualitative research methods
- Palliative care