Dr Emily Harrop

2024

• Harrop, E. 2024. A spotlight on children and young people - and remembering Colin Murray Parkes. Bereavement Journal of Grief and Responses to Death 3, pp. 1-3. (10.54210/bj.2024.1140)

2023

• Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11, article number: 1215881. (10.3389/fpubh.2023.1215881)
• Fiddimore, E., Harrop, E., Nelson, A. and Sivell, S. 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41(4), pp. 434-456. (10.1080/07347332.2022.2136997)
• Selman, L. E. et al. 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37(4), pp. 586-601. (10.1177/02692163221133665)
• Harrop, E. 2023. What difference does a year make? Looking back and ahead in Bereavement-Volume 2. Bereavement: Journal of Grief and Responses to Death 2 (10.54210/bj.2023.1116)
• Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. BMJ Publishing Group pp. A6., (10.1136/spcare-2023-MCRC.14)
• Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023, Vol. 13. pp. A%., (10.1136/spcare-2023-MCRC.11)

2022

• Selman, L. E. et al. 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying (10.1177/00302228221144925)
• Scott, H. et al. 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 (10.54210/bj.2022.1078)
• Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21, article number: 177. (10.1186/s12904-022-01066-4)
• Harrop, E. and Pearce, C. 2022. We wept and we waited - but what can we learn from the week we mourned the Queen?. Bereavement : Journal of Grief Responses to Death 1(2022), pp. 1-4.
• Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, (10.1177/02692163221093145)
• Escritt, K., Mann, M., Nelson, A. and Harrop, E. 2022. Hope and meaning-making in phase-one oncology trials: A systematic review and thematic synthesis of qualitative evidence on patient-participant experiences. Trials 23, article number: 409. (10.1186/s13063-022-06306-9)
• Selman, L. et al. 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications, (10.1177/02692163221093145)
• Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. Vol. 1. SAGE Publications, (10.1177/02692163221093145)
• Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16, pp. 1-17. (10.1177/26323524221092456)
• Selman, L. E. et al. 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36(4), pp. 717-729.
• Selman, L. E. et al. 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A1., (10.1136/spcare-2022-SCPSC.2)
• Sutton, E. et al. 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020, Vol. 12. BMJ Publishing Group
• Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A6-A7., (10.1136/spcare-2021-MCRC.15)
• Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A10-A11., (10.1136/spcare-2021-MCRC.25)
• Harrop, E. and Selman, L. E. 2022. Bereavement during the COVID-19 pandemic in the UK: What do we know so far?. Bereavement Journal of Grief and Responses to Death 1, article number: 18. (10.54210/bj.2022.18)
• Selman, L. et al. 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
• Hudson, B. et al. 2022. Experiences of bereavement across the UK. What are the challenges and what might the future look like – findings From the UK commission on bereavement.. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022, Vol. 36. SAGE Publications, (10.1177/02692163221093145)
• Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

2021

• Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35(10), pp. 1985-1997. (10.1177/02692163211043372)
• Phillips, R. et al. 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16(10), article number: e0258484. (10.1371/journal.pone.0258484)
• Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021, Vol. 11. Vol. Supple. BMJ Publishing Group pp. A3., (10.1136/spcare-2021-PCC.6)

2020

• Desai, A., Green, J., Harrop, E. and Goodfellow, R. 2020. 'Can you watch me please?' An evaluation of supervised learning events for medical students. The British Student Doctor Journal 4(3), pp. 16-18. (10.18573/bsdj.211)
• Ray, I., Green, J., Goodfellow, R. and Harrop, E. 2020. The role of educational supervisors and their feedback in an undergraduate medical curriculum. The British Student Doctor Journal 4(3), pp. 31-33. (10.18573/bsdj.200)
• Harrop, E., Mann, M., Ferreira Semedo, L., Chao, D., Selman, L. E. and Byrne, A. 2020. What elements of a systems approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19. Palliative Medicine 34(9), pp. 1165-1181. (10.1177/0269216320946273)
• Harrop, E. et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34(7), pp. 871-888. (10.1177/0269216320920533)
• Harrop, E. et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19, article number: 29. (10.1186/s12904-020-0532-4)
• Harrop, E. 2020. Bereavement outcomes study: Summary reports of consensus exercises. Project Report. Marie Curie Research Centre.

2019

• Hopewell-Kelly, N. et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9(2), pp. 219-224. (10.1136/bmjspcare-2015-000889)
• Sivell, S. et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9, article number: e14. (10.1136/bmjspcare-2015-000892)

2018

• Morgan, F. et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8(3), pp. 380-381. (10.1136/bmjspcare-2018-mariecurie.54)
• Longo, M. et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8(3), article number: 371. (10.1136/bmjspcare-2018-mariecurie.30)
• Seddon, K. et al. 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8(3), pp. 374-375. (10.1136/bmjspcare-2018-mariecurie.40)
• Prout, H. C. et al. 2018. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study. Trials 19, article number: 419. (10.1186/s13063-018-2803-4)
• Harrop, E., Nelson, A., Rees, H., Harris, D. and Noble, S. 2018. The challenge pathway: a mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (innovative practice). Dementia 17(2), pp. 252-257. (10.1177/1471301217729532)

2017

• Harrop, E., Noble, S., Edwards, M., Sivell, S., Moore, B. and Nelson, A. 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39(8), pp. 1448-1464.

2016

• Harrop, E., Morgan, F., Byrne, A. and Nelson, A. 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15, article number: 92. (10.1186/s12904-016-0165-9)
• Harrop, E., Noble, S., Edwards, M., Sivell, S., Moore, B. and Nelson, A. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17(1), article number: 329. (10.1186/s13063-016-1460-8)
• Harrop, E., Kelly, J., Griffiths, G., Casbard, A. C. and Nelson, A. 2016. Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials 17, article number: 35. (10.1186/s13063-016-1173-z)
• Harrop, E., Godwin, J. v., Sivell, S., Baillie, J., Byrne, A. and Nelson, A. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.

2015

• Harrop, E., Baillie, J., Hopewell Kelly, N., Byrne, A. and Nelson, A. 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.
• Sivell, S. et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 117. (10.1136/bmjspcare-2014-000838.40)
• Sivell, S. et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

2014

• Bowyer, A. et al. 2014. After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire [Abstract]. BMJ Supportive & Palliative Care 4(S1), pp. A47-A48. (10.1136/bmjspcare-2014-000654.133)
• Baillie, J., Harrop, E., Hopewell-Kelly, N., Stephens, K., Byrne, A. and Nelson, A. 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference, London, 28 March 2014BMJ Supportive and Palliative Care. BMJ pp. 114-(P026)., (10.1136/bmjspcare-2014-000653.28)
• Harrop, E., Byrne, A. and Nelson, A. 2014. "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC Palliative Care 13, pp. 22. (10.1186/1472-684X-13-22)

2013

• Harrop, E. et al. 2013. ‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials.. Trials 14(S1), article number: P9 (2013). (10.1186/1745-6215-14-s1-p9)
• Nelson, A. et al. 2013. QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials 14(1), article number: 325. (10.1186/1745-6215-14-325)
• Nawaz, S., Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference, Powys; UK, 10 - 11 October 2013.
• Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, 30 May - 2 June 2013BMJ Supportive and Palliative Care. BMJ pp. 131., (10.1136/bmjspcare-2013-000453b.19)
• Harrop, E., Baillie, J., Byrne, A., Stephens, K. and Nelson, A. 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013.
• Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference, London, UK, 28 March 2014.
• Harrop, E., Baillie, J., Byrne, A., Stephens, K. and Nelson, A. 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference, London; UK, 28 March 2014BMJ Supportive & Palliative Care. BMJ pp. 131., (10.1136/bmjspcare-2013-000453b.20)

2012

• Edwards, M. et al. 2012. 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer 75(s1), pp. s36.

2010

• Elliott, E., Harrop, E., Rothwell, H., Shepherd, M. and Williams, G. 2010. The impact of the economic downturn on health in Wales: a review and case study. Working paper. Cardiff: Cardiff University.
• Elliott, E., Harrop, E., Shepherd, M. A., Rothwell, H. A. and Williams, G. H. 2010. The impact of the recession on health: perspectives. Presented at: 18th UKPHA Annual Public Health Forum, Bournemouth, UK, 24- 25 March 2010.
• Harrop, E. 2010. Contested knowledge in the assessment of public health risks: A case study of the Nant-y-Gwyddon landfill site in the Rhondda valley, South Wales. PhD Thesis, Cardiff University.

2009

• Elliott, E., Harrop, E. and Williams, G. H. 2009. Contesting the science: public health knowledge and action in controversial land-use developments. In: Benett, P. et al. eds. Risk Communication and Public Health (2nd ed.). Oxford: Oxford University Press, pp. 181-196., (10.1093/acprof:oso/9780199562848.003.12)
• Harrop, E., Elliott, E. and Williams, G. H. 2009. Contesting the science: public health knowledge in an environmental protest. Presented at: BSA Medical Sociology Group 41st Annual Conference, Manchester, UK, 4 September 2009.
• Elliott, E., Harrop, E. and Williams, G. H. 2009. Contesting the science: public health knowledge and action in controversial land-use development. Presented at: 104th American Sociological Association conference, San Fransisco. USA, 8 - 11 August 2009.

2007

• Rothwell, H., Murphy, S., MacDonald, S. and Harrop, E. 2007. Exploring responsibility for health in families: analysing social relationships through a focus group study. Presented at: Society for Social Medicine, 51st Annual Scientific Meeting, Cork, Ireland, 12-14 September 2007.
• Murphy, S., MacDonald, S., Harrop, E. and Rothwell, H. 2007. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: 19th IUHPE Conference on Health Promotion and Education, Vancouver, BC, Canada, 11-15 June 2007.

2006

• Murphy, S., Harrop, E., MacDonald, S. and Rothwell, H. 2006. An examination of perceptions of roles and responsibilities for health amongst the general public. Working paper. Cardiff: Cardiff University.
• MacDonald, S., Harrop, E., Rothwell, H. and Murphy, S. 2006. Organisational roles and responsibilities for health: interviews with representatives from the statutory and non-statutory sectors. Working paper. Cardiff: Cardiff University.
• Rothwell, H., Murphy, S., MacDonald, S. and Harrop, E. 2006. Organisational roles and responsibilities for health: a pilot survey of businesses, primary and secondary schools and local government. Working paper. Cardiff: Cardiff University.
• Murphy, S., MacDonald, S., Harrop, E. and Rothwell, H. 2006. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: AWARD Building R&D in Health and Social Care in Wales, Swansea University, Swansea, UK, 21 June 2006.