Ewch i’r prif gynnwys
Heather Rosemary Strange

Ms Heather Rosemary Strange

Cydymaith Ymchwil

Yr Ysgol Meddygaeth

Email
StrangeHR1@caerdydd.ac.uk
Campuses
Neuadd Meirionnydd, Ystafell 4ydd llawr, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS
Users
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Trosolwyg

I am a qualitative researcher at Cardiff University's Centre for Trials Research (CTR) and I am currently working on both the ORION study (translating foundational research on the ORganIsing work Of Nurses) and PUMA (Paediatric early warning system - Utilisation and Mortality Avoidance).

My work is located within and across the fields of medical sociology, science and technology studies, social and political theory and bio/medical ethics. I completed my PhD (2015) at Cardiff School of Social Sciences - an empirical study of the emergence and translation of a new prenatal testing technology (non-invasive prenatal diagnosis/testing - NIPD or NIPT).  Previous to this, I contributed to a wide range of qualitative and bioethical research projects at Cesagen, the ESRC funded Centre for the Economic and Social Aspects of Genomics. Crossing disciplinary boundaries, my work engages with a broad range of academic and political debates including: the social and cultural impact of prenatal testing, the ethics of sex selection, the application of new biometric technologies, the standardisation of ethics in biobanking and population health, the dignified care of older people, the care of persons with dementia, and the community-based use of online social media.  

PUMA: see http://bit.ly/2q8YQqM and pumastudy.com for for further information

ORION: (study information and website forthcoming)

Cyhoeddiad

2023

2022

2021

2020

2018

2017

2015

2010

2009

Adrannau llyfrau

Cynadleddau

Erthyglau

Gosodiad

Monograffau

Ymchwil

Current projects:

PUMA: Paediatric early warning system (PEWS): Utlisation and Mortaility Avoidance

A Prospective, mixed method, before and after study, set within four UK hospitals (two District General Hospitals and Two Specialist Children’s Hospitals): http://pumastudy.com/about-puma 

Background: UK paediatric mortality is highest in Europe; A recent survey revealed 85% paediatric inpatient units in the UK were using a track and trigger tool but there was huge variability in the tool being used and most of these were unpublished and un-validated; There is an urgent national need to develop an evidence based PEWS for UK practice.

Study aims: to Identify through a systematic review of the literature the evidence for the core components of a paediatric track and trigger tool; Develop a track and trigger tool implementation package for prospective evaluation; Evaluate the ability of the track and trigger tool to identify serious illness and reduce clinical events by examining core outcomes; Identify the contextual factors that are consequential for tool effectiveness; Identify the key ingredients of successful implementation and normalisation.

Key areas of interest:

Medical sociology, Science and technology studies/STS, bioethics, biopolitics, the sociology of reproduction, prenatal testing, palliative care, genetics and genomics.

Reviewer for:

Bioethics, Health Care Analysis, The Journal of Bioethical Enquiry, Science Technology and Human Values, The Journal of Community Genetics, Sociology of Health and Illness.

Addysgu

Teaching:

  • MSc Genetic Counselling (Cardiff University). Employed as a lecturer (teaching on bioethics, ethics and infertility,
    ethics and new technologies) from 2009 to present.
  • MSc Tissue Engineering (CITER). Employed as lecturer (teaching on bioethics) from 2013 - 2015.


Student supervision:

  • ShiHui Zhu, MSc Genetic Counselling dissertation. ‘Patient experiences of Non-invasive prenatal testing (NIPT) in the
    private sector’ (2017)
  • E. Anderson, MSc Genetic counselling dissertation. ‘Experiences of pre-implantation genetic diagnosis in Wales’
    (2016)
  • C. Giffney, MSc Genetic counselling dissertation. ‘Exploring Pre-implantation Genetic Diagnosis in Ireland’ (2011)
  • Amy Bamber, MSc Genetic counselling dissertation. ‘ Attitudes towards non invasive prenatal diagnosis in the Down
    syndrome community’ (2012)

Bywgraffiad

Education and qualifications

  • PhD (Social Sciences), Cardiff University, 2016
  • MA (Ethics and Social Philosophy), Cardiff University, 2007
  • BA Hons, first class (Philosophy), Cardiff University, 2004

Career overview

  • 2016 - present: Research Associate, Centre for Trials Research (CTR) / South East Wales Trials Unit (SEWTU), Cardiff University
  • 2014 - 2016: Research Support, Specialist Unit for Research Evidence (Sure), Cardiff University
  • 2011 - 2015: PhD student, School of Social Sciences, Cardiff University
  • 2008 - 2011: Research Assistant, ESRC Centre for the Economic and Social Aspects of Genomics (Cesagen), Cardiff University

Anrhydeddau a dyfarniadau

  • National Institute for Social Care and Health Research (NISCHR), Health Studentship Award (2011), Welsh Government. 
  • DM Phillips Tylerstown Philosophy Prize (2006-07), Cardiff School of English, Communication and Philosophy, Philosophy Board of Studies

Smaller grant funders (for travel and research dissemination) include: the British Sociological Association, Cesagen, the Foundation for the Sociology of Health and Illness, the Health Technology and Society Research Group, the European Society for Human Genetics, the Federal Ministry of Education and Research (Germany) and the Economic and Social Research Council.

Aelodaethau proffesiynol

Cymdeithas Gymdeithasegol Prydain (BSA), dyddiad cofrestru 23/05/2012.

Safleoedd academaidd blaenorol

  • 2014 - 2016: Cymorth Ymchwil, Uned Arbenigol ar gyfer Tystiolaeth Ymchwil (Cadarn), Prifysgol Caerdydd
  • 2012 - 2014: Ymchwilydd maes ansoddol, Ysgol Gwyddorau Cymdeithas Prifysgol Caerdydd (Sefydliadau Anghofiedig Y Fenni a Chartrefi Gofal yn Gweithredu Diwylliannau Rhagoriaeth/DEWIS, prosiectau)
  • 2011 - 2015: Myfyriwr PhD, Ysgol y Gwyddorau Cymdeithasol, Prifysgol Caerdydd
  • 2008 - 2011: Cynorthwy-ydd Ymchwil, Canolfan Agweddau Economaidd a Chymdeithasol Genomeg (Cesagen), Prifysgol Caerdydd

Pwyllgorau ac adolygu

  • Pwyllgor trefnu cyfres seminarau Cesagene, 2014-15
  • Pwyllgor trefnu Caffi Socsi Postgrad, 2011-12
  • Fforwm Ôl-raddedig ar Geneteg a Chymdeithas, pwyllgor digwyddiadau rhanbarthol (Cymru), 2012-13

Meysydd goruchwyliaeth

Lisa Jones, traethawd hir MSc Cwnsela Genetig a Genomeg. "Genyn ar gyfer clefyd y galon" - Archwilio llythrennedd genomeg yn y cyhoedd lleyg Cymru (2022)

ShiHui Zhu, traethawd hir MSc Cwnsela Genetig. 'Profiadau cleifion o brofion cynenedigol anfewnwthiol (NIPT) yn y
Sector Preifat ( 2017)

Erin Anderson, traethawd hir cwnsela MSc genetig. 'Profiadau o ddiagnosis genetig cyn-fewnblannu yng Nghymru'
(2016)

Claire Giffney, traethawd hir cwnsela MSc Genetig. 'Archwilio Diagnosis Genetig Cyn-fewnblannu yn Iwerddon' (2011)

Amy Bamber, traethawd ymchwil cwnsela MSc genetig. 'Agweddau tuag at ddiagnosis cynenedigol anfewnwthiol yn y Down
Cymuned Syndrom ' (2012)