Overview
I am researcher working in palliative care as well as bereavement-related research, with a background in psychology. I currently have a particular interest in how death, dying and bereavement are talked about in society.
Publication
2026
- Hopewell-Kelly, N. et al. 2026. 90 Developing patient-focused outcomes for routine clinical care in glioma: A synthesis of qualitative evidence from the COMBaT study [Abstract]. Neuro-Oncology 28 (S1) noag172.031. (10.1093/neuonc/noag172.031)
- Goss, S. et al. 2026. Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the COVID-19 pandemic: insights from a longitudinal survey. Frontiers in Public Health 14 1784477. (10.3389/fpubh.2026.1784477)
- Harrop, E. et al. 2026. ‘I’m tired of justifying why my life has stopped’: A qualitative analysis of the experiences and support needs of young people caring at the end of life and into bereavement. Palliative Care & Social Practice 20 26323524261442209. (10.1177/26323524261442209)
- Goss, S. et al. 2026. Personal comfort with talking about death and dying predicts end-of-life planning in the general population: insights from a nationally representative survey in the UK [Abstract]. Palliative Medicine 40 (5)
- Goss, S. et al. 2026. PP-35 Support for young carers and young adult carers during terminal illness and bereavement: insights from a scoping survey in the UK [Poster Presentation]. BMJ Supportive & Palliative Care 16 , pp.A20.3-A21. (10.1136/spcare-2026-mcrc.46)
- Harrop, E. et al. 2026. PP-47 Supporting young/young adult carers at the end of life and into bereavement: exploring the experiences and perspectives of bereaved young people and the professionals who support them [Poster Presentation]. BMJ Supportive & Palliative Care 16 A25. (10.1136/spcare-2026-mcrc.58)
- Harrop, E. et al. 2026. PP-17 Improving bereavement support for children and young people: the development of the children’s attitude to grief scale-pictorial version (CAG-P) [Poster]. BMJ Supportive & Palliative Care 16 (Suppl), pp.A13. (10.1136/spcare-2026-mcrc.28)
- Hopewell-Kelly, N. et al. 2026. Non-verbal methods for assessing grief and mental health in children and individuals with additional communication needs: A scoping review. Palliative Care & Social Practice 20 (10.1177/26323524251413281)
2025
- Harrop, E. et al. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 118518. (10.1016/j.socscimed.2025.118518)
- Selman, L. E. et al., 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2), pp.904-931. (10.1177/00302228221144925)
- Goss, S. et al. 2025. Teaching children about grief: Findings from a population-based online survey in the UK on public and parental attitudes towards grief education in schools [Abstract]. Palliative Medicine 39 (S2), pp.71. (10.1177/02692163251335482)
2024
- Burton, L. et al. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23 (1) 300. (10.1186/s12904-024-01619-9)
- Holland-Hart, D. et al. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131 108559. (10.1016/j.pec.2024.108559)
- Holland-Hart, D. et al. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care. Barcelona, Spain 16-18 May 2024. Published in: Holland-Hart, D. , Mann, M. and Goss, S. eds. Vol. 38.Vol. 1sup. , pp.2.025. (10.1177/02692163241242338)
- Holland-Hart, D. et al. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care Online 5-9 February 2024. Vol. 14.Vol. A20. UK: BMJ Publishing Group. (10.1136/spcare-2024-MCR.45)
2023
- Holland-Hart, D. et al. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review.
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 1215881. (10.3389/fpubh.2023.1215881)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
- Goss, S. et al. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A6-A7. (10.1136/spcare-2023-MCRC.15)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A%. (10.1136/spcare-2023-MCRC.11)
2022
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 177. (10.1186/s12904-022-01066-4)
- Goss, S. et al. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report.NHS Wales and Marie Curie Palliative Care Research Centre.
- Selman, L. et al., 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK [Abstract]. Palliative Medicine 36 , pp.25-26. (10.1177/02692163221093145)
- Selman, L. et al., 2022. The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK [Abstract]. Palliative Medicine 36 (1), pp.23-24. (10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp.1-17. (10.1177/26323524221092456)
- Selman, L. E. et al., 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4), pp.717-729.
- Selman, L. E. et al., 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey [Abstract]. BMJ Supportive & Palliative Care 12 (Supple), pp.A1. (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al., 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. [Abstract]. British Medical Journal 12 , pp.A18-A19. (10.1136/spcare-2022-SCPSC.48)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A6-A7. (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A10-A11. (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications(10.1177/02692163221093145)
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people [Abstract]. BMJ Supportive and Palliative Care 11 (Sup 1), pp.A3. (10.1136/spcare-2021-PCC.6)
- Islam, I. et al. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20 160940692098213. (10.1177/1609406920982133)
Articles
- Hopewell-Kelly, N. et al. 2026. 90 Developing patient-focused outcomes for routine clinical care in glioma: A synthesis of qualitative evidence from the COMBaT study [Abstract]. Neuro-Oncology 28 (S1) noag172.031. (10.1093/neuonc/noag172.031)
- Goss, S. et al. 2026. Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the COVID-19 pandemic: insights from a longitudinal survey. Frontiers in Public Health 14 1784477. (10.3389/fpubh.2026.1784477)
- Harrop, E. et al. 2026. ‘I’m tired of justifying why my life has stopped’: A qualitative analysis of the experiences and support needs of young people caring at the end of life and into bereavement. Palliative Care & Social Practice 20 26323524261442209. (10.1177/26323524261442209)
- Goss, S. et al. 2026. Personal comfort with talking about death and dying predicts end-of-life planning in the general population: insights from a nationally representative survey in the UK [Abstract]. Palliative Medicine 40 (5)
- Goss, S. et al. 2026. PP-35 Support for young carers and young adult carers during terminal illness and bereavement: insights from a scoping survey in the UK [Poster Presentation]. BMJ Supportive & Palliative Care 16 , pp.A20.3-A21. (10.1136/spcare-2026-mcrc.46)
- Harrop, E. et al. 2026. PP-47 Supporting young/young adult carers at the end of life and into bereavement: exploring the experiences and perspectives of bereaved young people and the professionals who support them [Poster Presentation]. BMJ Supportive & Palliative Care 16 A25. (10.1136/spcare-2026-mcrc.58)
- Harrop, E. et al. 2026. PP-17 Improving bereavement support for children and young people: the development of the children’s attitude to grief scale-pictorial version (CAG-P) [Poster]. BMJ Supportive & Palliative Care 16 (Suppl), pp.A13. (10.1136/spcare-2026-mcrc.28)
- Hopewell-Kelly, N. et al. 2026. Non-verbal methods for assessing grief and mental health in children and individuals with additional communication needs: A scoping review. Palliative Care & Social Practice 20 (10.1177/26323524251413281)
- Harrop, E. et al. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 118518. (10.1016/j.socscimed.2025.118518)
- Selman, L. E. et al., 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2), pp.904-931. (10.1177/00302228221144925)
- Goss, S. et al. 2025. Teaching children about grief: Findings from a population-based online survey in the UK on public and parental attitudes towards grief education in schools [Abstract]. Palliative Medicine 39 (S2), pp.71. (10.1177/02692163251335482)
- Burton, L. et al. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23 (1) 300. (10.1186/s12904-024-01619-9)
- Holland-Hart, D. et al. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131 108559. (10.1016/j.pec.2024.108559)
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 1215881. (10.3389/fpubh.2023.1215881)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 177. (10.1186/s12904-022-01066-4)
- Selman, L. et al., 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK [Abstract]. Palliative Medicine 36 , pp.25-26. (10.1177/02692163221093145)
- Selman, L. et al., 2022. The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK [Abstract]. Palliative Medicine 36 (1), pp.23-24. (10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp.1-17. (10.1177/26323524221092456)
- Selman, L. E. et al., 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4), pp.717-729.
- Selman, L. E. et al., 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey [Abstract]. BMJ Supportive & Palliative Care 12 (Supple), pp.A1. (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al., 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. [Abstract]. British Medical Journal 12 , pp.A18-A19. (10.1136/spcare-2022-SCPSC.48)
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people [Abstract]. BMJ Supportive and Palliative Care 11 (Sup 1), pp.A3. (10.1136/spcare-2021-PCC.6)
- Islam, I. et al. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20 160940692098213. (10.1177/1609406920982133)
Conferences
- Holland-Hart, D. et al. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care. Barcelona, Spain 16-18 May 2024. Published in: Holland-Hart, D. , Mann, M. and Goss, S. eds. Vol. 38.Vol. 1sup. , pp.2.025. (10.1177/02692163241242338)
- Holland-Hart, D. et al. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care Online 5-9 February 2024. Vol. 14.Vol. A20. UK: BMJ Publishing Group. (10.1136/spcare-2024-MCR.45)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
- Goss, S. et al. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A6-A7. (10.1136/spcare-2023-MCRC.15)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A%. (10.1136/spcare-2023-MCRC.11)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A6-A7. (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A10-A11. (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications(10.1177/02692163221093145)
Monographs
- Holland-Hart, D. et al. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review.
- Goss, S. et al. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report.NHS Wales and Marie Curie Palliative Care Research Centre.
Research
My current research interests include the long-term grief experiences and bereavement support needs of people bereaved during the Covid-19 pandemic, the support needs of young carers at the end of life as well as public attitudes to death, dying and bereavement, including public attitudes to grief education in schools.
Current research projects:
- Public attitudes to death, dying and bereavement re-visited: The PADDUK 2023 survey.
- Supporting young carers and young adult carers at the end of life and into bereavement: a mixed-methods study investigating support needs and practices.
- The information and communication needs of people living with advanced cancer: a rapid review.
- BeCovid: Long-term grief experiences and support needs of people bereaved during the Covid-19 pandemic. Longitudinal mixed-methods study with four time-points.
Previous research projects:
- Pall Care CODE /Value in Health - A Palliative Care Perspective: Development of a Core Outcome Set for the evaluation of the effectiveness of palliative care services in Wales (‘what to measure’) and identification of suitable tools to capture these core outcomes via a mapping exercise and gap analysis of existing toolkits (‘how to measure’).
- PhAB: Barriers to and facilitators of physical activity in high-grade glioma patients in Wales and Bangladesh.
Biography
Education and Qualifications:
- PhD in Cognitive Neuroscience, City University London, London, UK (2012)
- MSc in Psychology, University of Regensburg, Regensburg, Germany (2006)
Career Overview:
- 2019 - present: Research Assistant, Marie Curie Research Centre, Cardiff University
Honours and awards
- Joanna Mugridge Research Award, Marie Curie Research Conference 2022: Poster presentation on “Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the Covid-19 pandemic: Results from a UK-wide online survey”.
Contact Details
[email protected]
+44 29206 87010
Neuadd Meirionnydd, Room 8th floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS
+44 29206 87010
Neuadd Meirionnydd, Room 8th floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS