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Dr Natalie Joseph-Williams
(hi/ei)
- Ar gael fel goruchwyliwr ôl-raddedig
Timau a rolau for Natalie Joseph-Williams
Darllenydd mewn Gwella Gofal Cleifion
Trosolwyg
Trosolwg
Rwy'n Ddarllenydd mewn Gwella Gofal Cleifion a Chyfarwyddwr Cyswllt Canolfan Dystiolaeth Ymchwil Iechyd a Gofal Cymru yn Ysgol Meddygaeth Prifysgol Caerdydd.
Gyda 18 mlynedd o brofiad o ymchwil gofal sy'n canolbwyntio ar yr unigolyn, mae gen i hanes cryf o gyhoeddi canfyddiadau effeithiol sydd wedi llywio rhaglenni hyfforddi cenedlaethol, polisi gofal iechyd y GIG, canllawiau NICE a safonau rhyngwladol ym maes gofal sy'n canolbwyntio ar yr unigolyn.
Er mwyn sicrhau bod ein hymchwil yn darparu buddion i gleifion, clinigwyr a sefydliadau gofal iechyd, rwy'n cydweithio'n agos â sefydliadau cenedlaethol a rhyngwladol. Mae'r rhain yn cynnwys Llywodraeth Cymru, Iechyd Cyhoeddus Cymru, GIG Cymru, Addysg a Gwella Iechyd Cymru (AaGIC), NICE, y Gymdeithas Gwneud Penderfyniadau a Rennir Rhyngwladol a Chydweithrediad Safonau Rhyngwladol Cynorthwyo Penderfyniadau Cleifion (IPDAS).
Rolau Arwain Allweddol
- Cyfarwyddwr Cyswllt ac Arweinydd Cynradd Reserach yng Nghanolfan Dystiolaeth Ymchwil Iechyd a Gofal Cymru
- Arweinydd Academaidd yr Ysgol Meddygaeth ar gyfer Anfonebu ac Ymgysylltu â Chleifion a'r Cyhoedd
- Cymdeithas Gwneud Penderfyniadau a Rennir Rhyngwladol Aelod o'r Bwrdd Gweithredol ac Arweinydd Gwyddonol
- Cyd-Arweinydd y pecyn gwaith Gofal sy'n Canolbwyntio ar yr Unigolyn ar gyfer Canolfan Ymchwil Gofal Sylfaenol ac Argyfwng Cymru
- Cyd-arweinydd Meddygaeth Seiliedig ar Dystiolaeth ar gyfer myfyrwyr Blwyddyn 3 MBBCh
Cyhoeddiad
2025
- Williams, D. et al. 2025. Recommendations for a communication strategy to support informed decision-making about self or clinician sampling for cervical screening in the UK: qualitative study. Health Expectations 28(2), article number: e70191. (10.1111/hex.70191)
- McFadzean, I. et al. 2025. The evolution of patient-reported safety concerns during the COVID-19 pandemic within a series of study questionnaires: a multi-method analysis. International Journal for Quality in Health Care (10.1093/intqhc/mzaf040)
- Lewis, R. et al. 2025. A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021-2023. Health Research Policy and Systems 23(1), article number: 36. (10.1186/s12961-025-01297-w)
- Edwards, A. et al. 2025. Development of a clinical decision support tool for Primary care Management of lower Urinary tract Symptoms in men: the PriMUS study. Health Technology Assessment 29(1) (10.3310/RGTW5711)
- Sha'aban, A. et al. 2025. Public awareness of care pathways and available skill-mix in NHS dental teams: A qualitative study. British Dental Journal (10.1038/s41415-025-8491-z)
- Leighton, C., Joseph-Williams, N., Porter, A., Edwards, A. and Cooper, A. 2025. A theory-based analysis of the implementation of online asynchronous telemedicine platforms into primary care practices using Normalisation Process Theory. BMC Primary Care 26(1), article number: 27. (10.1186/s12875-025-02717-0)
2024
- Driscoll, T. et al. 2024. PP35 Does mean ambulance handover time at emergency departments correlate with number of handovers per month?. Emergency Medicine Journal 41(3), pp. A15-A16. (10.1136/emermed-2024-999.35)
- Gal, M. et al. 2024. Knowledge mobilisation of rapid evidence reviews to inform health and social care policy and practice in a public health emergency: Appraisal of the Wales COVID-19 Evidence Centre processes and impact, 2021–23. PLoS ONE 19(11), article number: e0314461. (10.1371/journal.pone.0314461)
- Cooper, A. et al. 2024. Informing evidence-based policy during the COVID-19 pandemic and recovery period: learning from a national evidence centre. Global Health Research and Policy 9(1), article number: 18. (10.1186/s41256-024-00354-1)
- Nollett, C., Eberl, M., Fitzgibbon, J., Joseph-Williams, N. and Hatch, S. 2024. Public involvement and engagement in scientific research and higher education: The only way is ethics?. Research Involvement and Engagement 10(1), article number: 50. (10.1186/s40900-024-00587-x)
- Leighton, C., Cooper, A., Porter, A., Edwards, A. and Joseph-Williams, N. 2024. Effectiveness and safety of asynchronous telemedicine consultations in general practice: systematic review. British Journal of General Practice Open 8(1), article number: 177. (10.3399/BJGPO.2023.0177)
2023
- Purchase, T. et al. 2023. Analysis of applying a patient safety taxonomy to patient and clinician-reported incident reports during the COVID-19 pandemic: a mixed methods study. BMC Medical Research Methodology 23(1), article number: 234. (10.1186/s12874-023-02057-6)
- Eberl, M., Joseph-Williams, N., Nollett, C., Fitzgibbon, J. and Hatch, S. 2023. Overcoming the disconnect between scientific research and the public. Immunology and Cell Biology 101(7), pp. 590-597. (10.1111/imcb.12657)
- Lench, A. et al. 2023. Household Composition and Inequalities in COVID-19 Vaccination in Wales, UK.. Vaccines 11(3), pp. 1-9., article number: 604. (10.3390/vaccines11030604)
2022
- Sparrow, J. M. et al. 2022. Developing decision support tools incorporating personalised predictions of likely visual benefit versus harm for cataract surgery: research programme. Programme Grants for Applied Research 10(9) (10.3310/BAGA4188)
- Coulter, A. et al. 2022. Implementing shared decision-making in UK: Progress 2017-2022. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 171, pp. 139-143. (10.1016/j.zefq.2022.04.024)
- Parish, O., Williams, D., Odd, D. and Joseph-Williams, N. 2022. Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions. Patient Education and Counseling 105(5), pp. 1101-1114. (10.1016/j.pec.2021.08.033)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 2: perspectives of dentists and patients on the role of shared decision making in dental recall decisions. British Dental Journal (10.1038/s41415-022-4046-8)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 1: attitudes of NHS general dental practitioners to NICE Guideline CG19 on the interval between oral health reviews. British Dental Journal 232, pp. 327-331. (10.1038/s41415-022-3998-z)
2021
- Phillips, R. et al. 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16(10), article number: e0258484. (10.1371/journal.pone.0258484)
- Joseph-Williams, N. et al. 2021. What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the International Patient Decision Aid Standards Collaboration. Medical Decision Making 41(7), pp. 907-937. (10.1177/0272989X20978208)
- Milosevic, S. et al. 2021. Managing LUTS in primary care: qualitative study of GPs’ and patients’ experiences. British Journal of General Practice 71(710), pp. e685-e692. (10.3399/BJGP.2020.1043)
- Edwards, D. et al. 2021. A rapid review of the effectiveness of alternative education delivery strategies for undergraduate and postgraduate medical, dental, nursing and pharmacy education during the COVID-19 pandemic. Project Report. [Online]. Cardiff: Wales COVID-19 Evidence Centre. Available at: http://www.primecentre.wales/resources/RR/Clean/RR00004_Wales_COVID-19_Evidence_Centre_Rapid_Review_Healthcare_Education_August-2021.pdf
- Milosevic, S. et al. 2021. Conducting invasive urodynamics in primary care: Qualitative interview study examining experiences of patients and healthcare professionals. Diagnostic and Prognostic Research 5, article number: 10. (10.1186/s41512-021-00100-y)
2020
- Pell, B. et al. 2020. PRImary care Management of lower Urinary tract Symptoms in men: protocol for development and validation of a diagnostic and clinical decision support tool (the PriMUS study). BMJ 10(6), article number: e037634. (10.1136/bmjopen-2020-037634)
2019
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102(10), pp. 1774-1785. (10.1016/j.pec.2019.07.016)
- Phillips, G., Lifford, K., Edwards, A., Poolman, M. and Joseph-Williams, N. 2019. Do published patient decision aids for end-of-life care address patients' decision making needs? A systematic review and critical appraisal. Palliative Medicine 33(8), pp. 985-1002. (10.1177/0269216319854186)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9(8), article number: e029485. (10.1136/bmjopen-2019-029485)
- Jordan, A., Joseph-Williams, N., Edwards, A., Holland-Hart, D. and Wood, F. 2019. "I'd like to have more of a say because it's my body?: Adolescents' perceptions around barriers and facilitators to shared decision-making. Journal of Adolescent Health, pp. -. (10.1016/j.jadohealth.2019.05.024)
- Sherlock, R. et al. 2019. 'What would you recommend doctor?'- Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations. Health Expectations 22(3), pp. 547-554. (10.1111/hex.12881)
2018
- Jordan, A., Wood, F., Edwards, A., Shepherd, V. and Joseph-Williams, N. 2018. What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences. Patient Education and Counseling 101(10), pp. 1725-1735. (10.1016/j.pec.2018.06.006)
2017
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357, article number: j1744. (10.1136/bmj.j1744)
2015
- Joseph-Williams, N., Davies, F., Wood, F. C. and Edwards, A. G. 2015. Choosing a specialist: will patients vote with their feet (and wallets) for person-centered care?. Medical Decision Making 35(6), pp. 688-690. (10.1177/0272989X15583267)
- Durand, M., Witt, J., Joseph-Williams, N. J., Newcombe, R. G., Politi, M. C., Sivell, S. and Elwyn, G. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98(4), pp. 462-486. (10.1016/j.pec.2014.12.009)
- Joseph-Williams, N. J. 2015. ‘Nobody knows me better than me’: the development and pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision-making. PhD Thesis, Cardiff University.
2014
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
- Sepucha, K. R. et al. 2014. "It's valid and reliable" is not enough: critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 34(5), pp. 560-566. (10.1177/0272989X14528381)
- Joseph-Williams, N., Edwards, A. and Elwyn, G. 2014. Power imbalance prevents shared decision making. BMJ 348, article number: g3178. (10.1136/bmj.g3178)
- Joseph-Williams, N., Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94(3), pp. 291-309. (10.1016/j.pec.2013.10.031)
2013
- Lloyd, A., Joseph-Williams, N., Edwards, A. G., Rix, A. and Elwyn, G. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8(1), article number: 102. (10.1186/1748-5908-8-102)
- Elwyn, G., Lloyd, A., Joseph-Williams, N. J., Cording, E., Thomson, R., Durand, M. and Edwards, A. G. 2013. Option grids: shared decision making made easier. Patient Education and Counseling 90(2), pp. 207-212. (10.1016/j.pec.2012.06.036)
- Joseph-Williams, N. et al. 2013. The cost implications of informed decision-making: a mathematical simulation model of the potential financial effects of a web-based prostate specific antigen decision aid. European Journal for Person Centered Healthcare 1(1), pp. 193-201. (10.5750/ejpch.v1i1.651)
- Sepucha, K. R. et al. 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 13(Suppl), article number: S12. (10.1186/1472-6947-13-S2-S12)
2012
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27(10), pp. 1361-1367. (10.1007/s11606-012-2077-6)
2011
- Elwyn, G., Kreuwel, I., Durand, M., Sivell, S., Joseph-Williams, N. J., Evans, R. and Edwards, A. G. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82(2), pp. 260-265. (10.1016/j.pec.2010.04.034)
- Joseph-Williams, N. J., Edwards, A. G. and Elwyn, G. 2011. The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments. Health Expectations 14(1), pp. 59-83. (10.1111/j.1369-7625.2010.00621.x)
2010
- Evans, R. et al. 2010. Supporting informed decision making for prostate specific antigen (PSA) testing on the web: an online randomized controlled trial. Journal of Medical Internet Research 12(3), article number: e27. (10.2196/jmir.1305)
- Joseph-Williams, N. J., Evans, R., Edwards, A. G., Newcombe, R. G., Wright, P., Grol, R. and Elwyn, G. 2010. Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid. Journal of Medical Internet Research 12(2), article number: e15. (10.2196/jmir.1307)
2009
- Elwyn, G. et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4(3), article number: e4705. (10.1371/journal.pone.0004705)
Articles
- Williams, D. et al. 2025. Recommendations for a communication strategy to support informed decision-making about self or clinician sampling for cervical screening in the UK: qualitative study. Health Expectations 28(2), article number: e70191. (10.1111/hex.70191)
- McFadzean, I. et al. 2025. The evolution of patient-reported safety concerns during the COVID-19 pandemic within a series of study questionnaires: a multi-method analysis. International Journal for Quality in Health Care (10.1093/intqhc/mzaf040)
- Lewis, R. et al. 2025. A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021-2023. Health Research Policy and Systems 23(1), article number: 36. (10.1186/s12961-025-01297-w)
- Edwards, A. et al. 2025. Development of a clinical decision support tool for Primary care Management of lower Urinary tract Symptoms in men: the PriMUS study. Health Technology Assessment 29(1) (10.3310/RGTW5711)
- Sha'aban, A. et al. 2025. Public awareness of care pathways and available skill-mix in NHS dental teams: A qualitative study. British Dental Journal (10.1038/s41415-025-8491-z)
- Leighton, C., Joseph-Williams, N., Porter, A., Edwards, A. and Cooper, A. 2025. A theory-based analysis of the implementation of online asynchronous telemedicine platforms into primary care practices using Normalisation Process Theory. BMC Primary Care 26(1), article number: 27. (10.1186/s12875-025-02717-0)
- Driscoll, T. et al. 2024. PP35 Does mean ambulance handover time at emergency departments correlate with number of handovers per month?. Emergency Medicine Journal 41(3), pp. A15-A16. (10.1136/emermed-2024-999.35)
- Gal, M. et al. 2024. Knowledge mobilisation of rapid evidence reviews to inform health and social care policy and practice in a public health emergency: Appraisal of the Wales COVID-19 Evidence Centre processes and impact, 2021–23. PLoS ONE 19(11), article number: e0314461. (10.1371/journal.pone.0314461)
- Cooper, A. et al. 2024. Informing evidence-based policy during the COVID-19 pandemic and recovery period: learning from a national evidence centre. Global Health Research and Policy 9(1), article number: 18. (10.1186/s41256-024-00354-1)
- Nollett, C., Eberl, M., Fitzgibbon, J., Joseph-Williams, N. and Hatch, S. 2024. Public involvement and engagement in scientific research and higher education: The only way is ethics?. Research Involvement and Engagement 10(1), article number: 50. (10.1186/s40900-024-00587-x)
- Leighton, C., Cooper, A., Porter, A., Edwards, A. and Joseph-Williams, N. 2024. Effectiveness and safety of asynchronous telemedicine consultations in general practice: systematic review. British Journal of General Practice Open 8(1), article number: 177. (10.3399/BJGPO.2023.0177)
- Purchase, T. et al. 2023. Analysis of applying a patient safety taxonomy to patient and clinician-reported incident reports during the COVID-19 pandemic: a mixed methods study. BMC Medical Research Methodology 23(1), article number: 234. (10.1186/s12874-023-02057-6)
- Eberl, M., Joseph-Williams, N., Nollett, C., Fitzgibbon, J. and Hatch, S. 2023. Overcoming the disconnect between scientific research and the public. Immunology and Cell Biology 101(7), pp. 590-597. (10.1111/imcb.12657)
- Lench, A. et al. 2023. Household Composition and Inequalities in COVID-19 Vaccination in Wales, UK.. Vaccines 11(3), pp. 1-9., article number: 604. (10.3390/vaccines11030604)
- Sparrow, J. M. et al. 2022. Developing decision support tools incorporating personalised predictions of likely visual benefit versus harm for cataract surgery: research programme. Programme Grants for Applied Research 10(9) (10.3310/BAGA4188)
- Coulter, A. et al. 2022. Implementing shared decision-making in UK: Progress 2017-2022. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 171, pp. 139-143. (10.1016/j.zefq.2022.04.024)
- Parish, O., Williams, D., Odd, D. and Joseph-Williams, N. 2022. Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions. Patient Education and Counseling 105(5), pp. 1101-1114. (10.1016/j.pec.2021.08.033)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 2: perspectives of dentists and patients on the role of shared decision making in dental recall decisions. British Dental Journal (10.1038/s41415-022-4046-8)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 1: attitudes of NHS general dental practitioners to NICE Guideline CG19 on the interval between oral health reviews. British Dental Journal 232, pp. 327-331. (10.1038/s41415-022-3998-z)
- Phillips, R. et al. 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16(10), article number: e0258484. (10.1371/journal.pone.0258484)
- Joseph-Williams, N. et al. 2021. What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the International Patient Decision Aid Standards Collaboration. Medical Decision Making 41(7), pp. 907-937. (10.1177/0272989X20978208)
- Milosevic, S. et al. 2021. Managing LUTS in primary care: qualitative study of GPs’ and patients’ experiences. British Journal of General Practice 71(710), pp. e685-e692. (10.3399/BJGP.2020.1043)
- Milosevic, S. et al. 2021. Conducting invasive urodynamics in primary care: Qualitative interview study examining experiences of patients and healthcare professionals. Diagnostic and Prognostic Research 5, article number: 10. (10.1186/s41512-021-00100-y)
- Pell, B. et al. 2020. PRImary care Management of lower Urinary tract Symptoms in men: protocol for development and validation of a diagnostic and clinical decision support tool (the PriMUS study). BMJ 10(6), article number: e037634. (10.1136/bmjopen-2020-037634)
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102(10), pp. 1774-1785. (10.1016/j.pec.2019.07.016)
- Phillips, G., Lifford, K., Edwards, A., Poolman, M. and Joseph-Williams, N. 2019. Do published patient decision aids for end-of-life care address patients' decision making needs? A systematic review and critical appraisal. Palliative Medicine 33(8), pp. 985-1002. (10.1177/0269216319854186)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9(8), article number: e029485. (10.1136/bmjopen-2019-029485)
- Jordan, A., Joseph-Williams, N., Edwards, A., Holland-Hart, D. and Wood, F. 2019. "I'd like to have more of a say because it's my body?: Adolescents' perceptions around barriers and facilitators to shared decision-making. Journal of Adolescent Health, pp. -. (10.1016/j.jadohealth.2019.05.024)
- Sherlock, R. et al. 2019. 'What would you recommend doctor?'- Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations. Health Expectations 22(3), pp. 547-554. (10.1111/hex.12881)
- Jordan, A., Wood, F., Edwards, A., Shepherd, V. and Joseph-Williams, N. 2018. What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences. Patient Education and Counseling 101(10), pp. 1725-1735. (10.1016/j.pec.2018.06.006)
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357, article number: j1744. (10.1136/bmj.j1744)
- Joseph-Williams, N., Davies, F., Wood, F. C. and Edwards, A. G. 2015. Choosing a specialist: will patients vote with their feet (and wallets) for person-centered care?. Medical Decision Making 35(6), pp. 688-690. (10.1177/0272989X15583267)
- Durand, M., Witt, J., Joseph-Williams, N. J., Newcombe, R. G., Politi, M. C., Sivell, S. and Elwyn, G. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98(4), pp. 462-486. (10.1016/j.pec.2014.12.009)
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
- Sepucha, K. R. et al. 2014. "It's valid and reliable" is not enough: critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 34(5), pp. 560-566. (10.1177/0272989X14528381)
- Joseph-Williams, N., Edwards, A. and Elwyn, G. 2014. Power imbalance prevents shared decision making. BMJ 348, article number: g3178. (10.1136/bmj.g3178)
- Joseph-Williams, N., Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94(3), pp. 291-309. (10.1016/j.pec.2013.10.031)
- Lloyd, A., Joseph-Williams, N., Edwards, A. G., Rix, A. and Elwyn, G. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8(1), article number: 102. (10.1186/1748-5908-8-102)
- Elwyn, G., Lloyd, A., Joseph-Williams, N. J., Cording, E., Thomson, R., Durand, M. and Edwards, A. G. 2013. Option grids: shared decision making made easier. Patient Education and Counseling 90(2), pp. 207-212. (10.1016/j.pec.2012.06.036)
- Joseph-Williams, N. et al. 2013. The cost implications of informed decision-making: a mathematical simulation model of the potential financial effects of a web-based prostate specific antigen decision aid. European Journal for Person Centered Healthcare 1(1), pp. 193-201. (10.5750/ejpch.v1i1.651)
- Sepucha, K. R. et al. 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 13(Suppl), article number: S12. (10.1186/1472-6947-13-S2-S12)
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27(10), pp. 1361-1367. (10.1007/s11606-012-2077-6)
- Elwyn, G., Kreuwel, I., Durand, M., Sivell, S., Joseph-Williams, N. J., Evans, R. and Edwards, A. G. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82(2), pp. 260-265. (10.1016/j.pec.2010.04.034)
- Joseph-Williams, N. J., Edwards, A. G. and Elwyn, G. 2011. The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments. Health Expectations 14(1), pp. 59-83. (10.1111/j.1369-7625.2010.00621.x)
- Evans, R. et al. 2010. Supporting informed decision making for prostate specific antigen (PSA) testing on the web: an online randomized controlled trial. Journal of Medical Internet Research 12(3), article number: e27. (10.2196/jmir.1305)
- Joseph-Williams, N. J., Evans, R., Edwards, A. G., Newcombe, R. G., Wright, P., Grol, R. and Elwyn, G. 2010. Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid. Journal of Medical Internet Research 12(2), article number: e15. (10.2196/jmir.1307)
- Elwyn, G. et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4(3), article number: e4705. (10.1371/journal.pone.0004705)
Monographs
- Edwards, D. et al. 2021. A rapid review of the effectiveness of alternative education delivery strategies for undergraduate and postgraduate medical, dental, nursing and pharmacy education during the COVID-19 pandemic. Project Report. [Online]. Cardiff: Wales COVID-19 Evidence Centre. Available at: http://www.primecentre.wales/resources/RR/Clean/RR00004_Wales_COVID-19_Evidence_Centre_Rapid_Review_Healthcare_Education_August-2021.pdf
Thesis
- Joseph-Williams, N. J. 2015. ‘Nobody knows me better than me’: the development and pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision-making. PhD Thesis, Cardiff University.
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
Ymchwil
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Rhaglenni Ymchwil
CYFLYM-Involve - Deall arferion gorau ar gyfer galluogi galw cyhoeddus cosbus a dal effaith y cyhoedd mewn ymchwil tystiolaeth gyflym
Arfaethedig
ALPACA - Rhagfynegiad Gollyngiadau Anastomotig Ar ôl Anastomosis Colorectal
https://www.alpaca-study.org.uk/
Gwobr Ymchwil Iechyd a Gofal Cymru Ymchwil Iechyd
2024 - 2026
Mae triniaeth ar gyfer canser y coluddyn fel arfer yn cynnwys llawdriniaeth, lle mae'r canser yn cael ei dynnu a dau ben y coluddyn yn cael eu huno yn ôl gyda'i gilydd i adfer swyddogaeth arferol. Fodd bynnag, mae ymuno â'r coluddyn yn ôl gyda'i gilydd yn cario risg o ollyngiad.
Wedi'i ariannu gan Ymchwil Iechyd a Gofal Cymru, nod ein hymchwil yw dilysu prawf diagnostig newydd a all ganfod gollyngiad yn gynharach ac yn fwy cywir. Os caiff ei gyflwyno mewn ymarfer clinigol, byddai prawf o'r fath yn gwella rheolaeth cleifion ar ôl llawdriniaeth, yn helpu i wella canlyniadau ac ansawdd bywyd cleifion, ac yn y pen draw yn arbed costau i'r GIG.
STALLED - Diogelwch, clinigol, effeithiau systemau a chostau ambuLances ciwio gydag oedi wrth drosglwyddo cleifion mewn Adrannau Achosion Brys
https://www.fundingawards.nihr.ac.uk/award/NIHR159967
Rhaglen HSDR NIHR
2024 - 2027
Bu problem yn y DU a gwledydd eraill ers blynyddoedd lawer, nad yw Adrannau Achosion Brys (ED) yn gallu rheoli llif cleifion ar adegau prysur. Mae cleifion yn aros yn yr ambiwlans, weithiau am sawl awr. Mewn rhai ardaloedd mae'r arfer hwn yn brin, mewn eraill mae'n gyffredin. Pan fydd ambiwlansys yn ciwio, nid yw cleifion yn derbyn gofal ED llawn ac nid yw ambiwlansys ar gael, felly mae 'sgil-effeithiau' ar gleifion a staff drwy'r system gofal brys ac argyfwng.
Ein nod yw darparu tystiolaeth am yr hyn sy'n gweithio i leihau'r niwed sy'n gysylltiedig â chiwio ambiwlansys.
Addysgu
Is-raddedig
Rwy'n ymwneud â chynllunio a chyflwyno Rhaglen Feddygol C21 (MBBCh) ym Mhrifysgol Caerdydd.
Rwy'n arweinydd cwrs ar gyfer Meddygaeth ar sail tystiolaeth MBBCh Blwyddyn 3, ac yn dylunio ac yn cynnal sesiynau israddedig amrywiol (darlithoedd, tiwtorialau, wythnosau profiad) drwy gydol y Rhaglen C21 pum mlynedd:
- Meddygaeth ar sail tystiolaeth (myfyrwyr meddygol Blwyddyn 3) - pynciau yn cynnwys dylunio ymchwil, gwerthuso beirniadol, ymarfer sy'n seiliedig ar dystiolaeth, gwneud penderfyniadau ar y cyd a gwella ansawdd
- Trefnu a chyflwyno Cydrannau a Ddewisir gan Fyfyrwyr (SSCs) ar gyfer myfyrwyr meddygol Blwyddyn 3 a 4
Rwyf hefyd yn cefnogi'r Rhaglenni Gradd Feddygol Rhyng-gyfrifedig (Meddygaeth Boblogaeth, Addysg Feddygol ac Argyfwng, Gofal Cyn-hopsital a Gofal Uniongyrchol)
- Dylunio a chyflwyno sesiynau addysgu amrywiol - ysgrifennu ar gyfer llenyddiaeth feddygol, gwerthuso beirniadol, chwilio llenyddiaeth
- Goruchwylio ac asesu prosiectau traethawd hir, gan gefnogi myfyrwyr i ysgrifennu cyhoeddiad o'u gwaith
Addysg Proffesiynol Parhaus
Rwyf wedi cynllunio neu gyfrannu at raglenni hyfforddiant datblygu proffesiynol parhaus Gwneud Penderfyniadau a Rennir, sydd ar gael i staff y GIG yn y DU.
- Rhaglen 'Gwneud Penderfyniadau a Rennir' ar gyfer Iechyd Cyhoeddus Cymru
Roedd y gwaith hwn yn sail i Astudiaeth Achos Effaith REF 2021.
- Rhaglen Gwneud Penderfyniadau ar y Cyd ar gyfer Addysg a Gwella Iechyd Cymru (AaGIC)
Bydd y rhaglen hon yn cael ei lansio yng Ngaeaf 2025, a bydd yn cael ei chynnal ar lwyfan HEIW Y Tŷ Dysgu.
Mae dyletswyddau addysgu, goruchwylio a mentora eraill yn cynnwys:
- Goruchwylio myfyrwyr PhD
- Tiwtor personol ar gyfer myfyrwyr MBBCh
- Cadeirydd / aelod o baneli adolygu cynnydd ymchwil ôl-raddedig
- Arholwr PhD Allanol
Contact Details
JosephNJ1@caerdydd.ac.uk
+44 29206 87141
Neuadd Meirionnydd, Ystafell 8th floor, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS
+44 29206 87141
Neuadd Meirionnydd, Ystafell 8th floor, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS
Themâu ymchwil
Arbenigeddau
- Diogelwch cleifion
- Cynnwys y Cleifion a'r Cyhoedd
- Darpariaeth y Gwasanaeth Iechyd
- Gwasanaethau iechyd a systemau
- Gwybodaeth i gleifion