![Natalie Joseph-williams](https://profiles-cardiff.imgix.net/attachments/2475?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Dr Natalie Joseph-williams
Research Associate
- JosephNJ1@caerdydd.ac.uk
- +44 29206 87141
- Neuadd Meirionnydd, Ystafell 8th floor, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS
- Ar gael fel goruchwyliwr ôl-raddedig
Trosolwyg
I am a Lecturer in Improving Patient Care at the Division of Population Medicine, Cardiff University. I am co-lead of the Patient Centred and Prudent Healthcare work package for the Wales Centre for Primary and Emergency Care Research (PRIME Centre Wales). My main research interests include implementation of patient-centred healthcare in routine clinical settings, shared decision making, and patient empowerment.
Since joining Cardiff University as a Research Associate in 2007, I have worked mainly in the field of patient - clinician communication. This has included the development, evaluation, and quality assessment of patient decision support interventions, designed to engage patients in decisions about their healthcare.
From 2010 - 2016, I was involved in a large scale shared decision making implementation programme, funded by The Health Foundation: 'MAGIC - Making Good Decisions in Collaboration with Patients.' The focus of this work was to increase the awareness of shared decision making within primary and secondary care settings, and to work directly with clinical teams to establish the best protocol for dissemination of a shared decision making programme across the NHS. The learning from the programme was published in the BMJ (April 2017) - 'Implementing shared decision making in the NHS - lessons from the MAGIC programme'
In 2012, I undertook a PhD (Medicine) as a member of staff ("Nobody knows me better than me": development & pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision making). I was awarded the PhD in January 2016.
In my current role as Lecturer in Improving Patient Care, I am involved in the delivery of two large scale NIHR grants:
- Predict-CAT Study: Cataract surgery - predicting self-reported benefit, supporting decision making and calibrating health utilities for cataract surgery (Principal Investigator for WP4, led by Bristol Hospitals NHS Foundation Trust).
- PriMUS Study: Primary care management of lower urinary tract symptoms in men: development and validation of a diagnostic and decision-making aid (Co-applicant, qualitative work lead).
My current role focuses on the development of shared decision making training for medical students, and writing various research proposals relating to the design of decision support interventions, and the implementation of these in routine clinical practice.
I also teach and act as a Personal Tutor to undergraduate medical students, and I also teach / supervise students who are undertaking a Medical Intercalated BSc (Clinical Epidemiology). My teaching areas include patient-centred care, research methodology and software, critical appraisal, and medical writing skills.
I am a member of the International Patient Decision Aids Standards Collaboration and the National Institute of Health and Care Excellence Shared Decision Making Collaborative.
Cyhoeddiad
2023
- Eberl, M., Joseph-Williams, N., Nollett, C., Fitzgibbon, J. and Hatch, S. 2023. Overcoming the disconnect between scientific research and the public. Immunology & Cell Biology (10.1111/imcb.12657)
- Lench, A. et al. 2023. Household Composition and Inequalities in COVID-19 Vaccination in Wales, UK.. Vaccines 11(3), pp. 1-9., article number: 604. (10.3390/vaccines11030604)
2022
- Sparrow, J. M. et al. 2022. Developing decision support tools incorporating personalised predictions of likely visual benefit versus harm for cataract surgery: research programme. Programme Grants for Applied Research 10(9) (10.3310/BAGA4188)
- Coulter, A. et al. 2022. Implementing shared decision-making in UK: Progress 2017-2022. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 171, pp. 139-143. (10.1016/j.zefq.2022.04.024)
- Parish, O., Williams, D., Odd, D. and Joseph-Williams, N. 2022. Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions. Patient Education and Counseling 105(5), pp. 1101-1114. (10.1016/j.pec.2021.08.033)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 2: perspectives of dentists and patients on the role of shared decision making in dental recall decisions. British Dental Journal (10.1038/s41415-022-4046-8)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 1: attitudes of NHS general dental practitioners to NICE Guideline CG19 on the interval between oral health reviews. British Dental Journal 232, pp. 327-331. (10.1038/s41415-022-3998-z)
2021
- Phillips, R. et al. 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16(10), article number: e0258484. (10.1371/journal.pone.0258484)
- Joseph-Williams, N. et al. 2021. What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the International Patient Decision Aid Standards Collaboration. Medical Decision Making 41(7), pp. 907-937. (10.1177/0272989X20978208)
- Milosevic, S. et al. 2021. Managing LUTS in primary care: qualitative study of GPs’ and patients’ experiences. British Journal of General Practice 71(710), pp. e685-e692. (10.3399/BJGP.2020.1043)
- Edwards, D. et al. 2021. A rapid review of the effectiveness of alternative education delivery strategies for undergraduate and postgraduate medical, dental, nursing and pharmacy education during the COVID-19 pandemic. Project Report. [Online]. Cardiff: Wales COVID-19 Evidence Centre. Available at: http://www.primecentre.wales/resources/RR/Clean/RR00004_Wales_COVID-19_Evidence_Centre_Rapid_Review_Healthcare_Education_August-2021.pdf
- Milosevic, S. et al. 2021. Conducting invasive urodynamics in primary care: Qualitative interview study examining experiences of patients and healthcare professionals. Diagnostic and Prognostic Research 5, article number: 10. (10.1186/s41512-021-00100-y)
2020
- Pell, B. et al. 2020. PRImary care Management of lower Urinary tract Symptoms in men: protocol for development and validation of a diagnostic and clinical decision support tool (the PriMUS study). BMJ 10(6), article number: e037634. (10.1136/bmjopen-2020-037634)
2019
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102(10), pp. 1774-1785. (10.1016/j.pec.2019.07.016)
- Phillips, G., Lifford, K., Edwards, A., Poolman, M. and Joseph-Williams, N. 2019. Do published patient decision aids for end-of-life care address patients' decision making needs? A systematic review and critical appraisal. Palliative Medicine 33(8), pp. 985-1002. (10.1177/0269216319854186)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9(8), article number: e029485. (10.1136/bmjopen-2019-029485)
- Jordan, A., Joseph-Williams, N., Edwards, A., Holland-Hart, D. and Wood, F. 2019. "I'd like to have more of a say because it's my body?: Adolescents' perceptions around barriers and facilitators to shared decision-making. Journal of Adolescent Health, pp. -. (10.1016/j.jadohealth.2019.05.024)
- Sherlock, R. et al. 2019. 'What would you recommend doctor?'- Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations. Health Expectations 22(3), pp. 547-554. (10.1111/hex.12881)
2018
- Jordan, A., Wood, F., Edwards, A., Shepherd, V. and Joseph-Williams, N. 2018. What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences. Patient Education and Counseling 101(10), pp. 1725-1735. (10.1016/j.pec.2018.06.006)
2017
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357, article number: j1744. (10.1136/bmj.j1744)
2015
- Joseph-Williams, N., Davies, F., Wood, F. C. and Edwards, A. G. 2015. Choosing a specialist: will patients vote with their feet (and wallets) for person-centered care?. Medical Decision Making 35(6), pp. 688-690. (10.1177/0272989X15583267)
- Durand, M., Witt, J., Joseph-Williams, N. J., Newcombe, R. G., Politi, M. C., Sivell, S. and Elwyn, G. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98(4), pp. 462-486. (10.1016/j.pec.2014.12.009)
- Joseph-Williams, N. J. 2015. ‘Nobody knows me better than me’: the development and pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision-making. PhD Thesis, Cardiff University.
2014
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
- Sepucha, K. R. et al. 2014. "It's valid and reliable" is not enough: critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 34(5), pp. 560-566. (10.1177/0272989X14528381)
- Joseph-Williams, N., Edwards, A. and Elwyn, G. 2014. Power imbalance prevents shared decision making. BMJ 348, article number: g3178. (10.1136/bmj.g3178)
- Joseph-Williams, N., Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94(3), pp. 291-309. (10.1016/j.pec.2013.10.031)
2013
- Lloyd, A., Joseph-Williams, N., Edwards, A. G., Rix, A. and Elwyn, G. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8(1), article number: 102. (10.1186/1748-5908-8-102)
- Elwyn, G., Lloyd, A., Joseph-Williams, N. J., Cording, E., Thomson, R., Durand, M. and Edwards, A. G. 2013. Option grids: shared decision making made easier. Patient Education and Counseling 90(2), pp. 207-212. (10.1016/j.pec.2012.06.036)
- Joseph-Williams, N. et al. 2013. The cost implications of informed decision-making: a mathematical simulation model of the potential financial effects of a web-based prostate specific antigen decision aid. European Journal for Person Centered Healthcare 1(1), pp. 193-201. (10.5750/ejpch.v1i1.651)
- Sepucha, K. R. et al. 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 13(Suppl), article number: S12. (10.1186/1472-6947-13-S2-S12)
2012
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27(10), pp. 1361-1367. (10.1007/s11606-012-2077-6)
2011
- Elwyn, G., Kreuwel, I., Durand, M., Sivell, S., Joseph-Williams, N. J., Evans, R. and Edwards, A. G. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82(2), pp. 260-265. (10.1016/j.pec.2010.04.034)
- Joseph-Williams, N. J., Edwards, A. G. and Elwyn, G. 2011. The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments. Health Expectations 14(1), pp. 59-83. (10.1111/j.1369-7625.2010.00621.x)
2010
- Evans, R. et al. 2010. Supporting informed decision making for prostate specific antigen (PSA) testing on the web: an online randomized controlled trial. Journal of Medical Internet Research 12(3), article number: e27. (10.2196/jmir.1305)
- Joseph-Williams, N. J., Evans, R., Edwards, A. G., Newcombe, R. G., Wright, P., Grol, R. and Elwyn, G. 2010. Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid. Journal of Medical Internet Research 12(2), article number: e15. (10.2196/jmir.1307)
2009
- Elwyn, G. et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4(3), article number: e4705. (10.1371/journal.pone.0004705)
Articles
- Eberl, M., Joseph-Williams, N., Nollett, C., Fitzgibbon, J. and Hatch, S. 2023. Overcoming the disconnect between scientific research and the public. Immunology & Cell Biology (10.1111/imcb.12657)
- Lench, A. et al. 2023. Household Composition and Inequalities in COVID-19 Vaccination in Wales, UK.. Vaccines 11(3), pp. 1-9., article number: 604. (10.3390/vaccines11030604)
- Sparrow, J. M. et al. 2022. Developing decision support tools incorporating personalised predictions of likely visual benefit versus harm for cataract surgery: research programme. Programme Grants for Applied Research 10(9) (10.3310/BAGA4188)
- Coulter, A. et al. 2022. Implementing shared decision-making in UK: Progress 2017-2022. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 171, pp. 139-143. (10.1016/j.zefq.2022.04.024)
- Parish, O., Williams, D., Odd, D. and Joseph-Williams, N. 2022. Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions. Patient Education and Counseling 105(5), pp. 1101-1114. (10.1016/j.pec.2021.08.033)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 2: perspectives of dentists and patients on the role of shared decision making in dental recall decisions. British Dental Journal (10.1038/s41415-022-4046-8)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 1: attitudes of NHS general dental practitioners to NICE Guideline CG19 on the interval between oral health reviews. British Dental Journal 232, pp. 327-331. (10.1038/s41415-022-3998-z)
- Phillips, R. et al. 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16(10), article number: e0258484. (10.1371/journal.pone.0258484)
- Joseph-Williams, N. et al. 2021. What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the International Patient Decision Aid Standards Collaboration. Medical Decision Making 41(7), pp. 907-937. (10.1177/0272989X20978208)
- Milosevic, S. et al. 2021. Managing LUTS in primary care: qualitative study of GPs’ and patients’ experiences. British Journal of General Practice 71(710), pp. e685-e692. (10.3399/BJGP.2020.1043)
- Milosevic, S. et al. 2021. Conducting invasive urodynamics in primary care: Qualitative interview study examining experiences of patients and healthcare professionals. Diagnostic and Prognostic Research 5, article number: 10. (10.1186/s41512-021-00100-y)
- Pell, B. et al. 2020. PRImary care Management of lower Urinary tract Symptoms in men: protocol for development and validation of a diagnostic and clinical decision support tool (the PriMUS study). BMJ 10(6), article number: e037634. (10.1136/bmjopen-2020-037634)
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102(10), pp. 1774-1785. (10.1016/j.pec.2019.07.016)
- Phillips, G., Lifford, K., Edwards, A., Poolman, M. and Joseph-Williams, N. 2019. Do published patient decision aids for end-of-life care address patients' decision making needs? A systematic review and critical appraisal. Palliative Medicine 33(8), pp. 985-1002. (10.1177/0269216319854186)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9(8), article number: e029485. (10.1136/bmjopen-2019-029485)
- Jordan, A., Joseph-Williams, N., Edwards, A., Holland-Hart, D. and Wood, F. 2019. "I'd like to have more of a say because it's my body?: Adolescents' perceptions around barriers and facilitators to shared decision-making. Journal of Adolescent Health, pp. -. (10.1016/j.jadohealth.2019.05.024)
- Sherlock, R. et al. 2019. 'What would you recommend doctor?'- Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations. Health Expectations 22(3), pp. 547-554. (10.1111/hex.12881)
- Jordan, A., Wood, F., Edwards, A., Shepherd, V. and Joseph-Williams, N. 2018. What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences. Patient Education and Counseling 101(10), pp. 1725-1735. (10.1016/j.pec.2018.06.006)
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357, article number: j1744. (10.1136/bmj.j1744)
- Joseph-Williams, N., Davies, F., Wood, F. C. and Edwards, A. G. 2015. Choosing a specialist: will patients vote with their feet (and wallets) for person-centered care?. Medical Decision Making 35(6), pp. 688-690. (10.1177/0272989X15583267)
- Durand, M., Witt, J., Joseph-Williams, N. J., Newcombe, R. G., Politi, M. C., Sivell, S. and Elwyn, G. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98(4), pp. 462-486. (10.1016/j.pec.2014.12.009)
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
- Sepucha, K. R. et al. 2014. "It's valid and reliable" is not enough: critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 34(5), pp. 560-566. (10.1177/0272989X14528381)
- Joseph-Williams, N., Edwards, A. and Elwyn, G. 2014. Power imbalance prevents shared decision making. BMJ 348, article number: g3178. (10.1136/bmj.g3178)
- Joseph-Williams, N., Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94(3), pp. 291-309. (10.1016/j.pec.2013.10.031)
- Lloyd, A., Joseph-Williams, N., Edwards, A. G., Rix, A. and Elwyn, G. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8(1), article number: 102. (10.1186/1748-5908-8-102)
- Elwyn, G., Lloyd, A., Joseph-Williams, N. J., Cording, E., Thomson, R., Durand, M. and Edwards, A. G. 2013. Option grids: shared decision making made easier. Patient Education and Counseling 90(2), pp. 207-212. (10.1016/j.pec.2012.06.036)
- Joseph-Williams, N. et al. 2013. The cost implications of informed decision-making: a mathematical simulation model of the potential financial effects of a web-based prostate specific antigen decision aid. European Journal for Person Centered Healthcare 1(1), pp. 193-201. (10.5750/ejpch.v1i1.651)
- Sepucha, K. R. et al. 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 13(Suppl), article number: S12. (10.1186/1472-6947-13-S2-S12)
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27(10), pp. 1361-1367. (10.1007/s11606-012-2077-6)
- Elwyn, G., Kreuwel, I., Durand, M., Sivell, S., Joseph-Williams, N. J., Evans, R. and Edwards, A. G. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82(2), pp. 260-265. (10.1016/j.pec.2010.04.034)
- Joseph-Williams, N. J., Edwards, A. G. and Elwyn, G. 2011. The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments. Health Expectations 14(1), pp. 59-83. (10.1111/j.1369-7625.2010.00621.x)
- Evans, R. et al. 2010. Supporting informed decision making for prostate specific antigen (PSA) testing on the web: an online randomized controlled trial. Journal of Medical Internet Research 12(3), article number: e27. (10.2196/jmir.1305)
- Joseph-Williams, N. J., Evans, R., Edwards, A. G., Newcombe, R. G., Wright, P., Grol, R. and Elwyn, G. 2010. Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid. Journal of Medical Internet Research 12(2), article number: e15. (10.2196/jmir.1307)
- Elwyn, G. et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4(3), article number: e4705. (10.1371/journal.pone.0004705)
Monographs
- Edwards, D. et al. 2021. A rapid review of the effectiveness of alternative education delivery strategies for undergraduate and postgraduate medical, dental, nursing and pharmacy education during the COVID-19 pandemic. Project Report. [Online]. Cardiff: Wales COVID-19 Evidence Centre. Available at: http://www.primecentre.wales/resources/RR/Clean/RR00004_Wales_COVID-19_Evidence_Centre_Rapid_Review_Healthcare_Education_August-2021.pdf
Thesis
- Joseph-Williams, N. J. 2015. ‘Nobody knows me better than me’: the development and pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision-making. PhD Thesis, Cardiff University.
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
Addysgu
I am involved in the planning and delivery of the C21 Medical Programme (MBBCh) at Cardiff University.
I am course lead for the Year 3 MBBCh Evidence Based Medicine, and design and run various undergraduate sessions (lectures, tutorials, experience weeks) throughout the five year C21 Programme:
- Evidence Based Medicine (Year 3 medical students) - including research design, critical appraisal, shared decision making
- Organising and delivering Student Selected Components (SSCs) for Year 3 and 4 medical students
I also support the Intercalated Medical Degree Programmes (Population Medicine and Medical Education)
- Design and deliver various teaching sessions - writing for the medical literature, critical appraisal, literature searching
- Supervise and assess dissertation projects, supporting students to write a publication from their work
I have designed a continuing professional development 'Shared Decision Making - Train the Trainer' Programme for Public Health Wales, and deliver this to NHS Staff across Wales.
Other teaching, supervision and mentoring duties include:
- Supervision of PhD students
- Panel member of Postgraduate Viva assessments
- Postgraduate taught representative for the Division of Population Medicine
- Personal tutor for MBBCh students
- Chair / member of postgraduate research progress review panels
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