Dr Emily Harrop
BA (Hons), MSc, PhD, FHEA
- Available for postgraduate supervision
Teams and roles for Emily Harrop
Senior Research Fellow
Overview
I am a Senior Research Fellow at the Marie Curie Research Cenre, leading the Caregiving and Bereavement theme at the Centre. My background is in the humanities and social sciences and my qualitative and mixed-methods research focuses on exploring the lived experiences and support needs of individuals and families facing advanced illness and loss, and developing evidence, interventions and resources to support people living through these most difficult of times.
Publication
2026
- Hopewell-Kelly, N. et al. 2026. Non-verbal methods for assessing grief and mental health in children and individuals with additional communication needs: A scoping review. Palliative Care & Social Practice 20 26323524251413281. (10.1177/26323524251413281)
2025
- Canny, A. et al., 2025. A qualitative study of bereavement support volunteers’ views and experiences on an online Acceptance and commitment therapy-based (ACT) training programme. PLoS ONE 20 (12) e0337321. (10.1371/journal.pone.0337321)
- Harrop, E. et al. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 118518. (10.1016/j.socscimed.2025.118518)
- Selman, L. E. et al., 2025. Shifting to online and telephone bereavement support provision during the COVID-19 pandemic: A mixed methods study of bereavement service provider perspectives and lessons learnt for current practice. Palliative medicine (10.1177/02692163251383324)
- Gillanders, D. et al., 2025. A logic model to guide ‘My Grief My Way’: An intervention development study for a digital psychological support package for unmet bereavement support needs. Progress in Palliative Care 33 (5), pp.260-268. (10.1080/09699260.2025.2538935)
- Edwards, M. et al. 2025. Selected abstracts from the 4th international research seminar of the EAPC Reference Group on Public Health & Palliative Care, June 17-19, 2025. Palliative Care & Social Practice 19 (10.1177/26323524251366788)
- Selman, L. E. et al., 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2), pp.904-931. (10.1177/00302228221144925)
- Finucane, A. et al., 2025. A rapid review of the evidence for online interventions for bereavement support. Palliative Medicine 39 (1), pp.31-52. (10.1177/02692163241285101)
2024
- Burton, L. et al. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23 (1) 300. (10.1186/s12904-024-01619-9)
- Harrop, E. 2024. A spotlight on children and young people - and remembering Colin Murray Parkes. Bereavement Journal of Grief and Responses to Death 3 , pp.1-3. (10.54210/bj.2024.1140)
2023
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 1215881. (10.3389/fpubh.2023.1215881)
- Fiddimore, E. et al. 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4), pp.434-456. (10.1080/07347332.2022.2136997)
- Selman, L. E. et al., 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37 (4), pp.586-601. (10.1177/02692163221133665)
- Harrop, E. 2023. What difference does a year make? Looking back and ahead in Bereavement-Volume 2. Bereavement: Journal of Grief and Responses to Death 2 (10.54210/bj.2023.1116)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A%. (10.1136/spcare-2023-MCRC.11)
2022
- Scott, H. et al., 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 (10.54210/bj.2022.1078)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 177. (10.1186/s12904-022-01066-4)
- Harrop, E. and Pearce, C. 2022. We wept and we waited - but what can we learn from the week we mourned the Queen?. Bereavement : Journal of Grief Responses to Death 1 (2022), pp.1-4.
- Escritt, K. et al. 2022. Hope and meaning-making in phase-one oncology trials: A systematic review and thematic synthesis of qualitative evidence on patient-participant experiences. Trials 23 409. (10.1186/s13063-022-06306-9)
- Selman, L. et al., 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp.1-17. (10.1177/26323524221092456)
- Selman, L. E. et al., 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4), pp.717-729.
- Selman, L. E. et al., 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022 Telford, Englad 24-25 March 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A1. (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al., 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress Online 7-9 October 2020. Vol. 12.BMJ Publishing Group
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A6-A7. (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A10-A11. (10.1136/spcare-2021-MCRC.25)
- Harrop, E. and Selman, L. E. 2022. Bereavement during the COVID-19 pandemic in the UK: What do we know so far?. Bereavement Journal of Grief and Responses to Death 1 18. (10.54210/bj.2022.18)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
- Hudson, B. et al. 2022. Experiences of bereavement across the UK. What are the challenges and what might the future look like – findings From the UK commission on bereavement.. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.SAGE Publications(10.1177/02692163221093145)
- Selman, L. et al., 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.SAGE Publications(10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications(10.1177/02692163221093145)
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Phillips, R. et al., 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) e0258484. (10.1371/journal.pone.0258484)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021 Virtual 25-26 March 2021. Vol. 11.Vol. Supple. BMJ Publishing Group. , pp.A3. (10.1136/spcare-2021-PCC.6)
2020
- Desai, A. et al. 2020. 'Can you watch me please?' An evaluation of supervised learning events for medical students. The British Student Doctor Journal 4 (3), pp.16-18. (10.18573/bsdj.211)
- Ray, I. et al. 2020. The role of educational supervisors and their feedback in an undergraduate medical curriculum. The British Student Doctor Journal 4 (3), pp.31-33. (10.18573/bsdj.200)
- Harrop, E. et al. 2020. What elements of a systems approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19. Palliative Medicine 34 (9), pp.1165-1181. (10.1177/0269216320946273)
- Harrop, E. et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7), pp.871-888. (10.1177/0269216320920533)
- Harrop, E. et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 29. (10.1186/s12904-020-0532-4)
- Harrop, E. 2020. Bereavement outcomes study: Summary reports of consensus exercises. Project Report.Marie Curie Research Centre.
2019
- Hopewell-Kelly, N. et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2), pp.219-224. (10.1136/bmjspcare-2015-000889)
- Sivell, S. et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 e14. (10.1136/bmjspcare-2015-000892)
2018
- Longo, M. et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) 371. (10.1136/bmjspcare-2018-mariecurie.30)
- Morgan, F. et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3), pp.380-381. (10.1136/bmjspcare-2018-mariecurie.54)
- Seddon, K. et al., 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3), pp.374-375. (10.1136/bmjspcare-2018-mariecurie.40)
- Prout, H. C. et al. 2018. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study. Trials 19 419. (10.1186/s13063-018-2803-4)
- Harrop, E. et al. 2018. The challenge pathway: a mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (innovative practice). Dementia 17 (2), pp.252-257. (10.1177/1471301217729532)
2017
- Harrop, E. et al. 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8), pp.1448-1464.
2016
- Harrop, E. et al. 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15 92. (10.1186/s12904-016-0165-9)
- Harrop, E. et al. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) 329. (10.1186/s13063-016-1460-8)
- Harrop, E. et al. 2016. Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials 17 35. (10.1186/s13063-016-1173-z)
- Harrop, E. et al. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.
2015
- Harrop, E. et al. 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups.
- Sivell, S. et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 117. (10.1136/bmjspcare-2014-000838.40)
- Sivell, S. et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.2529-2534.
2014
- Bowyer, A. et al. 2014. After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire [Abstract]. BMJ Supportive & Palliative Care 4 (S1), pp.A47-A48. (10.1136/bmjspcare-2014-000654.133)
- Baillie, J. et al. 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference London 28 March 2014. BMJ Supportive and Palliative Care. BMJ. , pp.114-(P026). (10.1136/bmjspcare-2014-000653.28)
- Harrop, E. , Byrne, A. and Nelson, A. 2014. "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC Palliative Care 13 , pp.22. (10.1186/1472-684X-13-22)
2013
- Harrop, E. et al. 2013. ‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials.. Trials 14 (S1) P9 (2013). (10.1186/1745-6215-14-s1-p9)
- Nelson, A. et al. 2013. QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials 14 (1) 325. (10.1186/1745-6215-14-325)
- Baillie, J. et al. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care Prague 30 May - 2 June 2013. BMJ Supportive and Palliative Care. BMJ. , pp.131. (10.1136/bmjspcare-2013-000453b.19)
- Baillie, J. et al. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference London, UK 28 March 2014.
- Harrop, E. et al. 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care Prague, Czech Republic 30 May - 2 June 2013.
- Harrop, E. et al. 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference London; UK 28 March 2014. BMJ Supportive & Palliative Care. BMJ. , pp.131. (10.1136/bmjspcare-2013-000453b.20)
- Nawaz, S. et al., 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference Powys; UK 10 - 11 October 2013.
2012
- Edwards, M. et al. 2012. 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer 75 (s1), pp.s36.
2010
- Elliott, E. et al. 2010. The impact of the recession on health: perspectives. Presented at: 18th UKPHA Annual Public Health Forum Bournemouth, UK 24- 25 March 2010.
- Elliott, E. et al. 2010. The impact of the economic downturn on health in Wales: a review and case study. Working paper. Cardiff: Cardiff University.
- Harrop, E. 2010. Contested knowledge in the assessment of public health risks: A case study of the Nant-y-Gwyddon landfill site in the Rhondda valley, South Wales. PhD Thesis , Cardiff University.
2009
- Harrop, E. , Elliott, E. and Williams, G. H. 2009. Contesting the science: public health knowledge in an environmental protest. Presented at: BSA Medical Sociology Group 41st Annual Conference Manchester, UK 4 September 2009.
- Elliott, E. , Harrop, E. and Williams, G. H. 2009. Contesting the science: public health knowledge and action in controversial land-use development. Presented at: 104th American Sociological Association conference San Fransisco. USA 8 - 11 August 2009.
- Elliott, E. , Harrop, E. and Williams, G. H. 2009. Contesting the science: public health knowledge and action in controversial land-use developments. In: Benett, P. et al., Risk Communication and Public Health (2nd ed.). Oxford: Oxford University Press. , pp.181-196. (10.1093/acprof:oso/9780199562848.003.12)
2007
- Murphy, S. et al. 2007. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: 19th IUHPE Conference on Health Promotion and Education Vancouver, BC, Canada 11-15 June 2007.
- Rothwell, H. et al. 2007. Exploring responsibility for health in families: analysing social relationships through a focus group study. Presented at: Society for Social Medicine, 51st Annual Scientific Meeting Cork, Ireland 12-14 September 2007.
2006
- MacDonald, S. et al. 2006. Organisational roles and responsibilities for health: interviews with representatives from the statutory and non-statutory sectors. Working paper. Cardiff: Cardiff University.
- Murphy, S. et al., 2006. An examination of perceptions of roles and responsibilities for health amongst the general public. Working paper. Cardiff: Cardiff University.
- Murphy, S. et al. 2006. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: AWARD Building R&D in Health and Social Care in Wales Swansea University, Swansea, UK 21 June 2006.
- Rothwell, H. et al., 2006. Organisational roles and responsibilities for health: a pilot survey of businesses, primary and secondary schools and local government. Working paper. Cardiff: Cardiff University.
Articles
- Hopewell-Kelly, N. et al. 2026. Non-verbal methods for assessing grief and mental health in children and individuals with additional communication needs: A scoping review. Palliative Care & Social Practice 20 26323524251413281. (10.1177/26323524251413281)
- Canny, A. et al., 2025. A qualitative study of bereavement support volunteers’ views and experiences on an online Acceptance and commitment therapy-based (ACT) training programme. PLoS ONE 20 (12) e0337321. (10.1371/journal.pone.0337321)
- Harrop, E. et al. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 118518. (10.1016/j.socscimed.2025.118518)
- Selman, L. E. et al., 2025. Shifting to online and telephone bereavement support provision during the COVID-19 pandemic: A mixed methods study of bereavement service provider perspectives and lessons learnt for current practice. Palliative medicine (10.1177/02692163251383324)
- Gillanders, D. et al., 2025. A logic model to guide ‘My Grief My Way’: An intervention development study for a digital psychological support package for unmet bereavement support needs. Progress in Palliative Care 33 (5), pp.260-268. (10.1080/09699260.2025.2538935)
- Edwards, M. et al. 2025. Selected abstracts from the 4th international research seminar of the EAPC Reference Group on Public Health & Palliative Care, June 17-19, 2025. Palliative Care & Social Practice 19 (10.1177/26323524251366788)
- Selman, L. E. et al., 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2), pp.904-931. (10.1177/00302228221144925)
- Finucane, A. et al., 2025. A rapid review of the evidence for online interventions for bereavement support. Palliative Medicine 39 (1), pp.31-52. (10.1177/02692163241285101)
- Burton, L. et al. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23 (1) 300. (10.1186/s12904-024-01619-9)
- Harrop, E. 2024. A spotlight on children and young people - and remembering Colin Murray Parkes. Bereavement Journal of Grief and Responses to Death 3 , pp.1-3. (10.54210/bj.2024.1140)
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 1215881. (10.3389/fpubh.2023.1215881)
- Fiddimore, E. et al. 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4), pp.434-456. (10.1080/07347332.2022.2136997)
- Selman, L. E. et al., 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37 (4), pp.586-601. (10.1177/02692163221133665)
- Harrop, E. 2023. What difference does a year make? Looking back and ahead in Bereavement-Volume 2. Bereavement: Journal of Grief and Responses to Death 2 (10.54210/bj.2023.1116)
- Scott, H. et al., 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 (10.54210/bj.2022.1078)
- Harrop, E. et al. 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 177. (10.1186/s12904-022-01066-4)
- Harrop, E. and Pearce, C. 2022. We wept and we waited - but what can we learn from the week we mourned the Queen?. Bereavement : Journal of Grief Responses to Death 1 (2022), pp.1-4.
- Escritt, K. et al. 2022. Hope and meaning-making in phase-one oncology trials: A systematic review and thematic synthesis of qualitative evidence on patient-participant experiences. Trials 23 409. (10.1186/s13063-022-06306-9)
- Torrens-Burton, A. et al. 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp.1-17. (10.1177/26323524221092456)
- Selman, L. E. et al., 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4), pp.717-729.
- Harrop, E. and Selman, L. E. 2022. Bereavement during the COVID-19 pandemic in the UK: What do we know so far?. Bereavement Journal of Grief and Responses to Death 1 18. (10.54210/bj.2022.18)
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Phillips, R. et al., 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) e0258484. (10.1371/journal.pone.0258484)
- Desai, A. et al. 2020. 'Can you watch me please?' An evaluation of supervised learning events for medical students. The British Student Doctor Journal 4 (3), pp.16-18. (10.18573/bsdj.211)
- Ray, I. et al. 2020. The role of educational supervisors and their feedback in an undergraduate medical curriculum. The British Student Doctor Journal 4 (3), pp.31-33. (10.18573/bsdj.200)
- Harrop, E. et al. 2020. What elements of a systems approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19. Palliative Medicine 34 (9), pp.1165-1181. (10.1177/0269216320946273)
- Harrop, E. et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7), pp.871-888. (10.1177/0269216320920533)
- Harrop, E. et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 29. (10.1186/s12904-020-0532-4)
- Hopewell-Kelly, N. et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2), pp.219-224. (10.1136/bmjspcare-2015-000889)
- Sivell, S. et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 e14. (10.1136/bmjspcare-2015-000892)
- Longo, M. et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) 371. (10.1136/bmjspcare-2018-mariecurie.30)
- Morgan, F. et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3), pp.380-381. (10.1136/bmjspcare-2018-mariecurie.54)
- Seddon, K. et al., 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3), pp.374-375. (10.1136/bmjspcare-2018-mariecurie.40)
- Prout, H. C. et al. 2018. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study. Trials 19 419. (10.1186/s13063-018-2803-4)
- Harrop, E. et al. 2018. The challenge pathway: a mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (innovative practice). Dementia 17 (2), pp.252-257. (10.1177/1471301217729532)
- Harrop, E. et al. 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8), pp.1448-1464.
- Harrop, E. et al. 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15 92. (10.1186/s12904-016-0165-9)
- Harrop, E. et al. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) 329. (10.1186/s13063-016-1460-8)
- Harrop, E. et al. 2016. Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials 17 35. (10.1186/s13063-016-1173-z)
- Sivell, S. et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 117. (10.1136/bmjspcare-2014-000838.40)
- Bowyer, A. et al. 2014. After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire [Abstract]. BMJ Supportive & Palliative Care 4 (S1), pp.A47-A48. (10.1136/bmjspcare-2014-000654.133)
- Harrop, E. , Byrne, A. and Nelson, A. 2014. "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC Palliative Care 13 , pp.22. (10.1186/1472-684X-13-22)
- Harrop, E. et al. 2013. ‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials.. Trials 14 (S1) P9 (2013). (10.1186/1745-6215-14-s1-p9)
- Nelson, A. et al. 2013. QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials 14 (1) 325. (10.1186/1745-6215-14-325)
- Edwards, M. et al. 2012. 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer 75 (s1), pp.s36.
Book sections
- Elliott, E. , Harrop, E. and Williams, G. H. 2009. Contesting the science: public health knowledge and action in controversial land-use developments. In: Benett, P. et al., Risk Communication and Public Health (2nd ed.). Oxford: Oxford University Press. , pp.181-196. (10.1093/acprof:oso/9780199562848.003.12)
Conferences
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
- Mazzaschi, F. et al. 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A%. (10.1136/spcare-2023-MCRC.11)
- Selman, L. et al., 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK.. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Abstracts from the 12th World Research Congress of the European Association for Palliative Care Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Harrop, E. et al. 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.Vol. 1. SAGE Publications(10.1177/02692163221093145)
- Selman, L. E. et al., 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022 Telford, Englad 24-25 March 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A1. (10.1136/spcare-2022-SCPSC.2)
- Sutton, E. et al., 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies.. Presented at: 11th EAPC World Research Congress Online 7-9 October 2020. Vol. 12.BMJ Publishing Group
- Goss, S. et al. 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey.. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A6-A7. (10.1136/spcare-2021-MCRC.15)
- Torrens-Burton, A. et al. 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A10-A11. (10.1136/spcare-2021-MCRC.25)
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
- Hudson, B. et al. 2022. Experiences of bereavement across the UK. What are the challenges and what might the future look like – findings From the UK commission on bereavement.. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.SAGE Publications(10.1177/02692163221093145)
- Selman, L. et al., 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Vol. 36.SAGE Publications(10.1177/02692163221093145)
- Torrens-Burton, A. et al. 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care Online 18-20 May 2022. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications(10.1177/02692163221093145)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021 Virtual 25-26 March 2021. Vol. 11.Vol. Supple. BMJ Publishing Group. , pp.A3. (10.1136/spcare-2021-PCC.6)
- Sivell, S. et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.2529-2534.
- Baillie, J. et al. 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference London 28 March 2014. BMJ Supportive and Palliative Care. BMJ. , pp.114-(P026). (10.1136/bmjspcare-2014-000653.28)
- Baillie, J. et al. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care Prague 30 May - 2 June 2013. BMJ Supportive and Palliative Care. BMJ. , pp.131. (10.1136/bmjspcare-2013-000453b.19)
- Baillie, J. et al. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference London, UK 28 March 2014.
- Harrop, E. et al. 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care Prague, Czech Republic 30 May - 2 June 2013.
- Harrop, E. et al. 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference London; UK 28 March 2014. BMJ Supportive & Palliative Care. BMJ. , pp.131. (10.1136/bmjspcare-2013-000453b.20)
- Nawaz, S. et al., 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference Powys; UK 10 - 11 October 2013.
- Elliott, E. et al. 2010. The impact of the recession on health: perspectives. Presented at: 18th UKPHA Annual Public Health Forum Bournemouth, UK 24- 25 March 2010.
- Harrop, E. , Elliott, E. and Williams, G. H. 2009. Contesting the science: public health knowledge in an environmental protest. Presented at: BSA Medical Sociology Group 41st Annual Conference Manchester, UK 4 September 2009.
- Elliott, E. , Harrop, E. and Williams, G. H. 2009. Contesting the science: public health knowledge and action in controversial land-use development. Presented at: 104th American Sociological Association conference San Fransisco. USA 8 - 11 August 2009.
- Murphy, S. et al. 2007. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: 19th IUHPE Conference on Health Promotion and Education Vancouver, BC, Canada 11-15 June 2007.
- Rothwell, H. et al. 2007. Exploring responsibility for health in families: analysing social relationships through a focus group study. Presented at: Society for Social Medicine, 51st Annual Scientific Meeting Cork, Ireland 12-14 September 2007.
- Murphy, S. et al. 2006. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: AWARD Building R&D in Health and Social Care in Wales Swansea University, Swansea, UK 21 June 2006.
Monographs
- Harrop, E. 2020. Bereavement outcomes study: Summary reports of consensus exercises. Project Report.Marie Curie Research Centre.
- Harrop, E. et al. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.
- Harrop, E. et al. 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups.
- Elliott, E. et al. 2010. The impact of the economic downturn on health in Wales: a review and case study. Working paper. Cardiff: Cardiff University.
- MacDonald, S. et al. 2006. Organisational roles and responsibilities for health: interviews with representatives from the statutory and non-statutory sectors. Working paper. Cardiff: Cardiff University.
- Murphy, S. et al., 2006. An examination of perceptions of roles and responsibilities for health amongst the general public. Working paper. Cardiff: Cardiff University.
- Rothwell, H. et al., 2006. Organisational roles and responsibilities for health: a pilot survey of businesses, primary and secondary schools and local government. Working paper. Cardiff: Cardiff University.
Thesis
- Harrop, E. 2010. Contested knowledge in the assessment of public health risks: A case study of the Nant-y-Gwyddon landfill site in the Rhondda valley, South Wales. PhD Thesis , Cardiff University.
Research
I lead the caregiving and bereavement theme at the Marie Curie Research Centre. My current research interests are; grief experiences and bereavement support; the support needs of family carers; patient and family experiences of living with advanced illnesses; patient experiences of clinical trials and service innovation and evaluation in palliative and end of life care.
Infra-structural funding:
Marie Curie Research Centre, Marie Curie, 2023-2028. Co-applicant/theme-lead
Impact and other awards:
Improving equity and quality in bereavement support: development of an analytic code book. ESRC Impact Acceleration Account. 2025. Principal Investigator
Finding the bereavement support that’s right for you; development of evidence-based resources for
people experiencing bereavement. ESRC Impact Acceleration Account. 2022-2023. Principal Investigator
Research grants:
Supporting young carers and young adult carers at the end of life and into bereavement: a mixed-methods study investigating support needs and practices. Marie Curie. 2024-2025. Principal Investigator
Mapping voluntary and local government financial support services in England and Wales available for people living with a terminal illness: Understanding the barriers and facilitators to access. Marie Curie. 2023-2025. Co-Investigator
Developing and validating the Children's Attitude to Grief Scale. Winston's Wish. 2023-2025. Principal Investigator
Equitable Bereavement Care for All Ethnicities. NIHR. 2023-2025. Co-Investigator
Development of an online self-directed Acceptance and Commitment Therapy
(ACT) intervention to improve ability to cope and quality of life after
bereavement. Marie Curie. 2022-2024, Co-Investigator
The long-term grief experiences and support needs of people
bereaved during the Covid-19 pandemic: cohort survey 4th timepoint. Marie Curie. 2022-2023, Principal Investigator
Supporting people bereaved during COVID-19: a mixed methods study of bereaved people’s experiences and the bereavement services supporting them. UKRI/ESRC. 2020-2022, Co Principal Investigator.
A Scoping Survey of Bereavement Services in Wales. End of Life Board. 2019, Co Principal Investigator
Supporting people bereaved through advanced illness: A systematic review of the evidence and development of a core outcome set for bereavement research in palliative care. Marie Curie Research Grant. 2016-2018, Principal Investigator
Previous research projects:
The Challenge Pathway Study: An evaluation of an innovative service model for the end of life care of people with dementia (2015/2016)
Breaking down barriers: An evaluation of a hospice led project aimed at improving access to palliative care for Black and Minority Ethnic groups. A multi method longitudinal evaluation involving stakeholder interviews with health professionals, BME community groups and project staff; documentary analysis and analysis of ethnicity and demographic data. Marie Curie Cancer Care Centre Grant/ Big Lottery (2012 to 2015)
QUALFRAG: A Qualitative study exploring patients’ experience of the FRAGMATIC lung cancer trial. A longitudinal interview study which investigated the experiences and support needs of advanced lung cancer patients participating in a large clinical trial. Velindre Stepping Stones Charitable Trust (2011/2012)
BOLERO qualitative sub study. An interview study with bladder cancer patients who decline randomisation to the BOLERO trial. CRUK (2011/2012).
Managing home based care: the experiences and support needs of carers of patients with advanced illness. A focus group study with community nurse specialists, health care assistants and current and former carers.
Teaching
I am a Fellow of the Higher Education Acadamy
I provide teaching and supervisory support to the MSc in Palliative Medicine, including Introduction to Qualitative Research Methods and Qualitative Analysis
I co-ordinate an SSC Experience Week for second year medical students, 'Palliative Care: Research and Practice'
Supervision of medical students intercalating in Population Medicine.
Biography
Education and qualifications
PhD School of Social Sciences, Cardiff University (2010)
MSc Ethnicity and Multiculturalism, University of Bristol, Distinction (2004)
BA hons History, University of Bristol, 2.1 (2002)
Career overview
- 2011 - present: Marie Curie Palliative Care Research Centre, Cardiff University
- 2010-2011: Researcher, Arad Research.
- 2006-2010: PhD student, School of Social Sciences, Cardiff University
Thesis: Contested knowledge in the assessment of public health risks: a case study of the Nant-y-Gwyddion landfill site south Wales. Supervised by Prof. Gareth Williams and Dr Eva Elliott.
- 2005-2006: Research Assistant, Cardiff Institute of Society Health and Ethics (CISHE).
Supervisions
I am interested in supervising PhD students in the areas of:
- Bereavement/Bereavement Care
- Caregiver and patient experiences at the end of life
- Patient experiences of clinical trials
Contact Details
+44 29206 87184
Neuadd Meirionnydd, Room 8th Floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS
Research themes
Specialisms
- Palliative care
- Bereavement
- Qualitative Research
- Mixed-methodologies