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Dr Jessica Baillie PhD BN (Hons.) RN (Adult) SFHEA
Senior Lecturer: Adult Nursing
- BaillieJ2@cardiff.ac.uk
- +44 29206 87783
- Eastgate House, Floor 13, Newport Road, Cardiff, CF24 0AB
- Available for postgraduate supervision
Overview
I am a Senior Lecturer in Adult Nursing and teach, assess and supervise students across undergraduate and postgraduate programmes. I am a Postgraduate Research Programme Manager and lead a level 7 research module. My research expertise is in long-term conditions and palliative care, particularly kidney failure, utilising qualitative methods. I am a Senior Fellow of the Higher Education Academy.
Previously I worked as a registered nurse in Nephrology and Transplant at Cardiff and Vale University Health Board, and as a Research Associate for the Marie Curie Palliative Care Research Centre, Cardiff University School of Medicine. I undertook my PhD at Cardiff School of Nursing and Midwifery Studies, funded by the Research Capacity Building Collaboration (RCBC) Wales. In 2015 I was awarded a Postdoctoral Fellowship from RCBC Wales.
Publication
2023
- Baillie, J., Gill, P. and Courtenay, M. 2023. Perceptions of peritonitis risk, prevention, diagnosis and stigma: findings from a mixed methods study with patients and relatives using peritoneal dialysis. Journal of Renal Care (10.1111/jorc.12464)
- Smith, C., Gill, P. and Baillie, J. 2023. The clinical decision‐making process involved in end of life care for people with dementia in primary care: A protocol paper. Journal of Advanced Nursing (10.1111/jan.15587)
2022
- Smith, C., Baillie, J. and Gill, P. 2022. The value of patient and public involvement in doctoral research: involving people living with dementia. Presented at: RCN International Nursing Research Conference, Cardiff, UK, 5-6 Sept 2022.
- Baillie, J. et al. 2022. An innovation project to enhance students' experiences of a postgraduate research programme. Presented at: NET2022 Conference, Lancaster, England, 06-07 September 2022.
2021
- Baillie, J., Gill, P. and Courtenay, M. 2021. Seeking help for peritoneal dialysis-associated peritonitis: patients' and families' intentions and actions. A mixed methods study. Journal of Advanced Nursing 77(10), pp. 4211-4225. (10.1111/jan.14969)
- Baillie, J. 2021. Using ethnographic research to explore home healthcare: methodological and ethical considerations. Presented at: RCN International Nursing Research Conference 2021, Virtual, 7-9 September 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2021. Safely managing dialysis at home: insights from a mixed method study. Presented at: Sustainable Care Conference: CARE 2021, Virtual, 12-30 April 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2021. Challenges in recognising peritoneal dialysis-associated peritonitis and seeking help: insights from a mixed method study with patients and relatives. Presented at: ISPD-EuroPD Joint Congress, Virtual, 28 February - 02 March 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2021. Perceptions of infection risk, prevention and action: findings from a UK qualitative study with patients using home dialysis. Presented at: RCN International Nursing Research Conference 2021, Virtual, 7-9 September 2021.
2020
- Baillie, J. 2020. Commentary: An overview of the qualitative descriptive design within nursing research. Journal of Research in Nursing 25(5), pp. 458-459. (10.1177/1744987119881056)
- Baillie, J., Gill, P. and Courtenay, M. 2020. Seeking help when a crisis occurs: insights from a mixed methods study with patients using peritoneal dialysis, and their families. Presented at: Health and Care Research Wales Conference, Online, 7 October 2020.
2019
- Baillie, J. 2019. Methodological considerations when using ethnography to explore home care. Nurse Researcher 27(2) (10.7748/nr.2019.e1638)
- Hopewell-Kelly, N. et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9(2), pp. 219-224. (10.1136/bmjspcare-2015-000889)
- Baillie, J. 2019. Commentary: Service user involvement in teaching and learning: student nurse perspectives. Journal of Research in Nursing 24(3-4), pp. 195-196. (10.1177/1744987119837802)
- Sivell, S. et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9, article number: e14. (10.1136/bmjspcare-2015-000892)
- Bowyer, A. V. et al. 2019. Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study. BMJ Supportive & Palliative Care 9(1), article number: e17. (10.1136/bmjspcare-2015-000920)
2018
- Gill, P. and Baillie, J. 2018. Interviews and focus groups in qualitative research: an update for the digital age. British Dental Journal 225(7), pp. 668-672. (10.1038/sj.bdj.2018.815)
- Baillie, J., Anagnostou, D., Sivell, S., Van Godwin, J., Byrne, A. and Nelson, A. 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17, article number: 60. (10.1186/s12904-018-0314-4)
- Baillie, J., Gill, P. and Courtenay, M. 2018. Knowledge, understanding and experiences of peritonitis amongst patients, and their families, undertaking peritoneal dialysis: A mixed methods study protocol. Journal of Advanced Nursing 74(1), pp. 201-210. (10.1111/jan.13400)
2017
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Hills, M., Baillie, J. and Nelson, A. 2017. Advance care planning for a preferred place of death: Do professionals ask children and young people what they want?. Presented at: 8th International Cardiff Conference on Paediatric Palliative Care, Cardiff, 26-28 July 2017.
- Baillie, J. 2017. Facets of peritonitis experienced by the patient and their relatives [Keynote Presentation]. Presented at: Danish Society for Renal Nurses Conference, Copenhagen, 28-29 September 2017.
- Baillie, J. 2017. Knowledge and experience of peritonitis amongst patients and their families [Invited Presentation]. Presented at: Wales Kidney Research Unit Annual Meeting, Cardiff, UK, 29 November 2017.
2016
- Woodman, C., Baillie, J. and Sivell, S. 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6(4), pp. 418-429. (10.1136/bmjspcare-2014-000794)
- Harrop, E., Godwin, J. v., Sivell, S., Baillie, J., Byrne, A. and Nelson, A. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.
2015
- Harrop, E., Baillie, J., Hopewell Kelly, N., Byrne, A. and Nelson, A. 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.
- Noble, S. I. et al. 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19(83), pp. 1-94. (10.3310/hta19830)
- Baillie, J. and Lankshear, A. 2015. Patients' and relatives' experiences of peritonitis when using peritoneal dialysis. Journal of Renal Care 41(3), pp. 177-186. (10.1111/jorc.12118)
- Baillie, J. and Lankshear, A. 2015. Patient and family perspectives on peritoneal dialysis at home: findings from an ethnographic study. Journal of Clinical Nursing 24(1-2), pp. 222-234. (10.1111/jocn.12663)
- Hopewell-Kelly, N., Fitzgibbon, J., Baillie, J. and Nelson, A. 2015. TACT: What impact does research partner involvement have on the working practices of a cancer clinical trials unit and academic research centre. BMJ Sipportive and Palliative Care 5, pp. 107-108. (10.1136/bmjspcare-2014-000838.16)
- Woodman, C., Baillie, J. and Sivell, S. 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5, pp. 116-117. (10.1136/bmjspcare-2014-000838.38)
- Sivell, S. et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 117. (10.1136/bmjspcare-2014-000838.40)
- Hopewell-Kelly, N. et al. 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 120. (10.1136/bmjspcare-2014-000838.47)
- Best, S. et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.
- Baillie, J., Nelson, A., Sivell, S. and Noble, S. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.
- Woodman, C., Baillie, J. and Sivell, S. 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 31-32.
- Sivell, S. et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
- Smith, R. et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
- Hopewell-Kelly, N. et al. 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.
- Hopewell-Kelly, N., Fitzgibbon, J., Baillie, J. and Nelson, A. 2015. TACT: what impact does research partner involvement have on the working practices of a cancer clinical trial unit and academic research Centre. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.
2014
- Fitzgibbon, J., Baillie, J., Simon, N. and Nelson, A. 2014. The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model. Patient Preference and Adherence 8, pp. 1527-1535. (10.2147/PPA.S66734)
- Woodman, C., Baillie, J. and Sivell, S. 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis.. Presented at: 14th Annual All Wales Palliative Care Conference, Gregynog, Powys, Wales, 6-7 November 2014.
- Baillie, J., Fitzgibbon, J., Simon, N., Adams, R. and Nelson, A. 2014. Developing meaningful public involvement in a cancer clinical trials unit. Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, Italy, 20-21 November 2014.
- Hopewell-Kelly, N., Fitzgibbon, J., Baillie, J. and Nelson, A. 2014. TACT: What impact does user involvement have on the working practices of a clinical trial research centre and academic research centre?. Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, 20-21 November 2014.
- Prentice, J., Nelson, A., Baillie, J., Osborn, H. and Noble, S. I. R. 2014. 'Don't blame the middle man': an exploratory qualitative study to explore the experiences of translators breaking bad news. Journal of the Royal Society of Medicine 107(7), pp. 271-276. (10.1177/0141076814527275)
- Noble, S. et al. 2014. ALICAT: Anticoagulation length in cancer associated thrombosis - a mixed-methods feasibility study. Thrombosis Research 133(Supp 2), pp. S220-S220. (10.1016/S0049-3848(14)50032-1)
- Smith, J. D. et al. 2014. A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective Anticoagulation Length with low molecular weight heparin In the treatment of Cancer Associated Thrombosis (ALICAT): study protocol for a mixed-methods study. Trials 15(1), article number: 122. (10.1186/1745-6215-15-122)
- Woodman, C., Baillie, J. and Sivell, S. 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014, Cardiff, 4 June 2014.
- Noble, S. I. R. et al. 2014. Anticoagulation length in cancer associated thrombosis: a mixed-methods feasibility study. Presented at: International Conference on Thrombosis and Hemostasis Issues in Cancer, Bergamo, Italy, 9-11 May 2014.
- Baillie, J., Harrop, E., Hopewell-Kelly, N., Stephens, K., Byrne, A. and Nelson, A. 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference, London, 28 March 2014BMJ Supportive and Palliative Care. BMJ pp. 114-(P026)., (10.1136/bmjspcare-2014-000653.28)
- Baillie, J. 2014. Perspectives on peritoneal dialysis at home: findings from an ethnographic study. Presented at: Cardiff and Vale University Health Board Research and Development Conference, Cardiff. UK, June 2014.
2013
- Baillie, J. 2013. Perspectives on peritoneal dialysis at home: an ethnographic study. PhD Thesis, Cardiff University.
- Byrne, A. et al. 2013. A mixed-methods study of the care needs of individuals with idiopathic pulmonary fibrosis and their carers--CaNoPy: a study protocol. BMJ Open 3(8), article number: e003537. (10.1136/bmjopen-2013-003537)
- Baillie, J., Fitzgibbon, J., Simon, N., Griffiths, G. and Nelson, A. 2013. Supporting lay representatives and researchers: the role of the research partner coordinator at a clinical trials unit and palliative care research centre. Presented at: New Developments in Public Involvement in Research Conference, Exeter; UK, 13 15 November 2013.
- Nawaz, S., Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference, Powys; UK, 10 - 11 October 2013.
- Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, 30 May - 2 June 2013BMJ Supportive and Palliative Care. BMJ pp. 131., (10.1136/bmjspcare-2013-000453b.19)
- Harrop, E., Baillie, J., Byrne, A., Stephens, K. and Nelson, A. 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013.
- Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference, London, UK, 28 March 2014.
- Harrop, E., Baillie, J., Byrne, A., Stephens, K. and Nelson, A. 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference, London; UK, 28 March 2014BMJ Supportive & Palliative Care. BMJ pp. 131., (10.1136/bmjspcare-2013-000453b.20)
- Baillie, J. 2013. Supporting patients and relatives to live with peritoneal dialysis: insights from an ethnographic study. Presented at: Transforming Community Health International Conference, Edinburgh, UK, 13-14 March 2013.
2012
- Baillie, J. 2012. Home dialysis and the illness trajectory: an ethnographic study. Presented at: Qualitative Health Research Conference, Montreal, Canada, October 2013.
- Baillie, J. 2012. Findings from an ethnography of peritoneal dialysis in the home. Presented at: RCN International Research Conference, London, UK, 23 -25 April 2012.
- Baillie, J. 2012. Findings from an ethnographic study of home dialysis. Presented at: Spotlight on Social Sciences, Cardiff, UK, 30 March 2012.
2011
- Baillie, J., Lankshear, A. J. and Featherstone, K. 2011. Perspectives on peritoneal dialysis at home: implications for the management of a chronic condition. A study protocol. Journal of Advanced Nursing (10.1111/j.1365-2648.2011.05907.x)
- Baillie, J. 2011. A transformation of body and self: emergent findings from an ethnography of dialysis in the home. Presented at: Transformations Postgraduate Interdisciplinary Conference, Cardiff, UK, July 2011.
2009
- Baillie, J. 2009. Meeting the educational needs of newly qualified nurses. Presented at: NET International Networking for Healthcare Education Conference., Cambridge, UK, September 2009.
2007
- Baillie, J. 2007. A tale of two mentors: a students' experiences of mentorship in practice. Presented at: NET International Networking for Healthcare Education Conference, Cambridge, UK, September 2007.
Articles
- Baillie, J., Gill, P. and Courtenay, M. 2023. Perceptions of peritonitis risk, prevention, diagnosis and stigma: findings from a mixed methods study with patients and relatives using peritoneal dialysis. Journal of Renal Care (10.1111/jorc.12464)
- Smith, C., Gill, P. and Baillie, J. 2023. The clinical decision‐making process involved in end of life care for people with dementia in primary care: A protocol paper. Journal of Advanced Nursing (10.1111/jan.15587)
- Baillie, J., Gill, P. and Courtenay, M. 2021. Seeking help for peritoneal dialysis-associated peritonitis: patients' and families' intentions and actions. A mixed methods study. Journal of Advanced Nursing 77(10), pp. 4211-4225. (10.1111/jan.14969)
- Baillie, J. 2020. Commentary: An overview of the qualitative descriptive design within nursing research. Journal of Research in Nursing 25(5), pp. 458-459. (10.1177/1744987119881056)
- Baillie, J. 2019. Methodological considerations when using ethnography to explore home care. Nurse Researcher 27(2) (10.7748/nr.2019.e1638)
- Hopewell-Kelly, N. et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9(2), pp. 219-224. (10.1136/bmjspcare-2015-000889)
- Baillie, J. 2019. Commentary: Service user involvement in teaching and learning: student nurse perspectives. Journal of Research in Nursing 24(3-4), pp. 195-196. (10.1177/1744987119837802)
- Sivell, S. et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9, article number: e14. (10.1136/bmjspcare-2015-000892)
- Bowyer, A. V. et al. 2019. Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study. BMJ Supportive & Palliative Care 9(1), article number: e17. (10.1136/bmjspcare-2015-000920)
- Gill, P. and Baillie, J. 2018. Interviews and focus groups in qualitative research: an update for the digital age. British Dental Journal 225(7), pp. 668-672. (10.1038/sj.bdj.2018.815)
- Baillie, J., Anagnostou, D., Sivell, S., Van Godwin, J., Byrne, A. and Nelson, A. 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17, article number: 60. (10.1186/s12904-018-0314-4)
- Baillie, J., Gill, P. and Courtenay, M. 2018. Knowledge, understanding and experiences of peritonitis amongst patients, and their families, undertaking peritoneal dialysis: A mixed methods study protocol. Journal of Advanced Nursing 74(1), pp. 201-210. (10.1111/jan.13400)
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Woodman, C., Baillie, J. and Sivell, S. 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6(4), pp. 418-429. (10.1136/bmjspcare-2014-000794)
- Noble, S. I. et al. 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19(83), pp. 1-94. (10.3310/hta19830)
- Baillie, J. and Lankshear, A. 2015. Patients' and relatives' experiences of peritonitis when using peritoneal dialysis. Journal of Renal Care 41(3), pp. 177-186. (10.1111/jorc.12118)
- Baillie, J. and Lankshear, A. 2015. Patient and family perspectives on peritoneal dialysis at home: findings from an ethnographic study. Journal of Clinical Nursing 24(1-2), pp. 222-234. (10.1111/jocn.12663)
- Hopewell-Kelly, N., Fitzgibbon, J., Baillie, J. and Nelson, A. 2015. TACT: What impact does research partner involvement have on the working practices of a cancer clinical trials unit and academic research centre. BMJ Sipportive and Palliative Care 5, pp. 107-108. (10.1136/bmjspcare-2014-000838.16)
- Woodman, C., Baillie, J. and Sivell, S. 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5, pp. 116-117. (10.1136/bmjspcare-2014-000838.38)
- Sivell, S. et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 117. (10.1136/bmjspcare-2014-000838.40)
- Hopewell-Kelly, N. et al. 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 120. (10.1136/bmjspcare-2014-000838.47)
- Fitzgibbon, J., Baillie, J., Simon, N. and Nelson, A. 2014. The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model. Patient Preference and Adherence 8, pp. 1527-1535. (10.2147/PPA.S66734)
- Prentice, J., Nelson, A., Baillie, J., Osborn, H. and Noble, S. I. R. 2014. 'Don't blame the middle man': an exploratory qualitative study to explore the experiences of translators breaking bad news. Journal of the Royal Society of Medicine 107(7), pp. 271-276. (10.1177/0141076814527275)
- Noble, S. et al. 2014. ALICAT: Anticoagulation length in cancer associated thrombosis - a mixed-methods feasibility study. Thrombosis Research 133(Supp 2), pp. S220-S220. (10.1016/S0049-3848(14)50032-1)
- Smith, J. D. et al. 2014. A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective Anticoagulation Length with low molecular weight heparin In the treatment of Cancer Associated Thrombosis (ALICAT): study protocol for a mixed-methods study. Trials 15(1), article number: 122. (10.1186/1745-6215-15-122)
- Byrne, A. et al. 2013. A mixed-methods study of the care needs of individuals with idiopathic pulmonary fibrosis and their carers--CaNoPy: a study protocol. BMJ Open 3(8), article number: e003537. (10.1136/bmjopen-2013-003537)
- Baillie, J., Lankshear, A. J. and Featherstone, K. 2011. Perspectives on peritoneal dialysis at home: implications for the management of a chronic condition. A study protocol. Journal of Advanced Nursing (10.1111/j.1365-2648.2011.05907.x)
Conferences
- Smith, C., Baillie, J. and Gill, P. 2022. The value of patient and public involvement in doctoral research: involving people living with dementia. Presented at: RCN International Nursing Research Conference, Cardiff, UK, 5-6 Sept 2022.
- Baillie, J. et al. 2022. An innovation project to enhance students' experiences of a postgraduate research programme. Presented at: NET2022 Conference, Lancaster, England, 06-07 September 2022.
- Baillie, J. 2021. Using ethnographic research to explore home healthcare: methodological and ethical considerations. Presented at: RCN International Nursing Research Conference 2021, Virtual, 7-9 September 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2021. Safely managing dialysis at home: insights from a mixed method study. Presented at: Sustainable Care Conference: CARE 2021, Virtual, 12-30 April 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2021. Challenges in recognising peritoneal dialysis-associated peritonitis and seeking help: insights from a mixed method study with patients and relatives. Presented at: ISPD-EuroPD Joint Congress, Virtual, 28 February - 02 March 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2021. Perceptions of infection risk, prevention and action: findings from a UK qualitative study with patients using home dialysis. Presented at: RCN International Nursing Research Conference 2021, Virtual, 7-9 September 2021.
- Baillie, J., Gill, P. and Courtenay, M. 2020. Seeking help when a crisis occurs: insights from a mixed methods study with patients using peritoneal dialysis, and their families. Presented at: Health and Care Research Wales Conference, Online, 7 October 2020.
- Hills, M., Baillie, J. and Nelson, A. 2017. Advance care planning for a preferred place of death: Do professionals ask children and young people what they want?. Presented at: 8th International Cardiff Conference on Paediatric Palliative Care, Cardiff, 26-28 July 2017.
- Baillie, J. 2017. Facets of peritonitis experienced by the patient and their relatives [Keynote Presentation]. Presented at: Danish Society for Renal Nurses Conference, Copenhagen, 28-29 September 2017.
- Baillie, J. 2017. Knowledge and experience of peritonitis amongst patients and their families [Invited Presentation]. Presented at: Wales Kidney Research Unit Annual Meeting, Cardiff, UK, 29 November 2017.
- Best, S. et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.
- Baillie, J., Nelson, A., Sivell, S. and Noble, S. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.
- Woodman, C., Baillie, J. and Sivell, S. 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 31-32.
- Sivell, S. et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
- Smith, R. et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
- Hopewell-Kelly, N. et al. 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.
- Hopewell-Kelly, N., Fitzgibbon, J., Baillie, J. and Nelson, A. 2015. TACT: what impact does research partner involvement have on the working practices of a cancer clinical trial unit and academic research Centre. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.
- Woodman, C., Baillie, J. and Sivell, S. 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis.. Presented at: 14th Annual All Wales Palliative Care Conference, Gregynog, Powys, Wales, 6-7 November 2014.
- Baillie, J., Fitzgibbon, J., Simon, N., Adams, R. and Nelson, A. 2014. Developing meaningful public involvement in a cancer clinical trials unit. Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, Italy, 20-21 November 2014.
- Hopewell-Kelly, N., Fitzgibbon, J., Baillie, J. and Nelson, A. 2014. TACT: What impact does user involvement have on the working practices of a clinical trial research centre and academic research centre?. Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, 20-21 November 2014.
- Woodman, C., Baillie, J. and Sivell, S. 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014, Cardiff, 4 June 2014.
- Noble, S. I. R. et al. 2014. Anticoagulation length in cancer associated thrombosis: a mixed-methods feasibility study. Presented at: International Conference on Thrombosis and Hemostasis Issues in Cancer, Bergamo, Italy, 9-11 May 2014.
- Baillie, J., Harrop, E., Hopewell-Kelly, N., Stephens, K., Byrne, A. and Nelson, A. 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference, London, 28 March 2014BMJ Supportive and Palliative Care. BMJ pp. 114-(P026)., (10.1136/bmjspcare-2014-000653.28)
- Baillie, J. 2014. Perspectives on peritoneal dialysis at home: findings from an ethnographic study. Presented at: Cardiff and Vale University Health Board Research and Development Conference, Cardiff. UK, June 2014.
- Baillie, J., Fitzgibbon, J., Simon, N., Griffiths, G. and Nelson, A. 2013. Supporting lay representatives and researchers: the role of the research partner coordinator at a clinical trials unit and palliative care research centre. Presented at: New Developments in Public Involvement in Research Conference, Exeter; UK, 13 15 November 2013.
- Nawaz, S., Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference, Powys; UK, 10 - 11 October 2013.
- Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, 30 May - 2 June 2013BMJ Supportive and Palliative Care. BMJ pp. 131., (10.1136/bmjspcare-2013-000453b.19)
- Harrop, E., Baillie, J., Byrne, A., Stephens, K. and Nelson, A. 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013.
- Baillie, J., Harrop, E., Byrne, A., Stephens, K. and Nelson, A. 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference, London, UK, 28 March 2014.
- Harrop, E., Baillie, J., Byrne, A., Stephens, K. and Nelson, A. 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference, London; UK, 28 March 2014BMJ Supportive & Palliative Care. BMJ pp. 131., (10.1136/bmjspcare-2013-000453b.20)
- Baillie, J. 2013. Supporting patients and relatives to live with peritoneal dialysis: insights from an ethnographic study. Presented at: Transforming Community Health International Conference, Edinburgh, UK, 13-14 March 2013.
- Baillie, J. 2012. Home dialysis and the illness trajectory: an ethnographic study. Presented at: Qualitative Health Research Conference, Montreal, Canada, October 2013.
- Baillie, J. 2012. Findings from an ethnography of peritoneal dialysis in the home. Presented at: RCN International Research Conference, London, UK, 23 -25 April 2012.
- Baillie, J. 2012. Findings from an ethnographic study of home dialysis. Presented at: Spotlight on Social Sciences, Cardiff, UK, 30 March 2012.
- Baillie, J. 2011. A transformation of body and self: emergent findings from an ethnography of dialysis in the home. Presented at: Transformations Postgraduate Interdisciplinary Conference, Cardiff, UK, July 2011.
- Baillie, J. 2009. Meeting the educational needs of newly qualified nurses. Presented at: NET International Networking for Healthcare Education Conference., Cambridge, UK, September 2009.
- Baillie, J. 2007. A tale of two mentors: a students' experiences of mentorship in practice. Presented at: NET International Networking for Healthcare Education Conference, Cambridge, UK, September 2007.
Monographs
- Harrop, E., Godwin, J. v., Sivell, S., Baillie, J., Byrne, A. and Nelson, A. 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. Project Report.
- Harrop, E., Baillie, J., Hopewell Kelly, N., Byrne, A. and Nelson, A. 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.
Thesis
- Baillie, J. 2013. Perspectives on peritoneal dialysis at home: an ethnographic study. PhD Thesis, Cardiff University.
Research
My research interests include:
- Long term conditions, particularly kidney failure and peritoneal dialysis
- Palliative care
- Patient and family experiences of healthcare
- Qualitative research methods
In 2015, I was awarded a Postdoctoral Research Fellowship from the Research Capacity Building Collaboration (RCBC) Wales. This Fellowship enabled the continuation of my doctoral research, focusing on patients’ and families’ knowledge and experience of peritoneal dialysis-associated peritonitis (infection of the peritoneal membrane).
Currently I am working on a project with colleagues from around Europe exploring quality care provided by peritoneal dialysis nurses.
I am a Postgraduate Research (PGR) Programme Manager within the School of Healthcare Sciences, where I work with the PGR Team to support students throughout their doctoral journeys, from admission to completion. I have experience of chairing and examining Vivas.
I am Vice Chair of the School of Healthcare Sciences Research Ethics Committee and an external member of the Cardiff School of Medicine Research Ethics Committee. I am Cardiff University Deputy Lead for RCBC Wales.
Teaching
I teach and assess on preregistration, MSc and doctoral modules, with a particular focus on research methods, research ethics and long-term/ complex conditions. I am module leader for a post-graduate, level 7 research module. I also supervise students undertaking undergraduate and masters dissertations, and supervise doctoral students.
I am a Visiting Lecturer at Freiburg University, Germany.
I am an External Examiner at Swansea University and the University of Derby.
I became a Senior Fellow of the Higher Education Academy in 2021, having been a Fellow since 2016.
Biography
After completing my Bachelor of Nursing (Hons.) I worked as a staff nurse in Nephrology and Transplant and as a bank nurse at Cardiff and Vale University Health Board. In 2009 I secured funding from the Research Capacity Building Collaboration (RCBC) Wales to undertake a full-time PhD studentship at the Cardiff School of Nursing and Midwifery Studies (awarded 2013). My PhD focused on patients' and families' experiences of using peritoneal dialysis, utilising ethnographic methods.
I joined the Marie Curie Palliative Care Research Centre, Cardiff University School of Medicine, in 2012 as a Research Assistant, before working as a Research Associate. In this role I worked as part of an interdisciplinary research team and contributed to a variety of qualitative and mixed methods studies.
I joined the School of Healthcare Sciences in 2014 as a Lecturer in Adult Nursing. I became a Senior Lecturer in 2021.
Education
Bachelor of Nursing (Hons.) Cardiff School of Nursing and Midwifery Studies, Cardiff University
PhD (Nursing) Cardiff School of Nursing and Midwifery Studies, Cardiff University
Volunteering
School Governor
Honours and awards
- Postdoctoral Research Fellow, Research Capacity Building Collaboration (RCBC) Wales (2015)
Professional memberships
- Registered Nurse (Adult) Nursing and Midwifery Council
- Senior Fellow of the Higher Education Academy
Academic positions
- 2021 - current: Senior Lecturer, Cardiff University
- 2017 - current: Visiting Lecturer, Freiburg University
- 2015 - 2020: RCBC Wales Postdoctoral Research Fellow, Cardiff University
- 2014 - 2022: Lecturer, Cardiff University
- 2013 - 2014: Research Associate, Cardiff University
- 2012 - 2013: Research Assistant, Cardiff University
Speaking engagements
- European Dialysis and Transplant Nurses' Association (2023): Patient's and families' experiences of peritoneal dialysis-related peritonitis (Invited webinar)
- Danish Society for Renal Nurses Conference (2017): Facets of peritonitis experienced by patients and their relatives (Invite keynote)
Committees and reviewing
- Journal reviewer: Journal of Renal Care, Journal of Clinical Nursing, Journal of Advanced Nursing, Journal of Research in Nursing, and others on request.
- Conference abstract reviewer: RCN International Nursing Research Conference.
- Grant reviewer: National Institute for Health Research, and others on request.
Supervisions
I am currently supervising three PhD students:
- Cathryn Smith: Caring for people with dementia at end of life: clinical decision-making process of healthcare professionals within primary care. An ethnographic study (funded by RCBC Wales)
- Manal Hamithi: The experiences of everyday life of older people who are living with dementia, and their caregivers, within a Saudi care home. An ethnographic study.
- Rahaf Barboud: Physical Activity Levels, Barriers, and Facilitators Encountered among Patients with Multiple Sclerosis in Saudi Arabia. A mixed methods study.
Please get in touch if you are interested in undertaking a PhD that is in line with my areas of expertise:
- Kidney failure
- Long term conditions
- Ethnographic research
- Qualitative research
I also supervise students undertaking empirical masters dissertations, primarily using qualitative methods, which to date have included palliative care, breastfeeding and preventing surgical site infections.
In 2023 I was shortlisted for Doctoral Supervisor of the Year at the Cardiff Stuents' Union Enriching Student Life Awards.
Past projects
- Dr Ian Williams: Living with a moderate head injury: An interpretative phenomenological analysis of young people’s and their mothers’ lived experiences (Awarded 2020)
- Dr Alicia Stringfellow: Exploring the experiences of mothers who live with and care for an adult son or daughter with schizophrenia (Awarded 2023)
Research themes
Specialisms
- Nursing
- Kidney care
- Long-term conditions
- Qualitative research methods
