Dr Silvia Goss

(she/her)

2024

• Burton, L., Goss, S., Sivell, S., Selman, L. E. and Harrop, E. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23(1), article number: 300. (10.1186/s12904-024-01619-9)
• Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131, article number: 108559. (10.1016/j.pec.2024.108559)
• Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care., Barcelona, Spain, 16-18 May 2024 Presented at Holland-Hart, D., Mann, M. and Goss, S. eds., Vol. 38. Vol. 1sup. pp. 2.025., (10.1177/02692163241242338)
• Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024, Vol. 14. Vol. A20. UK: BMJ Publishing Group, (10.1136/spcare-2024-MCR.45)

2023

• Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/uploads/The-information-and-communication-needs-of-patients-with-advanced-incurable-cancer_040124_.pdf
• Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11, article number: 1215881. (10.3389/fpubh.2023.1215881)
• Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A%., (10.1136/spcare-2023-MCRC.11)
• Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
• Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. BMJ Publishing Group pp. A6., (10.1136/spcare-2023-MCRC.14)

2022

• Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
• Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
• Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
• Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, (10.1177/02692163221093145)
• Selman, L. et al. 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications, (10.1177/02692163221093145)
• Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Vol. 1. SAGE Publications, (10.1177/02692163221093145)
• Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
• Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
• Selman, L. E. et al. 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A1., (10.1136/spcare-2022-SCPSC.2)
• Sutton, E. et al. 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020, Vol. 12. BMJ Publishing Group
• Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
• Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
• Selman, L. et al. 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
• Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

2021

• Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
• Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
• Islam, I., Goss, S., Nelson, A. and Byrne, A. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20, article number: 160940692098213. (10.1177/1609406920982133)