![Silvia Goss](https://profiles-cardiff.imgix.net/attachments/2442?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Overview
I am researcher working in palliative care as well as bereavement-related research, with a background in psychology. I currently have a particular interest in how death, dying and bereavement are talked about in society.
Publication
2024
- Burton, L., Goss, S., Sivell, S., Selman, L. E. and Harrop, E. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23(1), article number: 300. (10.1186/s12904-024-01619-9)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131, article number: 108559. (10.1016/j.pec.2024.108559)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care., Barcelona, Spain, 16-18 May 2024 Presented at Holland-Hart, D., Mann, M. and Goss, S. eds., Vol. 38. Vol. 1sup. pp. 2.025., (10.1177/02692163241242338)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024, Vol. 14. Vol. A20. UK: BMJ Publishing Group, (10.1136/spcare-2024-MCR.45)
2023
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/uploads/The-information-and-communication-needs-of-patients-with-advanced-incurable-cancer_040124_.pdf
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11, article number: 1215881. (10.3389/fpubh.2023.1215881)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A%., (10.1136/spcare-2023-MCRC.11)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. BMJ Publishing Group pp. A6., (10.1136/spcare-2023-MCRC.14)
2022
- Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, (10.1177/02692163221093145)
- Selman, L. et al. 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
- Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
- Selman, L. E. et al. 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A1., (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al. 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020, Vol. 12. BMJ Publishing Group
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
- Selman, L. et al. 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
- Islam, I., Goss, S., Nelson, A. and Byrne, A. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20, article number: 160940692098213. (10.1177/1609406920982133)
Cynadleddau
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care., Barcelona, Spain, 16-18 May 2024 Presented at Holland-Hart, D., Mann, M. and Goss, S. eds., Vol. 38. Vol. 1sup. pp. 2.025., (10.1177/02692163241242338)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024, Vol. 14. Vol. A20. UK: BMJ Publishing Group, (10.1136/spcare-2024-MCR.45)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A%., (10.1136/spcare-2023-MCRC.11)
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A6-A7., (10.1136/spcare-2023-MCRC.15)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. BMJ Publishing Group pp. A6., (10.1136/spcare-2023-MCRC.14)
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, (10.1177/02692163221093145)
- Selman, L. et al. 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Vol. 1. SAGE Publications, (10.1177/02692163221093145)
- Selman, L. E. et al. 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A1., (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al. 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020, Vol. 12. BMJ Publishing Group
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
- Selman, L. et al. 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)
Erthyglau
- Burton, L., Goss, S., Sivell, S., Selman, L. E. and Harrop, E. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23(1), article number: 300. (10.1186/s12904-024-01619-9)
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131, article number: 108559. (10.1016/j.pec.2024.108559)
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11, article number: 1215881. (10.3389/fpubh.2023.1215881)
- Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
- Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
- Islam, I., Goss, S., Nelson, A. and Byrne, A. 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20, article number: 160940692098213. (10.1177/1609406920982133)
Monograffau
- Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/uploads/The-information-and-communication-needs-of-patients-with-advanced-incurable-cancer_040124_.pdf
- Goss, S., Sivell, S., Baddeley, E., Griffiths, L., Makuta, G. and Byrne, A. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report. NHS Wales and Marie Curie Palliative Care Research Centre.
Research
My current research interests include the long-term grief experiences and bereavement support needs of people bereaved during the Covid-19 pandemic, the support needs of young carers at the end of life as well as public attitudes to death, dying and bereavement, including public attitudes to grief education in schools.
Current research projects:
- Public attitudes to death, dying and bereavement re-visited: The PADDUK 2023 survey.
- Supporting young carers and young adult carers at the end of life and into bereavement: a mixed-methods study investigating support needs and practices.
- The information and communication needs of people living with advanced cancer: a rapid review.
- BeCovid: Long-term grief experiences and support needs of people bereaved during the Covid-19 pandemic. Longitudinal mixed-methods study with four time-points.
Previous research projects:
- Pall Care CODE /Value in Health - A Palliative Care Perspective: Development of a Core Outcome Set for the evaluation of the effectiveness of palliative care services in Wales (‘what to measure’) and identification of suitable tools to capture these core outcomes via a mapping exercise and gap analysis of existing toolkits (‘how to measure’).
- PhAB: Barriers to and facilitators of physical activity in high-grade glioma patients in Wales and Bangladesh.
Biography
Education and Qualifications:
- PhD in Cognitive Neuroscience, City University London, London, UK (2012)
- MSc in Psychology, University of Regensburg, Regensburg, Germany (2006)
Career Overview:
- 2019 - present: Research Assistant, Marie Curie Research Centre, Cardiff University
Honours and awards
- Joanna Mugridge Research Award, Marie Curie Research Conference 2022: Poster presentation on “Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the Covid-19 pandemic: Results from a UK-wide online survey”.
Contact Details
GossS1@cardiff.ac.uk
+44 29206 87010
Neuadd Meirionnydd, Room 8th floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS
+44 29206 87010
Neuadd Meirionnydd, Room 8th floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS