![Stephanie Sivell BA (Hons), MPhil, PhD](https://profiles-cardiff.imgix.net/attachments/2600?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Stephanie Sivell
(hi/ei)
BA (Hons), MPhil, PhD
- Ar gael fel goruchwyliwr ôl-raddedig
Timau a rolau for Stephanie Sivell
Cymrawd Ymchwil
Trosolwg
Trosolwg
Rwy'n Gymrawd Ymchwil yng Nghanolfan Ymchwil Marie Curie yn yr Is-adran Meddygaeth Poblogaeth yn Ysgol Feddygaeth Prifysgol Caerdydd. Mae fy ymchwil yn canolbwyntio ar ofal lliniarol a chefnogol a chanser gyda chefndir mewn seicoleg iechyd a dulliau cymysg.
Mae fy ymchwil yn canolbwyntio ar ddeall dewisiadau cleifion a'r hyn sy'n bwysig fwyaf iddynt, i wella gwneud penderfyniadau a gofal cleifion mewn poblogaethau bregus. Mae gen i ddiddordeb arbennig mewn datblygu, mesur a gwerthuso canlyniadau craidd ym mhoblogaeth tiwmor yr ymennydd.
Rwy'n gweithio ar y cyd ag amrywiaeth o sefydliadau ac elusennau. Mae fy rôl bresennol yn cynnwys swydd Cymrawd Ymchwil anghlinigol anrhydeddus gydag Ymddiriedolaeth GIG Prifysgol Felindre, ac rwy'n aelod o Ganolfan Ragoriaeth De Cymru – Cenhadaeth Canser yr Ymennydd Tessa Jowell. Rwyf hefyd yn gweithio gyda Chanolfan Gwyddor Tystiolaeth a Gweithredu Birmingham ym Mhrifysgol Birmingham, Canolfan Gwerth mewn Iechyd Cymru a brainstrust. Rwyf hefyd yn aelod o Grŵp Cynghori Ymchwil Prosiect Gweithlu Ymchwil PEoLC (dan arweiniad Prifysgol Caeredin).
Rwy'n cyfrannu at addysgu'r Rhaglen Feddygol C21 gan gynnwys y prosiectau datblygiad proffesiynol (israddedig Bl1) a phrosiectau Cydran Dethol Myfyrwyr gan gynnwys Dulliau mewn Ymchwil Gofal Lliniarol (israddedig Bl2). Rwyf hefyd yn cyfrannu at addysgu ôl-raddedig gan gynnwys adolygu systematig yn y BSc Intercalated/Meistr mewn Iechyd y Cyhoedd ac asesu traethodau MSc Meddygaeth Lliniarol.
Rwyf hefyd yn Ddirprwy Arweinydd Cydraddoldeb, Amrywiaeth a Chynhwysiant (EDI) yn yr Is-adran Meddygaeth Poblogaeth ac yn aelod o bwyllgor EDI yr Ysgol Feddygaeth. Yn y rolau hyn, cyfrannais at wobr lwyddiannus Silver Athena Swan yr Ysgol ym mis Medi 2023, gan gydnabod cydraddoldeb rhywiol mewn addysg uwch ac ymchwil.
Cyhoeddiad
2026
- Hopewell-Kelly, N. et al. 2026. 90 Developing patient-focused outcomes for routine clinical care in glioma: A synthesis of qualitative evidence from the COMBaT study [Abstract]. Neuro-Oncology 28 (S1) noag172.031. (10.1093/neuonc/noag172.031)
- Goss, S. et al. 2026. Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the COVID-19 pandemic: insights from a longitudinal survey. Frontiers in Public Health 14 1784477. (10.3389/fpubh.2026.1784477)
- Goss, S. et al. 2026. Personal comfort with talking about death and dying predicts end-of-life planning in the general population: insights from a nationally representative survey in the UK [Abstract]. Palliative Medicine 40 (5)
- Baddeley, E. et al. 2026. Clinician perspectives on antithrombotic therapy management in advanced cancer: a multi-national qualitative study. Research and Practice in Thrombosis and Haemostasis 10 (3) 103427. (10.1016/j.rpth.2026.103427)
- Sivell, S. et al. 2026. PP-48 COMBaT: a protocol for developing patient-focused outcomes in routine glioma care [Poster]. BMJ Supportive & Palliative Care 16 A26. (10.1136/spcare-2026-mcrc.59)
- Cahill, C. et al., 2026. QR-code wristbands for critical information: palliative oncology feasibility study [Letter]. BMJ Supportive & Palliative Care 16 (1), pp.74-75. (10.1136/spcare-2025-005920)
2025
- Baddeley, E. et al. 2025. "Who am I to say that I'm not going to take it": patient perspectives on decisions about antithrombotic therapy in the context of advanced cancer. Thrombosis Research: Vascular Obstruction, Hemorrhage and Hemostasis 253 109399. (10.1016/j.thromres.2025.109399)
- Mann, M. et al. 2025. Future care planning. BMJ Supportive & Palliative Care 15 , pp.614-617. (10.1136/spcare-2025-005616)
- Baddeley, E. et al. 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice 12 (3), pp.413-425. npae127. (10.1093/nop/npae127)
- Goss, S. et al. 2025. Teaching children about grief: Findings from a population-based online survey in the UK on public and parental attitudes towards grief education in schools [Abstract]. Palliative Medicine 39 (S2), pp.71. (10.1177/02692163251335482)
- Taubert, M. et al. 2025. Future care planning within end-of-life care - a scoping review of the literature [Abstract]. Palliative Medicine 39 (S2), pp.400-400. (10.1177/02692163251335482)
- Mann, M. et al. 2025. PP-26 What does future care planning look like within end-of-life care? A scoping review of the literature. Presented at: Marie Curie Research into Practice Conference London, UK 11-14 February 2025. Vol. 15.BioMed Central. (10.1136/spcare-2025-MCRC.43)
- Staffurth, J. N. et al. 2025. The impact of specialised gastroenterology services for pelvic radiation disease (PRD): Results from the prospective multi-centre EAGLE study. PLoS ONE 20 (1) e0303356. (10.1371/journal.pone.0303356)
- Cahill, C. , Sivell, S. and Pease, N. 2025. Could QR-based information sharing platforms be acceptable to specialist nurses for palliative care patients?. [Online].Forum BMJ Supportive & Palliative Care: BMJ Publishing Group. Available at: https://blogs.bmj.com/spcare/2025/01/13/could-qr-based-information-sharing-platforms-be-acceptable-to-specialist-nurses-for-palliative-care-patients/.
- Harding, E. et al. 2025. QR code wristbands in palliative care: enhancing efficiency and outcomes. Journal of Paramedic Practice 17 (1), pp.96-101. (10.12968/jpar.2024.0054)
- Harding, E. , Sivell, S. and Pease, N. 2025. Palliative care: a narrative review of information barriers faced by paramedics. Journal of Paramedic Practice 17 (1), pp.18-24. (10.12968/jpar.2024.0064)
- Sivell, S. and Taubert, M. 2025. Ready for the Future – future care planning [Oncology- palliative care session - oral presentation]. Palliative Medicine
2024
- Burton, L. et al. 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23 (1) 300. (10.1186/s12904-024-01619-9)
- Nelson, A. et al. 2024. Chemotherapy decision-making in advanced lung cancer: a prospective qualitative study. BMJ Supportive & Palliative Care 14 (1), pp.e758-e764. (10.1136/bmjspcare-2020-002395)
2023
- Retzer, A. et al., 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) vdad096. (10.1093/noajnl/vdad096)
- Harrop, E. et al. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 1215881. (10.3389/fpubh.2023.1215881)
- Goedegebuur, J. et al., 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228 , pp.54-60. (10.1016/j.thromres.2023.05.008)
- Sivell, S. , Price, D. and Carson-Stevens, A. 2023. The challenges and experiences of providing end-of-life care in primary care: online survey and semi-structured interviews with UK primary care professionals.. Presented at: RCGP Annual Conference 2023 Glasgow 19-20 October 2023. Vol. 73.Vol. Suppl. Royal College of General Practitioners(10.3399/bjgp23X733833)
- Fiddimore, E. et al. 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4), pp.434-456. (10.1080/07347332.2022.2136997)
- Goss, S. et al. 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A6. (10.1136/spcare-2023-MCRC.14)
- Goss, S. et al. 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13., pp.A6-A7. (10.1136/spcare-2023-MCRC.15)
- Sivell, S. , Price, D. and Carson-Stevens, A. 2023. Understanding the experiences of providing end-of-life care in UK general practices; preliminary data from an independent evaluation of the daffodil standards.. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Supportive and Palliative Care: BMJ Publishing Group. , pp.A8-A9. (10.1136/spcare-2023-MCRC.20)
- Sivell, S. et al. 2023. Protocol to evaluate the implementation of the royal college of general practitioners and Marie Curie Daffodil Standards in UK general practice. Presented at: The Marie Curie Research Conference 2023 Virtual 6-10 February 2023. Vol. 13.BMJ Publishing Group. , pp.A8. (10.1136/spcare-2023-MCRC.19)
2022
- Scott, H. et al., 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 (10.54210/bj.2022.1078)
- Baddeley, E. et al. 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference Prague, Czech Republic 19-22 October 2022.
- Retzer, A. et al., 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data [Abstract]. Neuro-Oncology 24 (10.1093/neuonc/noac200.019)
- Retzer, A. et al., 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 057712. (10.1136/bmjopen-2021-057712)
- Baddeley, E. et al. 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study.. Neuro-Oncology 24 (S2), pp.ii47. (10.1093/neuonc/noac174.162)
- Goss, S. et al. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report.NHS Wales and Marie Curie Palliative Care Research Centre.
- Walker, L. and Sivell, S. 2022. Breaking bad news in a cross-language context; a qualitative study to develop a set of culturally and linguistically appropriate phrases and techniques with Zulu speaking cancer patients. Patient Education and Counseling 105 (7), pp.2081-2088. (10.1016/j.pec.2022.01.007)
- Mazzaschi, F. et al. 2022. 53 Incorporation and evaluation of the patient and public involvement national standards within doctoral research focussed on the improvement of quality of life of patients with high-grade glioma. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A22. (10.1136/spcare-2021-MCRC.53)
- Mazzaschi, F. et al. 2022. 43 Cognitive changes experienced by patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life Virtual 30 January - 04 February 2022. Vol. 12.Vol. Supple. BMJ Publishing Group. , pp.A17-A18. (10.1136/spcare-2021-MCRC.43)
- Byrne, A. et al. 2022. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers pub2. Cochrane Library 2022 (1) CD013440.. (10.1002/14651858.CD013440.pub2)
- Baddeley, E. et al. 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference Online 14-15 June 2022.
- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
2021
- Harrop, E. et al. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10), pp.1985-1997. (10.1177/02692163211043372)
- Mazzaschi, F. et al. 2021. Everyday memory and processing alteration in patients with high-grade glioma after radiotherapy: a mixed method, public survey [Abstract]. Palliative Medicine 35 (Issue), pp.76-77. (10.1177/02692163211035909)
- Harrop, E. et al. 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people [Abstract]. BMJ Supportive and Palliative Care 11 (Sup 1), pp.A3. (10.1136/spcare-2021-PCC.6)
2020
- Longo, M. et al. 2020. Holistic care: the clinical nurse specialist’s role in advanced lung cancer patients. Palliative Medicine 34 (Supple), pp.79-79. (10.1177/0269216320958098)
- Harrop, E. et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7), pp.871-888. (10.1177/0269216320920533)
- Farnell, D. et al. 2020. The ALERT-B questionnaire: a screening tool for the detection of gastroenterological late effects after radiotherapy for prostate cancer. Clinical and Translational Radiation Oncology 21 , pp.98-103. (10.1016/j.ctro.2020.02.002)
- Harrop, E. et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 29. (10.1186/s12904-020-0532-4)
- Mazzaschi, F. et al. 2020. What are the cognitive deficits observed in adults with brain cancer after receiving radiotherapy or combined chemo-radiotherapy?. Presented at: 11th EAPC World Research Congress Online 7-9 October 2020. Vol. 34.SAGE Publications(10.1177/0269216320958098)
2019
- Byrne, A. et al. 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019 (9) CD013440.. (10.1002/14651858.CD013440)
- Hopewell-Kelly, N. et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2), pp.219-224. (10.1136/bmjspcare-2015-000889)
- Sivell, S. et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 e14. (10.1136/bmjspcare-2015-000892)
- Nelson, A. et al. 2019. Avoidable harm: making decisions about chemotherapy with advanced lung cancer patients. Presented at: NCRI 2019 Glasgow, UK 3-5 November 2019.
2018
- Longo, M. et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) 371. (10.1136/bmjspcare-2018-mariecurie.30)
- Morgan, F. et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3), pp.380-381. (10.1136/bmjspcare-2018-mariecurie.54)
- Seddon, K. et al., 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3), pp.374-375. (10.1136/bmjspcare-2018-mariecurie.40)
- Baillie, J. et al. 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17 60. (10.1186/s12904-018-0314-4)
2017
- Harrop, E. et al. 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8), pp.1448-1464.
- Anagnostou, D. et al. 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7 (7) e015277. (10.1136/bmjopen-2016-015277)
2016
- Woodman, C. , Baillie, J. and Sivell, S. 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6 (4), pp.418-429. (10.1136/bmjspcare-2014-000794)
- Taylor, S. et al. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28 (10), pp.e139-e147. (10.1016/j.clon.2016.06.004)
- Harrop, E. et al. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) 329. (10.1186/s13063-016-1460-8)
- Harrop, E. et al. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.
2015
- Noble, S. I. et al. 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19 (83), pp.1-94. (10.3310/hta19830)
- Durand, M. et al. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98 (4), pp.462-486. (10.1016/j.pec.2014.12.009)
- Baillie, J. et al. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10th May 2015. , pp.2307-2312.
- Best, S. et al., 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015 London, UK 27 March 2015.
- Hopewell-Kelly, N. et al. 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 120. (10.1136/bmjspcare-2014-000838.47)
- Hopewell-Kelly, N. et al. 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.1121-1128.
- Sivell, S. et al. 2015. Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ Supportive & Palliative Care 5 (3), pp.306-315. (10.1136/bmjspcare-2013-000595)
- Sivell, S. et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 117. (10.1136/bmjspcare-2014-000838.40)
- Sivell, S. et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.2529-2534.
- Smith, R. et al., 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.2529-2534.
- Woodman, C. , Baillie, J. and Sivell, S. 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.31-32.
- Woodman, C. , Baillie, J. and Sivell, S. 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5 , pp.116-117. (10.1136/bmjspcare-2014-000838.38)
2014
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34 (6), pp.699-710. (10.1177/0272989X13501721)
- Woodman, C. , Baillie, J. and Sivell, S. 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014 Cardiff 4 June 2014.
- Woodman, C. , Baillie, J. and Sivell, S. 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis.. Presented at: 14th Annual All Wales Palliative Care Conference Gregynog, Powys, Wales 6-7 November 2014.
2013
- Lidstone, V. et al. 2013. Transition in palliative care study day series. BMJ Supportive & Palliative Care 3 (S1), pp.A48-A49. (10.1136/bmjspcare-2013-000591.131)
- Sivell, S. et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended theory of planned behaviour. BMC Medical Informatics and Decision Making 13 92. (10.1186/1472-6947-13-92)
- Sivell, S. et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended Theory of Planned Behaviour [abstract]. Psycho-Oncology 22 (S1), pp.12-12. (10.1111/j.1099-1611.2013.03239.x)
- Sivell, S. et al. 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know?. Presented at: 13th World Congress of the European Association for Palliative Care Prague, Czech Republic 30 May - 2 June 2013. European Journal of Palliative Care. suppl.. , pp.60.
2012
- Sivell, S. et al. 2012. Increasing readiness to decide and strengthening behavioral intentions: Evaluating the impact of a web-based patient decision aid for breast cancer treatment options (BresDex: www.bresdex.com). Patient Education and Counseling 88 (2), pp.209-217. (10.1016/j.pec.2012.03.012)
- Sivell, S. et al. 2012. Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex. Patient Education and Counseling 86 (2), pp.179-188. (10.1016/j.pec.2011.04.014)
2011
- Caldon, L. J. M. et al., 2011. Clinicians' concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Health Expectations 14 (2), pp.133-146. (10.1111/j.1369-7625.2010.00633.x)
- Elwyn, G. et al. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82 (2), pp.260-265. (10.1016/j.pec.2010.04.034)
- Sivell, S. et al. 2011. Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions?. Health Expectations 14 (s1), pp.6-19. (10.1111/j.1369-7625.2009.00558.x)
2009
- Caldon, L. et al., 2009. New technologies to support the decisions of women facing surgical choices for breast cancer: the reactions and concerns of health professionals [Abstract]. Psycho-oncology 18 (3), pp.320. (10.1002/pon.1549)
- Elwyn, G. et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4 (3) e4705. (10.1371/journal.pone.0004705)
2008
- Edwards, A. G. et al. 2008. Interventions to improve risk communication in clinical genetics: systematic review. Patient Education and Counseling 71 (1), pp.4-25. (10.1016/j.pec.2007.11.026)
- Iredale, R. et al. 2008. Exploring the requirements for a decision aid on familial breast cancer in the UK context: a qualitative study with patients referred to a cancer genetics service. Journal of Evaluation in Clinical Practice 14 (1), pp.110-115. (10.1111/j.1365-2753.2007.00811.x)
- Sivell, S. et al. 2008. How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. Journal of Genetic Counselling 17 (1), pp.30-63. (10.1007/s10897-007-9132-1)
2007
- Gaff, C. L. et al. 2007. Process and outcome in communication of genetic information within families: a systematic review. European Journal of Human Genetics 15 (10), pp.999-1011. (10.1038/sj.ejhg.5201883)
- Sivell, S. et al. 2007. Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database of Systematic Reviews 2 CD003721. (10.1002/14651858.CD003721.pub2)
2006
- Rapport, F. et al., 2006. Decision aids for familial breast cancer: exploring women's views using focus groups. Health Expectations 9 (3), pp.232-244. (10.1111/j.1369-7625.2006.00392.x)
2005
- Brain, K. E. et al. 2005. An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clinical Genetics 68 (3), pp.255-261. (10.1111/j.1399-0004.2005.00491.x)
2001
- Smith, A. P. et al. 2001. The combined effects of occupational factors on objective measures of performance and health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis. , pp.203-208.
- Smith, A. P. et al. 2001. The combined effects of occupational factors on subjective reports of health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis. , pp.197-202.
Adrannau llyfrau
- Smith, A. P. et al. 2001. The combined effects of occupational factors on objective measures of performance and health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis. , pp.203-208.
- Smith, A. P. et al. 2001. The combined effects of occupational factors on subjective reports of health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis. , pp.197-202.
Cynadleddau
- Mann, M. et al. 2025. PP-26 What does future care planning look like within end-of-life care? A scoping review of the literature. Presented at: Marie Curie Research into Practice Conference London, UK 11-14 February 2025. Vol. 15.BioMed Central. (10.1136/spcare-2025-MCRC.43)
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- Goss, S. et al. 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic.. Presented at: European Grief Conference 2022 Copenhagen, Denmark 21-23 September 2022.
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- Woodman, C. , Baillie, J. and Sivell, S. 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care Copenhagen, Denmark 8-10 May 2015. , pp.31-32.
- Woodman, C. , Baillie, J. and Sivell, S. 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014 Cardiff 4 June 2014.
- Woodman, C. , Baillie, J. and Sivell, S. 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis.. Presented at: 14th Annual All Wales Palliative Care Conference Gregynog, Powys, Wales 6-7 November 2014.
- Sivell, S. et al. 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know?. Presented at: 13th World Congress of the European Association for Palliative Care Prague, Czech Republic 30 May - 2 June 2013. European Journal of Palliative Care. suppl.. , pp.60.
Erthyglau
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- Harding, E. , Sivell, S. and Pease, N. 2025. Palliative care: a narrative review of information barriers faced by paramedics. Journal of Paramedic Practice 17 (1), pp.18-24. (10.12968/jpar.2024.0064)
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- Walker, L. and Sivell, S. 2022. Breaking bad news in a cross-language context; a qualitative study to develop a set of culturally and linguistically appropriate phrases and techniques with Zulu speaking cancer patients. Patient Education and Counseling 105 (7), pp.2081-2088. (10.1016/j.pec.2022.01.007)
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- Woodman, C. , Baillie, J. and Sivell, S. 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6 (4), pp.418-429. (10.1136/bmjspcare-2014-000794)
- Taylor, S. et al. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28 (10), pp.e139-e147. (10.1016/j.clon.2016.06.004)
- Harrop, E. et al. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) 329. (10.1186/s13063-016-1460-8)
- Noble, S. I. et al. 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19 (83), pp.1-94. (10.3310/hta19830)
- Durand, M. et al. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98 (4), pp.462-486. (10.1016/j.pec.2014.12.009)
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- Woodman, C. , Baillie, J. and Sivell, S. 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5 , pp.116-117. (10.1136/bmjspcare-2014-000838.38)
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- Sivell, S. et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended theory of planned behaviour. BMC Medical Informatics and Decision Making 13 92. (10.1186/1472-6947-13-92)
- Sivell, S. et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended Theory of Planned Behaviour [abstract]. Psycho-Oncology 22 (S1), pp.12-12. (10.1111/j.1099-1611.2013.03239.x)
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Gwefannau
- Cahill, C. , Sivell, S. and Pease, N. 2025. Could QR-based information sharing platforms be acceptable to specialist nurses for palliative care patients?. [Online].Forum BMJ Supportive & Palliative Care: BMJ Publishing Group. Available at: https://blogs.bmj.com/spcare/2025/01/13/could-qr-based-information-sharing-platforms-be-acceptable-to-specialist-nurses-for-palliative-care-patients/.
Monograffau
- Goss, S. et al. 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. Project Report.NHS Wales and Marie Curie Palliative Care Research Centre.
- Harrop, E. et al. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.
Ymchwil
Cyllid Grant
Canlyniadau Craidd i Fesur anghenion clinigol ar gyfer pobl â Thiwmorau Ymennydd Cynradd (COMBaT). Ymchwil Canser Cymru (Menter Ymchwil Tiwmor yr Ymennydd), £241,041 (Grant Rhif 2551), 2025-2027 (Cyd-Brif Ymchwilydd)
Gwella mynediad, tegwch ac ansawdd mewn cymorth profedigaeth: datblygu llyfr cod dadansoddol. Cyfrif Cyflymu Effaith Cytûn UKRI (IAA), Prifysgol Caerdydd, 2025. (Cyd-ymgeisydd)
Gwerthusiad o Weithredu Safonau Cennin Pedr RCGP a Marie Curie. Marie Curie, £69,616 (RDAFFO), 2022-2024 (Cyd-Brif Ymchwilydd)
Gwerth mewn Iechyd: Persbectif Gofal Lliniarol. Gwerth Cymru mewn Gofal Iechyd, £50,000, 2022-2023 (Cyd-Brif Ymchwilydd)
Profiadau galar hirdymor ac anghenion cymorth pobl mewn profedigaeth yn ystod pandemig Covid-19: arolwg carfan 4ydd amser. Grantiau Bach Marie Curie, £15,000, (MCSGS-21-701), 2022-2023 (Cyd-ymchwilydd)
Canlyniadau Craidd a Adroddwyd gan Gleifion mewn Treialon Tiwmor yr Ymennydd: astudiaeth COBra. Elusen Tiwmor yr Ymennydd, £152,949 2020-2022 (Cyd-Ymchwilydd)
Archwilio disgwyliadau a phrofiadau cleifion canser o Therapi Ffa Proton yn y DU. Tenovus Cancer Care iGrant, £29,999, 2020-2021 (Prif Ymchwilydd) (Cyllid wedi'i olygu oherwydd COVID-19)
Prosiect ymchwil gweithredu i ddatblygu a gwerthuso model newydd o gyfarfodydd MDT dan arweiniad therapi a llwybrau gofal integredig i gleifion mewn canolfan triniaeth canser arbenigol. Tenovus Cancer Care iGrant, £30,000, 2020-2021 (Cyd-Ymchwilydd) (Cyllid wedi'i olygu oherwydd COVID-19)
Gwella mynediad at ofal diwedd oes i Gymunedau Amrywiol Caerdydd. Hosbis Marie Curie, Caerdydd a'r Fro, Penarth, £6,000. 2018 (Cyd-Ymchwilydd)
Cefnogi pobl sy'n cael profedigaeth trwy salwch datblygedig: adolygiad systematig o'r dystiolaeth a datblygu set ganlyniadau craidd ar gyfer ymchwil profedigaeth mewn gofal lliniarol. Gofal Canser Marie Curie, £82K, 2016-2018 (Cyd-Ymchwilydd)
PACT: Datblygu ymyrraeth i gefnogi cleifion canser yr ysgyfaint a'u clinigwyr wrth ystyried Therapi Gwrth-ganser systematig. Cronfeydd Elusennol Ymddiriedolaeth GIG Felindre, £200K, 2014-2015 (Cyd-ymchwilydd)
Addysgu
MSc Palliative Medicine
Teaching taught modules on MSc Palliative Medicine, Cardiff University School of Medicine, 2012 to present.
Research Supervision:
- Megumi Baba (MSc Palliative Medicine 2012-2014)
- Elaine McGleish (MSc Palliative Medicine 2012-2014)
- Kate Barnabas (MSc Palliative Medicine: 2011-2012)
BSc Intercalated Medicine
Assessor for the Cardiff University School of Medicine BSc Intercalated Route (Clinical Epidemiology), 2014 to present.
Research Supervision:
- Caroline Woodman (Intercalated BSc Student: Clinical Epidemiology: 2013-2014)
- William Marsh (Intercalated BSc Student; Public Health Route: 2009-2010)
Bywgraffiad
Addysg a Chymwysterau
2014: Ph.D gan Weithiau Cyhoeddedig: "Cefnogi gwneud penderfyniadau gan ddefnyddio ymyrraeth sy'n seiliedig ar theori: cymhwyso Theori estynedig o Ymddygiad wedi'i Gynllunio a'r Model Synnwyr Cyffredin o Gynrychiolaethau Salwch i gefnogi menywod sy'n dewis llawdriniaeth ar gyfer canser cynnar y fron", Prifysgol Caerdydd
2005: M.Phil (Seicoleg Galwedigaethol ac Iechyd): "Effeithiau Cyfunol Peryglon Iechyd Galwedigaethol", Prifysgol Cymru, Caerdydd
1999: BA (Anrh) Seicoleg (2:1), Prifysgol Cymru, Caerdydd
Hyfforddiant a Datblygu
2025: Hyfforddiant Rheoli a Hyrwyddo Iechyd Meddwl a Lles Cadarnhaol i-act: i-act ar gyfer PIs a Rheolwyr Ymchwilwyr.
2008: Ymyriadau Seicoleg Iechyd ar y Rhyngrwyd: Gwneud y mwyaf o'u potensial; Gweithdy Synergy 2008: Cymdeithas Seicoleg Iechyd Ewrop
2007: Sefydliad Haf Dartmouth ar gyfer Dewis Cleifion Gwybodus; Coleg Dartmouth, NH, UDA
2007: Seicoleg Gwneud Penderfyniadau; Adran Seicoleg, Prifysgol y Frenhines, Canada
2007: Dulliau Ymchwil Meintiol Uwch; Ysgol Gwyddorau Cymdeithasol Caerdydd, Prifysgol Caerdydd
Trosolwg o'r Gyrfa
2024 - Presennol: Cymrawd Ymchwil; Canolfan Ymchwil Gofal Lliniarol Marie Curie, Is-adran Meddygaeth y Boblogaeth, Ysgol Feddygaeth, Prifysgol Caerdydd
Aelodaethau proffesiynol
Aelodaeth Allanol
- Cymdeithas Seicolegol Prydain
- Cymdeithas Gwneud Penderfyniadau a Rennir Mewnol (Cydymaith Gwyddonol Ifanc)
- Cymrawd Sefydliad Haf Dartmouth ar gyfer Dewis Cleifion Gwybodus
Aelodaeth Fewnol
- Grŵp Gofal sy'n Canolbwyntio ar y Claf, Is-adran Meddygaeth y Boblogaeth, Ysgol Feddygaeth Prifysgol Caerdydd
- Grŵp Ymchwil Amlddisgyblaethol yr Ymennydd (Prifysgol Caerdydd, Ymddiriedolaeth GIG Ysbyty Felindre)
Safleoedd academaidd blaenorol
2024 - Yn bresennol: Cymrawd Ymchwil; Canolfan Ymchwil Gofal Lliniarol Marie Curie, Is-adran Meddygaeth y Boblogaeth, Ysgol Meddygaeth, Prifysgol Caerdydd
2022 - 2024: Cymrawd Ymchwil (Prosiect Serenity); Canolfan Ymchwil Gofal Lliniarol Marie Curie, Is-adran Meddygaeth y Boblogaeth, Ysgol Meddygaeth, Prifysgol Caerdydd
2011 - 2024: Cydymaith Ymchwil Marie Curie; Canolfan Ymchwil Gofal Lliniarol Marie Curie, Is-adran Meddygaeth y Boblogaeth, Ysgol Meddygaeth, Prifysgol Caerdydd
2006 - 2011: Cydymaith Ymchwil; Adran Gofal Sylfaenol ac Iechyd y Cyhoedd, Ysgol Meddygaeth, Prifysgol Caerdydd
2006: Swyddog Prosiect (Secondiad); Adran Ymarfer Cyffredinol, Ysgol Meddygaeth, Prifysgol Caerdydd
2004 - 2006: Cynorthwy-ydd Ymchwil; Gwasanaethau Geneteg Canser Cymru, Sefydliad Geneteg Feddygol, Prifysgol Caerdydd
2001 - 2003: Cynorthwy-ydd Ymchwil; Adran Meddygaeth Geriatreg, Coleg Meddygaeth Prifysgol Cymru
2001: Cynorthwy-ydd Ymchwil; Uned Academaidd Seiciatreg a Gwyddorau Ymddygiadol, Ysgol Meddygaeth, Prifysgol Leeds
2000-2001: Ysgoloriaeth MPhil; Canolfan Seicoleg Galwedigaethol ac Iechyd, Prifysgol Cymru, Caerdydd
1999-2000: Cynorthwy-ydd Ymchwil; Canolfan Seicoleg Galwedigaethol ac Iechyd, Prifysgol Cymru, Caerdydd
Pwyllgorau ac adolygu
Canser y Fron Nawr, Aelod o Bwyllgor Grant (2021 - presennol)
Cydraddoldeb, Amrywiaeth a Chynhwysiant, Is-adran Pwyllgor Meddygaeth y Boblogaeth: Is-adran y Boblogaeth, Ysgol Feddygaeth (Dirprwy Arweinydd) (aelod 2016 - presennol, Dirprwy Arweinydd 2020-presennol)
Pwyllgor Cydraddoldeb, Amrywiaeth a Chynhwysiant yr Ysgol Feddygaeth: Ysgol Feddygaeth Prifysgol Caerdydd (Aelod) (2020-presennol)
Adolygwr Cyfnodolion: Gwyddor Gymdeithasol a Meddygaeth, Addysg a Chwnsela Cleifion, Disgwyliadau Iechyd
Adolygydd Grant: Marie Curie, Breast Cancer Now, Ymchwil Canser Swydd Efrog
Meysydd goruchwyliaeth
Prosiectau'r gorffennol
Francesca Mazzaschi: Datblygu offeryn sgrinio ar gyfer effeithiau hwyr triniaeth ar gyfer canser yr ymennydd. 2018-2022