![Heather Rosemary Strange](https://profiles-cardiff.imgix.net/attachments/2610?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Ms Heather Rosemary Strange
Research Associate
- StrangeHR1@cardiff.ac.uk
- +44 29225 10474
- Neuadd Meirionnydd, Room 4th floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS
- Available for postgraduate supervision
Overview
I am a qualitative research associate at the Centre for Trials Research (CTR). I work primarily within the fields of medical sociology, science and technology studies, and bio/medical ethics. I am experienced in the use of a wide range of qualitative research methods, and have a growing interest in (health related) implementation and improvement science work. My PhD (2015) was an empirical study of the emergence and translation of the novel prenatal testing technology NIPD/NIPT (non-invasive prenatal diagnosis/testing), for which I recruited a wide range of patient, clinician and expert participants. Drawing on these accounts, the final thesis explored the shifting of the established boundary between practices of prenatal screening and prenatal diagnosis, the moral, social and political problematisation of NIPT/D, the centrality of termination/abortion experiences and debates, and the containment and defusion of bioethical debate. I am currently principle investigator for NEPTUNE, a follow-up study of NIPT's implementation within routine prenatal screening in Wales, and co-convenor of the CTR's qualitative research network.
Previous to undertaking this research, I contributed to a wide range of qualitative and bioethical research projects at Cesagen, the ESRC-funded Centre for the Economic and Social Aspects of Genomics. I also spent time working for the Specialist Unit for Research Evidence (SURE), and contributed to a number of projects coordinated by Cardiff University's School of Social Sciences. As such, I contributed to a broad range of debates and discussions, including; the ethics of sex selection, the application of new biometric technologies, the standardisation of ethics in biobanking and population health, the dignified care of older people, the care of persons with dementia, and the community-based use of online social media.
Current/recent projects:
Principle investigator for:
The HCRW-funded NIPT (Non-InvasivE Prenatal Testing) Wales: UNdErstanding and Improving the New Landscape of Prenatal Screening (NEPTUNE) project. (website forthcoming)
Qualitative workpackage lead for:
The ORION (the ORganIsing work Of Nurses) impact accelerator workstream, which comprises: public engagement/website development work (links below), the development and evaluation of TRACT (an evidence-based tool designed to capture the organisational components of nursing work) and the development an educational platform using the latest digital technologies to integrate into nurse education formal preparation for the organisational components of the nursing role.
The NIHR-funded Plan-it study (The feasibility and acceptability of a planned pre-pregnancy weight loss intervention)
- https://www.cardiff.ac.uk/centre-for-trials-research/research/studies-and-trials/view/plan-it
- https://www.fundingawards.nihr.ac.uk/award/17/130/05
The MRC-funded TTTS study (Developing a non-invasive treatment for twin-twin transfusion syndrome)
Qualitative research associate for:
The RCN-funded ProJudge study (examining the use of professional judgement in nurse staffing decisions)
The NIHR-funded PUMA study (Paediatric early warning system - Utilisation and Mortality Avoidance): prospective mixed-methods before and after study of the development, implementation and evaluation of a programme to improve paediatric early warning systems:
- https://www.cardiff.ac.uk/centre-for-trials-research/research/studies-and-trials/view/puma
- https://www.fundingawards.nihr.ac.uk/award/12/178/17
The HCRW-funded PLACEMENT (perineural local anaesthetic catheter after major lower limb amputation) trial:
https://www.cardiff.ac.uk/centre-for-trials-research/research/studies-and-trials/view/placement
Publication
2023
- Steffensen, E. H. et al. 2023. Inclusion of sex chromosomes in noninvasive prenatal testing in Asia, Australia, Europe and the USA: A survey study. Prenatal Diagnosis 43(2), pp. 144-155. (10.1002/pd.6322)
- Channon, S. et al. 2023. Acceptability and feasibility of a planned preconception weight loss intervention in women with long-acting reversible contraception: the Plan-it mixed-methods study. Health Technology Assessment 27(1) (10.3310/NKIX8285)
2022
- Channon, S. et al. 2022. The acceptability of asking women to delay removal of a long-acting reversible contraceptive to take part in a preconception weight loss programme: a mixed methods study using qualitative and routine data (Plan-it). BMC Pregnancy and Childbirth 22, article number: 778. (10.1186/s12884-022-05077-0)
- Roland, D. et al. 2022. Paediatric early warning systems: not a simple answer to a complex question. Archives of Disease in Childhood (10.1136/archdischild-2022-323951)
- Dimond, R., Strange, H. and Hughes, J. 2022. Geneticization. In: Monaghan, L. and Gabe, J. eds. Key Concepts in Medical Sociology. SAGE Key Concepts series Sage, pp. 247-253.
- Allen, D. et al. 2022. Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study. Health and Social Care Delivery Research 10(1) (10.3310/CHCK4556)
- Allen, D. et al. 2022. Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study. BMC Health Services Research 22(1), article number: 9. (10.1186/s12913-021-07314-2)
2021
- Milosevic, S. et al. 2021. Exploring patients’ experiences of analgesia after major lower limb amputation: A qualitative study. BMJ Open 11, article number: e054618. (10.1136/bmjopen-2021-054618)
- Thomas, G. M., Rothman, B. K., Strange, H. and Latimer, J. 2021. Testing times: the social life of non-invasive prenatal testing. Science Technology and Society 26(1), pp. 81-97. (10.1177/0971721820960262)
- Coulman, E. et al. 2021. The acceptability and feasibility of a planned pre-pregnancy weight loss intervention (the Plan-it Study): A Protocol Paper. Clinical Obstetrics, Gynecology and Reproductive Medicine 7(1) (10.15761/COGRM.1000325)
2020
- Gadsbøll, K. et al. 2020. Current use of noninvasive prenatal testing in Europe, Australia and the USA: A graphical presentation. Acta Obstetricia et Gynecologica Scandinavica 99(6), pp. 722-730. (10.1111/aogs.13841)
2018
- Thomas-Jones, E. et al. 2018. A prospective, mixed-methods, before and after study to identify the evidence base for the core components of an effective paediatric early warning system and the development of an implementation package containing those core recommendations for use in the UK: Paediatric early warning system – utilisation and mortality avoidance– the PUMA study protocol. BMC Pediatrics 18(1), article number: 244. (10.1186/s12887-018-1210-z)
- Strange, H. 2018. The fetus as a patient: professional and patient discourse. In: Dagmar, S., Clarke, A. and Dondorp, W. eds. The Fetus as a Patient: A Contested Concept and its Normative Implications. London: Routledge, pp. 78-93., (10.4324/9781315170749)
2017
- Evans, R., White, J., Turley, R., Slater, T., Morgan, H., Strange, H. and Scourfield, J. 2017. Comparison of suicidal ideation, suicide attempt and suicide in children and young people in care and non-care populations: systematic review and meta-analysis of prevalence. Children and Youth Services Review 82, pp. 122-129. (10.1016/j.childyouth.2017.09.020)
- Weightman, A., Farnell, D., Morris, D., Strange, H. and Hallam, G. 2017. A systematic review of information literacy programs in higher education: effects of faceto- face, online, and blended formats on student skills and views. Evidence Based Library and Information Practice 12(3), pp. 20-55. (10.18438/B86W90)
2015
- Strange, H. 2015. P3-67 Patient and professional experiences with non-invasive prenatal diagnosis (NIPD) and testing (NIPT): social and ethical issues raised. Presented at: ISPD 19th International Conference on Prenatal Diagnosis and Therapy, Washington, DC, USA, 12–15 July 2015, Vol. 35. Vol. S1. Prenatal Diagnosis pp. 109-109., (10.1002/pd.4617)
- Johnson, I. G. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment: Draft Review 3: Barriers and Facilitators. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review-4
- Morgan, F. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment. Draft Review 2: Best Practice. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review-3
- Weightman, A. L. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment. Draft Review 1: Effectiveness. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review
- Chadwick, R. and Strange, H. 2015. Biobanking across borders: the challenges of harmonisation. In: Mascalzoni, D. ed. Ethics, Law and Governance of Biobanking., Vol. 14. The International Library of Ethics, Law and Technology New York and London: Springer, pp. 133-139., (10.1007/978-94-017-9573-9_10)
- Weightman, A. L., Farnell, D. J. J., Morris, D. and Strange, H. 2015. Information literacy teaching in Universities - a systematic review of evaluation studies: Preliminary findings for online versus traditional methods. Presented at: Evidence Based Library and Information Practice Conference (EBLIP8), Brisben, Queensland, Australia, 6-8 July 2015.
- Strange, H. 2015. Non-invasive prenatal diagnosis and testing: perspectives on the emergence and translation of a new prenatal testing technology. PhD Thesis, Cardiff University.
2010
- Strange, H. and Chadwick, R. 2010. The Ethics of Nonmedical Sex Selection. Health Care Anaysis 18(3), pp. 252-66. (10.1007/s10728-009-0135-y)
- Strange, H. 2010. Non-medical sex selection: ethical issues. British Medical Bulletin 94(1), pp. 7-20. (10.1093/bmb/ldq002)
2009
- Strange, H. and Chadwick, R. 2009. Harmonisation and standardisation in ethics and governance: conceptual and practical challenges. In: Widdows, H. and Mullen, C. eds. The Governance of Genetic Information: Who Decides?. Cambridge University Press, pp. 201-213.
Articles
- Steffensen, E. H. et al. 2023. Inclusion of sex chromosomes in noninvasive prenatal testing in Asia, Australia, Europe and the USA: A survey study. Prenatal Diagnosis 43(2), pp. 144-155. (10.1002/pd.6322)
- Channon, S. et al. 2023. Acceptability and feasibility of a planned preconception weight loss intervention in women with long-acting reversible contraception: the Plan-it mixed-methods study. Health Technology Assessment 27(1) (10.3310/NKIX8285)
- Channon, S. et al. 2022. The acceptability of asking women to delay removal of a long-acting reversible contraceptive to take part in a preconception weight loss programme: a mixed methods study using qualitative and routine data (Plan-it). BMC Pregnancy and Childbirth 22, article number: 778. (10.1186/s12884-022-05077-0)
- Roland, D. et al. 2022. Paediatric early warning systems: not a simple answer to a complex question. Archives of Disease in Childhood (10.1136/archdischild-2022-323951)
- Allen, D. et al. 2022. Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study. Health and Social Care Delivery Research 10(1) (10.3310/CHCK4556)
- Allen, D. et al. 2022. Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study. BMC Health Services Research 22(1), article number: 9. (10.1186/s12913-021-07314-2)
- Milosevic, S. et al. 2021. Exploring patients’ experiences of analgesia after major lower limb amputation: A qualitative study. BMJ Open 11, article number: e054618. (10.1136/bmjopen-2021-054618)
- Thomas, G. M., Rothman, B. K., Strange, H. and Latimer, J. 2021. Testing times: the social life of non-invasive prenatal testing. Science Technology and Society 26(1), pp. 81-97. (10.1177/0971721820960262)
- Coulman, E. et al. 2021. The acceptability and feasibility of a planned pre-pregnancy weight loss intervention (the Plan-it Study): A Protocol Paper. Clinical Obstetrics, Gynecology and Reproductive Medicine 7(1) (10.15761/COGRM.1000325)
- Gadsbøll, K. et al. 2020. Current use of noninvasive prenatal testing in Europe, Australia and the USA: A graphical presentation. Acta Obstetricia et Gynecologica Scandinavica 99(6), pp. 722-730. (10.1111/aogs.13841)
- Thomas-Jones, E. et al. 2018. A prospective, mixed-methods, before and after study to identify the evidence base for the core components of an effective paediatric early warning system and the development of an implementation package containing those core recommendations for use in the UK: Paediatric early warning system – utilisation and mortality avoidance– the PUMA study protocol. BMC Pediatrics 18(1), article number: 244. (10.1186/s12887-018-1210-z)
- Evans, R., White, J., Turley, R., Slater, T., Morgan, H., Strange, H. and Scourfield, J. 2017. Comparison of suicidal ideation, suicide attempt and suicide in children and young people in care and non-care populations: systematic review and meta-analysis of prevalence. Children and Youth Services Review 82, pp. 122-129. (10.1016/j.childyouth.2017.09.020)
- Weightman, A., Farnell, D., Morris, D., Strange, H. and Hallam, G. 2017. A systematic review of information literacy programs in higher education: effects of faceto- face, online, and blended formats on student skills and views. Evidence Based Library and Information Practice 12(3), pp. 20-55. (10.18438/B86W90)
- Strange, H. and Chadwick, R. 2010. The Ethics of Nonmedical Sex Selection. Health Care Anaysis 18(3), pp. 252-66. (10.1007/s10728-009-0135-y)
- Strange, H. 2010. Non-medical sex selection: ethical issues. British Medical Bulletin 94(1), pp. 7-20. (10.1093/bmb/ldq002)
Book sections
- Dimond, R., Strange, H. and Hughes, J. 2022. Geneticization. In: Monaghan, L. and Gabe, J. eds. Key Concepts in Medical Sociology. SAGE Key Concepts series Sage, pp. 247-253.
- Strange, H. 2018. The fetus as a patient: professional and patient discourse. In: Dagmar, S., Clarke, A. and Dondorp, W. eds. The Fetus as a Patient: A Contested Concept and its Normative Implications. London: Routledge, pp. 78-93., (10.4324/9781315170749)
- Chadwick, R. and Strange, H. 2015. Biobanking across borders: the challenges of harmonisation. In: Mascalzoni, D. ed. Ethics, Law and Governance of Biobanking., Vol. 14. The International Library of Ethics, Law and Technology New York and London: Springer, pp. 133-139., (10.1007/978-94-017-9573-9_10)
- Strange, H. and Chadwick, R. 2009. Harmonisation and standardisation in ethics and governance: conceptual and practical challenges. In: Widdows, H. and Mullen, C. eds. The Governance of Genetic Information: Who Decides?. Cambridge University Press, pp. 201-213.
Conferences
- Strange, H. 2015. P3-67 Patient and professional experiences with non-invasive prenatal diagnosis (NIPD) and testing (NIPT): social and ethical issues raised. Presented at: ISPD 19th International Conference on Prenatal Diagnosis and Therapy, Washington, DC, USA, 12–15 July 2015, Vol. 35. Vol. S1. Prenatal Diagnosis pp. 109-109., (10.1002/pd.4617)
- Weightman, A. L., Farnell, D. J. J., Morris, D. and Strange, H. 2015. Information literacy teaching in Universities - a systematic review of evaluation studies: Preliminary findings for online versus traditional methods. Presented at: Evidence Based Library and Information Practice Conference (EBLIP8), Brisben, Queensland, Australia, 6-8 July 2015.
Monographs
- Johnson, I. G. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment: Draft Review 3: Barriers and Facilitators. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review-4
- Morgan, F. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment. Draft Review 2: Best Practice. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review-3
- Weightman, A. L. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment. Draft Review 1: Effectiveness. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review
Thesis
- Strange, H. 2015. Non-invasive prenatal diagnosis and testing: perspectives on the emergence and translation of a new prenatal testing technology. PhD Thesis, Cardiff University.
Research
Current and recent projects:
Principle investigator for:
The HCRW-funded NIPT (Non-InvasivE Prenatal Testing) Wales: UNdErstanding and Improving the New Landscape of Prenatal Screening (NEPTUNE) project. (website forthcoming)
Qualitative workpackage lead for:
The ORION (the ORganIsing work Of Nurses) impact accelerator workstream, which comprises: public engagement/website development work (links below), the development and evaluation of TRACT (an evidence-based tool designed to capture the organisational components of nursing work) and the development an educational platform using the latest digital technologies to integrate into nurse education formal preparation for the organisational components of the nursing role.
The NIHR-funded Plan-it study (The feasibility and acceptability of a planned pre-pregnancy weight loss intervention)
- https://www.cardiff.ac.uk/centre-for-trials-research/research/studies-and-trials/view/plan-it
- https://www.fundingawards.nihr.ac.uk/award/17/130/05
The MRC-funded TTTS study (Developing a non-invasive treatment for twin-twin transfusion syndrome)
Qualitative research associate for:
The RCN-funded ProJudge study (examining the use of professional judgement in nurse staffing decisions)
The NIHR-funded PUMA study (Paediatric early warning system - Utilisation and Mortality Avoidance): prospective mixed-methods before and after study of the development, implementation and evaluation of a programme to improve paediatric early warning systems:
- https://www.cardiff.ac.uk/centre-for-trials-research/research/studies-and-trials/view/puma
- https://www.fundingawards.nihr.ac.uk/award/12/178/17
The HCRW-funded PLACEMENT (perineural local anaesthetic catheter after major lower limb amputation) trial:
https://www.cardiff.ac.uk/centre-for-trials-research/research/studies-and-trials/view/placement
Key areas of interest:
Medical sociology, science and technology studies/STS, bioethics, biopolitics, the sociology of reproduction, prenatal testing, genetics and genomics.
Reviewer for:
Bioethics, Health Care Analysis, The Journal of Bioethical Enquiry, Science Technology and Human Values, The Journal of Community Genetics, Sociology of Health and Illness, New Genetics and Society, Social Science and Medicine, Nature reviews Genetics, European Journal of Human Genetics.
Teaching
MSc Medical Education. Guest lecturer (research skills), 2017 - present.
MSc Genetic Counselling (Cardiff University). Guest lecturer (teaching on bioethics, ethics and infertility,
ethics and new technologies), 2009 to present.
MSc Tissue Engineering (CITER). Guest lecturer (teaching on bioethics) from 2013 - 2015.
Biography
Education and qualifications
PhD (Social Sciences/STS), Cardiff University, 2016
MA (Ethics and Social Philosophy), Cardiff University, 2007
BA Hons, first class (Philosophy), Cardiff University, 2004
Career overview
2016 - present: Research Associate, Centre for Trials Research (CTR) Cardiff University
2014 - 2016: Research Support, Specialist Unit for Research Evidence (Sure), Cardiff University
2011 - 2015: Doctoral reearcher, School of Social Sciences, Cardiff University
2008 - 2011: Research Assistant, ESRC Centre for the Economic and Social Aspects of Genomics (Cesagen), Cardiff University
Honours and awards
- National Institute for Social Care and Health Research (NISCHR), Health Studentship Award (2011), Welsh Government.
- DM Phillips Tylerstown Philosophy Prize (2006-07), Cardiff School of English, Communication and Philosophy, Philosophy Board of Studies
Smaller grant funders (for travel and research dissemination) include: the British Sociological Association, Cesagen, the KISS DTC, the Foundation for the Sociology of Health and Illness, the Health Technology and Society Research Group, the European Society for Human Genetics, the Federal Ministry of Education and Research (Germany) and the Economic and Social Research Council.
Professional memberships
The British Sociological Association (BSA), date of registration 23/05/2012.
Academic positions
- 2014 - 2016: Research Support, Specialist Unit for Research Evidence (Sure), Cardiff University
- 2012 - 2014: Qualitative field researcher, Cardiff University School of Social Sciences (Forgotten Abergavenny and Care Home Organisations Implementing Cultures of Excellence/CHOICE, projects)
- 2011 - 2015: PhD student, School of Social Sciences, Cardiff University
- 2008 - 2011: Research Assistant, ESRC Centre for the Economic and Social Aspects of Genomics (Cesagen), Cardiff University
Committees and reviewing
- Cesagene seminar series organising committee, 2014-15
- Socsi Postgrad Café organising committee, 2011-12
- Postgrad Forum on Genetics and Society, regional events (Wales) committee, 2012-13
Supervisions
Lisa Jones, MSc Genetic and Genomic Counselling dissertation. "A gene for heart disease" - Exploring genomic literacy in the Welsh lay public (2022)
ShiHui Zhu, MSc Genetic Counselling dissertation. ‘Patient experiences of Non-invasive prenatal testing (NIPT) in the
private sector’ (2017)
Erin Anderson, MSc Genetic counselling dissertation. ‘Experiences of pre-implantation genetic diagnosis in Wales’
(2016)
Claire Giffney, MSc Genetic counselling dissertation. ‘Exploring Pre-implantation Genetic Diagnosis in Ireland’ (2011)
Amy Bamber, MSc Genetic counselling dissertation. ‘Attitudes towards non invasive prenatal diagnosis in the Down
syndrome community’ (2012)