![Monica Busse-Morris](https://profiles-cardiff.imgix.net/attachments/238?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Trosolwyg
Rwy'n ffisiotherapydd cofrestredig a methodolegydd treialon yn y Ganolfan Ymchwil Treialon ym Mhrifysgol Caerdydd lle rydym yn ffurfio partneriaethau gydag ymchwilwyr ac yn meithrin perthnasoedd parhaol â'r cyhoedd i fynd i'r afael â chlefydau mawr a phryderon iechyd ein hoes. Ein nod yw atal afiechyd, diogelu ac ymestyn bywyd trwy ddylunio, datblygu a phrofi ymyriadau i wella iechyd a lles ac yn bwysig gweithio i ddeall achosion biolegol, amgylcheddol a chymdeithasol clefydau a salwch. Rwyf hefyd yn Gyfarwyddwr Cyfadran Ymchwil Iechyd a Gofal Cymru (https://healthandcareresearchwales.org/faculty), piler craidd llwybr gyrfa ymchwil cenedlaethol Cymru Gyfan, a sefydlwyd yn 2022.
Cwblheais fy astudiaethau israddedig mewn Ffisiotherapi yn Ne Affrica ac es ymlaen i gwblhau cymwysterau ôl-raddedig pellach mewn Ergonomeg a Biomecaneg. Mae gen i ddiddordeb hir mewn dulliau ymchwil iechyd cymhwysol ac mae gen i Ddiploma mewn Treialon Clinigol o Ysgol Hylendid a Meddygaeth Drofannol Llundain. Rwy'n gwasanaethu ar Banel Cymrodoriaethau Clinigol y Cyngor Ymchwil Feddygol, Panel Asesu Technoleg Iechyd NIHR Panel Cymrodoriaeth Uwch NIHR. Rwy'n gymrawd o'r Academi Addysg Uwch, yn gymrawd etholedig o Gymdeithas Ddysgedig Cymru, Academi Genedlaethol y Celfyddydau a'r Gwyddorau yng Nghymru ac yn hyfforddwr gweithredol cymwys Lefel 7 ac yn Ymarferydd Mewnwelediad achrededig.
Yn ystod fy astudiaethau PhD, defnyddiais gipio cynnig 3D, EMG wyneb a thracwyr gweithgaredd gwisgadwy i archwilio gwendid cyhyrau a gweithredu mewn ystod o anhwylderau niwrolegol a thrwy gydol fy ngyrfa ymchwil rwyf wedi parhau i ddatblygu'r dulliau hyn mewn ystod o astudiaethau arsylwadol, mecanistig ac ymyriadol aml-ganolfan ac mewn labordai a lleoliadau cymunedol. Mae gennyf ddiddordeb arbennig mewn datblygu a gwerthuso ymyriadau anffarmacolegol cymhleth i bobl sy'n byw gyda chyflyrau iechyd cymhleth tymor hir ac archwilio'r cydadwaith rhwng ffactorau addasadwy ac anaddasadwy sy'n gysylltiedig â chynnydd clefydau. Rwyf wedi arwain rhaglen ymchwil sy'n archwilio symudedd, hyfforddiant corfforol a gwybyddol a dulliau o fyw yn Clefyd Huntington, a hysbysodd llawer ohonynt y cyhoeddiad yn 2020 o'r canllawiau clinigol ffisiotherapi rhyngwladol cyntaf ar sail tystiolaeth ar gyfer clefyd Huntington.
Rwy'n mentora clinigwyr ac ymchwilwyr gyrfa gynnar mewn lleoliadau iechyd a gofal cymdeithasol amrywiol ac yn arwain ystod o astudiaethau clinigol a threialon gyda thimau ymchwil cenedlaethol a rhyngwladol, er enghraifft consortiwm DOMINO-HD a ariennir trwy brosiectau ymchwil JPND Amlwladol ar Iechyd a Gofal Cymdeithasol ar gyfer Clefydau Niwroddirywiol, y treial LISTEN a ariennir gan NIHR, sy'n gwerthuso ymyrraeth cymorth hunanreoli wedi'i gynllunio ar y cyd ar gyfer Covid hir a threial TIPTOE a ariennir gan NIHR. Canolbwyntio ar bobl hŷn ag osteoarthritis ac aml-afiachedd. Mae gen i ymrwymiad hirsefydlog i gynnwys a chydgynllunio cleifion a chyhoeddus mewn ymchwil ac mae BRAIN Involve sefydledig, cangen ymwneud â'r cyhoedd yn uned Ymennydd Cymru. Mae gen i gydweithrediadau gweithredol gydag ymchwilwyr a chlinigwyr sy'n gweithio ar draws amrywiaeth o leoliadau gwasanaeth iechyd (er enghraifft orthopaedeg, gofal critigol ac anhwylder ar y sbectrwm awtistiaeth). Mae fy Mynegai H (Scopus) yn 28 oed ac mae fy incwm grant gydol oes oddeutu £28,000 000.00.
Cyhoeddiad
2025
- Leggat, F. et al. 2025. Personalisation at the core of success: Process evaluation of the LISTEN randomised controlled trial evaluating a personalised self-management support intervention for people living with Long Covid.. Health Expectations 28(3), article number: e70270. (10.1111/hex.70270)
- Williams, N. et al. 2025. Effectiveness of a community-based rehabilitation programme following hip fracture: results from the Fracture in the Elderly Multidisciplinary Rehabilitation - phase III (FEMuR III) randomised. BMJ Open 15, article number: e091603. (10.1136/bmjopen-2024-091603)
- Edwards, B. M., Busse-Morris, M., Clouston, T. and Hannigan, B. 2025. Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers. Dementia 24(3), pp. 388-407. (10.1177/14713012241272815)
- Fahed, V. S., Doheny, E. P., Busse, M., Hoblyn, J. and Lowery, M. M. 2025. Comparison of acoustic voice features derived from mobile devices and studio microphone recordings. Journal of Voice 39(2), pp. 559.e1-559.e18. (10.1016/j.jvoice.2022.10.006)
- Khalil, H. et al. 2025. Delivering trauma-focused physiotherapy interventions for trauma-exposed refugees: a qualitative study exploring perspectives and experiences from Jordan and Kenya. Physiotherapy Theory and Practice: An International Journal of Physical Therapy (10.1080/09593985.2025.2484609)
- Dalléry, R. et al. 2025. The joint memory effect: challenging the selfish stigma in Huntington’s disease?. Brain Communications 7(1), article number: fcae440. (10.1093/braincomms/fcae440)
- Jones, F., Busse, M., Rowe, C., Domeney, A. and Patel, I. 2025. We must recognise the collective wisdom of those with lived experience of long covid (Opinion). BMJ 388, article number: r243. (10.1136/bmj.r243)
- Busse-Morris, M. et al. 2025. Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial): pragmatic, multicentre, parallel group, randomised controlled trial. BMJ Medicine 4(1), article number: e001068. (10.1136/bmjmed-2024-001068)
2024
- Edwards, B. M., Busse, M., Clouston, T. J. and Hannigan, B. 2024. Exploring the impact of early-stage dementia on everyday activities. British Journal of Occupational Therapy 87(11), pp. 704-714. (10.1177/03080226241261178)
- Jones, U., Hamana, K. and Busse, M. 2024. Promoting physical activity in Huntington's Disease: co-design of a care partner resource. Journal of Huntington's Disease 13(3), pp. 375-383. (10.3233/JHD-240014)
- Ioakeimidis, V. et al. 2024. Protocol for a randomised controlled unblinded feasibility trial of HD-DRUM, a rhythmic movement training application for cognitive and motor symptoms in people with Huntington’s disease. BMJ Open 14(7), article number: e082161. (10.1136/bmjopen-2023-082161)
- Doheny, E. P. et al. 2024. Assessment of Fitbit Charge 4 for sleep stage and heart rate monitoring against polysomnography and during home monitoring in Huntington's disease. Journal of Clinical Sleep Medicine 20(7), pp. 1163-1171. (10.5664/jcsm.11098)
- Jones, F. et al. 2024. Using co‐design methods to develop new personalised support for people living with Long Covid: The ‘LISTEN’ intervention. Health Expectations 27(3), article number: e14093. (10.1111/hex.14093)
- Fahed, V. S. et al. 2024. Language-independent acoustic biomarkers for quantifying speech impairment in Huntington's Disease. American Journal of Speech-Language Pathology 33(3), pp. 1390-1405. (10.1044/2024_AJSLP-23-00175)
- Randell, E. et al. 2024. Exploring critical intervention features and trial processes in the evaluation of sensory integration therapy for autistic children. BMC Trials 25(1), article number: 131. (10.1186/s13063-024-07957-6)
2023
- Ioakeimidis, V. et al. 2023. Protocol for a randomised controlled feasibility trial of HD-DRUM, a rhythmic movement training application for cognitive and motor symptoms in people with Huntington's disease. [Online]. medRxiv: medRxiv. (10.1101/2023.11.15.23298581) Available at: https://doi.org/10.1101/2023.11.15.23298581
- Metzler-Baddeley, C., Busse-Morris, M., Drew, C., Pallmann, P., Cantera Gomez, J., Ioakeimidis, V. and Rosser, A. 2023. HD-DRUM, a tablet-based drumming training App intervention for people with Huntington Disease: App development study. Journal of Medical Internet Research 2023(7), article number: e48395. (10.2196/48395)
- Markoulidakis, A., Taiyari, K., Holmans, P., Pallmann, P., Busse, M., Godley, M. D. and Griffin, B. A. 2023. A tutorial comparing different covariate balancing methods with an application evaluating the causal effects of substance use treatment programs for adolescents. Health Services and Outcomes Research Methodology 23, pp. 115-148. (10.1007/s10742-022-00280-0)
- Fakolade, A. et al. 2023. Mapping two decades of multiple sclerosis rehabilitation trials: A systematic scoping review and call to action to advance the study of race and ethnicity in rehabilitation research. Multiple Sclerosis and Related Disorders 72, article number: 104606. (10.1016/j.msard.2023.104606)
- Metzler-Baddeley, C., Busse, M., Drew, C., Pallmann, P., Cantera Gomez, J., Ioakeimidis, V. and Rosser, A. E. 2023. Applying an integrated knowledge translation framework approach to develop a tablet-based rhythmic movement training intervention for people with Huntington’s disease. [Online]. JMIR Preprints. (10.2196/preprints.48395) Available at: https://preprints.jmir.org/preprint/48395
- Potter, C. et al. 2023. Effectiveness and cost-effectiveness of a personalised self-management intervention for living with long covid: protocol for the listen randomised controlled trial. Trials 24, article number: 75. (10.1186/s13063-023-07090-w)
- Lemoine, L. et al. 2023. The striatum in time production: the model of Huntingtons's disease in longitudinal study. Neuropsychologia 179, article number: 108459. (10.1016/j.neuropsychologia.2022.108459)
2022
- Heaton-Shrestha, C., Torrens-Burton, A., Leggat, F., Islam, I., Busse, M. and Jones, F. 2022. Co-designing personalised self-management support for people living with long Covid: the LISTEN protocol. PLoS ONE 17(10), article number: e0274469. (10.1371/journal.pone.0274469)
- Metzler-Baddeley, C., Busse, M. E., Drew, C. J., Pallmann, P., Jones, D. K. and Rosser, A. 2022. HD-DRUM – a novel computerised drumming training for movement and cognitive abilities in people with Huntington’s disease – app development and protocol of a randomised controlled feasibility study. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022, Vol. 93. Vol. S1. pp. A100-A101., (10.1136/jnnp-2022-ehdn.267)
- Markoulidakis, A., Holmans, P., Pallmann, P., Busse, M. and Griffin, B. A. 2022. Covariate balancing & weighting web app (COBWEB): an online tool simplifying robust causal inference in observational studies. Journal of Neurology, Neurosurgery and Psychiatry 93(S1), article number: A44. (10.1136/jnnp-2022-ehdn.114)
- Markoulidakis, A., Busse, M., Doheny, E., Drew, C., Kirby, N. and Pallmann, P. 2022. Lifestyle index for individuals with HD (LifeHD): an aggregated measure that characterises the lifestyle habits of individuals with HD. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September, Vol. 93. Vol. S1., (10.1136/jnnp-2022-ehdn.111)
- Fahed, V. S. et al. 2022. F52 Acoustic voice features in Huntington's disease in native English, Spanish and Polish speakers. Presented at: EHDN 2022 Plenary Meeting, 16-18 September 2022, Vol. 93. BMJ Publishing Group, (10.1136/jnnp-2022-ehdn.143)
- Drew, C. J., Munnery, K., Wood, F. and Busse, M. 2022. F21 Co-design of a lifestyle intervention to improve quality of life in Huntington's disease. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022, Vol. 93. BMJ Publishing Group, (10.1136/jnnp-2022-ehdn.112)
- Lozano-García, M., Doheny, E., Mann, E., Drew, C., Busse, M. and Lowery, M. 2022. F61 Validation of a gait event detection algorithm during overground walking in Huntington's disease. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022, Vol. 93. BMJ Publishing Group, (10.1136/jnnp-2022-ehdn.152)
- Mann, E., Drew, C. J., Busse, M., Doheny, E. and Lowery, M. 2022. F62 Validation of digital assessment of physical activity in Huntington’s disease: comparing fitbit charge 4 step count with research-grade accelerometers. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022. BMJ Publishing Group pp. A58-A59., (10.1136/jnnp-2022-ehdn.153)
- Quinn, L. et al. 2022. Physical activity and exercise outcomes in Huntington's disease (PACE-HD): results of a 12-month trial-within-cohort feasibility study of a physical activity intervention in people with Huntington's disease. Parkinsonism & Related Disorders 101, pp. 75-89. (10.1016/j.parkreldis.2022.06.013)
- Fritz, N. E., Busse, M., Muratori, L. M., Rao, A. K., Kloos, A., Kegelmeyer, D. and Quinn, L. 2022. An MDS evidence-based review on treatments for Huntington's disease [Letter]. Movement Disorders 37(7), pp. 1566-1567. (10.1002/mds.29059)
- Milosevic, S. et al. 2022. Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study.. Health Expectations 25(3), pp. 1118-1130. (10.1111/hex.13465)
- Morgan-Jones, P. et al. 2022. Monitoring and managing lifestyle behaviours using wearable activity trackers: a mixed methods study of views from the Huntington's disease community. JMIR Formative Research 6(6), article number: e36870. (10.2196/36870)
- Randell, E. et al. 2022. Sensory integration therapy for children with autism and sensory processing difficulties: the SenITA RCT. Health Technology Assessment 26(29) (10.3310/TQGE0020)
- Desai, R. et al. 2022. Postural control and gait measures derived from wearable inertial measurement unit devices in Huntington's disease: recommendations for clinical outcomes. Clinical Biomechanics 96, article number: 105658. (10.1016/j.clinbiomech.2022.105658)
- Rosser, A. E. et al. 2022. Translating cell therapies for neurodegenerative diseases: Huntington's disease as a model disorder. Brain 145(5), pp. 1584-1597. (10.1093/brain/awac086)
- Busse, M. et al. 2022. A web-based life-style, exercise and activity intervention for people with progressive multiple sclerosis results of a single-arm feasibility study. Multiple Sclerosis and Related Disorders 57, article number: 103388. (10.1016/j.msard.2021.103388)
- Drew, C. J. and Busse, M. 2022. Considerations for clinical trial design and conduct in the evaluation of novel advanced therapeutics in neurodegenerative disease. In: Lane, E., Cheney, D. and Lelos, M. eds. Current Challenges in Cell Therapy for Neurodegenerative Diseases. International Review of Neurobiology Elsevier, pp. 235-279., (10.1016/bs.irn.2022.09.006)
- Hare, E., Bachoud-Lévi, A., Reilmann, R., Craufurd, D., Busse, M., Rosser, A. and McLauchlan, D. 2022. Cognitive processes of apathy in Huntington's Disease show high sensitivity to disease progression. Clinical Parkinsonism & Related Disorders 7, article number: 100168. (10.1016/j.prdoa.2022.100168)
2021
- Muratori, L. M., Quinn, L., LI, X., Youdan, G., Busse, M. and Fritz, N. E. 2021. Measures of postural control and mobility during dual-tasking as candidate markers of instability in Huntington's Disease. Human Movement Science 80, article number: 102881. (10.1016/j.humov.2021.102881)
- Chopard, D., Treder, M., Corcoran, P., Johnson, C., Busse-Morris, M. and Spasic, I. 2021. Text mining of adverse events in clinical trials: Deep learning approach. JMIR Medical Informatics 9(12), article number: e28632. (10.2196/28632)
- Karen, K. et al. 2021. Quantification of daily-living gait quantity and quality using a wrist-worn accelerometer in Huntington's Disease. Frontiers in Neurology 12, article number: 719442. (10.3389/fneur.2021.719442)
- Simpson, S. et al. 2021. Healthy eating and lifestyle in pregnancy (HELP): a cluster randomised trial to evaluate the effectiveness of a weight management intervention for pregnant women with obesity on weight at 12 months postpartum. International Journal of Obesity 45, pp. 1728-1739. (10.1038/s41366-021-00835-0)
- Lunven, M. et al. 2021. Cognitive decline in Huntington's disease in the Digitalized Arithmetic Task (DAT). PLoS ONE 16(8), article number: e0253064. (10.1371/journal.pone.0253064)
- Woodgate, S. et al. 2021. Objectively characterizing Huntington’s disease using a novel upper limb dexterity test. Journal of Neurology 268, pp. 2550-2559. (10.1007/s00415-020-10375-8)
- Desai, R., Fritz, N. E., Muratori, L., Hausdorff, J. M., Busse, M. and Quinn, L. 2021. Evaluation of gait initiation parameters using inertial sensors in Huntington's Disease: insights into anticipatory postural adjustments and cognitive interference. Gait and Posture 87, pp. 117-122. (10.1016/j.gaitpost.2021.04.021)
- Latchem-Hastings, J. et al. 2021. Lifestyle, exercise and activity package for people living with progressive multiple sclerosis (LEAP-MS): protocol for a single-arm feasibility study. Pilot and Feasibility Studies 7, article number: 111. (10.1186/s40814-021-00852-w)
- Jones, U., Hamana, K., O'Hara, F. and Busse, M. 2021. The development of PAT‐HD: a co‐designed tool to promote physical activity in people with Huntington’s disease. Health Expectations 24(2), pp. 638-647. (10.1111/hex.13210)
- Lowe, R. et al. 2021. Lifestyle, exercise and activity package for people living with progressive Multiple Sclerosis (LEAP-MS): adaptions during the COVID-19 pandemic and remote delivery for improved efficiency. Trials 22, article number: 286. (10.1186/s13063-021-05245-1)
- Busse, M. et al. 2021. A web-based physical activity intervention for people with progressive Multiple Sclerosis: application of consensus-based intervention development guidance. BMJ Open 11(3), article number: e045378. (10.1136/bmjopen-2020-045378)
- Jones, L. et al. 2021. Can wearable technology be used to approximate cardiopulmonary exercise testing metrics?. Perioperative Medicine 10, article number: 9. (10.1186/s13741-021-00180-w)
- Griffin, B. A. et al. 2021. Estimating the causal effects of modifiable, non-genetic factors on Huntington Disease progression using propensity score weighting. Parkinsonism and Related Disorders 83, pp. 56-62. (10.1016/j.parkreldis.2021.01.010)
- Jones, A., Morgan-Jones, P., Busse, M., Shepherd, V. and Wood, F. 2021. Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations. BMJ Open 11(1), article number: e041869. (10.1136/bmjopen-2020-041869)
- Hamana, K., Quinn, L., Gambling, T. and Busse, M. 2021. An exploration of physical activity experiences throughout the Huntington's disease journey: supporting development of theoretically underpinned complex interventions. Disability and Rehabilitation 43(11), pp. 1565-1575. (10.1080/09638288.2019.1671501)
- Drew, C. et al. 2021. Protocol for an open label, phase I trial within a cohort of fetal cell transplants in people with Huntington’s disease. Brain Communications 3(1), article number: fcaa230. (10.1093/braincomms/fcaa230)
- Badin, R. A. et al. 2021. Stem cells for Huntington’s disease (SC4HD): an international consortium to facilitate stem cell-based therapy for Huntington’s disease. Journal of Huntington's Disease 10(2), pp. 221-226. (10.3233/JHD-210473)
2020
- Jones, U., Hamana, K. and Busse, M. 2020. Acceptability of a co-designed tool to promote physical activity in people with Huntington's disease [Abstract]. Neurotherapeutics 17(S), article number: 11. (10.1007/s13311-020-00945-z)
- Jones, U. and Busse, M. 2020. Navigating the challenges of COVID-19: staying active with HD [Abstract]. Neurotherapeutics 17(S), pp. 10-11. (10.1007/s13311-020-00945-z)
- Williams, N. et al. 2020. Protocol for a definitive randomised controlled trial and economic evaluation of a community-based rehabilitation programme following hip fracture: fracture in the elderly multidisciplinary rehabilitation—phase III (FEMuR III). BMJ Open 10, article number: e039791. (10.1136/bmjopen-2020-039791)
- Yhnell, E. et al. 2020. A randomised feasibility study of computerised cognitive training as a therapeutic intervention for people with Huntington's disease (CogTrainHD). Pilot and Feasibility Studies 6, article number: 88. (10.1186/s40814-020-00623-z)
- Busse, M. and Ramdharry, G. 2020. Targeting sedentary behaviour in neurological disease. Practical Neurology 20(3), pp. 187-188. (10.1136/practneurol-2019-002491)
- Steventon, J., Furby, H., Ralph, J., O'Callaghan, P., Wise, R., Busse, M. and Murphy, K. 2020. Altered cerebrovascular response to acute exercise in patients with Huntington’s Disease. Brain Communications 2(1), article number: fcaa044. (10.1093/braincomms/fcaa044)
- Quinn, L., Kegelmeyer, D., Kloos, A., Rao, A. K., Busse-Morris, M. and Fritza, N. E. 2020. Clinical recommendations to guide physical therapy practice for Huntington disease. Neurology 94(5), pp. 217-228. (10.1212/WNL.0000000000008887)
- Markoulidakis, A., Taiyari, K., Holmans, P., Pallmann, P., Busse-Morris, M. and Griffin, B. A. 2020. A tutorial comparing different covariate balancing methods with an application evaluating the causal effect of exercise on the progression of Huntington’s disease. [Online]. arXiv. Available at: https://arxiv.org/abs/2010.09563
2019
- Jones, U., Hamana, K., Vougioukalou, S., Jones, M. and Busse-Morris, M. 2019. Exploration of a co-production approach to developing a walking group with people with Huntington's Disease. Med One 4, article number: e190022. (10.20900/mo.20190022)
- Playle, R., Dimitropoulou, P., Kelson, M., Quinn, L. and Busse-Morris, M. 2019. Exercise interventions in Huntington's disease: An individual patient data meta-analysis. Movement Disorders Clinical Practice 6(7), pp. 567-575. (10.1002/mdc3.12809)
- Drew, C. J. G. et al. 2019. Physical activity and exercise outcomes in Huntington Disease (PACE-HD): Protocol for a 12-Month trial within cohort evaluation of a physical activity intervention in people with Huntington Disease. Physical Therapy 99(9), pp. 1201-1210. (10.1093/ptj/pzz075)
- Randell, E. et al. 2019. Sensory integration therapy versus usual care for sensory processing difficulties in autism spectrum disorder in children: study protocol for a pragmatic randomised controlled trial.. Trials 20, article number: 113. (10.1186/s13063-019-3205-y)
- Watt, F. E. et al. 2019. Towards prevention of post-traumatic osteoarthritis: report from an international expert working group on considerations for the design and conduct of interventional studies following acute knee injury. Osteoarthritis and Cartilage 27(1), pp. 23-33. (10.1016/j.joca.2018.08.001)
- Clare, L. et al. 2019. Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: A scoping review. NeuroRehabilitation 43(4), pp. 443-471. (10.3233/NRE-172353)
- Bachoud-Levi, A. et al. 2019. International guidelines for the treatment of Huntington's Disease. Frontiers in Neurology 10, article number: 710. (10.3389/fneur.2019.00710)
2018
- Jones, U., Hamana, K. and Busse-Morris, M. 2018. Working together to promote physical activity in people with huntington's disease. Journal of Neurology, Neurosurgery and Psychiatry 89(S1), pp. A81., article number: H41. (10.1136/jnnp-2018-EHDN.219)
- Busse, M. et al. 2018. J09 A new trial design for evaluating exercise outcomes in Huntington's Disease. Journal of Neurology, Neurosurgery and Psychiatry 89(Supp 1), pp. A100 - A101. (10.1136/jnnp-2018-EHDN.269)
- Bennasar, M., Hicks, Y. A., Clinch, S. P., Jones, P., Holt, C., Rosser, A. and Busse-Morris, M. 2018. Automated assessment of movement impairment in Huntington's disease. IEEE Transactions on Neural Systems and Rehabilitation Engineering 26(10), pp. 2062-2069. (10.1109/TNSRE.2018.2868170)
- Polgar, S., Karimi, L., Buultjens, M., Morris, M. E. and Busse-Morris, M. 2018. Assessing the efficacy of cell transplantation for Parkinson's Disease: a patient-centered approach. Journal of Parkinson's Disease 8(3), pp. 375-383. (10.3233/JPD-181309)
- Mestre, T. et al. 2018. Quality of life measures in Huntington’s Disease: critique and recommendations for measures assessing patient health‐related quality of life and caregiver quality of life. Movement Disorders 33(5), pp. 742-749. (10.1002/mds.27317)
- Yhnell, E. et al. 2018. Exploring computerised cognitive training as a therapeutic intervention for people with Huntington's disease (CogTrainHD): protocol for a randomised feasibility study. Pilot and Feasibility Studies 4, article number: 45. (10.1186/s40814-018-0237-0)
- Button, K., Nicholas, K., Busse-Morris, M., Collins, M. and Spasic, I. 2018. Integrating self-management support for knee injuries into routine clinical practice: TRAK intervention design and delivery. Musculoskeletal Science and Practice 33, pp. 53-60. (10.1016/j.msksp.2017.11.002)
- Button, K., Nicholas, K., Busse-Morris, M., Collins, M. and Spasic, I. 2018. An evaluation of TRAK physiotherapy self management intervention development and delivery for knee conditions. Presented at: OARSI 2018 World Congress on Osteoarthritis, Liverpool, 26-29 April 2018. pp. -.
2017
- Fritz, N. et al. 2017. Physical therapy and exercise interventions in Huntington's disease: a mixed methods systematic review. Journal of Huntington's Disease 6(3), pp. 217-235. (10.3233/JHD-170260)
- Quinn, L. and Busse, M. 2017. The role of rehabilitation therapy in Huntington disease. In: Feigen, A. S. and Anderson, K. E. eds. Handbook of Clinical Neurology: Huntington Disease., Vol. 144. Elsevier: Monograph Series, pp. 151-165., (10.1016/B978-0-12-801893-4.00013-4)
- Fritz, N., Busse-Morris, M., Jones, K., Khalil, H. and Quinn, L. 2017. A classification system to guide physical therapy management in Huntington’s disease: a case series. Journal of Neurologic Physical Therapy 41(3), pp. 156-163. (10.1097/NPT.0000000000000188)
- Quinn, L. et al. 2017. Physical therapy and exercise interventions in Huntington's disease: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 15(7), pp. 1783-4433. (10.11124/JBISRIR-2016-003274)
- Busse, M. et al. 2017. Physical activity self-management and coaching compared to social interaction in Huntington’s disease: Results from the ENGAGE-HD randomized, controlled, pilot feasibility trial. Physical Therapy 97(6), pp. 625-639. (10.1093/ptj/pzx031)
- Khalil, H., Busse-Morris, M. and Quinn, L. 2017. A pilot study of a minimally supervised home exercise and walking program for people with Parkinson’s disease in Jordan. Neurodegenerative Disease Management 7(1) (10.2217/nmt-2016-0041)
- Clinch, S., Busse-Morris, M., Döbrössy, M. D. and Dunnett, S. B. 2017. Rehabilitation training in neural restitution. In: Dunnett, S. B. and Bjorklund, A. eds. Progress in Brain Research., Vol. 230. Elsevier, pp. 305-329., (10.1016/bs.pbr.2016.12.006)
2016
- Drew, C. et al. 2016. Integrating technology into complex intervention trial processes: a case study. Trials 17(1), article number: 551. (10.1186/s13063-016-1674-9)
- Mestre, T. A. et al. 2016. Rating scales for behavioural symptoms in Huntington's Disease: critique and recommendations. Movement Disorders 31(10), pp. 1466-1478. (10.1002/mds.26675)
- Jones, C. et al. 2016. The societal cost of Huntington’s disease: are we underestimating the burden?. European Journal of Neurology 23(10), pp. 1588-1590. (10.1111/ene.13107)
- Jones, U. F., Busse, M., Enright, S. and Rosser, A. E. 2016. Respiratory decline is integral to disease progression in Huntington's disease [Letter]. European Respiratory Journal 48(2), pp. 585-588. (10.1183/13993003.02215-2015)
- Townhill, J. et al. 2016. Using Actiwatch to monitor circadian rhythm disturbance in Huntington' disease: A cautionary note. Journal of Neuroscience Methods 265, pp. 13-18. (10.1016/j.jneumeth.2016.01.009)
- Quinn, L. et al. 2016. Development and delivery of a physical activity intervention for people with Huntington Disease. Journal of Neurologic Physical Therapy 40(2), pp. 71-80. (10.1097/NPT.0000000000000119)
- Bennasar, M., Hicks, Y. A., Clinch, S., Jones, P., Rosser, A. E., Busse, M. and Holt, C. A. 2016. Huntington's Disease assessment using tri axis accelerometers. Procedia Computer Science 96, pp. 1193-1201. (10.1016/j.procs.2016.08.163)
2015
- Dawes, H. et al. 2015. Exercise testing and training in people with Huntington's diseas. Clinical Rehabilitation 29(2), pp. 196-206. (10.1177/0269215514540921)
2014
- Busse, M., Quinn, L., Khalil, H. and McEwan, K. 2014. Optimising mobility outcome measures in Huntington's disease. Journal of Huntington's Disease 3(2), pp. 175-188. (10.3233/JHD-140091)
- Jones, U. F., Busse, M., Enright, S. and Rosser, A. E. 2014. Respiratory function decreases with progression of Huntington's Disease. Journal of Neurology, Neurosurgery & Psychiatry 85(Suppl), pp. A61-A62. (10.1136/jnnp-2014-309032.173)
- Jones, K., Hamana, K., Quinn, L., Rosser, A. and Busse, M. 2014. Physiotherapy task orientated approach: A case report. Journal of neurology, neurosurgery and psychiatry 85(1), article number: A68. (10.1136/jnnp-2014-309032.192)
- Busse, M. et al. 2014. Supporting physical activity engagement in people with Huntington's disease (ENGAGE-HD): study protocol for a randomized controlled feasibility trial. Trials 15(1), article number: 487. (10.1186/1745-6215-15-487)
2013
- Busse, M. et al. 2013. A randomized feasibility study of a 12-week community-based exercise program for people with Huntington's Disease. Journal of Neurologic Physical Therapy 37(4), pp. 149-158., article number: 1557-0576/13/3704-0149. (10.1097/NPT.0000000000000016)
- Khalil, H., Quinn, L., Van Deursen, R. W. M., Dawes, H., Playle, R. A., Rosser, A. E. and Busse, M. 2013. What effect does a structured home-based exercise programme have on people with Huntington's disease? A randomized, controlled pilot study. Clinical Rehabilitation 27(7), pp. 646-658. (10.1177/0269215512473762)
- Quinn, L. et al. 2013. Reliability and minimal detectable change of physical performance measures in individuals with pre-manifest and manifest Huntington disease. Physical Therapy 93(7), pp. 942-956. (10.2522/ptj.20130032)
- Dalton, A., Khalil, H., Busse, M., Rosser, A. E., Van Deursen, R. W. M. and ÓLaighin, G. 2013. Analysis of gait and balance through a single triaxial accelerometer in presymptomatic and symptomatic Huntington's disease. Gait & Posture 37(1), pp. 49-64. (10.1016/j.gaitpost.2012.05.028)
- Quinn, L., Busse, M. and Dal Bello-Haas, V. 2013. Management of upper extremity dysfunction in people with Parkinson disease and Huntington disease: facilitating outcomes across the disease lifespan. Journal of Hand Therapy 26(2), pp. 148-155. (10.1016/j.jht.2012.11.001)
- Harrison, D. J., Busse, M., Openshaw, R., Rosser, A. E., Dunnett, S. B. and Brooks, S. P. 2013. Exercise attenuates neuropathology and has greater benefit on cognitive than motor deficits in the R6/1 Huntington's disease mouse model. Experimental Neurology 248, pp. 457-469. (10.1016/j.expneurol.2013.07.014)
- Quinn, L., Busse, M. and Rosser, A. E. 2013. Critical features in the development of exercise-based interventions for people with Huntington's disease. European Neurological Review 8(1), pp. 10-13.
2012
- Griffiths, A., Busse, M. and Sarin, B. 2012. Do the understanding, knowledge and fears of the caregivers of first time stroke survivors accurately reflect the difficulties faced after discharge from hospital?. Presented at: Welsh Stroke Conference 2012, Newport, Wales, 22nd June 2012.
- Quinn, L. and Busse, M. 2012. Physiotherapy clinical guidelines for Huntington’s disease. Neurodegenerative Disease Management 2(1), pp. 21-31. (10.2217/nmt.11.86)
- Jones, U. F., Enright, S. and Busse, M. 2012. Management of respiratory problems in people with neurodegenerative conditions: a narrative review. Physiotherapy 98(1), pp. 1-12. (10.1016/j.physio.2011.03.002)
- Busse, M. et al. 2012. Q12 A randomised feasibility study of a 12-week exercise programme in Huntington's disease (HD) [Abstract]. Journal of Neurology, Neurosurgery & Psychiatry 83(S1), pp. A58-A59. (10.1136/jnnp-2012-303524.182)
- Hamana, K. et al. 2012. Q13 Perspectives of participating in a 12-week exercise programme for people with early -mid stage Huntington's disease [Abstract]. Journal of Neurology, Neurosurgery & Psychiatry 83(S1), pp. A59. (10.1136/jnnp-2012-303524.183)
- Khalil, H., Quinn, L., Van Deursen, R. W. M., Dawes, H., Playle, R., Rosser, A. E. and Busse, M. 2012. Q15 A pilot study of an exercise intervention to improve motor function in people with Huntington's disease (HD) [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S1), pp. A59. (10.1136/jnnp-2012-303524.185)
- Read, J. et al. 2012. I03 Evaluation of life time physical activity levels in Huntington's disease [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S1), pp. A33. (10.1136/jnnp-2012-303524.102)
- Jones, K. et al. 2012. Q14 Sub maximal exercise testing in people with early stage Huntington's disease [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S1), pp. A59. (10.1136/jnnp-2012-303524.184)
- Busse, M., Khalil, H., Quinn, L., Brooks, S. P. and Rosser, A. E. 2012. Practice, progress and future directions for physical therapies in Huntington's Disease. Journal of Huntington's Disease 1(2), pp. 175-185. (10.3233/JHD-120025)
- Jones, K. et al. 2012. Sub maximal exercise testing in people with early stage Huntington’s Disease [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S. 1), article number: A59. (10.1136/jnnp-2012-303524.184)
2011
- Pickering, D. and Busse, M. 2011. What value does the MPOC-SP have for physiotherapists working with children? Focus group results about family centred care.. Presented at: World Confederation of Physical Therapy, Amsterdam, The Netherlands, 21-24 June 2011.
- Jones, U. F., Busse, M., Enright, S. and Rosser, A. E. 2011. A pilot study of influences on physical activity level and exercise capacity in people with Huntington's disease [Abstract]. Physiotherapy 97(s1), pp. eS570., article number: RR-PL-1276. (10.1016/j.physio.2011.04.002)
2010
- Sheeran, L., Sparkes, V., Busse-Morris, M. and Van Deursen, R. 2010. Preliminary study: reliability of the spinal wheel. A novel device to measure spinal postures applied to sitting and standing. European Spine Journal 19(6), pp. 995-1003. (10.1007/s00586-009-1241-0)
- Sheeran, L., Sparkes, V., Busse, M. and Van Deursen, R. W. M. 2010. Preliminary study: reliability of the spinal wheel. A novel device to measure spinal postures applied to sitting and standing. European Spine Journal 19(6), pp. 995-1003. (10.1007/s00586-009-1241-0)
- Pickering, D. and Busse, M. 2010. An Audit of disabled children’s services – what value is MPOC-SP?. Clinical Audit 2010(2), pp. 13-22. (10.2147/CA.S8073)
- Pickering, D. and Busse, M. 2010. Disabled children's services: how do we measure family-centred care?. Journal of Child Health Care 14(2), pp. 200-207. (10.1177/1367493509360207)
- Busse, M., Al-Madfai, H., Kenkre, J., Landwehrmeyer, G. B., Bentivoglio, A. and Rosser, A. E. 2010. Utilisation of Healthcare and Associated Services in Huntington's disease: a data mining study. PLoS Currents 3, article number: RRN1206. (10.1371/currents.RRN1206)
2009
- Cooper, A., Alghamdi, G. A., Alghamdi, M. A., Busse, M. and Richardson, S. 2009. The relationship of lower limb muscle strength and joint kinematics during the stance phase of gait in hemiparetic stroke patients [Abstract]. International Journal of Stroke 4(S2), pp. 36-36. (10.1111/j.1747-4949.2009.00354.x)
- Tyson, S. F., Connell, L., Busse, M. and Lennon, S. 2009. What do acute stroke physiotherapists do to treat postural control and mobility? An exploration of the content of therapy in the UK. Clinical Rehabilitation 23(11), pp. 1051-1055. (10.1177/0269215509334837)
- Busse, M., Wiles, C. M. and Rosser, A. E. 2009. Mobility and falls in people with Huntington's disease. Journal of Neurology Neurosurgery and Psychiatry 80(1), pp. 88-90. (10.1136/jnnp.2008.147793)
- Busse, M. and Tyson, S. F. 2009. How many body locations need to be tested when assessing sensation after stroke? An investigation of redundancy in the Rivermead Assessment of Somatosensory Performance. Clinical Rehabilitation 23(1), pp. 91-95. (10.1177/0269215508097296)
- Busse, M., Van Deursen, R. W. M. and Wiles, C. M. 2009. Real-life step and activity measurement: reliability and validity. Journal of Medical Engineering & Technology 33(1), pp. 33-41. (10.1080/03091900701682606)
- Tyson, S. F., Connell, L. A., Busse, M. and Lennon, S. 2009. What is Bobath? A survey of UK stroke physiotherapists' perceptions of the content of the Bobath concept to treat postural control and mobility problems after stroke. Disability & Rehabilitation 31(6), pp. 448-457. (10.1080/09638280802103621)
- Tyson, S. F., Connell, L. A., Lennon, S. and Busse, M. 2009. What treatment packages do UK physiotherapists use to treat postural control and mobility problems after stroke?. Disability & Rehabilitation 31(18), pp. 1494-1500. (10.1080/09638280802627686)
2008
- Busse, M., Khalil, H., Quinn, L. and Rosser, A. E. 2008. Physical therapy intervention for people with Huntington disease. Physical Therapy 88(7), pp. 820-31. (10.2522/ptj.20070346)
- Meaney, A., Busse, M., Dawes, H. and Rosser, A. E. 2008. Response to a structured exercise programme for Huntington's Disease [Abstract]. Journal of Sport Science 26(S2), pp. 125-126. (10.1080/02640410802306202)
2007
- Busse, M. and Tyson, S. F. 2007. Functional balance and mobility tests in healthy participants: reliability, error and influencing factors. Physiotherapy Research International 12(4), pp. 242-250. (10.1002/pri.383)
- Sparkes, V., Smith, M. and Busse, M. 2007. Scapular taping in the therapeutic management of subacromial impingement symptoms - exploration of a clinical theory. Physiotherapy Research International 12(4), pp. 203-204. (10.1002/pri.387)
2006
- Busse, M., Wiles, C. M. and Van Deursen, R. W. M. 2006. Co-activation: its association with weakness and specific neurological pathology. Journal of NeuroEngineering and Rehabilitation 3(1), pp. 26-33. (10.1186/1743-0003-3-26)
- Busse, M., Wiles, C. M. and Van Deursen, R. W. M. 2006. Community walking activity in neurological disorders with leg weakness. Journal of Neurology Neurosurgery & Psychiatry 77(3), pp. 359-362. (10.1136/jnnp.2005.074294)
2005
- Wiles, C. M., Busse, M., Sampson, C. M. A., Rogers, M., Fenton-May, J. M. and Van Deursen, R. W. M. 2005. Falls and stumbles in myotonic dystrophy. Journal of Neurology, Neurosurgery and Psychiatry 77(3), pp. 393-396. (10.1136/jnnp.2005.066258)
- Busse, M., Wiles, C. M. and Van Deursen, R. W. M. 2005. Muscle co-activation in neurological conditions. Physical Therapy Reviews 10(4), pp. 247-253. (10.1179/108331905X78915)
2004
- Busse, M., Pearson, O. R., Van Deursen, R. W. M. and Wiles, C. M. 2004. Quantified measurement of activity provides insight into motor function and recovery in neurological disease. Journal of Neurology Neurosurgery & Psychiatry 75(6), pp. 884-8. (10.1136/jnnp.2003.020180)
- Pearson, O. R., Busse, M., Van Deursen, R. W. M. and Wiles, C. M. 2004. Quantification of walking mobility in neurological disorders. QJM: An International Journal of Medicine 97(8), pp. 463-475. (10.1093/qjmed/hch084)
1998
- Vaughan, C. L., Subramanian, N. and Busse, M. 1998. Selective dorsal rhizotomy as a treatment option for children with spastic cerebral palsy. Gait and Posture 8(1), pp. 43-59.
Articles
- Leggat, F. et al. 2025. Personalisation at the core of success: Process evaluation of the LISTEN randomised controlled trial evaluating a personalised self-management support intervention for people living with Long Covid.. Health Expectations 28(3), article number: e70270. (10.1111/hex.70270)
- Williams, N. et al. 2025. Effectiveness of a community-based rehabilitation programme following hip fracture: results from the Fracture in the Elderly Multidisciplinary Rehabilitation - phase III (FEMuR III) randomised. BMJ Open 15, article number: e091603. (10.1136/bmjopen-2024-091603)
- Edwards, B. M., Busse-Morris, M., Clouston, T. and Hannigan, B. 2025. Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers. Dementia 24(3), pp. 388-407. (10.1177/14713012241272815)
- Fahed, V. S., Doheny, E. P., Busse, M., Hoblyn, J. and Lowery, M. M. 2025. Comparison of acoustic voice features derived from mobile devices and studio microphone recordings. Journal of Voice 39(2), pp. 559.e1-559.e18. (10.1016/j.jvoice.2022.10.006)
- Khalil, H. et al. 2025. Delivering trauma-focused physiotherapy interventions for trauma-exposed refugees: a qualitative study exploring perspectives and experiences from Jordan and Kenya. Physiotherapy Theory and Practice: An International Journal of Physical Therapy (10.1080/09593985.2025.2484609)
- Dalléry, R. et al. 2025. The joint memory effect: challenging the selfish stigma in Huntington’s disease?. Brain Communications 7(1), article number: fcae440. (10.1093/braincomms/fcae440)
- Jones, F., Busse, M., Rowe, C., Domeney, A. and Patel, I. 2025. We must recognise the collective wisdom of those with lived experience of long covid (Opinion). BMJ 388, article number: r243. (10.1136/bmj.r243)
- Busse-Morris, M. et al. 2025. Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial): pragmatic, multicentre, parallel group, randomised controlled trial. BMJ Medicine 4(1), article number: e001068. (10.1136/bmjmed-2024-001068)
- Edwards, B. M., Busse, M., Clouston, T. J. and Hannigan, B. 2024. Exploring the impact of early-stage dementia on everyday activities. British Journal of Occupational Therapy 87(11), pp. 704-714. (10.1177/03080226241261178)
- Jones, U., Hamana, K. and Busse, M. 2024. Promoting physical activity in Huntington's Disease: co-design of a care partner resource. Journal of Huntington's Disease 13(3), pp. 375-383. (10.3233/JHD-240014)
- Ioakeimidis, V. et al. 2024. Protocol for a randomised controlled unblinded feasibility trial of HD-DRUM, a rhythmic movement training application for cognitive and motor symptoms in people with Huntington’s disease. BMJ Open 14(7), article number: e082161. (10.1136/bmjopen-2023-082161)
- Doheny, E. P. et al. 2024. Assessment of Fitbit Charge 4 for sleep stage and heart rate monitoring against polysomnography and during home monitoring in Huntington's disease. Journal of Clinical Sleep Medicine 20(7), pp. 1163-1171. (10.5664/jcsm.11098)
- Jones, F. et al. 2024. Using co‐design methods to develop new personalised support for people living with Long Covid: The ‘LISTEN’ intervention. Health Expectations 27(3), article number: e14093. (10.1111/hex.14093)
- Fahed, V. S. et al. 2024. Language-independent acoustic biomarkers for quantifying speech impairment in Huntington's Disease. American Journal of Speech-Language Pathology 33(3), pp. 1390-1405. (10.1044/2024_AJSLP-23-00175)
- Randell, E. et al. 2024. Exploring critical intervention features and trial processes in the evaluation of sensory integration therapy for autistic children. BMC Trials 25(1), article number: 131. (10.1186/s13063-024-07957-6)
- Metzler-Baddeley, C., Busse-Morris, M., Drew, C., Pallmann, P., Cantera Gomez, J., Ioakeimidis, V. and Rosser, A. 2023. HD-DRUM, a tablet-based drumming training App intervention for people with Huntington Disease: App development study. Journal of Medical Internet Research 2023(7), article number: e48395. (10.2196/48395)
- Markoulidakis, A., Taiyari, K., Holmans, P., Pallmann, P., Busse, M., Godley, M. D. and Griffin, B. A. 2023. A tutorial comparing different covariate balancing methods with an application evaluating the causal effects of substance use treatment programs for adolescents. Health Services and Outcomes Research Methodology 23, pp. 115-148. (10.1007/s10742-022-00280-0)
- Fakolade, A. et al. 2023. Mapping two decades of multiple sclerosis rehabilitation trials: A systematic scoping review and call to action to advance the study of race and ethnicity in rehabilitation research. Multiple Sclerosis and Related Disorders 72, article number: 104606. (10.1016/j.msard.2023.104606)
- Potter, C. et al. 2023. Effectiveness and cost-effectiveness of a personalised self-management intervention for living with long covid: protocol for the listen randomised controlled trial. Trials 24, article number: 75. (10.1186/s13063-023-07090-w)
- Lemoine, L. et al. 2023. The striatum in time production: the model of Huntingtons's disease in longitudinal study. Neuropsychologia 179, article number: 108459. (10.1016/j.neuropsychologia.2022.108459)
- Heaton-Shrestha, C., Torrens-Burton, A., Leggat, F., Islam, I., Busse, M. and Jones, F. 2022. Co-designing personalised self-management support for people living with long Covid: the LISTEN protocol. PLoS ONE 17(10), article number: e0274469. (10.1371/journal.pone.0274469)
- Markoulidakis, A., Holmans, P., Pallmann, P., Busse, M. and Griffin, B. A. 2022. Covariate balancing & weighting web app (COBWEB): an online tool simplifying robust causal inference in observational studies. Journal of Neurology, Neurosurgery and Psychiatry 93(S1), article number: A44. (10.1136/jnnp-2022-ehdn.114)
- Quinn, L. et al. 2022. Physical activity and exercise outcomes in Huntington's disease (PACE-HD): results of a 12-month trial-within-cohort feasibility study of a physical activity intervention in people with Huntington's disease. Parkinsonism & Related Disorders 101, pp. 75-89. (10.1016/j.parkreldis.2022.06.013)
- Fritz, N. E., Busse, M., Muratori, L. M., Rao, A. K., Kloos, A., Kegelmeyer, D. and Quinn, L. 2022. An MDS evidence-based review on treatments for Huntington's disease [Letter]. Movement Disorders 37(7), pp. 1566-1567. (10.1002/mds.29059)
- Milosevic, S. et al. 2022. Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study.. Health Expectations 25(3), pp. 1118-1130. (10.1111/hex.13465)
- Morgan-Jones, P. et al. 2022. Monitoring and managing lifestyle behaviours using wearable activity trackers: a mixed methods study of views from the Huntington's disease community. JMIR Formative Research 6(6), article number: e36870. (10.2196/36870)
- Randell, E. et al. 2022. Sensory integration therapy for children with autism and sensory processing difficulties: the SenITA RCT. Health Technology Assessment 26(29) (10.3310/TQGE0020)
- Desai, R. et al. 2022. Postural control and gait measures derived from wearable inertial measurement unit devices in Huntington's disease: recommendations for clinical outcomes. Clinical Biomechanics 96, article number: 105658. (10.1016/j.clinbiomech.2022.105658)
- Rosser, A. E. et al. 2022. Translating cell therapies for neurodegenerative diseases: Huntington's disease as a model disorder. Brain 145(5), pp. 1584-1597. (10.1093/brain/awac086)
- Busse, M. et al. 2022. A web-based life-style, exercise and activity intervention for people with progressive multiple sclerosis results of a single-arm feasibility study. Multiple Sclerosis and Related Disorders 57, article number: 103388. (10.1016/j.msard.2021.103388)
- Hare, E., Bachoud-Lévi, A., Reilmann, R., Craufurd, D., Busse, M., Rosser, A. and McLauchlan, D. 2022. Cognitive processes of apathy in Huntington's Disease show high sensitivity to disease progression. Clinical Parkinsonism & Related Disorders 7, article number: 100168. (10.1016/j.prdoa.2022.100168)
- Muratori, L. M., Quinn, L., LI, X., Youdan, G., Busse, M. and Fritz, N. E. 2021. Measures of postural control and mobility during dual-tasking as candidate markers of instability in Huntington's Disease. Human Movement Science 80, article number: 102881. (10.1016/j.humov.2021.102881)
- Chopard, D., Treder, M., Corcoran, P., Johnson, C., Busse-Morris, M. and Spasic, I. 2021. Text mining of adverse events in clinical trials: Deep learning approach. JMIR Medical Informatics 9(12), article number: e28632. (10.2196/28632)
- Karen, K. et al. 2021. Quantification of daily-living gait quantity and quality using a wrist-worn accelerometer in Huntington's Disease. Frontiers in Neurology 12, article number: 719442. (10.3389/fneur.2021.719442)
- Simpson, S. et al. 2021. Healthy eating and lifestyle in pregnancy (HELP): a cluster randomised trial to evaluate the effectiveness of a weight management intervention for pregnant women with obesity on weight at 12 months postpartum. International Journal of Obesity 45, pp. 1728-1739. (10.1038/s41366-021-00835-0)
- Lunven, M. et al. 2021. Cognitive decline in Huntington's disease in the Digitalized Arithmetic Task (DAT). PLoS ONE 16(8), article number: e0253064. (10.1371/journal.pone.0253064)
- Woodgate, S. et al. 2021. Objectively characterizing Huntington’s disease using a novel upper limb dexterity test. Journal of Neurology 268, pp. 2550-2559. (10.1007/s00415-020-10375-8)
- Desai, R., Fritz, N. E., Muratori, L., Hausdorff, J. M., Busse, M. and Quinn, L. 2021. Evaluation of gait initiation parameters using inertial sensors in Huntington's Disease: insights into anticipatory postural adjustments and cognitive interference. Gait and Posture 87, pp. 117-122. (10.1016/j.gaitpost.2021.04.021)
- Latchem-Hastings, J. et al. 2021. Lifestyle, exercise and activity package for people living with progressive multiple sclerosis (LEAP-MS): protocol for a single-arm feasibility study. Pilot and Feasibility Studies 7, article number: 111. (10.1186/s40814-021-00852-w)
- Jones, U., Hamana, K., O'Hara, F. and Busse, M. 2021. The development of PAT‐HD: a co‐designed tool to promote physical activity in people with Huntington’s disease. Health Expectations 24(2), pp. 638-647. (10.1111/hex.13210)
- Lowe, R. et al. 2021. Lifestyle, exercise and activity package for people living with progressive Multiple Sclerosis (LEAP-MS): adaptions during the COVID-19 pandemic and remote delivery for improved efficiency. Trials 22, article number: 286. (10.1186/s13063-021-05245-1)
- Busse, M. et al. 2021. A web-based physical activity intervention for people with progressive Multiple Sclerosis: application of consensus-based intervention development guidance. BMJ Open 11(3), article number: e045378. (10.1136/bmjopen-2020-045378)
- Jones, L. et al. 2021. Can wearable technology be used to approximate cardiopulmonary exercise testing metrics?. Perioperative Medicine 10, article number: 9. (10.1186/s13741-021-00180-w)
- Griffin, B. A. et al. 2021. Estimating the causal effects of modifiable, non-genetic factors on Huntington Disease progression using propensity score weighting. Parkinsonism and Related Disorders 83, pp. 56-62. (10.1016/j.parkreldis.2021.01.010)
- Jones, A., Morgan-Jones, P., Busse, M., Shepherd, V. and Wood, F. 2021. Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations. BMJ Open 11(1), article number: e041869. (10.1136/bmjopen-2020-041869)
- Hamana, K., Quinn, L., Gambling, T. and Busse, M. 2021. An exploration of physical activity experiences throughout the Huntington's disease journey: supporting development of theoretically underpinned complex interventions. Disability and Rehabilitation 43(11), pp. 1565-1575. (10.1080/09638288.2019.1671501)
- Drew, C. et al. 2021. Protocol for an open label, phase I trial within a cohort of fetal cell transplants in people with Huntington’s disease. Brain Communications 3(1), article number: fcaa230. (10.1093/braincomms/fcaa230)
- Badin, R. A. et al. 2021. Stem cells for Huntington’s disease (SC4HD): an international consortium to facilitate stem cell-based therapy for Huntington’s disease. Journal of Huntington's Disease 10(2), pp. 221-226. (10.3233/JHD-210473)
- Jones, U., Hamana, K. and Busse, M. 2020. Acceptability of a co-designed tool to promote physical activity in people with Huntington's disease [Abstract]. Neurotherapeutics 17(S), article number: 11. (10.1007/s13311-020-00945-z)
- Jones, U. and Busse, M. 2020. Navigating the challenges of COVID-19: staying active with HD [Abstract]. Neurotherapeutics 17(S), pp. 10-11. (10.1007/s13311-020-00945-z)
- Williams, N. et al. 2020. Protocol for a definitive randomised controlled trial and economic evaluation of a community-based rehabilitation programme following hip fracture: fracture in the elderly multidisciplinary rehabilitation—phase III (FEMuR III). BMJ Open 10, article number: e039791. (10.1136/bmjopen-2020-039791)
- Yhnell, E. et al. 2020. A randomised feasibility study of computerised cognitive training as a therapeutic intervention for people with Huntington's disease (CogTrainHD). Pilot and Feasibility Studies 6, article number: 88. (10.1186/s40814-020-00623-z)
- Busse, M. and Ramdharry, G. 2020. Targeting sedentary behaviour in neurological disease. Practical Neurology 20(3), pp. 187-188. (10.1136/practneurol-2019-002491)
- Steventon, J., Furby, H., Ralph, J., O'Callaghan, P., Wise, R., Busse, M. and Murphy, K. 2020. Altered cerebrovascular response to acute exercise in patients with Huntington’s Disease. Brain Communications 2(1), article number: fcaa044. (10.1093/braincomms/fcaa044)
- Quinn, L., Kegelmeyer, D., Kloos, A., Rao, A. K., Busse-Morris, M. and Fritza, N. E. 2020. Clinical recommendations to guide physical therapy practice for Huntington disease. Neurology 94(5), pp. 217-228. (10.1212/WNL.0000000000008887)
- Jones, U., Hamana, K., Vougioukalou, S., Jones, M. and Busse-Morris, M. 2019. Exploration of a co-production approach to developing a walking group with people with Huntington's Disease. Med One 4, article number: e190022. (10.20900/mo.20190022)
- Playle, R., Dimitropoulou, P., Kelson, M., Quinn, L. and Busse-Morris, M. 2019. Exercise interventions in Huntington's disease: An individual patient data meta-analysis. Movement Disorders Clinical Practice 6(7), pp. 567-575. (10.1002/mdc3.12809)
- Drew, C. J. G. et al. 2019. Physical activity and exercise outcomes in Huntington Disease (PACE-HD): Protocol for a 12-Month trial within cohort evaluation of a physical activity intervention in people with Huntington Disease. Physical Therapy 99(9), pp. 1201-1210. (10.1093/ptj/pzz075)
- Randell, E. et al. 2019. Sensory integration therapy versus usual care for sensory processing difficulties in autism spectrum disorder in children: study protocol for a pragmatic randomised controlled trial.. Trials 20, article number: 113. (10.1186/s13063-019-3205-y)
- Watt, F. E. et al. 2019. Towards prevention of post-traumatic osteoarthritis: report from an international expert working group on considerations for the design and conduct of interventional studies following acute knee injury. Osteoarthritis and Cartilage 27(1), pp. 23-33. (10.1016/j.joca.2018.08.001)
- Clare, L. et al. 2019. Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: A scoping review. NeuroRehabilitation 43(4), pp. 443-471. (10.3233/NRE-172353)
- Bachoud-Levi, A. et al. 2019. International guidelines for the treatment of Huntington's Disease. Frontiers in Neurology 10, article number: 710. (10.3389/fneur.2019.00710)
- Jones, U., Hamana, K. and Busse-Morris, M. 2018. Working together to promote physical activity in people with huntington's disease. Journal of Neurology, Neurosurgery and Psychiatry 89(S1), pp. A81., article number: H41. (10.1136/jnnp-2018-EHDN.219)
- Busse, M. et al. 2018. J09 A new trial design for evaluating exercise outcomes in Huntington's Disease. Journal of Neurology, Neurosurgery and Psychiatry 89(Supp 1), pp. A100 - A101. (10.1136/jnnp-2018-EHDN.269)
- Bennasar, M., Hicks, Y. A., Clinch, S. P., Jones, P., Holt, C., Rosser, A. and Busse-Morris, M. 2018. Automated assessment of movement impairment in Huntington's disease. IEEE Transactions on Neural Systems and Rehabilitation Engineering 26(10), pp. 2062-2069. (10.1109/TNSRE.2018.2868170)
- Polgar, S., Karimi, L., Buultjens, M., Morris, M. E. and Busse-Morris, M. 2018. Assessing the efficacy of cell transplantation for Parkinson's Disease: a patient-centered approach. Journal of Parkinson's Disease 8(3), pp. 375-383. (10.3233/JPD-181309)
- Mestre, T. et al. 2018. Quality of life measures in Huntington’s Disease: critique and recommendations for measures assessing patient health‐related quality of life and caregiver quality of life. Movement Disorders 33(5), pp. 742-749. (10.1002/mds.27317)
- Yhnell, E. et al. 2018. Exploring computerised cognitive training as a therapeutic intervention for people with Huntington's disease (CogTrainHD): protocol for a randomised feasibility study. Pilot and Feasibility Studies 4, article number: 45. (10.1186/s40814-018-0237-0)
- Button, K., Nicholas, K., Busse-Morris, M., Collins, M. and Spasic, I. 2018. Integrating self-management support for knee injuries into routine clinical practice: TRAK intervention design and delivery. Musculoskeletal Science and Practice 33, pp. 53-60. (10.1016/j.msksp.2017.11.002)
- Fritz, N. et al. 2017. Physical therapy and exercise interventions in Huntington's disease: a mixed methods systematic review. Journal of Huntington's Disease 6(3), pp. 217-235. (10.3233/JHD-170260)
- Fritz, N., Busse-Morris, M., Jones, K., Khalil, H. and Quinn, L. 2017. A classification system to guide physical therapy management in Huntington’s disease: a case series. Journal of Neurologic Physical Therapy 41(3), pp. 156-163. (10.1097/NPT.0000000000000188)
- Quinn, L. et al. 2017. Physical therapy and exercise interventions in Huntington's disease: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 15(7), pp. 1783-4433. (10.11124/JBISRIR-2016-003274)
- Busse, M. et al. 2017. Physical activity self-management and coaching compared to social interaction in Huntington’s disease: Results from the ENGAGE-HD randomized, controlled, pilot feasibility trial. Physical Therapy 97(6), pp. 625-639. (10.1093/ptj/pzx031)
- Khalil, H., Busse-Morris, M. and Quinn, L. 2017. A pilot study of a minimally supervised home exercise and walking program for people with Parkinson’s disease in Jordan. Neurodegenerative Disease Management 7(1) (10.2217/nmt-2016-0041)
- Drew, C. et al. 2016. Integrating technology into complex intervention trial processes: a case study. Trials 17(1), article number: 551. (10.1186/s13063-016-1674-9)
- Mestre, T. A. et al. 2016. Rating scales for behavioural symptoms in Huntington's Disease: critique and recommendations. Movement Disorders 31(10), pp. 1466-1478. (10.1002/mds.26675)
- Jones, C. et al. 2016. The societal cost of Huntington’s disease: are we underestimating the burden?. European Journal of Neurology 23(10), pp. 1588-1590. (10.1111/ene.13107)
- Jones, U. F., Busse, M., Enright, S. and Rosser, A. E. 2016. Respiratory decline is integral to disease progression in Huntington's disease [Letter]. European Respiratory Journal 48(2), pp. 585-588. (10.1183/13993003.02215-2015)
- Townhill, J. et al. 2016. Using Actiwatch to monitor circadian rhythm disturbance in Huntington' disease: A cautionary note. Journal of Neuroscience Methods 265, pp. 13-18. (10.1016/j.jneumeth.2016.01.009)
- Quinn, L. et al. 2016. Development and delivery of a physical activity intervention for people with Huntington Disease. Journal of Neurologic Physical Therapy 40(2), pp. 71-80. (10.1097/NPT.0000000000000119)
- Bennasar, M., Hicks, Y. A., Clinch, S., Jones, P., Rosser, A. E., Busse, M. and Holt, C. A. 2016. Huntington's Disease assessment using tri axis accelerometers. Procedia Computer Science 96, pp. 1193-1201. (10.1016/j.procs.2016.08.163)
- Dawes, H. et al. 2015. Exercise testing and training in people with Huntington's diseas. Clinical Rehabilitation 29(2), pp. 196-206. (10.1177/0269215514540921)
- Busse, M., Quinn, L., Khalil, H. and McEwan, K. 2014. Optimising mobility outcome measures in Huntington's disease. Journal of Huntington's Disease 3(2), pp. 175-188. (10.3233/JHD-140091)
- Jones, U. F., Busse, M., Enright, S. and Rosser, A. E. 2014. Respiratory function decreases with progression of Huntington's Disease. Journal of Neurology, Neurosurgery & Psychiatry 85(Suppl), pp. A61-A62. (10.1136/jnnp-2014-309032.173)
- Jones, K., Hamana, K., Quinn, L., Rosser, A. and Busse, M. 2014. Physiotherapy task orientated approach: A case report. Journal of neurology, neurosurgery and psychiatry 85(1), article number: A68. (10.1136/jnnp-2014-309032.192)
- Busse, M. et al. 2014. Supporting physical activity engagement in people with Huntington's disease (ENGAGE-HD): study protocol for a randomized controlled feasibility trial. Trials 15(1), article number: 487. (10.1186/1745-6215-15-487)
- Busse, M. et al. 2013. A randomized feasibility study of a 12-week community-based exercise program for people with Huntington's Disease. Journal of Neurologic Physical Therapy 37(4), pp. 149-158., article number: 1557-0576/13/3704-0149. (10.1097/NPT.0000000000000016)
- Khalil, H., Quinn, L., Van Deursen, R. W. M., Dawes, H., Playle, R. A., Rosser, A. E. and Busse, M. 2013. What effect does a structured home-based exercise programme have on people with Huntington's disease? A randomized, controlled pilot study. Clinical Rehabilitation 27(7), pp. 646-658. (10.1177/0269215512473762)
- Quinn, L. et al. 2013. Reliability and minimal detectable change of physical performance measures in individuals with pre-manifest and manifest Huntington disease. Physical Therapy 93(7), pp. 942-956. (10.2522/ptj.20130032)
- Dalton, A., Khalil, H., Busse, M., Rosser, A. E., Van Deursen, R. W. M. and ÓLaighin, G. 2013. Analysis of gait and balance through a single triaxial accelerometer in presymptomatic and symptomatic Huntington's disease. Gait & Posture 37(1), pp. 49-64. (10.1016/j.gaitpost.2012.05.028)
- Quinn, L., Busse, M. and Dal Bello-Haas, V. 2013. Management of upper extremity dysfunction in people with Parkinson disease and Huntington disease: facilitating outcomes across the disease lifespan. Journal of Hand Therapy 26(2), pp. 148-155. (10.1016/j.jht.2012.11.001)
- Harrison, D. J., Busse, M., Openshaw, R., Rosser, A. E., Dunnett, S. B. and Brooks, S. P. 2013. Exercise attenuates neuropathology and has greater benefit on cognitive than motor deficits in the R6/1 Huntington's disease mouse model. Experimental Neurology 248, pp. 457-469. (10.1016/j.expneurol.2013.07.014)
- Quinn, L., Busse, M. and Rosser, A. E. 2013. Critical features in the development of exercise-based interventions for people with Huntington's disease. European Neurological Review 8(1), pp. 10-13.
- Quinn, L. and Busse, M. 2012. Physiotherapy clinical guidelines for Huntington’s disease. Neurodegenerative Disease Management 2(1), pp. 21-31. (10.2217/nmt.11.86)
- Jones, U. F., Enright, S. and Busse, M. 2012. Management of respiratory problems in people with neurodegenerative conditions: a narrative review. Physiotherapy 98(1), pp. 1-12. (10.1016/j.physio.2011.03.002)
- Busse, M. et al. 2012. Q12 A randomised feasibility study of a 12-week exercise programme in Huntington's disease (HD) [Abstract]. Journal of Neurology, Neurosurgery & Psychiatry 83(S1), pp. A58-A59. (10.1136/jnnp-2012-303524.182)
- Hamana, K. et al. 2012. Q13 Perspectives of participating in a 12-week exercise programme for people with early -mid stage Huntington's disease [Abstract]. Journal of Neurology, Neurosurgery & Psychiatry 83(S1), pp. A59. (10.1136/jnnp-2012-303524.183)
- Khalil, H., Quinn, L., Van Deursen, R. W. M., Dawes, H., Playle, R., Rosser, A. E. and Busse, M. 2012. Q15 A pilot study of an exercise intervention to improve motor function in people with Huntington's disease (HD) [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S1), pp. A59. (10.1136/jnnp-2012-303524.185)
- Read, J. et al. 2012. I03 Evaluation of life time physical activity levels in Huntington's disease [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S1), pp. A33. (10.1136/jnnp-2012-303524.102)
- Jones, K. et al. 2012. Q14 Sub maximal exercise testing in people with early stage Huntington's disease [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S1), pp. A59. (10.1136/jnnp-2012-303524.184)
- Busse, M., Khalil, H., Quinn, L., Brooks, S. P. and Rosser, A. E. 2012. Practice, progress and future directions for physical therapies in Huntington's Disease. Journal of Huntington's Disease 1(2), pp. 175-185. (10.3233/JHD-120025)
- Jones, K. et al. 2012. Sub maximal exercise testing in people with early stage Huntington’s Disease [Abstract]. Journal of Neurology, Neurosurgery and Psychiatry 83(S. 1), article number: A59. (10.1136/jnnp-2012-303524.184)
- Jones, U. F., Busse, M., Enright, S. and Rosser, A. E. 2011. A pilot study of influences on physical activity level and exercise capacity in people with Huntington's disease [Abstract]. Physiotherapy 97(s1), pp. eS570., article number: RR-PL-1276. (10.1016/j.physio.2011.04.002)
- Sheeran, L., Sparkes, V., Busse-Morris, M. and Van Deursen, R. 2010. Preliminary study: reliability of the spinal wheel. A novel device to measure spinal postures applied to sitting and standing. European Spine Journal 19(6), pp. 995-1003. (10.1007/s00586-009-1241-0)
- Sheeran, L., Sparkes, V., Busse, M. and Van Deursen, R. W. M. 2010. Preliminary study: reliability of the spinal wheel. A novel device to measure spinal postures applied to sitting and standing. European Spine Journal 19(6), pp. 995-1003. (10.1007/s00586-009-1241-0)
- Pickering, D. and Busse, M. 2010. An Audit of disabled children’s services – what value is MPOC-SP?. Clinical Audit 2010(2), pp. 13-22. (10.2147/CA.S8073)
- Pickering, D. and Busse, M. 2010. Disabled children's services: how do we measure family-centred care?. Journal of Child Health Care 14(2), pp. 200-207. (10.1177/1367493509360207)
- Busse, M., Al-Madfai, H., Kenkre, J., Landwehrmeyer, G. B., Bentivoglio, A. and Rosser, A. E. 2010. Utilisation of Healthcare and Associated Services in Huntington's disease: a data mining study. PLoS Currents 3, article number: RRN1206. (10.1371/currents.RRN1206)
- Cooper, A., Alghamdi, G. A., Alghamdi, M. A., Busse, M. and Richardson, S. 2009. The relationship of lower limb muscle strength and joint kinematics during the stance phase of gait in hemiparetic stroke patients [Abstract]. International Journal of Stroke 4(S2), pp. 36-36. (10.1111/j.1747-4949.2009.00354.x)
- Tyson, S. F., Connell, L., Busse, M. and Lennon, S. 2009. What do acute stroke physiotherapists do to treat postural control and mobility? An exploration of the content of therapy in the UK. Clinical Rehabilitation 23(11), pp. 1051-1055. (10.1177/0269215509334837)
- Busse, M., Wiles, C. M. and Rosser, A. E. 2009. Mobility and falls in people with Huntington's disease. Journal of Neurology Neurosurgery and Psychiatry 80(1), pp. 88-90. (10.1136/jnnp.2008.147793)
- Busse, M. and Tyson, S. F. 2009. How many body locations need to be tested when assessing sensation after stroke? An investigation of redundancy in the Rivermead Assessment of Somatosensory Performance. Clinical Rehabilitation 23(1), pp. 91-95. (10.1177/0269215508097296)
- Busse, M., Van Deursen, R. W. M. and Wiles, C. M. 2009. Real-life step and activity measurement: reliability and validity. Journal of Medical Engineering & Technology 33(1), pp. 33-41. (10.1080/03091900701682606)
- Tyson, S. F., Connell, L. A., Busse, M. and Lennon, S. 2009. What is Bobath? A survey of UK stroke physiotherapists' perceptions of the content of the Bobath concept to treat postural control and mobility problems after stroke. Disability & Rehabilitation 31(6), pp. 448-457. (10.1080/09638280802103621)
- Tyson, S. F., Connell, L. A., Lennon, S. and Busse, M. 2009. What treatment packages do UK physiotherapists use to treat postural control and mobility problems after stroke?. Disability & Rehabilitation 31(18), pp. 1494-1500. (10.1080/09638280802627686)
- Busse, M., Khalil, H., Quinn, L. and Rosser, A. E. 2008. Physical therapy intervention for people with Huntington disease. Physical Therapy 88(7), pp. 820-31. (10.2522/ptj.20070346)
- Meaney, A., Busse, M., Dawes, H. and Rosser, A. E. 2008. Response to a structured exercise programme for Huntington's Disease [Abstract]. Journal of Sport Science 26(S2), pp. 125-126. (10.1080/02640410802306202)
- Busse, M. and Tyson, S. F. 2007. Functional balance and mobility tests in healthy participants: reliability, error and influencing factors. Physiotherapy Research International 12(4), pp. 242-250. (10.1002/pri.383)
- Sparkes, V., Smith, M. and Busse, M. 2007. Scapular taping in the therapeutic management of subacromial impingement symptoms - exploration of a clinical theory. Physiotherapy Research International 12(4), pp. 203-204. (10.1002/pri.387)
- Busse, M., Wiles, C. M. and Van Deursen, R. W. M. 2006. Co-activation: its association with weakness and specific neurological pathology. Journal of NeuroEngineering and Rehabilitation 3(1), pp. 26-33. (10.1186/1743-0003-3-26)
- Busse, M., Wiles, C. M. and Van Deursen, R. W. M. 2006. Community walking activity in neurological disorders with leg weakness. Journal of Neurology Neurosurgery & Psychiatry 77(3), pp. 359-362. (10.1136/jnnp.2005.074294)
- Wiles, C. M., Busse, M., Sampson, C. M. A., Rogers, M., Fenton-May, J. M. and Van Deursen, R. W. M. 2005. Falls and stumbles in myotonic dystrophy. Journal of Neurology, Neurosurgery and Psychiatry 77(3), pp. 393-396. (10.1136/jnnp.2005.066258)
- Busse, M., Wiles, C. M. and Van Deursen, R. W. M. 2005. Muscle co-activation in neurological conditions. Physical Therapy Reviews 10(4), pp. 247-253. (10.1179/108331905X78915)
- Busse, M., Pearson, O. R., Van Deursen, R. W. M. and Wiles, C. M. 2004. Quantified measurement of activity provides insight into motor function and recovery in neurological disease. Journal of Neurology Neurosurgery & Psychiatry 75(6), pp. 884-8. (10.1136/jnnp.2003.020180)
- Pearson, O. R., Busse, M., Van Deursen, R. W. M. and Wiles, C. M. 2004. Quantification of walking mobility in neurological disorders. QJM: An International Journal of Medicine 97(8), pp. 463-475. (10.1093/qjmed/hch084)
- Vaughan, C. L., Subramanian, N. and Busse, M. 1998. Selective dorsal rhizotomy as a treatment option for children with spastic cerebral palsy. Gait and Posture 8(1), pp. 43-59.
Book sections
- Drew, C. J. and Busse, M. 2022. Considerations for clinical trial design and conduct in the evaluation of novel advanced therapeutics in neurodegenerative disease. In: Lane, E., Cheney, D. and Lelos, M. eds. Current Challenges in Cell Therapy for Neurodegenerative Diseases. International Review of Neurobiology Elsevier, pp. 235-279., (10.1016/bs.irn.2022.09.006)
- Quinn, L. and Busse, M. 2017. The role of rehabilitation therapy in Huntington disease. In: Feigen, A. S. and Anderson, K. E. eds. Handbook of Clinical Neurology: Huntington Disease., Vol. 144. Elsevier: Monograph Series, pp. 151-165., (10.1016/B978-0-12-801893-4.00013-4)
- Clinch, S., Busse-Morris, M., Döbrössy, M. D. and Dunnett, S. B. 2017. Rehabilitation training in neural restitution. In: Dunnett, S. B. and Bjorklund, A. eds. Progress in Brain Research., Vol. 230. Elsevier, pp. 305-329., (10.1016/bs.pbr.2016.12.006)
Conferences
- Metzler-Baddeley, C., Busse, M. E., Drew, C. J., Pallmann, P., Jones, D. K. and Rosser, A. 2022. HD-DRUM – a novel computerised drumming training for movement and cognitive abilities in people with Huntington’s disease – app development and protocol of a randomised controlled feasibility study. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022, Vol. 93. Vol. S1. pp. A100-A101., (10.1136/jnnp-2022-ehdn.267)
- Markoulidakis, A., Busse, M., Doheny, E., Drew, C., Kirby, N. and Pallmann, P. 2022. Lifestyle index for individuals with HD (LifeHD): an aggregated measure that characterises the lifestyle habits of individuals with HD. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September, Vol. 93. Vol. S1., (10.1136/jnnp-2022-ehdn.111)
- Fahed, V. S. et al. 2022. F52 Acoustic voice features in Huntington's disease in native English, Spanish and Polish speakers. Presented at: EHDN 2022 Plenary Meeting, 16-18 September 2022, Vol. 93. BMJ Publishing Group, (10.1136/jnnp-2022-ehdn.143)
- Drew, C. J., Munnery, K., Wood, F. and Busse, M. 2022. F21 Co-design of a lifestyle intervention to improve quality of life in Huntington's disease. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022, Vol. 93. BMJ Publishing Group, (10.1136/jnnp-2022-ehdn.112)
- Lozano-García, M., Doheny, E., Mann, E., Drew, C., Busse, M. and Lowery, M. 2022. F61 Validation of a gait event detection algorithm during overground walking in Huntington's disease. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022, Vol. 93. BMJ Publishing Group, (10.1136/jnnp-2022-ehdn.152)
- Mann, E., Drew, C. J., Busse, M., Doheny, E. and Lowery, M. 2022. F62 Validation of digital assessment of physical activity in Huntington’s disease: comparing fitbit charge 4 step count with research-grade accelerometers. Presented at: EHDN 2022 Plenary Meeting, Bologna, Italy, 16-18 September 2022. BMJ Publishing Group pp. A58-A59., (10.1136/jnnp-2022-ehdn.153)
- Button, K., Nicholas, K., Busse-Morris, M., Collins, M. and Spasic, I. 2018. An evaluation of TRAK physiotherapy self management intervention development and delivery for knee conditions. Presented at: OARSI 2018 World Congress on Osteoarthritis, Liverpool, 26-29 April 2018. pp. -.
- Griffiths, A., Busse, M. and Sarin, B. 2012. Do the understanding, knowledge and fears of the caregivers of first time stroke survivors accurately reflect the difficulties faced after discharge from hospital?. Presented at: Welsh Stroke Conference 2012, Newport, Wales, 22nd June 2012.
- Pickering, D. and Busse, M. 2011. What value does the MPOC-SP have for physiotherapists working with children? Focus group results about family centred care.. Presented at: World Confederation of Physical Therapy, Amsterdam, The Netherlands, 21-24 June 2011.
Websites
- Ioakeimidis, V. et al. 2023. Protocol for a randomised controlled feasibility trial of HD-DRUM, a rhythmic movement training application for cognitive and motor symptoms in people with Huntington's disease. [Online]. medRxiv: medRxiv. (10.1101/2023.11.15.23298581) Available at: https://doi.org/10.1101/2023.11.15.23298581
- Metzler-Baddeley, C., Busse, M., Drew, C., Pallmann, P., Cantera Gomez, J., Ioakeimidis, V. and Rosser, A. E. 2023. Applying an integrated knowledge translation framework approach to develop a tablet-based rhythmic movement training intervention for people with Huntington’s disease. [Online]. JMIR Preprints. (10.2196/preprints.48395) Available at: https://preprints.jmir.org/preprint/48395
- Markoulidakis, A., Taiyari, K., Holmans, P., Pallmann, P., Busse-Morris, M. and Griffin, B. A. 2020. A tutorial comparing different covariate balancing methods with an application evaluating the causal effect of exercise on the progression of Huntington’s disease. [Online]. arXiv. Available at: https://arxiv.org/abs/2010.09563
Ymchwil
Grantiau Ymchwil
2025
NIHR HTA. £2,516,083. Shoulder Replacement Prehabilitation and Rehabilitating Early (SPRING).
2023
Ymchwil Iechyd a Gofal Cymru Ymchwil Iechyd. £217,426. Datblygu ymyrraeth sy'n seiliedig ar symudiad dan arweiniad cymheiriaid i wella canlyniadau corfforol a seicolegol ar gyfer goroeswyr artaith a thrawma yng Nghymru a thu hwnt (Peer-MIST).
Cronfa Generaduron GW4. £19,643.00. GW4 cymunedol sy'n astudio blinder mewn pobl â chyflyrau hirdymor lluosog.
2022
Gwobr Catalydd Sinc UKRI. £62,550.00. Catalysing the TIPTOE self-management intervention for older adults with osteoarthritis and multiple long term conditions into practice.
NIHR HTA. £1,715,355.77. Hunan-reoli parth MulTI mewn Pobl Hŷn gyda OstEoarthritis ac Aml-Morbidities.
Ymddiriedolaeth Wellcome – Cynllun Cyfieithu Cysyniad (Gwobr Partneriaeth Gyfieithu Sefydliadol (ITPA). £24,137. AcceSSIbleSofTware i gyflymu treialon anfasnachol ar gyfer effaith gyflym ar gleifion.
2021
GBHI, Gwobr Peilot Cymdeithas Alzheimer a Chymdeithas Alzheimer's y DU. £ 19,000. Datblygu adnoddau i gefnogi cyflwyno ymyrraeth ffisiotherapi o bell mewn ffoaduriaid trawmatig yn yr Iorddonen.
Ymchwil Iechyd a Gofal Cymru Ymchwil er Budd y Cyhoedd a Chleifion. £ 227317.00. Dichonoldeb TRAK-MSK, ymyrraeth ffisiotherapi hunanreoli digidol, ar gyfer pobl â chyflyrau cyhyrysgerbydol.
Arloesi i Bawb. £24016.00. Cyd-ddylunio llyfr gwaith hunan-reoli a hyfforddiant ar gyfer hŷn neu oedolion ag aml-morbidities ac osteoarthritis.
Arloesi i Bawb. £20113.50. Creu'r genhedlaeth nesaf o hyrwyddwyr gweithgarwch corfforol Clefyd Huntington.
NIHR Long COVID mewn unigolion nad ydynt yn yr ysbyty Galw. £1,055,520.00. Cymorth Hunanreoli Personol Covid Hir - cyd-ddylunio a Gwerthuso.
Ymddiriedolaeth Wellcome – Cynllun Cyfieithu Cysyniad (Gwobr Partneriaeth Gyfieithu Sefydliadol (ITPA). £19,648. Ymyrraeth hunangymorth dan arweiniad sy'n seiliedig ar fudiadau i wella canlyniadau corfforol a seicolegol i oroeswyr artaith a thrawma yng Nghymru a thu hwnt.
2020
Gwobr Cydgynhyrchu Ymgysylltu â'r Cyhoedd Wellcome Trust. £14825.00. Byddwch yn cre-egnïol – gan ddefnyddio'r celfyddydau creadigol i archwilio heriau i weithgarwch corfforol i bobl â dysplasia clun.
2019
Prosiectau ymchwil amlwladol JPND ar Iechyd a Gofal Cymdeithasol ar gyfer Clefydau Niwroddirywiol. € 2,049,523.75. Targedau Ffordd o Fyw Aml-Barth ar gyfer Gwella ProgNOsis mewn Clefyd Huntington
Ymchwil Iechyd a Gofal Cymru. £2,470,489.00. Adnewyddu Seilwaith Ymchwil y Ganolfan Treialon.
Ymchwil Iechyd a Gofal Cymru. Cymrodoriaeth Gofal Cymdeithasol. £392,912.00. Feading, Bwyta ac Yfed mewn Gofal Niwrolegol: Rhannu Ymarfer i Drawsnewid Gofal (mentor).
Ymchwil Iechyd a Gofal Cymru. Cymrodoriaeth Gofal Cymdeithasol. £414,349.00. Ymchwiliad hydredol i gynorthwywyr personol 'Siaradwr Clyfar' newydd i wella annibyniaeth a lles mewn lleoliadau gofal cymdeithasol (mentor).
ROCHE Pharmaceuticals. BN 40422. Astudiaeth Hanes Naturiol. Prif Ymchwilydd. £58,766.00.
ROCHE Pharmaceuticals. BN 40423. Treial Hanfodol. Is-ymchwilydd. £64,701.00.
ROCHE Pharmaceuticals. £42,020.00. GenExtend. Is-ymchwilydd. BN40955.
2018
Cyngor Ymchwil Peirianneg a'r Gwyddorau Ffisegol. £29,986. PrioRiteiddio a chategoreiddio digwyddiadau sAfety a PharmacoviGilance mewn CTIMPs.
Ymchwil Iechyd a Gofal Cymru Ymchwil er Budd y Cyhoedd a Chleifion. £229866.00. Trin Pryder i Ailwaethygu Blaenorol mewn Sgitsoffrenia - treial dichonoldeb.
NIHR PGfAR. £99889.00. Grant Datblygu Rhaglenni. PARC: Ymyrraeth hunanreoli i gefnogi Gweithgarwch Corfforol i bobl â Chyflyrau Niwrolegol Prin
NIHR HTA. £2 144 709.00. Treial rheoledig ar hap aml-ganolfan diffiniol a gwerthusiad economaidd o becyn adsefydlu cymunedol ar ôl torri clun.
Ymchwil Iechyd a Gofal Cymru. £1,733,333. Cyllid Seilwaith Ymchwil Uned Treialon De-ddwyrain Cymru/ Canolfan Treialon Treialon.
Ymchwil Iechyd a Gofal Cymru. £806,983. Uned BRAIN Cyllid seilwaith.
2017
NIHR HTA. £1,193 miliwn. Treial Rheoledig ar Hap Pragmatig o Therapi Integreiddio Synhwyraidd yn erbyn gofal arferol ar gyfer anawsterau prosesu synhwyraidd mewn Anhwylder Sbectrwm Awtistiaeth mewn plant: effaith ar anawsterau ymddygiad, sgiliau addasu a chymdeithasu
Cymdeithas Sglerosis Ymledol. £298509.00. Pecyn Ffordd o Fyw, Ymarfer Corff a Gweithgareddau i Bobl sy'n byw gyda Sglerosis Ymledol Blaengar.
Grantiau Ymchwil Sefydliad Jacques a Gloria Gossweiler ym maes Niwroleg. £411 00.00. Canlyniadau Gweithgarwch Corfforol ac Ymarfer Corff yng Nghlefyd Huntington.
Ymchwil er budd y cyhoedd a chleifion. £223132.00. Dyluniadau treial ar gyfer Cyflwyno Therapïau Newydd ar gyfer Niwroddirywiad.
Cymdeithas Clefyd Huntington Cymru a Lloegr. £10 300.00. Hyrwyddo gweithgarwch corfforol yng nghlinigau Clefyd Huntington.
2016
MRC Hyder mewn Cysyniad. £39,490. Defnyddio technoleg gwisgadwy i ragweld canlyniadau cleifion risg uchel perioperative.
MRC Hyder mewn Cysyniad. £49,902.00. Datblygu cymwysiadau clinigol ar gyfer asesiad swyddogaethol aml-dasg newydd.
Gwobrau trawsddisgyblaethol Ymddiriedolaeth Wellcome ISSF. £8,935. Astudiaeth beilot o anhwylder cydlynu motor mewn syndrom dileu 22q11.2.
Gwobrau trawsddisgyblaethol Ymddiriedolaeth Wellcome ISSF. £47,945. Asesiad awtomataidd o amseru a llofnodion symudiad yng Nghlefyd Huntington.
Gwobrau peilot poblogaethau ISSF Ymddiriedolaeth Wellcome ISSF. £28,414. Dichonoldeb defnyddio monitorau gweithgarwch wedi'u targedu gan ddefnyddwyr wrth gasglu data gweithgarwch corfforol o fewn carfan HealthWise Cymru: astudiaeth beilot bragmataidd.
Grantiau Ymchwil Sefydliad Jacques a Gloria Gossweiler ym maes Niwroleg. £94,071. Archwilio hyfforddiant gwybyddol fel ymyrraeth anfferyllol i bobl â chlefyd Huntington (mentor).
2015
Is-adran Ymchwil Iechyd a Gofal Cymru. £1.2 miliwn. Atgyweirio'r Ymennydd a Niwrotherapiwteg Intracranial - Uned BRAIN Cymru.
2013
FP7-IECHYD-2013-ARLOESI-1. £1,705,800. REPAIR-HD Gwahaniaethu bôn-gelloedd amlbwerus dynol, diogelwch a pharatoi ar gyfer trawsblaniad therapiwtig yn chlefyd Huntington.
Sefydliad Jacques a Gloria Gossweiler. £172,805. Treial Adsefydlu Ymarfer Corff ExeRT-HD yng Nghlefyd Huntington.
Sefydliad Cenedlaethol Gofal Cymdeithasol ac Ymchwil Iechyd/ Sefydliad Cenedlaethol Ymchwil Iechyd. £687,362. Symudwch i Ymarfer Corff: Ymarfer corff gartref i bobl â Chlefyd Huntington.
2012
Ymddiriedolaeth Wellcome ISSF Seedcorn £45,000. Real Time fMRI neurofeedback as a treatment for Parkinson's Disease.
2011
Neil Glendinning Grant Ymchwil Cymdeithas Clefyd Huntington. £99,230. Hyfforddiant Tasg mewn Clefyd Huntington.
Rhwydwaith Clefydau Huntington Ewropeaidd. £38,384. Dichonoldeb a budd hyfforddiant cyhyrau ysbrydoledig mewn pobl â chlefyd Huntington.
2010
Cynllun Cyllido Ymchwil Iechyd y Sefydliad Cenedlaethol ar gyfer Gofal Cymdeithasol ac Iechyd. £122,720. A all ymarfer corff a gefnogir gan y gymuned fod o fudd i les goddrychol, lefelau gweithgarwch corfforol a galluoedd mewn pobl â chlefyd Huntington? Astudiaeth ddichonoldeb ar hap a gwerthusiad prosesau.
Cyngor Ymchwil Feddygol. Menter Ymchwil Atal Genedlaethol. £1,041,422.Astudiaeth Bwyta Iechyd a Ffordd o Fyw mewn Beichiogrwydd (HELP).
2009
Rhwydwaith Clefydau Huntington Ewropeaidd. £36,000. Dibynadwyedd a newid lleiaf canfyddadwy o fesurau cyfranogiad, gweithgareddau swyddogaethol a namau mewn unigolion â chlefyd Huntington.
Cynllun Sylfaen Ymchwil Ffisiotherapi B. £6,500.Swyddogaeth Anadlol mewn pobl â chlefyd Huntington: astudiaeth drawsdoriadol.
Ysgoloriaeth PhD Consortiwm Meithrin Galluoedd Ymchwil Cymru. £51,558. Swyddogaeth Anadlol mewn pobl â chlefyd Huntington: astudiaeth drawsdoriadol.
2008
Prif Swyddog Meddygol Cyllideb Ymchwil Cymru. £9,938. Datblygu a gwerthuso adnodd DVD ar gyfer pobl â chlefyd niwroddirywiol a allai fod mewn perygl o gwympo.
Cronfa Cymynrodd Paul Jeffries Waters i gefnogi ymchwil ar glefyd Huntington. £2,820.
2007
Cymdeithas Ymchwil Ffisiotherapi. £500. Symudedd a Chwympiadau yng Nghlefyd Huntington.
Addysgu
Mae gen i Dystysgrif Ôl-raddedig mewn Addysgu a Dysgu mewn Addysg Uwch, Tystysgrif mewn Addysgu Ystadegau mewn Addysg Uwch (y Gymdeithas Ystadegol Frenhinol) a Diploma Ôl-raddedig mewn Treialon Clinigol (LSHTM). Mae fy addysgu sy'n gysylltiedig ag ymchwil yn ffocws clir ar ddatblygu a gwerthuso ymyriadau cymhleth mewn lleoliadau clinigol a dulliau ymchwil iechyd cymhwysol.
Mae fy ymagwedd at addysgu, dysgu ac asesu wedi'i seilio ar ddealltwriaeth ddamcaniaethol a phrofiad ymarferol helaeth ar draws cyd-destunau addysgol lluosog. Fel Cymrawd yr Academi Addysg Uwch (2000), rwyf wedi dangos ymrwymiad parhaus i ragoriaeth ac arloesedd addysgegol trwy gydol fy ngyrfa.
Rwyf wedi dylunio a chyflwyno hyfforddiant arbenigol ar draws addysg israddedig ac ôl-raddedig mewn sawl disgyblaeth iechyd a gofal cymdeithasol, gan ddatblygu dealltwriaeth gynhwysfawr o ddulliau dysgu amrywiol. Mae fy mhrofiad addysgu yn rhychwantu lleoliadau dosbarth traddodiadol, amgylcheddau clinigol, a llwyfannau dysgu digidol, gan ddarparu mewnwelediadau i ddulliau addysgegol effeithiol ar draws cyd-destunau amrywiol.
Mae fy athroniaeth addysgol yn pwysleisio pwysigrwydd addasu dulliau addysgu ac asesu i anghenion dysgu unigol tra'n cynnal trylwyredd academaidd. Rwyf wedi gweithredu methodolegau asesu arloesol sy'n gwella dilyniant myfyrwyr ar draws carfanau amrywiol, gan gydnabod bod rhaid i asesu effeithiol gydbwyso datblygiad ffurfiannol â gwerthusiad cyfunol. Mae'r dull hwn wedi arwain yn gyson at fwy o foddhad myfyrwyr a metrigau ymgysylltu.
Rwyf wedi arwain mentrau dylunio cwricwlwm sy'n ymateb i dirweddau proffesiynol sy'n esblygu, gan sicrhau bod darpariaeth addysgol yn parhau i fod yn cyd-fynd â gofynion cyflogadwyedd tra'n cynnal uniondeb academaidd. Mae fy mhrofiad o oruchwylio dros 30 o draethodau israddedig, 10 traethawd ymchwil Meistr, a naw PhD wedi datblygu fy nealltwriaeth o arferion goruchwylio effeithiol a'u heffaith ar gyflawniad myfyrwyr.
Trwy gydol fy ngyrfa, rwyf wedi hyrwyddo integreiddio strategol technolegau dysgu i wella ansawdd a hygyrchedd addysgol. Mae fy arweinyddiaeth wrth ddatblygu dulliau dysgu cyfunol wedi cydbwyso arloesedd digidol ag egwyddorion pedagogaidd cadarn, gan sicrhau bod technoleg yn gwasanaethu yn hytrach na gyrru amcanion addysgol.
Rwy'n ymrwymedig i ddulliau sy'n seiliedig ar dystiolaeth o werthuso effeithiolrwydd addysgu, gan weithredu fframweithiau gwella ansawdd cynhwysfawr sy'n defnyddio dangosyddion meintiol ac ansoddol. Mae'r dull hwn o welliant addysgol wedi'i yrru gan ddata wedi arwain at welliannau mesuradwy i foddhad myfyrwyr a chanlyniadau dysgu trwy gydol fy ngyrfa.
Bywgraffiad
Qualifications
BSc Physiotherapy (University of Stellenbosch), December 1993
BSc (Med) Hons. Ergonomics (first class) (University of Cape Town), December 1996
MSc (Med) Biomedical Sciences (distinction) (University of Cape Town), December 2001
PhD (University of Wales College of Medicine), July 2005
Post Graduate Certificate in Teaching and Learning (Kingston University), July 2001
Diploma in Research Methods (University of Wales College of Medicine), May 2003
Certificate in Teaching Statistics in Higher Education (Royal Statistical Society), February 2005
I am in possession of both a Post Graduate Certificate in Teaching and Learning and a Certificate in Teaching Statistics in Higher Education (Royal Statistical Society). My teaching interests and professional development is aligned with my research work and has a clear focus on physiotherapy provision for people with Long Term Neurological Conditions (LTNCs). I also have a particular interest in innovative methods for teaching research and statistics and the use of reliability analyses and mixed methods in healthcare research which has developed as a direct result of application in my research area. I contribute to teaching on the Research Methods of Health and Social Care, Experimental Designs, Neuroscience and Neurorehabilitation modules. I also collaborate with clinicians and researchers based both in other schools within Cardiff University and other academic institutions in the United Kingdom and regularly review grants submitted for funding and manuscripts submitted for publication in the field of physiotherapy, neurology and rehabilitation.
Anrhydeddau a dyfarniadau
Fellow of Learned Society of Wales April 2021
Aelodaethau proffesiynol
Registered Physiotherapist Health Professions Council PH 53577 January 1998
Member of Chartered Society of Physiotherapy January 1998
Fellow of Higher Education Institute July 2001
Safleoedd academaidd blaenorol
2022 ongoing Director Health and Care Research Wales Faculty.
2016 to 2022 Director Mind Brain Neuroscience Trials, Centre for Trials Research, Cardiff University, UK.
2015 to 2016 Deputy Head of School of Healthcare Sciences: Research and Innovation, Cardiff University UK
2014 to 2016 Professor of Healthcare Sciences, Associate Director South East Wales Trials Unit
2010 to 2014 Senior Lecturer: School of Healthcare Sciences, Cardiff University, UK
2005 to 2010 Lecturer: School of Healthcare Studies, Cardiff University, UK
Pwyllgorau ac adolygu
2025. Rhaglen PhD 4Ward North ar gyfer Gweithwyr Iechyd Proffesiynol. Aelod o'r Panel Cyfweliad Allanol.
2024. Cadeirydd Grŵp Goruchwylio ar gyfer y Pwyllgor Llywio NIHR155936 - Asesiad geriatrig cynhwysfawr i gynnal annibyniaeth i bobl hŷn sy'n byw gyda methiant y galon gyda ffracsiwn alldaflu a bregusrwydd wedi'i gadw
2023. Grŵp Llywio Hwb Deori NIHR Adsefydlu Cymunedol.
2023-2026. Pwyllgor Dethol Cymrodoriaeth Uwch NIHR.
2022. Rhaglen Wellcome GW4-CAT HP - Uwch Oruchwylydd.
2021/2/3. Cylch Mentor Rhwydweithiau Datblygu Rhwydweithiau Datblygu Cymrodyr Arweinwyr y Dyfodol 2021/22/23.
2022. Aelod o bwyllgor Craffu Cymdeithas Ddysgedig STEMM1 (Meddygaeth a Gwyddorau Meddygol).
2021-2025. Aelod o Banel Cymrodoriaethau Clinigol MRC.
2021-2024. Aelod o banel Cyllid Comisiynu HTA NIHR.
2020. Bwrdd Cynghori Economeg Iechyd a Gofal Cymru (HCEC).
2020. Galwad dreigl ymateb cyflym DHSC / UKRI COVID-19 - Coleg yr Arbenigwyr.
2019. Aelod o Bwyllgor Llywio Prosiect Amser ar gyfer Ymchwil CRUK.
2019-2021. Aelod o Grŵp Datblygu Portffolio Dementias NIHR.
2018-2023. Cadeirydd Pwyllgor Llywio Treial ar gyfer NIHR HTA 16/31/63 RhCT o Ffisiotherapi Arbenigol ar gyfer Anhwylder Modur Swyddogaethol.
2018-2022. Cadeirydd Pwyllgor Llywio Treial ar gyfer treial AIMM (Acipimox in Mitochondrial Myopathy) a ariennir gan MRC.
2018-2022. Aelod etholedig o'r Pwyllgor Cynllunio Gwyddonol Enroll-HD byd-eang.
2018-2022. Aelod gwahoddedig o Dasglu Treialon Clinigol Rhwydwaith Clefyd Huntington Ewrop (EHDN)
2018-2022. Aelod o Bwyllgor Cynghori Sefydlog Uned Treialon Clinigol NIHR.
2015-2018. Aelod o Fwrdd Gwyddonol Ataxia UK.
2015-2018. Aelod gwahoddedig o dasglu'r Gymdeithas Anhwylder Symud ar raddfeydd graddio mewn clefyd Huntington.
2015-2017. Aelod etholedig o Fwrdd Cynghori Gwyddonol a Biomoeseg EHDN.
2010-2015. Aelod o'r Grŵp Astudiaethau Clinigol HD Dementia, Ymchwil Clefydau Niwroddirywiol (DeNDRoN) a'r Grŵp Rheoli Portffolio.
2010-2015. Aelod o NEURODEM Cymru, Grŵp Ymchwil Cofrestredig Dementias a Chlefydau Niwroddirywiol Cymru. Pwyllgor Llywio.
Meysydd goruchwyliaeth
Rwyf wedi goruchwylio prosiectau yn:
- Gwerthusiad Clinigol o Weithgarwch Corfforol a Chwsg mewn clefyd niwroddirywiol
- Ymyriadau cymhleth a chymorth hunanreoli
- Ymyriadau iechyd digidol wedi'u cymhwyso i gyflyrau tymor hir
- Dulliau cymysg ymchwil iechyd cymhwysol
Goruchwyliaeth PhD wedi'i gwblhau
Diffygion Symud a Ffisiotherapi Clefyd Huntington. Dyfarnwyd 2013. Hanan KhalilCity name (optional, probably does not need a translation)
Dadansoddiad cymharol o wasanaethau ffisiotherapi mewn gwahanol amgylcheddau iechyd. Dyfarnwyd yn 2014. Abdulrahman Altowaijri.
Swyddogaeth Anadlol mewn pobl â chlefyd Huntington: astudiaeth drawsdoriadol. Dyfarnwyd yn 2014. Newyddion
Hyfforddi'r ymennydd yn Chlefyd Huntington. Dyfarnwyd 2017. Susanne Clinch.
Archwiliad o Brofiadau Ymarfer Corff mewn Pobl â chlefyd Huntington: Pwy sy'n gwneud yr amser? Dyfarnwyd 2019. Newyddion
Archwilio cymwysiadau clinigol ar gyfer asesiad swyddogaethol aml-dasg newydd: paru technoleg briodol i angen clinigol. Dyfarnwyd 2021. Samuel Woodgate.
"Ffenestr o Gyfle." Disgrifio a datblygu tystiolaeth, theori, ac ymyrraeth therapi galwedigaethol sy'n seiliedig ar ymarfer ar gyfer pobl sy'n byw gyda dementia cyfnod cynnar. Dyfarnwyd 2022. Bethan Mair Edwards.
Deall cyfathrebu aml-barti mewn sesiynau therapi i blant ag Anhwylder Sbectrwm Awtistiaeth ac anawsterau Prosesu Synhwyraidd - gwerth dadansoddi rhyngweithio. Dyfarnwyd 2024. Eleni Glarou.
Adnabod a modelu ffactorau genetig ac amgylcheddol achosol ar gyfer difrifoldeb a dilyniant HD. Dyfarnwyd 2024. Andreas Markoulidakis.
Ymgysylltu
Fel hyfforddwr gweithredol a mentor ymroddedig ymchwilwyr iechyd cymhwysol cynnar a chanol-gyrfa, rwy'n ymgysylltu'n fras ym maes datblygu ymchwilwyr proffesiynol perthynol i iechyd. Rwyf wedi bod yn fentor yn Mentor Rhwydweithiau Datblygu Cymrodyr Arweinwyr y Dyfodol 2021/22 a 2022/23 ac rwyf wedi datblygu a chyflwyno hyfforddiant mentora i ymchwilwyr sy'n gweithio mewn lleoliadau ymchwil iechyd a gofal cymdeithasol cymhwysol. Rwy'n Ymarferydd Mewnwelediad achrededig ac yn defnyddio hyn mewn amrywiaeth o fentrau datblygu ymchwilwyr sy'n benodol i ymchwil iechyd a gofal cymdeithasol cymhwysol. Yn rhinwedd fy swydd fel Cyfarwyddwr Cyfadran Ymchwil Iechyd a Gofal Cymru, rwy'n arwain yr ymateb strategol i'r Adolygiad o Yrfaoedd Ymchwil yng Nghymru a gomisiynwyd ar y cyd gan Ymchwil Iechyd a Gofal Cymru, Gofal Cymdeithasol Cymru ac Addysg a Gwella Iechyd Cymru. Rwy'n aelod o weithgor Egwyddorion a Rhwymedigaethau Monitro Anghydraddoldebau Rhyw Fforwm Hyfforddiant Academaidd Clinigol a'r Cyngor Ymchwil Proffesiynau Iechyd Cysylltiedig.
Rwy'n gyn-aelod etholedig o Bwyllgor Gweithredol Clefyd Huntington Ewrop, rhwydwaith annibynnol dielw sy'n ymroddedig i hyrwyddo ymchwil, cynnal treialon clinigol a gwella gofal i bobl y mae Clefyd Huntington yn effeithio arnynt. Rwyf wedi cadeirio sesiynau llawn yn ystod y tri chyfarfod llawn Ewropeaidd diwethaf, wedi bod yn aelod o Bwyllgor Adolygu Gwyddonol a HD, y Grŵp Cynghori Bio Gwyddonol a Moeseg a chyd-hwylusydd arweiniol gweithgor ffisiotherapi Rhwydwaith Clefyd Huntington Ewrop (EHDN) lle bûm yn weithgar wrth drefnu cyfarfodydd grŵp rhyngwladol am fwy na 6 blynedd gan arwain at gydweithio sefydledig ledled y Deyrnas Unedig. Ewrop, Awstralia ac UDA. Mae'r cydweithrediadau hyn wedi arwain at gyhoeddi'r canllawiau clinigol cyntaf erioed ar sail tystiolaeth ar gyfer rheoli ffisiotherapi ar gyfer Huntington's. Cyhoeddwyd y canllawiau hyn a gydnabyddir yn rhyngwladol yn Journal for Neurology yn 2020. Fel cynrychiolydd clinig Clefyd Huntington Caerdydd ac Arweinydd Clinigol ar gyfer Ffisiotherapi, rwyf wedi siarad yn lleol ac yn rhyngwladol ar ddiwrnodau teuluol i bobl ag HD lle gall darparu gwybodaeth a datblygiad ymwybyddiaeth effeithio'n uniongyrchol ar allu unigolyn i ymdopi â'r cyflwr niwrolegol hirdymor penodol hwn. Trefnais Glinig Rheoli Ymchwil Clefydau hynod lwyddiannus Cardiff Huntington am 6 blynedd yn olynol ac rwy'n parhau i fod yn gyfrannwr gweithredol i'r digwyddiad. Rwyf wedi bod yn allweddol wrth sefydlu Grŵp Cynnwys Pobl Clefyd Huntington Cymru. Mae'r grŵp hwn bellach yn ymuno ag uned BRAIN Cymru, BRAIN Involve.
