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Dr Natalie Joseph-Williams
(hi/ei)
- Ar gael fel goruchwyliwr ôl-raddedig
Timau a rolau for Natalie Joseph-Williams
Darllenydd mewn Gwella Gofal Cleifion
Trosolwyg
Darllenydd mewn Gwella Gofal Cleifion, Cyfarwyddwr Cyswllt Canolfan Dystiolaeth Ymchwil Iechyd a Gofal Cymru, a Chyfarwyddwr Effaith yn Ysgol Meddygaeth Prifysgol Caerdydd.
Rwy'n arwain ymchwil a gydnabyddir yn rhyngwladol mewn gofal sy'n canolbwyntio ar y person a gwneud penderfyniadau a rennir sy'n llywio polisi, ymarfer, canllawiau a fframweithiau NICE, safonau rhyngwladol, a hyfforddiant proffesiynol yn fyd-eang.
Rwy'n gweithio'n agos gyda phartneriaid ymchwil ledled y DU, Ewrop, Gogledd America, De America, Asia ac Awstralia i ddeall, hyrwyddo ac ymgorffori gofal sy'n canolbwyntio ar dystiolaeth. Er mwyn sicrhau bod ein hymchwil yn darparu manteision prinbwysig i gleifion, clinigwyr a sefydliadau gofal iechyd, rwy'n gweithio mewn cydweithrediad agos â Llywodraeth Cymru, Iechyd Cyhoeddus Cymru, GIG Cymru, Addysg a Gwella Iechyd Cymru (AaGIC), Perfformiad a Gwelliant GIG Cymru, NICE, Picker Europe, y Gymdeithas Ryngwladol Gwneud Penderfyniadau a Rennir a'r Cydweithrediad Safonau Cymhorthion Penderfynu Cleifion Rhyngwladol (IPDAS).
Fel Cyfarwyddwr Cyswllt ac Arweinydd Ymchwil Sylfaenol ar gyfer Canolfan Dystiolaeth Ymchwil Iechyd a Gofal Cymru, rwy'n gweithio gyda phobl sy'n ymwneud â pholisi ac ymarfer ledled Cymru i nodi anghenion tystiolaeth iechyd a gofal allweddol, darparu gwybodaeth sy'n seiliedig ar dystiolaeth i ateb yr anghenion hyn, a sicrhau bod y cyfarwyddyd hwn yn llywio polisi ac arfer.
Themâu ymchwil cyfredol
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- sut y gallwn leihau oedi trosglwyddo ambiwlans yn y GIG i wella ansawdd, diogelwch a phrofiadau
- Pa gymorth sydd ei angen ar ddynion â chyflyrau iechyd meddwl gan wasanaethau gofal sylfaenol
- Y dyfodol iddefnyddio biomarciwr hylif draen newydd sy'n gallu canfod gollyngiadau anastomotig ar ôl llawdriniaeth a'r rhefr yn gynt
- Gwelliannau gofal sy'n canolbwyntio ar y person teg i bobl ag endometriosis, clefyd coeliac, anableddau dysgu, canser y colon a'r rhefr, a menywod sy'n mynd trwy'r menopos
- canlyniadau darparu gofal yn agosach at y gymuned
- Sut y gallwn wella cyfranogiad cleifion a'r cyhoedd mewn amgylcheddau ymchwil cyflym yn well
- Gweithdrefnau cydsyniad gwybodus ar gyfer Aneasthesia
Papurau allweddol
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Joseph-Williams N, Abhyankar P, Boland L, Bravo P, Brenner AT, Brodney S, et al. Beth sy'n gweithio wrth weithredu cymhorthion penderfynu cleifion mewn lleoliadau clinigol arferol: adolygiad a diweddariad realistig cyflym o'r International Patient Decision Aids Standards Collaboration. MDM. 2021; 41 (7): 907-937.
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Joseph-Williams N, Lloyd A, Edwards A, Stobart L, Tomson D, Macphail S, Dodd C, Brain K, Elwyn G, Thomson R. Gweithredu gwneud penderfyniadau ar y cyd mewn lleoliadau arferol y GIG - kessons o'r Rhaglen MAGIC. BMJ. 2017; 357:J1744
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Joseph-Williams N, Elwyn G, Edwards A. Mae pŵer yn atal gwneud penderfyniadau a rennir. BMJ. 2014; 14 (348): 3178.
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Gwerslyfr Rhydychen o Wneud Penderfyniadau a Rennir mewn Gofal Iechyd
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Glyn Elwyn, Natalie Joseph-Williams, ac Adrian Edwards Wedi'i ysgrifennu gan dîm byd-eang o arbenigwyr, mae'r Oxford Textbook of Shared Decision Making, pedwerydd argraffiad, yn archwilio o safbwynt damcaniaethol ac ymarferol, beth sy'n cynnwys proses gwneud penderfyniadau effeithiol, gan edrych ar y manteision a'r anawsterau posibl sy'n codi pan fydd cleifion a chlinigwyr yn rhannu penderfyniadau gofal iechyd. Awdurdodol, yn seiliedig ar dystiolaeth, ac wedi'i seilio ar ymarfer clinigol, mae'r Oxford Textbook of Shared Decision Making yn archwilio newid paradigm pwysig iawn wrth ddarparu gofal iechyd, gan ddarparu ystyriaeth feddylgar a strategaethau allweddol ar gyfer ei weithredu'n llwyddiannus. |
Cyhoeddiad
2026
- McLeod, A. et al., 2026. Consent for anaesthesia: guidelines from the Association of Anaesthetists. Anaesthesia: Peri-operative medicine, critical care and pain (10.1111/anae.70283)
- Hoffmann, C. et al., 2026. Quality of instruments to assess the process of shared decision-making: a comprehensive systematic review and COSMIN quality appraisal. BMJ Evidence-Based Medicine (10.1136/bmjebm-2025-114092)
- Harding, C. et al., 2026. Diagnostic models for male lower urinary tract symptom management in primary care. British Journal of General Practice (10.3399/BJGP.2025.0513)
- Porter, A. V. et al., 2026. Barriers and facilitators to knowledge translation at the science-policy interface during the COVID-19 pandemic public health emergency: a rapid review and theoretical analysis to inform development of a logic model. BMC Public Health 26 1654. (10.1186/s12889-026-27268-6)
- Ogbukagu, C. M. et al., 2026. Benefits of public engagement in research and barriers to participation: A UK-based survey of academic scientists and support staff including international respondents. Immunology & Cell Biology 104 (3), pp.192-207. (10.1111/imcb.70079)
- Santos Gomes, B. et al., 2026. How are handover delays from ambulances to emergency departments being addressed in the United Kingdom? A nationwide survey of ambulance services and emergency departments. BMC Emergency Medicine 26 134. (10.1186/s12873-026-01532-9)
2025
- Mazzaschi, F. et al. 2025. What members of the public think NHS dental services should include: qualitative study. IJQHC Communications 5 (2) lyaf015. (10.1093/ijcoms/lyaf015)
- Owen, R. K. et al., 2025. Health and care service utilisation in the last year of life before non-sudden death in Wales, 2014–2023, by palliative care registration: a population-based retrospective cohort study. The Lancet Regional Health Europe 59 101479. (10.1016/j.lanepe.2025.101479)
- Hughes, D. et al., 2025. A communication toolkit for the most impactful symptoms of Fabry disease: co-creation with Fabry disease patients and their treating clinicians in the UK. Rare Disease and Orphan Drugs Journal 4 31. (10.20517/rdodj.2025.27)
- Sha’aban, A. et al. 2025. Patients’ views on a subsidy card model for gluten-free food access: a qualitative study. BMC Health Services Research 25 (1) 1418. (10.1186/s12913-025-13582-z)
- Sha'aban, A. et al. 2025. Coproducing data-driven organisational safety with patients: development and cognitive testing of a multi-setting patient-reported safety concern tool. International Journal for Quality in Health Care 37 (3) mzaf056. (10.1093/intqhc/mzaf056)
- Sha'aban, A. et al. 2025. Public awareness of care pathways and available skill mix in NHS dental teams: A qualitative study. British Dental Journal 239 , pp.39-45. (10.1038/s41415-025-8491-z)
- Williams, D. et al. 2025. Recommendations for a communication strategy to support informed decision-making about self or clinician sampling for cervical screening in the UK: qualitative study. Health Expectations 28 (2) e70191. (10.1111/hex.70191)
- Lewis, R. et al., 2025. A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021-2023. Health Research Policy and Systems 23 (1) 36. (10.1186/s12961-025-01297-w)
- McFadzean, I. J. et al. 2025. The evolution of patient-reported safety concerns during the COVID-19 pandemic within a series of study questionnaires: a multi-method analysis. International Journal for Quality in Health Care 37 (2) mzaf040. (10.1093/intqhc/mzaf040)
- Edwards, A. et al. 2025. Development of a clinical decision support tool for Primary care Management of lower Urinary tract Symptoms in men: the PriMUS study. Health Technology Assessment 29 (1)(10.3310/RGTW5711)
- Leighton, C. et al., 2025. A theory-based analysis of the implementation of online asynchronous telemedicine platforms into primary care practices using Normalisation Process Theory. BMC Primary Care 26 (1) 27. (10.1186/s12875-025-02717-0)
2024
- Driscoll, T. et al., 2024. PP35 Does mean ambulance handover time at emergency departments correlate with number of handovers per month?. Emergency Medicine Journal 41 (3), pp.A15-A16. (10.1136/emermed-2024-999.35)
- Gal, M. et al. 2024. Knowledge mobilisation of rapid evidence reviews to inform health and social care policy and practice in a public health emergency: Appraisal of the Wales COVID-19 Evidence Centre processes and impact, 2021–23. PLoS ONE 19 (11) e0314461. (10.1371/journal.pone.0314461)
- Joseph-Williams, N. , Elwyn, G. and Edwards, A. 2024. Twenty-one years of the International Shared Decision Making Conference: lessons learnt and future priorities. BMJ Evidence-Based Medicine 29 (3), pp.151-155. (10.1136/bmjebm-2023-112374)
- Cooper, A. et al. 2024. Informing evidence-based policy during the COVID-19 pandemic and recovery period: learning from a national evidence centre. Global Health Research and Policy 9 (1) 18. (10.1186/s41256-024-00354-1)
- Nollett, C. et al. 2024. Public involvement and engagement in scientific research and higher education: The only way is ethics?. Research Involvement and Engagement 10 (1) 50. (10.1186/s40900-024-00587-x)
- Leighton, C. et al. 2024. Effectiveness and safety of asynchronous telemedicine consultations in general practice: systematic review. British Journal of General Practice Open 8 (1) 0177. (10.3399/BJGPO.2023.0177)
2023
- Purchase, T. et al. 2023. Analysis of applying a patient safety taxonomy to patient and clinician-reported incident reports during the COVID-19 pandemic: a mixed methods study. BMC Medical Research Methodology 23 (1) 234. (10.1186/s12874-023-02057-6)
- Eberl, M. et al. 2023. Overcoming the disconnect between scientific research and the public. Immunology and Cell Biology 101 (7), pp.590-597. (10.1111/imcb.12657)
- Lench, A. et al., 2023. Household Composition and Inequalities in COVID-19 Vaccination in Wales, UK.. Vaccines 11 (3), pp.1-9. 604. (10.3390/vaccines11030604)
2022
- Sparrow, J. M. et al., 2022. Developing decision support tools incorporating personalised predictions of likely visual benefit versus harm for cataract surgery: research programme. Programme Grants for Applied Research 10 (9)(10.3310/BAGA4188)
- Coulter, A. et al., 2022. Implementing shared decision-making in UK: Progress 2017-2022. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 171 , pp.139-143. (10.1016/j.zefq.2022.04.024)
- Parish, O. et al. 2022. Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions. Patient Education and Counseling 105 (5), pp.1101-1114. (10.1016/j.pec.2021.08.033)
- Scott, H. et al., 2022. A qualitative exploration of decisions about dental recall intervals. Part 2: perspectives of dentists and patients on the role of shared decision making in dental recall decisions. British Dental Journal (10.1038/s41415-022-4046-8)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 1: attitudes of NHS general dental practitioners to NICE Guideline CG19 on the interval between oral health reviews. British Dental Journal 232 , pp.327-331. (10.1038/s41415-022-3998-z)
2021
- Phillips, R. et al., 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) e0258484. (10.1371/journal.pone.0258484)
- Joseph-Williams, N. et al. 2021. What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the International Patient Decision Aid Standards Collaboration. Medical Decision Making 41 (7), pp.907-937. (10.1177/0272989X20978208)
- Milosevic, S. et al. 2021. Managing LUTS in primary care: qualitative study of GPs’ and patients’ experiences. British Journal of General Practice 71 (710), pp.e685-e692. (10.3399/BJGP.2020.1043)
- Edwards, D. et al. 2021. A rapid review of the effectiveness of alternative education delivery strategies for undergraduate and postgraduate medical, dental, nursing and pharmacy education during the COVID-19 pandemic. Project Report.[Online].Cardiff: Wales COVID-19 Evidence Centre. Available at: http://www.primecentre.wales/resources/RR/Clean/RR00004_Wales_COVID-19_Evidence_Centre_Rapid_Review_Healthcare_Education_August-2021.pdf.
- Milosevic, S. et al. 2021. Conducting invasive urodynamics in primary care: Qualitative interview study examining experiences of patients and healthcare professionals. Diagnostic and Prognostic Research 5 10. (10.1186/s41512-021-00100-y)
2020
- Pell, B. et al. 2020. PRImary care Management of lower Urinary tract Symptoms in men: protocol for development and validation of a diagnostic and clinical decision support tool (the PriMUS study). BMJ 10 (6) e037634. (10.1136/bmjopen-2020-037634)
2019
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102 (10), pp.1774-1785. (10.1016/j.pec.2019.07.016)
- Phillips, G. et al. 2019. Do published patient decision aids for end-of-life care address patients' decision making needs? A systematic review and critical appraisal. Palliative Medicine 33 (8), pp.985-1002. (10.1177/0269216319854186)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9 (8) e029485. (10.1136/bmjopen-2019-029485)
- Jordan, A. et al. 2019. "I'd like to have more of a say because it's my body?: Adolescents' perceptions around barriers and facilitators to shared decision-making. Journal of Adolescent Health , pp.-. (10.1016/j.jadohealth.2019.05.024)
- Sherlock, R. et al. 2019. 'What would you recommend doctor?'- Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations. Health Expectations 22 (3), pp.547-554. (10.1111/hex.12881)
2018
- Jordan, A. et al. 2018. What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences. Patient Education and Counseling 101 (10), pp.1725-1735. (10.1016/j.pec.2018.06.006)
2017
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357 j1744. (10.1136/bmj.j1744)
2015
- Joseph-Williams, N. et al. 2015. Choosing a specialist: will patients vote with their feet (and wallets) for person-centered care?. Medical Decision Making 35 (6), pp.688-690. (10.1177/0272989X15583267)
- Durand, M. et al. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98 (4), pp.462-486. (10.1016/j.pec.2014.12.009)
- Joseph-Williams, N. J. 2015. ‘Nobody knows me better than me’: the development and pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision-making. PhD Thesis , Cardiff University.
2014
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34 (6), pp.699-710. (10.1177/0272989X13501721)
- Sepucha, K. R. et al., 2014. "It's valid and reliable" is not enough: critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 34 (5), pp.560-566. (10.1177/0272989X14528381)
- Joseph-Williams, N. , Edwards, A. and Elwyn, G. 2014. Power imbalance prevents shared decision making. BMJ 348 g3178. (10.1136/bmj.g3178)
- Joseph-Williams, N. , Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94 (3), pp.291-309. (10.1016/j.pec.2013.10.031)
2013
- Lloyd, A. et al. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8 (1) 102. (10.1186/1748-5908-8-102)
- Elwyn, G. et al. 2013. Option grids: shared decision making made easier. Patient Education and Counseling 90 (2), pp.207-212. (10.1016/j.pec.2012.06.036)
- Joseph-Williams, N. et al. 2013. The cost implications of informed decision-making: a mathematical simulation model of the potential financial effects of a web-based prostate specific antigen decision aid. European Journal for Person Centered Healthcare 1 (1), pp.193-201. (10.5750/ejpch.v1i1.651)
- Sepucha, K. R. et al., 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 13 (Suppl) S12. (10.1186/1472-6947-13-S2-S12)
2012
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27 (10), pp.1361-1367. (10.1007/s11606-012-2077-6)
2011
- Elwyn, G. et al. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82 (2), pp.260-265. (10.1016/j.pec.2010.04.034)
- Joseph-Williams, N. J. , Edwards, A. G. and Elwyn, G. 2011. The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments. Health Expectations 14 (1), pp.59-83. (10.1111/j.1369-7625.2010.00621.x)
2010
- Evans, R. et al. 2010. Supporting informed decision making for prostate specific antigen (PSA) testing on the web: an online randomized controlled trial. Journal of Medical Internet Research 12 (3) e27. (10.2196/jmir.1305)
- Joseph-Williams, N. J. et al. 2010. Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid. Journal of Medical Internet Research 12 (2) e15. (10.2196/jmir.1307)
2009
Erthyglau
- McLeod, A. et al., 2026. Consent for anaesthesia: guidelines from the Association of Anaesthetists. Anaesthesia: Peri-operative medicine, critical care and pain (10.1111/anae.70283)
- Hoffmann, C. et al., 2026. Quality of instruments to assess the process of shared decision-making: a comprehensive systematic review and COSMIN quality appraisal. BMJ Evidence-Based Medicine (10.1136/bmjebm-2025-114092)
- Harding, C. et al., 2026. Diagnostic models for male lower urinary tract symptom management in primary care. British Journal of General Practice (10.3399/BJGP.2025.0513)
- Porter, A. V. et al., 2026. Barriers and facilitators to knowledge translation at the science-policy interface during the COVID-19 pandemic public health emergency: a rapid review and theoretical analysis to inform development of a logic model. BMC Public Health 26 1654. (10.1186/s12889-026-27268-6)
- Ogbukagu, C. M. et al., 2026. Benefits of public engagement in research and barriers to participation: A UK-based survey of academic scientists and support staff including international respondents. Immunology & Cell Biology 104 (3), pp.192-207. (10.1111/imcb.70079)
- Santos Gomes, B. et al., 2026. How are handover delays from ambulances to emergency departments being addressed in the United Kingdom? A nationwide survey of ambulance services and emergency departments. BMC Emergency Medicine 26 134. (10.1186/s12873-026-01532-9)
- Mazzaschi, F. et al. 2025. What members of the public think NHS dental services should include: qualitative study. IJQHC Communications 5 (2) lyaf015. (10.1093/ijcoms/lyaf015)
- Owen, R. K. et al., 2025. Health and care service utilisation in the last year of life before non-sudden death in Wales, 2014–2023, by palliative care registration: a population-based retrospective cohort study. The Lancet Regional Health Europe 59 101479. (10.1016/j.lanepe.2025.101479)
- Hughes, D. et al., 2025. A communication toolkit for the most impactful symptoms of Fabry disease: co-creation with Fabry disease patients and their treating clinicians in the UK. Rare Disease and Orphan Drugs Journal 4 31. (10.20517/rdodj.2025.27)
- Sha’aban, A. et al. 2025. Patients’ views on a subsidy card model for gluten-free food access: a qualitative study. BMC Health Services Research 25 (1) 1418. (10.1186/s12913-025-13582-z)
- Sha'aban, A. et al. 2025. Coproducing data-driven organisational safety with patients: development and cognitive testing of a multi-setting patient-reported safety concern tool. International Journal for Quality in Health Care 37 (3) mzaf056. (10.1093/intqhc/mzaf056)
- Sha'aban, A. et al. 2025. Public awareness of care pathways and available skill mix in NHS dental teams: A qualitative study. British Dental Journal 239 , pp.39-45. (10.1038/s41415-025-8491-z)
- Williams, D. et al. 2025. Recommendations for a communication strategy to support informed decision-making about self or clinician sampling for cervical screening in the UK: qualitative study. Health Expectations 28 (2) e70191. (10.1111/hex.70191)
- Lewis, R. et al., 2025. A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021-2023. Health Research Policy and Systems 23 (1) 36. (10.1186/s12961-025-01297-w)
- McFadzean, I. J. et al. 2025. The evolution of patient-reported safety concerns during the COVID-19 pandemic within a series of study questionnaires: a multi-method analysis. International Journal for Quality in Health Care 37 (2) mzaf040. (10.1093/intqhc/mzaf040)
- Edwards, A. et al. 2025. Development of a clinical decision support tool for Primary care Management of lower Urinary tract Symptoms in men: the PriMUS study. Health Technology Assessment 29 (1)(10.3310/RGTW5711)
- Leighton, C. et al., 2025. A theory-based analysis of the implementation of online asynchronous telemedicine platforms into primary care practices using Normalisation Process Theory. BMC Primary Care 26 (1) 27. (10.1186/s12875-025-02717-0)
- Driscoll, T. et al., 2024. PP35 Does mean ambulance handover time at emergency departments correlate with number of handovers per month?. Emergency Medicine Journal 41 (3), pp.A15-A16. (10.1136/emermed-2024-999.35)
- Gal, M. et al. 2024. Knowledge mobilisation of rapid evidence reviews to inform health and social care policy and practice in a public health emergency: Appraisal of the Wales COVID-19 Evidence Centre processes and impact, 2021–23. PLoS ONE 19 (11) e0314461. (10.1371/journal.pone.0314461)
- Joseph-Williams, N. , Elwyn, G. and Edwards, A. 2024. Twenty-one years of the International Shared Decision Making Conference: lessons learnt and future priorities. BMJ Evidence-Based Medicine 29 (3), pp.151-155. (10.1136/bmjebm-2023-112374)
- Cooper, A. et al. 2024. Informing evidence-based policy during the COVID-19 pandemic and recovery period: learning from a national evidence centre. Global Health Research and Policy 9 (1) 18. (10.1186/s41256-024-00354-1)
- Nollett, C. et al. 2024. Public involvement and engagement in scientific research and higher education: The only way is ethics?. Research Involvement and Engagement 10 (1) 50. (10.1186/s40900-024-00587-x)
- Leighton, C. et al. 2024. Effectiveness and safety of asynchronous telemedicine consultations in general practice: systematic review. British Journal of General Practice Open 8 (1) 0177. (10.3399/BJGPO.2023.0177)
- Purchase, T. et al. 2023. Analysis of applying a patient safety taxonomy to patient and clinician-reported incident reports during the COVID-19 pandemic: a mixed methods study. BMC Medical Research Methodology 23 (1) 234. (10.1186/s12874-023-02057-6)
- Eberl, M. et al. 2023. Overcoming the disconnect between scientific research and the public. Immunology and Cell Biology 101 (7), pp.590-597. (10.1111/imcb.12657)
- Lench, A. et al., 2023. Household Composition and Inequalities in COVID-19 Vaccination in Wales, UK.. Vaccines 11 (3), pp.1-9. 604. (10.3390/vaccines11030604)
- Sparrow, J. M. et al., 2022. Developing decision support tools incorporating personalised predictions of likely visual benefit versus harm for cataract surgery: research programme. Programme Grants for Applied Research 10 (9)(10.3310/BAGA4188)
- Coulter, A. et al., 2022. Implementing shared decision-making in UK: Progress 2017-2022. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 171 , pp.139-143. (10.1016/j.zefq.2022.04.024)
- Parish, O. et al. 2022. Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions. Patient Education and Counseling 105 (5), pp.1101-1114. (10.1016/j.pec.2021.08.033)
- Scott, H. et al., 2022. A qualitative exploration of decisions about dental recall intervals. Part 2: perspectives of dentists and patients on the role of shared decision making in dental recall decisions. British Dental Journal (10.1038/s41415-022-4046-8)
- Scott, H. et al. 2022. A qualitative exploration of decisions about dental recall intervals. Part 1: attitudes of NHS general dental practitioners to NICE Guideline CG19 on the interval between oral health reviews. British Dental Journal 232 , pp.327-331. (10.1038/s41415-022-3998-z)
- Phillips, R. et al., 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) e0258484. (10.1371/journal.pone.0258484)
- Joseph-Williams, N. et al. 2021. What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the International Patient Decision Aid Standards Collaboration. Medical Decision Making 41 (7), pp.907-937. (10.1177/0272989X20978208)
- Milosevic, S. et al. 2021. Managing LUTS in primary care: qualitative study of GPs’ and patients’ experiences. British Journal of General Practice 71 (710), pp.e685-e692. (10.3399/BJGP.2020.1043)
- Milosevic, S. et al. 2021. Conducting invasive urodynamics in primary care: Qualitative interview study examining experiences of patients and healthcare professionals. Diagnostic and Prognostic Research 5 10. (10.1186/s41512-021-00100-y)
- Pell, B. et al. 2020. PRImary care Management of lower Urinary tract Symptoms in men: protocol for development and validation of a diagnostic and clinical decision support tool (the PriMUS study). BMJ 10 (6) e037634. (10.1136/bmjopen-2020-037634)
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102 (10), pp.1774-1785. (10.1016/j.pec.2019.07.016)
- Phillips, G. et al. 2019. Do published patient decision aids for end-of-life care address patients' decision making needs? A systematic review and critical appraisal. Palliative Medicine 33 (8), pp.985-1002. (10.1177/0269216319854186)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9 (8) e029485. (10.1136/bmjopen-2019-029485)
- Jordan, A. et al. 2019. "I'd like to have more of a say because it's my body?: Adolescents' perceptions around barriers and facilitators to shared decision-making. Journal of Adolescent Health , pp.-. (10.1016/j.jadohealth.2019.05.024)
- Sherlock, R. et al. 2019. 'What would you recommend doctor?'- Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations. Health Expectations 22 (3), pp.547-554. (10.1111/hex.12881)
- Jordan, A. et al. 2018. What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: A systematic review and narrative synthesis of preferences and experiences. Patient Education and Counseling 101 (10), pp.1725-1735. (10.1016/j.pec.2018.06.006)
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357 j1744. (10.1136/bmj.j1744)
- Joseph-Williams, N. et al. 2015. Choosing a specialist: will patients vote with their feet (and wallets) for person-centered care?. Medical Decision Making 35 (6), pp.688-690. (10.1177/0272989X15583267)
- Durand, M. et al. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98 (4), pp.462-486. (10.1016/j.pec.2014.12.009)
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34 (6), pp.699-710. (10.1177/0272989X13501721)
- Sepucha, K. R. et al., 2014. "It's valid and reliable" is not enough: critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 34 (5), pp.560-566. (10.1177/0272989X14528381)
- Joseph-Williams, N. , Edwards, A. and Elwyn, G. 2014. Power imbalance prevents shared decision making. BMJ 348 g3178. (10.1136/bmj.g3178)
- Joseph-Williams, N. , Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94 (3), pp.291-309. (10.1016/j.pec.2013.10.031)
- Lloyd, A. et al. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8 (1) 102. (10.1186/1748-5908-8-102)
- Elwyn, G. et al. 2013. Option grids: shared decision making made easier. Patient Education and Counseling 90 (2), pp.207-212. (10.1016/j.pec.2012.06.036)
- Joseph-Williams, N. et al. 2013. The cost implications of informed decision-making: a mathematical simulation model of the potential financial effects of a web-based prostate specific antigen decision aid. European Journal for Person Centered Healthcare 1 (1), pp.193-201. (10.5750/ejpch.v1i1.651)
- Sepucha, K. R. et al., 2013. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 13 (Suppl) S12. (10.1186/1472-6947-13-S2-S12)
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27 (10), pp.1361-1367. (10.1007/s11606-012-2077-6)
- Elwyn, G. et al. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82 (2), pp.260-265. (10.1016/j.pec.2010.04.034)
- Joseph-Williams, N. J. , Edwards, A. G. and Elwyn, G. 2011. The importance and complexity of regret in the measurement of 'good' decisions: a systematic review and a content analysis of existing assessment instruments. Health Expectations 14 (1), pp.59-83. (10.1111/j.1369-7625.2010.00621.x)
- Evans, R. et al. 2010. Supporting informed decision making for prostate specific antigen (PSA) testing on the web: an online randomized controlled trial. Journal of Medical Internet Research 12 (3) e27. (10.2196/jmir.1305)
- Joseph-Williams, N. J. et al. 2010. Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid. Journal of Medical Internet Research 12 (2) e15. (10.2196/jmir.1307)
- Elwyn, G. et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4 (3) e4705. (10.1371/journal.pone.0004705)
Gosodiad
- Joseph-Williams, N. J. 2015. ‘Nobody knows me better than me’: the development and pilot-testing of a patient-targeted complex intervention to prepare patients to participate in shared decision-making. PhD Thesis , Cardiff University.
Monograffau
- Edwards, D. et al. 2021. A rapid review of the effectiveness of alternative education delivery strategies for undergraduate and postgraduate medical, dental, nursing and pharmacy education during the COVID-19 pandemic. Project Report.[Online].Cardiff: Wales COVID-19 Evidence Centre. Available at: http://www.primecentre.wales/resources/RR/Clean/RR00004_Wales_COVID-19_Evidence_Centre_Rapid_Review_Healthcare_Education_August-2021.pdf.
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