![Silvia Goss](https://profiles-cardiff.imgix.net/attachments/2442?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Trosolwyg
Rwy'n ymchwilydd sy'n gweithio ym maes gofal lliniarol yn ogystal ag ymchwil sy'n gysylltiedig â phrofedigaeth, gyda chefndir mewn seicoleg. Ar hyn o bryd, mae gen i ddiddordeb arbennig yn y modd y mae marwolaeth, marw a phrofedigaeth yn cael eu trafod yn y gymdeithas.
Cyhoeddiad
2024
- Burton, L., Goss, S., Sivell, S., Selman, L. E. and Harrop, E. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23(1), article number: 300. (10.1186/s12904-024-01619-9)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131, article number: 108559. (10.1016/j.pec.2024.108559)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care., Barcelona, Spain, 16-18 May 2024 Presented at Holland-Hart, D., Mann, M. and Goss, S. eds., Vol. 38. Vol. 1sup. pp. 2.025., (10.1177/02692163241242338)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024, Vol. 14. Vol. A20. UK: BMJ Publishing Group, (10.1136/spcare-2024-MCR.45)
2023
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/uploads/The-information-and-communication-needs-of-patients-with-advanced-incurable-cancer_040124_.pdf
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11, article number: 1215881. (10.3389/fpubh.2023.1215881)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A%., (10.1136/spcare-2023-MCRC.11)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. BMJ Publishing Group pp. A6., (10.1136/spcare-2023-MCRC.14)
2022
- Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, (10.1177/02692163221093145)
- Selman, L. et al. 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
- Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
- Selman, L. E. et al. 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A1., (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al. 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020, Vol. 12. BMJ Publishing Group
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
- Selman, L. et al. 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
- Islam, I., Goss, S., Nelson, A. and Byrne, A. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20, article number: 160940692098213. (10.1177/1609406920982133)
Articles
- Burton, L., Goss, S., Sivell, S., Selman, L. E. and Harrop, E. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23(1), article number: 300. (10.1186/s12904-024-01619-9)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131, article number: 108559. (10.1016/j.pec.2024.108559)
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11, article number: 1215881. (10.3389/fpubh.2023.1215881)
- Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
- Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
- Islam, I., Goss, S., Nelson, A. and Byrne, A. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20, article number: 160940692098213. (10.1177/1609406920982133)
Conferences
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care., Barcelona, Spain, 16-18 May 2024 Presented at Holland-Hart, D., Mann, M. and Goss, S. eds., Vol. 38. Vol. 1sup. pp. 2.025., (10.1177/02692163241242338)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024, Vol. 14. Vol. A20. UK: BMJ Publishing Group, (10.1136/spcare-2024-MCR.45)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A%., (10.1136/spcare-2023-MCRC.11)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. BMJ Publishing Group pp. A6., (10.1136/spcare-2023-MCRC.14)
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, (10.1177/02692163221093145)
- Selman, L. et al. 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Selman, L. E. et al. 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A1., (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al. 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020, Vol. 12. BMJ Publishing Group
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
- Selman, L. et al. 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
Monographs
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/uploads/The-information-and-communication-needs-of-patients-with-advanced-incurable-cancer_040124_.pdf
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
Ymchwil
Mae fy niddordebau ymchwil presennol yn cynnwys profiadau galar hirdymor ac anghenion cymorth profedigaeth pobl mewn profedigaeth yn ystod pandemig Covid-19, anghenion cymorth gofalwyr ifanc ar ddiwedd oes yn ogystal ag agweddau'r cyhoedd at farwolaeth, marw a phrofedigaeth, gan gynnwys agweddau'r cyhoedd tuag at addysg galar mewn ysgolion.
Prosiectau ymchwil cyfredol:
- Ailymwelwyd ag agweddau'r cyhoedd at farwolaeth, marw a phrofedigaeth: Arolwg PADDUK 2023 .
- Cefnogi gofalwyr ifanc a gofalwyr sy'n oedolion ifanc ar ddiwedd oes ac i brofedigaeth: astudiaeth dulliau cymysg sy'n ymchwilio i anghenion ac arferion cymorth.
- Anghenion gwybodaeth a chyfathrebu pobl sy'n byw gyda chanser datblygedig: adolygiad cyflym.
- BeCovid: Profiadau galar hirdymor ac anghenion cymorth pobl mewn profedigaeth yn ystod pandemig Covid-19. Mae dulliau cymysg hydredol yn astudio gyda phedwar pwynt amser.
Prosiectau ymchwil blaenorol:
- Pall Care CODE / Gwerth mewn Iechyd - Persbectif Gofal Lliniarol: Datblygu Canlyniad Craidd Wedi'i bennu ar gyfer gwerthuso effeithiolrwydd gwasanaethau gofal lliniarol yng Nghymru ('beth i'w fesur') ac adnabod offer addas i gipio'r canlyniadau craidd hyn trwy ymarfer mapio a dadansoddiad bwlch o becynnau cymorth presennol ('sut i fesur').
- PhAB: Rhwystrau i weithgaredd corfforol a'u hwyluso mewn cleifion glioma gradd uchel yng Nghymru a Bangladesh.
Bywgraffiad
Addysg a Chymwysterau:
- PhD mewn Niwrowyddoniaeth Gwybyddol, City University Llundain, Llundain, UK (2012)
- MSc mewn Seicoleg, Prifysgol Regensburg, Regensburg, Yr Almaen (2006)
Trosolwg gyrfa:
- 2019 - presennol: Cynorthwy-ydd Ymchwil, Canolfan Ymchwil Marie Curie, Prifysgol Caerdydd
Anrhydeddau a dyfarniadau
- Gwobr Ymchwil Joanna Mugridge, Cynhadledd Ymchwil Marie Curie 2022: Cyflwyniad poster ar "Adroddiadau rhieni o brofiadau galar ac anghenion cymorth plant a phobl ifanc mewn profedigaeth yn ystod pandemig Covid-19: Canlyniadau arolwg ar-lein ledled y DU".
Contact Details
GossS1@caerdydd.ac.uk
+44 29206 87010
Neuadd Meirionnydd, Ystafell 8th floor, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS
+44 29206 87010
Neuadd Meirionnydd, Ystafell 8th floor, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS