Professor Katherine Brain
(she/her)
Teams and roles for Katherine Brain
Director, Division of Population Medicine
Overview
I hold a Personal Chair in Health Psychology and lead a programme of cancer early detection behavioural research within the Division of Population Medicine. My research interests revolve around understanding the influences on cancer symptom help-seeking behaviour and screening participation, developing and testing behavioural interventions to address these influences, with a particular focus on reducing inequalities in cancer outcomes.
Since 2015, I have led the strategic direction of cancer behavioural science research in Wales, with infrastructure funding spanning the Wales Cancer Research Centre and Primary and Emergency Care Research Centre, funded by Welsh Government through Health and Care Research Wales. My research portfolio includes international studies of cancer awareness, understanding and addressing socioeconomic disparities in cancer help-seeking, lung cancer screening and smoking cessation among high-risk populations, and the impact of the pandemic on cancer attitudes and behaviours.
My research, teaching and leadership responsibilities are underpinned by my core values of inclusivity, integrity and collaboration.
Publication
2025
- Morgan, J. L. et al. 2025. Preferences for quality of life versus length of life in older women deciding about treatment for early breast cancer: A cross-sectional sub-analysis of the Bridging the Age Gap study. Journal of Geriatric Oncology 16(4), article number: 102226. (10.1016/j.jgo.2025.102226)
2024
- Smith, P. et al. 2024. Barriers and facilitators to engaging in smoking cessation support among lung screening participants. Nicotine & Tobacco Research 26(7), pp. 870-877. (10.1093/ntr/ntad245)
- Price, D., Brain, K., Dolwani, S., Edwards, A., Hood, K. and Smits, S. 2024. Perceptions of the impact of comorbidity on the Bowel Cancer Screening Programme: qualitative study with bowel screening participants and staff. Health Expectations 27(4), article number: e14126. (10.1111/hex.14126)
- Murray, R. L. et al. 2024. Uptake and 4-week quit rates from an opt-out co-located smoking cessation service delivered alongside community-based low-dose computed tomography screening within the Yorkshire Lung Screening Trial. European Respiratory Journal 63, article number: 2301768. (10.1183/13993003.01768-2023)
- Ali, O., Gupta, S., Brain, K., Lifford, K. J., Paranjothy, S. and Dolwani, S. 2024. Acceptability of alternative technologies compared with faecal immunochemical test and/or colonoscopy in colorectal cancer screening: A systematic review. Journal of Medical Screening 30(1), pp. 14-27. (10.1177/09691413221109999)
- Lifford, K. J. et al. 2024. Satisfaction with remote consultations in primary care during COVID-19: a population survey of UK adults. British Journal of General Practice 74(739), pp. e96-e103. (10.3399/BJGP.2023.0092)
2023
- Reilly, M. et al. 2023. Co-designing a recruitment strategy for lung cancer screening in high-risk individuals: protocol for a mixed-methods study. HRB Open Research 6(64) (10.12688/hrbopenres.13793.1)
- Patel, P., Bradley, S. H., McCutchan, G., Brain, K. and Redmond, P. 2023. What should the role of primary care be in lung cancer screening?. British Journal of General Practice 73(733), pp. 340-341. (10.3399/bjgp23X734397)
- O'Dowd, E. L. et al. 2023. Defining the road map to a UK national lung cancer screening programme. The Lancet Oncology 24(5), pp. E207-E218. (10.1016/S1470-2045(23)00104-3)
2022
- Jallow, M. et al. 2022. Decision support tools for low dose computed tomography (LDCT) lung cancer screening: a scoping review of information content, format, and presentation methods. Chest 162(4), pp. 930-941. (10.1016/j.chest.2021.12.638)
- Wyld, L. et al. 2022. Improving outcomes for women aged 70 years or above with early breast cancer: research programme including a cluster RCT. Programme Grants for Applied Research 10, article number: 6. (10.3310/XZOE2552)
- Anyanwu, P. et al. 2022. Health behaviour change among UK adults during the pandemic: findings from the COVID-19 Cancer Attitudes and Behaviours study. BMC Public Health 22, article number: 1437. (10.1186/s12889-022-13870-x)
- Marlow, L. A. V. et al. 2022. Multi-cancer early detection tests for cancer screening: a behavioural science perspective. The Lancet Oncology 23(7), pp. 837-839. (10.1016/s1470-2045(22)00161-9)
- Groves, S. et al. 2022. Attitudes towards the integration of smoking cessation into lung cancer screening in the United Kingdom: a qualitative study of individuals eligible to attend. Health Expectations 25(4), pp. 1703-1716. (10.1111/hex.13513)
- Jallow, M. et al. 2022. Acceptability of a standalone written leaflet for the National Health Service for England (NHSE) Targeted Lung Health Check Programme: A concurrent, think-aloud study. Health Expectations 25(4), pp. 1776-1788. (10.1111/hex.13520)
- Mazzaschi, F., Sivell, S., Byrne, A., Brain, K. and Powell, J. 2022. 43 Cognitive changes experienced by patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A17-A18., (10.1136/spcare-2021-MCRC.43)
- Quaife, S. L., Brain, K. E., Stevens, C., Kurtidu, C., Janes, S. M. and Walker, J. 2022. Development and psychometric testing of the self-regulatory questionnaire for lung cancer screening (SRQ-LCS). Psychology and Health 37(2), pp. 194-210. (10.1080/08870446.2021.1879806)
- Smith, P. et al. 2022. Protocol for a feasibility study of a cancer symptom awareness campaign to support the rapid diagnostic centre referral pathway in a socioeconomically deprived area: Targeted Intensive Community-based campaign To Optimise Cancer awareness (TIC-TOC). BMJ Open 12(10), article number: e063280. (10.1136/bmjopen-2022-063280)
2021
- Wilson, R. et al. 2021. Intentions to participate in cervical and colorectal cancer screening during the COVID-19 pandemic: a mixed-methods study. Preventive Medicine 153, article number: 106826. (10.1016/j.ypmed.2021.106826)
- Quaife, S. L. et al. 2021. Psychological targets for lung cancer screening uptake: a prospective longitudinal cohort study. Journal of Thoracic Oncology 16(12), pp. 2016-2028. (10.1016/j.jtho.2021.07.025)
- Field, J. K. et al. 2021. Results from the randomised UKLS trial: Lung cancer mortality reduction by LDCT screening confirmed in an international meta-analysis. The Lancet 10, article number: 100179. (10.1016/j.lanepe.2021.100179)
- Ranjit, A., McCutchan, G., Brain, K. and Poole, R. 2021. “That’s the whole thing about vaping, it’s custom tasty goodness”: a meta-ethnography of young adults’ perceptions and experiences of e-cigarette use. Substance Abuse Treatment, Prevention, and Policy 16, article number: 85. (10.1186/s13011-021-00416-4)
- Moriarty, Y. et al. 2021. Randomised controlled trial and economic evaluation of a targeted cancer awareness intervention for adults living in deprived areas of the UK. British Journal of Cancer 125, pp. 1100-1110. (10.1038/s41416-021-01524-5)
- Quinn-Scoggins, H. et al. 2021. Cancer symptom experience and help-seeking behaviour during the COVID-19 pandemic in the United Kingdom: a cross-sectional population survey. BMJ Open 11(9), article number: e053095. (10.1136/bmjopen-2021-053095)
- Mazzaschi, F., Sivell, S., Byrne, A., Brain, K., Powell, J. and Nelson, A. 2021. Everyday memory and processing alteration in patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 17th World Congress of the European Association for Palliative Care (EAPC 2021), Virtual, 06-08 October 2021Abstracts from the 17th World Congress of the EAPC 2021, Vol. 35. Vol. Issue. SAGE Publications pp. 76-77., (10.1177/02692163211035909)
- Round, T. et al. 2021. COVID-19 and the multi-disciplinary care of patients with lung cancer: an evidence-based review and commentary. British Journal of Cancer 125, pp. 629-640. (10.1038/s41416-021-01361-6)
- Holland-Hart, D. et al. 2021. Feasibility and acceptability of a community pharmacy referral service for suspected lung cancer symptoms. BMJ Open Respiratory Research 8(1), article number: e000772.
- Burton, M. et al. 2021. Process evaluation of the Bridging the Age Gap in Breast Cancer decision support intervention cluster randomised trial. Trials 22, article number: 447. (10.1186/s13063-021-05360-z)
- Holmes, G. R. et al. 2021. Cost-effectiveness modeling of surgery plus adjuvant endocrine therapy versus primary endocrine therapy alone in UK women aged 70 and over with early breast cancer. Value in Health 24(6), pp. 770-779. (10.1016/j.jval.2020.12.016)
- Wyld, L. et al. 2021. Bridging the age gap in breast cancer: cluster randomised trial of the effects of two decision support interventions for older women with operable breast cancer on quality-of-life, survival, decision quality and treatment choices. British Journal of Surgery 108(5), pp. 499-510. (10.1093/bjs/znab005)
- Quaife, S. L., Janes, S. M. and Brain, K. E. 2021. The person behind the nodule: a narrative review of the psychological impact of lung cancer screening. Translational Lung Cancer Research 10(5), pp. 2427-2440. (10.21037/tlcr-20-1179)
- Semedo, L., Lifford, K. J., Edwards, A., Seddon, K., Brain, K., Smits, S. and Dolwani, S. 2021. Development and user-testing of a brief decision aid for aspirin as a preventive approach alongside colorectal cancer screening.. BMC Medical Informatics and Decision Making 21, article number: 165. (10.1186/s12911-021-01523-9)
- Richards, R., Kinnersley, P., Brain, K. and Wood, F. 2021. Cancer Clinicians’ Views Regarding an App That Helps Patients With Cancer Meet Their Information Needs: Qualitative Interview Study. JMIR Cancer 7(2), article number: e23671. (10.2196/23671)
- Smith, P., Daniel, R., Murray, R. L., Moore, G., Nelson, A. and Brain, K. 2021. Psychosocial determinants of quit motivation in older smokers from deprived backgrounds: a cross-sectional survey. BMJ Open 11(5), article number: e044815. (10.1136/bmjopen-2020-044815)
- McCutchan, G. et al. 2021. Psychosocial influences on help-seeking behaviour for cancer in low income and lower-middle income countries: a mixed methods systematic review. BMJ Global Health 6(2), article number: e004213. (10.1136/bmjgh-2020-004213)
- Baldwin, D. R., Brain, K. and Quaife, S. 2021. Participation in lung cancer screening. Translational Lung Cancer Research 10(2), pp. 1091-1098. (10.21037/tlcr-20-917)
- Morgan, J. L. et al. 2021. Observational cohort study to determine the degree and causes of variation in the rate of surgery or primary endocrine therapy in older women with operable breast cancer. EJSO - European Journal of Surgical Oncology 47(2), pp. 261-268. (10.1016/j.ejso.2020.09.029)
2020
- Kolovou, V. et al. 2020. Recruitment and retention of participants from socioeconomically deprived communities: lessons from the awareness and beliefs about cancer (ABACus3) randomised controlled trial. BMC Medical Research Methodology 20, article number: 272. (10.1186/s12874-020-01149-x)
- Murray, R. L. et al. 2020. The Yorkshire Enhanced Stop Smoking study (YESS): a protocol for a randomised controlled trial to evaluate the effect of adding a personalised smoking cessation intervention to a lung cancer screening programme. BMJ Open 10(9), article number: e037086. (10.1136/bmjopen-2020-037086)
- Jones, D., Neal, R. D., Duffy, S. R. G., Scott, S. E., Whitaker, K. L. and Brain, K. 2020. Impact of the COVID-19 global pandemic on symptomatic diagnosis of cancer - the view from primary care. Lancet Oncology 21, pp. 748-750. (10.1016/S1470-2045(20)30242-4)
- McCutchan, G. et al. 2020. Evaluation of a national lung cancer symptom awareness campaign in Wales. British Journal of Cancer 122, pp. 491-497. (10.1038/s41416-019-0676-2)
2019
- Ranjit, A., Brain, K. and McCutchan, G. 2019. "All young and trendy people using them": An exploration of young adults' perceptions and reasons for using e-cigarettes. The British Student Doctor Journal 3(3), pp. 22-24. (10.18573/bsdj.121)
- Smith, P., Poole, R., Mann, M., Nelson, A., Moore, G. and Brain, K. 2019. Systematic review of behavioural smoking cessation interventions for older smokers from deprived backgrounds. BMJ Open 9(11), article number: e032727. (10.1136/bmjopen-2019-032727)
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102(10), pp. 1774-1785. (10.1016/j.pec.2019.07.016)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9(8), article number: e029485. (10.1136/bmjopen-2019-029485)
- Richards, R., Kinnersley, P., Brain, K., Staffurth, J. and Wood, F. 2019. The preferences of patients with cancer regarding an app to help them to meet their illness-related information needs: a qualitative interview study. JMIR mHealth and uHealth 7(7), article number: e14187. (10.2196/14187)
- McCutchan, G. et al. 2019. Engaging high-risk groups in early lung cancer diagnosis: a qualitative study of symptom presentation and intervention preferences amongst the UK’s most deprived communities. BMJ Open 9, article number: e025902. (10.1136/bmjopen-2018-025902)
- Lifford, K. J. et al. 2019. Efficient development and usability testing of decision support interventions for older women with breast cancer.. Patient Preference and Adherence 2019(13), pp. 131-143. (10.2147/PPA.S178347)
- Moriarty, Y. et al. 2019. Improving cancer symptom awareness and help-seeking among adults living in socioeconomically deprived communities in the UK using a facilitated health check: A protocol for the Awareness and Beliefs About Cancer (ABACus) Randomised Control Trial. BMC Public Health 19(1), article number: 285. (10.1186/s12889-019-6612-9)
2018
- Richards, R., Kinnersley, P., Brain, K., McCutchan, G., Staffurth, J. and Wood, F. 2018. Use of mobile devices to help cancer patients meet their information needs in non-inpatient settings: systematic review. JMIR mHealth and uHealth 6(12), article number: e10026. (10.2196/10026)
- Smits, S. E., McCutchan, G. M., Hanson, J. A. and Brain, K. E. 2018. Attitudes towards lung cancer screening in a population sample. Health Expectations 21(6), pp. 1150-1158. (10.1111/hex.12819)
- Stanciu, M. A. et al. 2018. Development of an intervention to expedite cancer diagnosis through primary care: a protocol. BJGP Open 2(3), article number: 18X101595. (10.3399/bjgpopen18X101595)
- Smits, S. et al. 2018. Development of a behaviour change intervention to encourage timely cancer symptom presentation among people living in deprived communities using the Behaviour Change Wheel. Annals of Behavioral Medicine 52(6), pp. 474-488. (10.1007/s12160-016-9849-x)
- Pedersen, A. F. et al. 2018. Negative cancer beliefs, recognition of cancer symptoms and anticipated time to help-seeking: an international cancer benchmarking partnership (ICBP) study. BMC Cancer 18(1), article number: 363. (10.1186/s12885-018-4287-8)
- Smith, P. et al. 2018. Feasibility and acceptability of a cancer symptom awareness intervention for adults living in socioeconomically deprived communities. BMC Public Health 18(1) (10.1186/s12889-018-5606-3)
2017
- Smits, S., Boivin, J., Menon, U. and Brain, K. E. 2017. Influences on anticipated time to ovarian cancer symptom presentation in women at increased risk compared to population risk of ovarian cancer. BMC Cancer 17(1), article number: 814. (10.1186/s12885-017-3835-y)
- Kinsey, K. et al. 2017. Patients' views on the use of an Option Grid for knee osteoarthritis in physiotherapy clinical encounters: an interview study. Health Expectations 20(6), pp. 1302-1310. (10.1111/hex.12570)
- Brain, K. et al. 2017. Impact of low-dose CT screening on smoking cessation among high-risk participants in the UK Lung Cancer Screening Trial. Thorax 72(10), pp. 912-918. (10.1136/thoraxjnl-2016-209690)
- Dunn, C. E., Edwards, A., Carter, B., Field, J. K., Brain, K. and Lifford, K. J. 2017. The role of screening expectations in modifying short-term psychological responses to low-dose computed tomography lung cancer screening among high-risk individuals. Patient Education and Counseling 100(8), pp. 1572-1579. (10.1016/j.pec.2017.02.024)
- Collins, K. et al. 2017. Bridging the age gap in breast cancer: evaluation of decision support interventions for older women with operable breast cancer: protocol for a cluster randomised controlled trial. BMJ Open 7(7), article number: e015133. (10.1136/bmjopen-2016-015133)
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357, article number: j1744. (10.1136/bmj.j1744)
- Williams, D., Davies, M., Fiander, A. N., Farewell, D., Hillier, S. and Brain, K. E. 2017. Women’s perspectives on human papillomavirus self-sampling in the context of the UK cervical screening programme. Health Expectations (10.1111/hex.12544)
- McCutchan, G., Wood, F., Edwards, A., Smits, S. and Brain, K. 2017. Development of a lung cancer awareness intervention targeted at socioeconomically deprived communities in Wales, UK. Presented at: IASLC 17th World Conference on Lung Cancer, Vienna, Austria, 4-6 Dec 2016. , (10.1016/j.jtho.2016.11.1992)
2016
- McCutchan, G., Wood, F., Smits, S., Edwards, A. and Brain, K. 2016. Barriers to cancer symptom presentation among people from low socioeconomic groups: a qualitative study. BMC Public Health 16(1), article number: 1052. (10.1186/s12889-016-3733-2)
- Davies, F. et al. 2016. The transition to secondary progressive multiple sclerosis: an exploratory qualitative study of health professionals' experiences. International Journal of MS Care 18(5), pp. 257-264. (10.7224/1537-2073.2015-062)
- Brain, K. et al. 2016. Long-term psychosocial outcomes of low dose computed tomography screening: results of the UK Lung Cancer Screening (UKLS) randomised controlled trial. Thorax 71(11), pp. 996-1005. (10.1136/thoraxjnl-2016-208283)
- Smits, S., Boivin, J., Menon, U. and Brain, K. 2016. The double-edged sword of ovarian cancer information for women at increased risk who have previously taken part in screening. Ecancermedicalscience 2016(10), article number: 650. (10.3332/ecancer.2016.650)
- Field, J. K. et al. 2016. The UK Lung Cancer Screening Trial: a pilot randomised controlled trial of low-dose computed tomography screening for the early detection of lung cancer. Health Technology Assessment 20(40) (10.3310/hta20400)
- Elwyn, G. et al. 2016. Supporting shared decision making using an Option Grid for osteoarthritis of the knee in an interface musculoskeletal clinic: a stepped wedge trial. Patient Education and Counseling 99(4), pp. 571-577. (10.1016/j.pec.2015.10.011)
- Field, J. K. et al. 2016. UK Lung Cancer RCT Pilot Screening Trial: baseline findings from the screening arm provide evidence for the potential implementation of lung cancer screening. Thorax 71(2), pp. 161-170. (10.1136/thoraxjnl-2015-207140)
2015
- Burton, M. et al. 2015. The information and decision support needs of older women (>75 yrs) facing treatment choices for breast cancer: a qualitative study. Psycho-Oncology 24(8), pp. 878-884. (10.1002/pon.3735)
- Davies, F. et al. 2015. "You are just left to get on with it": qualitative study of patient and carer experiences of the transition to secondary progressive multiple sclerosis. BMJ Open 5(7), article number: e007674. (10.1136/bmjopen-2015-007674)
- Ali, N. et al. 2015. Barriers to uptake among high-risk individuals declining participation in lung cancer screening: a mixed methods analysis of the UK Lung Cancer Screening (UKLS) trial. BMJ Open 5(7), article number: e008254. (10.1136/bmjopen-2015-008254)
- Lifford, K. et al. 2015. Understanding older women's decision making and coping in the context of breast cancer treatment. BMC Medical Informatics and Decision Making 15(1) (10.1186/s12911-015-0167-1)
- Quaife, S. L. et al. 2015. Socioeconomic inequalities in attitudes towards cancer. European Journal of Cancer Prevention 24(3), pp. 253-260. (10.1097/CEJ.0000000000000140)
2014
- Witt, J., Elwyn, G., Wood, F. C., Rogers, M., Menon, U. and Brain, K. E. 2014. Adapting the Coping in Deliberation (CODE) framework: A multi-method approach in the context of familial ovarian cancer risk management. Patient Education and Counseling 97(2), pp. 200-220. (10.1016/j.pec.2014.07.004)
- McRonald, F. E. et al. 2014. The UK Lung Screen (UKLS): demographic profile of first 88,897 approaches provides recommendations for population screening. Cancer Prevention Research 7(3), pp. 362-371. (10.1158/1940-6207.CAPR-13-0206)
- Quaife, S. L., Forbes, L. J. L., Ramirez, A. J., Brain, K. E., Donnelly, C., Simon, A. E. and Wardle, J. 2014. Recognition of cancer warning signs and anticipated delay in help-seeking in a population sample of adults in the UK. British Journal of Cancer 110(1), pp. 12-18. (10.1038/bjc.2013.684)
- Brain, K. et al. 2014. Ovarian cancer symptom awareness and anticipated delayed presentation in a population sample. BMC Cancer 14, article number: 171. (10.1186/1471-2407-14-171)
- Marrin, K. et al. 2014. Option Grids to facilitate shared decision making for patients with Osteoarthritis of the knee: protocol for a single site, efficacy trial. BMC Health Services Research 14, article number: 160. (10.1186/1472-6963-14-160)
2013
- Lifford, K. J., Clements, A., Fraser, L., Lancastle, D. and Brain, K. E. 2013. A qualitative study of women's experiences of familial ovarian cancer screening. Psycho-Oncology 22(11), pp. 2576-2584. (10.1002/pon.3324)
- Phelps, C., Bennett, P., Hood, K., Brain, K. E. and Murray, A. 2013. A self-help coping intervention can reduce anxiety and avoidant health behaviours whilst waiting for cancer genetic risk information: results of a phase III randomised trial. Psycho-Oncology 22(4), pp. 837-844. (10.1002/pon.3072)
- Lifford, K., Clements, A., Fraser, L., Lancastle, D. and Brain, K. E. 2013. Catalysts to withdrawal from familial ovarian cancer screening for surgery and reactions to discontinued screening: a qualitative study. Familial Cancer 12(1), pp. 19-26. (10.1007/s10689-012-9567-x)
- Forbes, L. J. L. et al. 2013. Differences in cancer awareness and beliefs between Australia, Canada, Denmark, Norway, Sweden and the UK (the International Cancer Benchmarking Partnership): do they contribute to differences in cancer survival?. British Journal of Cancer 108(2), pp. 292-300. (10.1038/bjc.2012.542)
2012
- Simon, A. E. et al. 2012. An international measure of awareness and beliefs about cancer: development and testing of the ABC. BMJ Open 2(6), pp. e001758. (10.1136/bmjopen-2012-001758)
- Brain, K. E. et al. 2012. Psychological outcomes of familial ovarian cancer screening: No evidence of long-term harm. Gynecologic Oncology 127(3), pp. 556-563. (10.1016/j.ygyno.2012.08.034)
- Field, J. K. et al. 2012. Authors' response. Thorax 68(1), pp. 105-105. (10.1136/thoraxjnl-2012-202442)
- Witt, J., Elwyn, G., Wood, F. C. and Brain, K. E. 2012. Decision making and coping in healthcare: the Coping in Deliberation (CODE) framework. Patient Education and Counseling 88(2), pp. 256-261. (10.1016/j.pec.2012.03.002)
- Brain, K. E. et al. 2012. Ovarian cancer symptom awareness and anticipated presentation in a population sample [Abstract]. Psychology and Health 27(s1), pp. 168-169. (10.1080/08870446.2012.707817)
- Bennett, P., Phelps, C., Hilgart, J., Hood, K., Brain, K. E. and Murray, A. 2012. Concerns and coping during cancer genetic risk assessment. Psycho-Oncology 21(6), pp. 611-617. (10.1002/pon.1938)
- Lifford, K. J. et al. 2012. Withdrawal from familial ovarian cancer screening for surgery: Findings from a psychological evaluation study (PsyFOCS). Gynecologic Oncology 124(1), pp. 158-163. (10.1016/j.ygyno.2011.09.015)
2011
- Brain, K. E., Parsons, E. P., Bennett, P., Cannings-John, R. L. and Hood, K. 2011. The evolution of worry after breast cancer risk assessment: 6-year follow-up of the TRACE study cohort. Psycho-Oncology 20(9), pp. 984-991. (10.1002/pon.1807)
- Lancastle, D., Brain, K. and Phelps, C. 2011. Illness representations and distress in women undergoing screening for familial ovarian cancer. Psychology and Health 26(12), pp. 1659-1677. (10.1080/08870446.2011.555544)
- Field, J. et al. 2011. Authors' response. Thorax 67(7), pp. 650. (10.1136/thoraxjnl-2011-200822)
- Field, J. K. et al. 2011. United Kingom lung cancer screening (UKLS) trial [Conference abstract]. Journal of Thoracic Oncology 6(6 S2), pp. 1382-1383. (10.1097/01.JTO.0000399290.73317.eb)
- Field, J. K. et al. 2011. CT screening for lung cancer in the UK: position statement by UKLS investigators following the NLST report. Thorax 66(8), pp. 736-737. (10.1136/thoraxjnl-2011-200351)
2010
- Bennett, P. D., Parsons, E. P., Brain, K. E. and Hood, K. 2010. Long-term cohort study of women at intermediate risk of familial breast cancer: experiences of living at risk. Psycho-Oncology 19(4), pp. 390-398. (10.1002/pon.1588)
- Hilgart, J., Phelps, C., Bennett, P., Hood, K., Brain, K. E. and Murray, A. 2010. "I have always believed I was at high risk.." The role of expectation in emotional responses to the receipt of an average, moderate or high cancer genetic risk assessment result: a thematic analysis of free-text questionnaire comments. Familial Cancer 9(3), pp. 469-477. (10.1007/s10689-010-9324-y)
- Brain, K. E. 2010. Screening and prevention. In: French, D. et al. eds. Health psychology. 2nd ed.. Oxford: Wiley Blackwell, pp. 220-232.
2009
- Phelps, C., Bennett, P., Jones, H., Hood, K., Brain, K. E. and Murray, A. 2009. The development of a cancer genetic-specific measure of coping: the GRACE. Psycho-Oncology 19(8), pp. 847-854. (10.1002/pon.1629)
2008
- Brain, K. E., Henderson, B., Tyndel, S., Bankhead, C., Watson, E., Clements, A. and Austoker, J. 2008. Predictors of cancer worry following mammography in younger women on a family history breast screening programme [Abstract]. Psychology and Health 23(S1), pp. 71. (10.1080/08870440802299543)
- Henderson, B. J., Tyndel, S., Brain, K. E., Clements, A., Bankhead, C., Austoker, J. and Watson, E. 2008. Factors associated with breast cancer-specific distress in younger women participating in a family history mammography screening programme. Psycho-Oncology 17(1), pp. 74-82. (10.1002/pon.1201)
- Brain, K. E., Henderson, B. J., Tyndel, S., Bankhead, C., Watson, E., Clements, A. and Austoker, J. 2008. Predictors of breast cancer-related distress following mammography screening in younger women on a family history breast screening programme. Psycho-Oncology 17(12), pp. 1180-1188. (10.1002/pon.1355)
- Bennett, P. D. et al. 2008. Psychological factors associated with emotional responses to receiving genetic risk information. Journal of Genetic Counseling 17(3), pp. 234-241. (10.1007/s10897-007-9136-x)
- Tyndel, S., Clements, A., Bankhead, C., Henderson, B. J., Brain, K. E., Watson, E. and Austoker, J. 2008. Mammographic screening for young women with a family history of breast cancer: knowledge and views of those at risk. British Journal of Cancer 99(7), pp. 1007-1012. (10.1038/sj.bjc.6604672)
- Phelps, C., Bennett, P. D. and Brain, K. E. 2008. Understanding emotional responses to breast/ovarian cancer genetic risk assessment: An applied test of a cognitive theory of emotion. Psychology, Health & Medicine 13(5), pp. 545-558. (10.1080/13548500701767346)
- Clements, A., Henderson, B. J., Tyndel, S., Evans, G., Brain, K. E., Austoker, J. and Watson, E. 2008. Diagnosed with breast cancer while on a family history screening programme: an exploratory qualitative study. European Journal of Cancer Care 17(3), pp. 245-252. (10.1111/j.1365-2354.2007.00837.x)
2007
- Bennett, P., Wilkinson, C. E., Turner, J., Griffith, G., France, B., Brain, K. E. and Gray, J. 2007. The impact of breast cancer genetic risk assessment on intentions to perform cancer surveillance behaviors. Journal of Genetic Counselling 16(5), pp. 617-623. (10.1007/s10897-007-9100-9)
- Tyndel, S., Austoker, J., Henderson, B. J., Brain, K. E., Bankhead, C., Clements, A. and Watson, E. K. 2007. What is the psychological Impact of mammographic screening on younger women with a family history of breast cancer? Findings from a prospective cohort study by the PIMMS Management Group. Journal of Clinical Oncology 25(25), pp. 3823-3830. (10.1200/JCO.2007.11.0437)
- Norman, P. and Brain, K. E. 2007. Does dispositional optimism predict psychological responses to counseling for familial breast cancer?. Journal of Psychosomatic Research 63(3), pp. 247-254. (10.1016/j.jpsychores.2007.03.011)
- Phelps, C., Wood, F. C., Bennett, P., Brain, K. E. and Gray, J. 2007. Knowledge and expectations of women undergoing cancer genetic risk assessment: a qualitative analysis of free-text questionnaire comments. Journal of Genetic Counselling 16(4), pp. 505-514. (10.1007/s10897-007-9086-3)
- Bennett, P. D., Phelps, C., Brain, K. E., Hood, K. and Gray, J. 2007. A randomised controlled trial of a brief self-help coping intervention designed to reduce distress when awaiting genetic risk information. Journal of psychosomatic research 63(1), pp. 59-64. (10.1016/j.jpsychores.2007.01.016)
- Iredale, R., Williams, B., Brain, K. E., France, E. and Gray, J. 2007. The information needs of men with breast cancer. British Journal of Nursing 16(9), pp. 540-544. (10.12968/bjon.2007.16.9.23432)
2006
- Iredale, R., Brain, K. E., Williams, B., France, E. and Gray, J. 2006. The experiences of men with breast cancer in the United Kingdom. European Journal of Cancer 42(3), pp. 334-341. (10.1016/j.ejca.2005.09.027)
- Brain, K. E., Williams, B., Iredale, R., France, E. and Gray, J. 2006. Psychological distress in men with breast cancer. Journal of Clinical Oncology 24(1), pp. 95-101. (10.1200/JCO.2006.10.064)
2005
- Brain, K. E. et al. 2005. An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clinical Genetics 68(3), pp. 255-261. (10.1111/j.1399-0004.2005.00491.x)
- Norman, P. and Brain, K. E. 2005. An application of an extended health belief model to the prediction of breast self-examination among women with a family history of breast cancer. British Journal of Health Psychology 10(1), pp. 1-16. (10.1348/135910704X24752)
2004
- Brain, K. E., Gravell, C., France, E., Fiander, A. and Gray, J. 2004. An exploratory qualitative study of women's perceptions of risk management options for familial ovarian cancer: implications for informed decision making. Gynecologic Oncology 92(3), pp. 905-913. (10.1016/j.ygyno.2003.12.019)
- Cohen, D. A., Barton, G., Gray, J. and Brain, K. E. 2004. Health economics and genetic service development: a familial cancer genetic example. Familial Cancer -Dordrecht- 3(1), pp. 61-67. (10.1023/b:fame.0000026812.87551.bf)
2003
- Iredale, R., Williams, B., Brain, K. E. and France, E. 2003. Breast cancer in men: group is exploring issues for men with breast cancer across the United Kingdom [Letter]. British Medical Journal 327(7420), pp. 930-931. (10.1136/bmj.327.7420.930-d)
- Brain, K. E., Soldan, J., Sampson, J. R. and Gray, J. 2003. Genetic counselling protocols for hereditary non-polyposis colorectal cancer: a survey of UK regional genetics centres.. Clinical Genetics 63(3), pp. 198-204. (10.1034/j.1399-0004.2003.00039.x)
- Williams, B. G., Iredale, R., Brain, K. E., France, E., Barrett-Lee, P. and Gray, J. 2003. Experiences of men with breast cancer: an exploratory focus group study. British Journal of Cancer 89(10), pp. 1834-1836. (10.1038/sj.bjc.6601305)
2002
- Brain, K. E., Norman, P., Gray, J., Rogers, C., Mansel, R. E. and Harper, P. 2002. A randomized trial of specialist genetic assessment: psychological impact on women at different levels of familial breast cancer risk. British Journal of Cancer 86(2), pp. 233-238. (10.1038/sj.bjc.6600051)
2000
- Brain, K. E. et al. 2000. Randomized trial of a specialist genetic assessment service for familial breast cancer. Journal of the National Cancer Institute 92(16), pp. 1345-1351. (10.1093/jnci/92.16.1345)
- Gray, J., Brain, K. E., Iredale, R., Alderman, J., France, E. and Hughes, H. 2000. A pilot study of telegenetics [Letter]. Journal of Telemedicine and Telecare 6(4), pp. 245-247. (10.1258/1357633001935329)
- Gray, J. et al. 2000. A model protocol evaluating the introduction of genetic assessment for women with a family history of breast cancer. Journal of Medical Genetics 37(3), pp. 192-196. (10.1136/jmg.37.3.192)
- Brain, K. E. et al. 2000. Why do women attend familial breast cancer clinics?. Journal of Medical Genetics 37(3), pp. 197-202. (10.1136/jmg.37.3.197)
1999
- France, L. et al. 1999. Genetic testing considerations in breast cancer patients. Journal of Genetic Counselling 8(5), pp. 289-299. (10.1023/A:1022982232213)
- Brain, K. E. et al. 1999. Provision of specialist genetic services for familial breast cancer in Wales: findings from the TRACE project. Journal of Medical Genetics 36(supp1), pp. S65-S65.
- Brain, K. E., Norman, P., Gray, J. and Mansel, R. E. 1999. Anxiety and adherence to breast self-examination in women with a family history of breast cancer. Psychosomatic Medicine 61(2), pp. 181-187.
Articles
- Morgan, J. L. et al. 2025. Preferences for quality of life versus length of life in older women deciding about treatment for early breast cancer: A cross-sectional sub-analysis of the Bridging the Age Gap study. Journal of Geriatric Oncology 16(4), article number: 102226. (10.1016/j.jgo.2025.102226)
- Smith, P. et al. 2024. Barriers and facilitators to engaging in smoking cessation support among lung screening participants. Nicotine & Tobacco Research 26(7), pp. 870-877. (10.1093/ntr/ntad245)
- Price, D., Brain, K., Dolwani, S., Edwards, A., Hood, K. and Smits, S. 2024. Perceptions of the impact of comorbidity on the Bowel Cancer Screening Programme: qualitative study with bowel screening participants and staff. Health Expectations 27(4), article number: e14126. (10.1111/hex.14126)
- Murray, R. L. et al. 2024. Uptake and 4-week quit rates from an opt-out co-located smoking cessation service delivered alongside community-based low-dose computed tomography screening within the Yorkshire Lung Screening Trial. European Respiratory Journal 63, article number: 2301768. (10.1183/13993003.01768-2023)
- Ali, O., Gupta, S., Brain, K., Lifford, K. J., Paranjothy, S. and Dolwani, S. 2024. Acceptability of alternative technologies compared with faecal immunochemical test and/or colonoscopy in colorectal cancer screening: A systematic review. Journal of Medical Screening 30(1), pp. 14-27. (10.1177/09691413221109999)
- Lifford, K. J. et al. 2024. Satisfaction with remote consultations in primary care during COVID-19: a population survey of UK adults. British Journal of General Practice 74(739), pp. e96-e103. (10.3399/BJGP.2023.0092)
- Reilly, M. et al. 2023. Co-designing a recruitment strategy for lung cancer screening in high-risk individuals: protocol for a mixed-methods study. HRB Open Research 6(64) (10.12688/hrbopenres.13793.1)
- Patel, P., Bradley, S. H., McCutchan, G., Brain, K. and Redmond, P. 2023. What should the role of primary care be in lung cancer screening?. British Journal of General Practice 73(733), pp. 340-341. (10.3399/bjgp23X734397)
- O'Dowd, E. L. et al. 2023. Defining the road map to a UK national lung cancer screening programme. The Lancet Oncology 24(5), pp. E207-E218. (10.1016/S1470-2045(23)00104-3)
- Jallow, M. et al. 2022. Decision support tools for low dose computed tomography (LDCT) lung cancer screening: a scoping review of information content, format, and presentation methods. Chest 162(4), pp. 930-941. (10.1016/j.chest.2021.12.638)
- Wyld, L. et al. 2022. Improving outcomes for women aged 70 years or above with early breast cancer: research programme including a cluster RCT. Programme Grants for Applied Research 10, article number: 6. (10.3310/XZOE2552)
- Anyanwu, P. et al. 2022. Health behaviour change among UK adults during the pandemic: findings from the COVID-19 Cancer Attitudes and Behaviours study. BMC Public Health 22, article number: 1437. (10.1186/s12889-022-13870-x)
- Marlow, L. A. V. et al. 2022. Multi-cancer early detection tests for cancer screening: a behavioural science perspective. The Lancet Oncology 23(7), pp. 837-839. (10.1016/s1470-2045(22)00161-9)
- Groves, S. et al. 2022. Attitudes towards the integration of smoking cessation into lung cancer screening in the United Kingdom: a qualitative study of individuals eligible to attend. Health Expectations 25(4), pp. 1703-1716. (10.1111/hex.13513)
- Jallow, M. et al. 2022. Acceptability of a standalone written leaflet for the National Health Service for England (NHSE) Targeted Lung Health Check Programme: A concurrent, think-aloud study. Health Expectations 25(4), pp. 1776-1788. (10.1111/hex.13520)
- Quaife, S. L., Brain, K. E., Stevens, C., Kurtidu, C., Janes, S. M. and Walker, J. 2022. Development and psychometric testing of the self-regulatory questionnaire for lung cancer screening (SRQ-LCS). Psychology and Health 37(2), pp. 194-210. (10.1080/08870446.2021.1879806)
- Smith, P. et al. 2022. Protocol for a feasibility study of a cancer symptom awareness campaign to support the rapid diagnostic centre referral pathway in a socioeconomically deprived area: Targeted Intensive Community-based campaign To Optimise Cancer awareness (TIC-TOC). BMJ Open 12(10), article number: e063280. (10.1136/bmjopen-2022-063280)
- Wilson, R. et al. 2021. Intentions to participate in cervical and colorectal cancer screening during the COVID-19 pandemic: a mixed-methods study. Preventive Medicine 153, article number: 106826. (10.1016/j.ypmed.2021.106826)
- Quaife, S. L. et al. 2021. Psychological targets for lung cancer screening uptake: a prospective longitudinal cohort study. Journal of Thoracic Oncology 16(12), pp. 2016-2028. (10.1016/j.jtho.2021.07.025)
- Field, J. K. et al. 2021. Results from the randomised UKLS trial: Lung cancer mortality reduction by LDCT screening confirmed in an international meta-analysis. The Lancet 10, article number: 100179. (10.1016/j.lanepe.2021.100179)
- Ranjit, A., McCutchan, G., Brain, K. and Poole, R. 2021. “That’s the whole thing about vaping, it’s custom tasty goodness”: a meta-ethnography of young adults’ perceptions and experiences of e-cigarette use. Substance Abuse Treatment, Prevention, and Policy 16, article number: 85. (10.1186/s13011-021-00416-4)
- Moriarty, Y. et al. 2021. Randomised controlled trial and economic evaluation of a targeted cancer awareness intervention for adults living in deprived areas of the UK. British Journal of Cancer 125, pp. 1100-1110. (10.1038/s41416-021-01524-5)
- Quinn-Scoggins, H. et al. 2021. Cancer symptom experience and help-seeking behaviour during the COVID-19 pandemic in the United Kingdom: a cross-sectional population survey. BMJ Open 11(9), article number: e053095. (10.1136/bmjopen-2021-053095)
- Round, T. et al. 2021. COVID-19 and the multi-disciplinary care of patients with lung cancer: an evidence-based review and commentary. British Journal of Cancer 125, pp. 629-640. (10.1038/s41416-021-01361-6)
- Holland-Hart, D. et al. 2021. Feasibility and acceptability of a community pharmacy referral service for suspected lung cancer symptoms. BMJ Open Respiratory Research 8(1), article number: e000772.
- Burton, M. et al. 2021. Process evaluation of the Bridging the Age Gap in Breast Cancer decision support intervention cluster randomised trial. Trials 22, article number: 447. (10.1186/s13063-021-05360-z)
- Holmes, G. R. et al. 2021. Cost-effectiveness modeling of surgery plus adjuvant endocrine therapy versus primary endocrine therapy alone in UK women aged 70 and over with early breast cancer. Value in Health 24(6), pp. 770-779. (10.1016/j.jval.2020.12.016)
- Wyld, L. et al. 2021. Bridging the age gap in breast cancer: cluster randomised trial of the effects of two decision support interventions for older women with operable breast cancer on quality-of-life, survival, decision quality and treatment choices. British Journal of Surgery 108(5), pp. 499-510. (10.1093/bjs/znab005)
- Quaife, S. L., Janes, S. M. and Brain, K. E. 2021. The person behind the nodule: a narrative review of the psychological impact of lung cancer screening. Translational Lung Cancer Research 10(5), pp. 2427-2440. (10.21037/tlcr-20-1179)
- Semedo, L., Lifford, K. J., Edwards, A., Seddon, K., Brain, K., Smits, S. and Dolwani, S. 2021. Development and user-testing of a brief decision aid for aspirin as a preventive approach alongside colorectal cancer screening.. BMC Medical Informatics and Decision Making 21, article number: 165. (10.1186/s12911-021-01523-9)
- Richards, R., Kinnersley, P., Brain, K. and Wood, F. 2021. Cancer Clinicians’ Views Regarding an App That Helps Patients With Cancer Meet Their Information Needs: Qualitative Interview Study. JMIR Cancer 7(2), article number: e23671. (10.2196/23671)
- Smith, P., Daniel, R., Murray, R. L., Moore, G., Nelson, A. and Brain, K. 2021. Psychosocial determinants of quit motivation in older smokers from deprived backgrounds: a cross-sectional survey. BMJ Open 11(5), article number: e044815. (10.1136/bmjopen-2020-044815)
- McCutchan, G. et al. 2021. Psychosocial influences on help-seeking behaviour for cancer in low income and lower-middle income countries: a mixed methods systematic review. BMJ Global Health 6(2), article number: e004213. (10.1136/bmjgh-2020-004213)
- Baldwin, D. R., Brain, K. and Quaife, S. 2021. Participation in lung cancer screening. Translational Lung Cancer Research 10(2), pp. 1091-1098. (10.21037/tlcr-20-917)
- Morgan, J. L. et al. 2021. Observational cohort study to determine the degree and causes of variation in the rate of surgery or primary endocrine therapy in older women with operable breast cancer. EJSO - European Journal of Surgical Oncology 47(2), pp. 261-268. (10.1016/j.ejso.2020.09.029)
- Kolovou, V. et al. 2020. Recruitment and retention of participants from socioeconomically deprived communities: lessons from the awareness and beliefs about cancer (ABACus3) randomised controlled trial. BMC Medical Research Methodology 20, article number: 272. (10.1186/s12874-020-01149-x)
- Murray, R. L. et al. 2020. The Yorkshire Enhanced Stop Smoking study (YESS): a protocol for a randomised controlled trial to evaluate the effect of adding a personalised smoking cessation intervention to a lung cancer screening programme. BMJ Open 10(9), article number: e037086. (10.1136/bmjopen-2020-037086)
- Jones, D., Neal, R. D., Duffy, S. R. G., Scott, S. E., Whitaker, K. L. and Brain, K. 2020. Impact of the COVID-19 global pandemic on symptomatic diagnosis of cancer - the view from primary care. Lancet Oncology 21, pp. 748-750. (10.1016/S1470-2045(20)30242-4)
- McCutchan, G. et al. 2020. Evaluation of a national lung cancer symptom awareness campaign in Wales. British Journal of Cancer 122, pp. 491-497. (10.1038/s41416-019-0676-2)
- Ranjit, A., Brain, K. and McCutchan, G. 2019. "All young and trendy people using them": An exploration of young adults' perceptions and reasons for using e-cigarettes. The British Student Doctor Journal 3(3), pp. 22-24. (10.18573/bsdj.121)
- Smith, P., Poole, R., Mann, M., Nelson, A., Moore, G. and Brain, K. 2019. Systematic review of behavioural smoking cessation interventions for older smokers from deprived backgrounds. BMJ Open 9(11), article number: e032727. (10.1136/bmjopen-2019-032727)
- Joseph-Williams, N. et al. 2019. A descriptive model of shared decision making derived from routine implementation in clinical practice ('Implement-SDM'): Qualitative study. Patient Education and Counseling 102(10), pp. 1774-1785. (10.1016/j.pec.2019.07.016)
- Williams, D. et al. 2019. The ability of observer and self-report measures to capture shared decision making in clinical practice in the United Kingdom: a mixed-methods study.. BMJ Open 9(8), article number: e029485. (10.1136/bmjopen-2019-029485)
- Richards, R., Kinnersley, P., Brain, K., Staffurth, J. and Wood, F. 2019. The preferences of patients with cancer regarding an app to help them to meet their illness-related information needs: a qualitative interview study. JMIR mHealth and uHealth 7(7), article number: e14187. (10.2196/14187)
- McCutchan, G. et al. 2019. Engaging high-risk groups in early lung cancer diagnosis: a qualitative study of symptom presentation and intervention preferences amongst the UK’s most deprived communities. BMJ Open 9, article number: e025902. (10.1136/bmjopen-2018-025902)
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- Moriarty, Y. et al. 2019. Improving cancer symptom awareness and help-seeking among adults living in socioeconomically deprived communities in the UK using a facilitated health check: A protocol for the Awareness and Beliefs About Cancer (ABACus) Randomised Control Trial. BMC Public Health 19(1), article number: 285. (10.1186/s12889-019-6612-9)
- Richards, R., Kinnersley, P., Brain, K., McCutchan, G., Staffurth, J. and Wood, F. 2018. Use of mobile devices to help cancer patients meet their information needs in non-inpatient settings: systematic review. JMIR mHealth and uHealth 6(12), article number: e10026. (10.2196/10026)
- Smits, S. E., McCutchan, G. M., Hanson, J. A. and Brain, K. E. 2018. Attitudes towards lung cancer screening in a population sample. Health Expectations 21(6), pp. 1150-1158. (10.1111/hex.12819)
- Stanciu, M. A. et al. 2018. Development of an intervention to expedite cancer diagnosis through primary care: a protocol. BJGP Open 2(3), article number: 18X101595. (10.3399/bjgpopen18X101595)
- Smits, S. et al. 2018. Development of a behaviour change intervention to encourage timely cancer symptom presentation among people living in deprived communities using the Behaviour Change Wheel. Annals of Behavioral Medicine 52(6), pp. 474-488. (10.1007/s12160-016-9849-x)
- Pedersen, A. F. et al. 2018. Negative cancer beliefs, recognition of cancer symptoms and anticipated time to help-seeking: an international cancer benchmarking partnership (ICBP) study. BMC Cancer 18(1), article number: 363. (10.1186/s12885-018-4287-8)
- Smith, P. et al. 2018. Feasibility and acceptability of a cancer symptom awareness intervention for adults living in socioeconomically deprived communities. BMC Public Health 18(1) (10.1186/s12889-018-5606-3)
- Smits, S., Boivin, J., Menon, U. and Brain, K. E. 2017. Influences on anticipated time to ovarian cancer symptom presentation in women at increased risk compared to population risk of ovarian cancer. BMC Cancer 17(1), article number: 814. (10.1186/s12885-017-3835-y)
- Kinsey, K. et al. 2017. Patients' views on the use of an Option Grid for knee osteoarthritis in physiotherapy clinical encounters: an interview study. Health Expectations 20(6), pp. 1302-1310. (10.1111/hex.12570)
- Brain, K. et al. 2017. Impact of low-dose CT screening on smoking cessation among high-risk participants in the UK Lung Cancer Screening Trial. Thorax 72(10), pp. 912-918. (10.1136/thoraxjnl-2016-209690)
- Dunn, C. E., Edwards, A., Carter, B., Field, J. K., Brain, K. and Lifford, K. J. 2017. The role of screening expectations in modifying short-term psychological responses to low-dose computed tomography lung cancer screening among high-risk individuals. Patient Education and Counseling 100(8), pp. 1572-1579. (10.1016/j.pec.2017.02.024)
- Collins, K. et al. 2017. Bridging the age gap in breast cancer: evaluation of decision support interventions for older women with operable breast cancer: protocol for a cluster randomised controlled trial. BMJ Open 7(7), article number: e015133. (10.1136/bmjopen-2016-015133)
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357, article number: j1744. (10.1136/bmj.j1744)
- Williams, D., Davies, M., Fiander, A. N., Farewell, D., Hillier, S. and Brain, K. E. 2017. Women’s perspectives on human papillomavirus self-sampling in the context of the UK cervical screening programme. Health Expectations (10.1111/hex.12544)
- McCutchan, G., Wood, F., Smits, S., Edwards, A. and Brain, K. 2016. Barriers to cancer symptom presentation among people from low socioeconomic groups: a qualitative study. BMC Public Health 16(1), article number: 1052. (10.1186/s12889-016-3733-2)
- Davies, F. et al. 2016. The transition to secondary progressive multiple sclerosis: an exploratory qualitative study of health professionals' experiences. International Journal of MS Care 18(5), pp. 257-264. (10.7224/1537-2073.2015-062)
- Brain, K. et al. 2016. Long-term psychosocial outcomes of low dose computed tomography screening: results of the UK Lung Cancer Screening (UKLS) randomised controlled trial. Thorax 71(11), pp. 996-1005. (10.1136/thoraxjnl-2016-208283)
- Smits, S., Boivin, J., Menon, U. and Brain, K. 2016. The double-edged sword of ovarian cancer information for women at increased risk who have previously taken part in screening. Ecancermedicalscience 2016(10), article number: 650. (10.3332/ecancer.2016.650)
- Field, J. K. et al. 2016. The UK Lung Cancer Screening Trial: a pilot randomised controlled trial of low-dose computed tomography screening for the early detection of lung cancer. Health Technology Assessment 20(40) (10.3310/hta20400)
- Elwyn, G. et al. 2016. Supporting shared decision making using an Option Grid for osteoarthritis of the knee in an interface musculoskeletal clinic: a stepped wedge trial. Patient Education and Counseling 99(4), pp. 571-577. (10.1016/j.pec.2015.10.011)
- Field, J. K. et al. 2016. UK Lung Cancer RCT Pilot Screening Trial: baseline findings from the screening arm provide evidence for the potential implementation of lung cancer screening. Thorax 71(2), pp. 161-170. (10.1136/thoraxjnl-2015-207140)
- Burton, M. et al. 2015. The information and decision support needs of older women (>75 yrs) facing treatment choices for breast cancer: a qualitative study. Psycho-Oncology 24(8), pp. 878-884. (10.1002/pon.3735)
- Davies, F. et al. 2015. "You are just left to get on with it": qualitative study of patient and carer experiences of the transition to secondary progressive multiple sclerosis. BMJ Open 5(7), article number: e007674. (10.1136/bmjopen-2015-007674)
- Ali, N. et al. 2015. Barriers to uptake among high-risk individuals declining participation in lung cancer screening: a mixed methods analysis of the UK Lung Cancer Screening (UKLS) trial. BMJ Open 5(7), article number: e008254. (10.1136/bmjopen-2015-008254)
- Lifford, K. et al. 2015. Understanding older women's decision making and coping in the context of breast cancer treatment. BMC Medical Informatics and Decision Making 15(1) (10.1186/s12911-015-0167-1)
- Quaife, S. L. et al. 2015. Socioeconomic inequalities in attitudes towards cancer. European Journal of Cancer Prevention 24(3), pp. 253-260. (10.1097/CEJ.0000000000000140)
- Witt, J., Elwyn, G., Wood, F. C., Rogers, M., Menon, U. and Brain, K. E. 2014. Adapting the Coping in Deliberation (CODE) framework: A multi-method approach in the context of familial ovarian cancer risk management. Patient Education and Counseling 97(2), pp. 200-220. (10.1016/j.pec.2014.07.004)
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- Quaife, S. L., Forbes, L. J. L., Ramirez, A. J., Brain, K. E., Donnelly, C., Simon, A. E. and Wardle, J. 2014. Recognition of cancer warning signs and anticipated delay in help-seeking in a population sample of adults in the UK. British Journal of Cancer 110(1), pp. 12-18. (10.1038/bjc.2013.684)
- Brain, K. et al. 2014. Ovarian cancer symptom awareness and anticipated delayed presentation in a population sample. BMC Cancer 14, article number: 171. (10.1186/1471-2407-14-171)
- Marrin, K. et al. 2014. Option Grids to facilitate shared decision making for patients with Osteoarthritis of the knee: protocol for a single site, efficacy trial. BMC Health Services Research 14, article number: 160. (10.1186/1472-6963-14-160)
- Lifford, K. J., Clements, A., Fraser, L., Lancastle, D. and Brain, K. E. 2013. A qualitative study of women's experiences of familial ovarian cancer screening. Psycho-Oncology 22(11), pp. 2576-2584. (10.1002/pon.3324)
- Phelps, C., Bennett, P., Hood, K., Brain, K. E. and Murray, A. 2013. A self-help coping intervention can reduce anxiety and avoidant health behaviours whilst waiting for cancer genetic risk information: results of a phase III randomised trial. Psycho-Oncology 22(4), pp. 837-844. (10.1002/pon.3072)
- Lifford, K., Clements, A., Fraser, L., Lancastle, D. and Brain, K. E. 2013. Catalysts to withdrawal from familial ovarian cancer screening for surgery and reactions to discontinued screening: a qualitative study. Familial Cancer 12(1), pp. 19-26. (10.1007/s10689-012-9567-x)
- Forbes, L. J. L. et al. 2013. Differences in cancer awareness and beliefs between Australia, Canada, Denmark, Norway, Sweden and the UK (the International Cancer Benchmarking Partnership): do they contribute to differences in cancer survival?. British Journal of Cancer 108(2), pp. 292-300. (10.1038/bjc.2012.542)
- Simon, A. E. et al. 2012. An international measure of awareness and beliefs about cancer: development and testing of the ABC. BMJ Open 2(6), pp. e001758. (10.1136/bmjopen-2012-001758)
- Brain, K. E. et al. 2012. Psychological outcomes of familial ovarian cancer screening: No evidence of long-term harm. Gynecologic Oncology 127(3), pp. 556-563. (10.1016/j.ygyno.2012.08.034)
- Field, J. K. et al. 2012. Authors' response. Thorax 68(1), pp. 105-105. (10.1136/thoraxjnl-2012-202442)
- Witt, J., Elwyn, G., Wood, F. C. and Brain, K. E. 2012. Decision making and coping in healthcare: the Coping in Deliberation (CODE) framework. Patient Education and Counseling 88(2), pp. 256-261. (10.1016/j.pec.2012.03.002)
- Brain, K. E. et al. 2012. Ovarian cancer symptom awareness and anticipated presentation in a population sample [Abstract]. Psychology and Health 27(s1), pp. 168-169. (10.1080/08870446.2012.707817)
- Bennett, P., Phelps, C., Hilgart, J., Hood, K., Brain, K. E. and Murray, A. 2012. Concerns and coping during cancer genetic risk assessment. Psycho-Oncology 21(6), pp. 611-617. (10.1002/pon.1938)
- Lifford, K. J. et al. 2012. Withdrawal from familial ovarian cancer screening for surgery: Findings from a psychological evaluation study (PsyFOCS). Gynecologic Oncology 124(1), pp. 158-163. (10.1016/j.ygyno.2011.09.015)
- Brain, K. E., Parsons, E. P., Bennett, P., Cannings-John, R. L. and Hood, K. 2011. The evolution of worry after breast cancer risk assessment: 6-year follow-up of the TRACE study cohort. Psycho-Oncology 20(9), pp. 984-991. (10.1002/pon.1807)
- Lancastle, D., Brain, K. and Phelps, C. 2011. Illness representations and distress in women undergoing screening for familial ovarian cancer. Psychology and Health 26(12), pp. 1659-1677. (10.1080/08870446.2011.555544)
- Field, J. et al. 2011. Authors' response. Thorax 67(7), pp. 650. (10.1136/thoraxjnl-2011-200822)
- Field, J. K. et al. 2011. United Kingom lung cancer screening (UKLS) trial [Conference abstract]. Journal of Thoracic Oncology 6(6 S2), pp. 1382-1383. (10.1097/01.JTO.0000399290.73317.eb)
- Field, J. K. et al. 2011. CT screening for lung cancer in the UK: position statement by UKLS investigators following the NLST report. Thorax 66(8), pp. 736-737. (10.1136/thoraxjnl-2011-200351)
- Bennett, P. D., Parsons, E. P., Brain, K. E. and Hood, K. 2010. Long-term cohort study of women at intermediate risk of familial breast cancer: experiences of living at risk. Psycho-Oncology 19(4), pp. 390-398. (10.1002/pon.1588)
- Hilgart, J., Phelps, C., Bennett, P., Hood, K., Brain, K. E. and Murray, A. 2010. "I have always believed I was at high risk.." The role of expectation in emotional responses to the receipt of an average, moderate or high cancer genetic risk assessment result: a thematic analysis of free-text questionnaire comments. Familial Cancer 9(3), pp. 469-477. (10.1007/s10689-010-9324-y)
- Phelps, C., Bennett, P., Jones, H., Hood, K., Brain, K. E. and Murray, A. 2009. The development of a cancer genetic-specific measure of coping: the GRACE. Psycho-Oncology 19(8), pp. 847-854. (10.1002/pon.1629)
- Brain, K. E., Henderson, B., Tyndel, S., Bankhead, C., Watson, E., Clements, A. and Austoker, J. 2008. Predictors of cancer worry following mammography in younger women on a family history breast screening programme [Abstract]. Psychology and Health 23(S1), pp. 71. (10.1080/08870440802299543)
- Henderson, B. J., Tyndel, S., Brain, K. E., Clements, A., Bankhead, C., Austoker, J. and Watson, E. 2008. Factors associated with breast cancer-specific distress in younger women participating in a family history mammography screening programme. Psycho-Oncology 17(1), pp. 74-82. (10.1002/pon.1201)
- Brain, K. E., Henderson, B. J., Tyndel, S., Bankhead, C., Watson, E., Clements, A. and Austoker, J. 2008. Predictors of breast cancer-related distress following mammography screening in younger women on a family history breast screening programme. Psycho-Oncology 17(12), pp. 1180-1188. (10.1002/pon.1355)
- Bennett, P. D. et al. 2008. Psychological factors associated with emotional responses to receiving genetic risk information. Journal of Genetic Counseling 17(3), pp. 234-241. (10.1007/s10897-007-9136-x)
- Tyndel, S., Clements, A., Bankhead, C., Henderson, B. J., Brain, K. E., Watson, E. and Austoker, J. 2008. Mammographic screening for young women with a family history of breast cancer: knowledge and views of those at risk. British Journal of Cancer 99(7), pp. 1007-1012. (10.1038/sj.bjc.6604672)
- Phelps, C., Bennett, P. D. and Brain, K. E. 2008. Understanding emotional responses to breast/ovarian cancer genetic risk assessment: An applied test of a cognitive theory of emotion. Psychology, Health & Medicine 13(5), pp. 545-558. (10.1080/13548500701767346)
- Clements, A., Henderson, B. J., Tyndel, S., Evans, G., Brain, K. E., Austoker, J. and Watson, E. 2008. Diagnosed with breast cancer while on a family history screening programme: an exploratory qualitative study. European Journal of Cancer Care 17(3), pp. 245-252. (10.1111/j.1365-2354.2007.00837.x)
- Bennett, P., Wilkinson, C. E., Turner, J., Griffith, G., France, B., Brain, K. E. and Gray, J. 2007. The impact of breast cancer genetic risk assessment on intentions to perform cancer surveillance behaviors. Journal of Genetic Counselling 16(5), pp. 617-623. (10.1007/s10897-007-9100-9)
- Tyndel, S., Austoker, J., Henderson, B. J., Brain, K. E., Bankhead, C., Clements, A. and Watson, E. K. 2007. What is the psychological Impact of mammographic screening on younger women with a family history of breast cancer? Findings from a prospective cohort study by the PIMMS Management Group. Journal of Clinical Oncology 25(25), pp. 3823-3830. (10.1200/JCO.2007.11.0437)
- Norman, P. and Brain, K. E. 2007. Does dispositional optimism predict psychological responses to counseling for familial breast cancer?. Journal of Psychosomatic Research 63(3), pp. 247-254. (10.1016/j.jpsychores.2007.03.011)
- Phelps, C., Wood, F. C., Bennett, P., Brain, K. E. and Gray, J. 2007. Knowledge and expectations of women undergoing cancer genetic risk assessment: a qualitative analysis of free-text questionnaire comments. Journal of Genetic Counselling 16(4), pp. 505-514. (10.1007/s10897-007-9086-3)
- Bennett, P. D., Phelps, C., Brain, K. E., Hood, K. and Gray, J. 2007. A randomised controlled trial of a brief self-help coping intervention designed to reduce distress when awaiting genetic risk information. Journal of psychosomatic research 63(1), pp. 59-64. (10.1016/j.jpsychores.2007.01.016)
- Iredale, R., Williams, B., Brain, K. E., France, E. and Gray, J. 2007. The information needs of men with breast cancer. British Journal of Nursing 16(9), pp. 540-544. (10.12968/bjon.2007.16.9.23432)
- Iredale, R., Brain, K. E., Williams, B., France, E. and Gray, J. 2006. The experiences of men with breast cancer in the United Kingdom. European Journal of Cancer 42(3), pp. 334-341. (10.1016/j.ejca.2005.09.027)
- Brain, K. E., Williams, B., Iredale, R., France, E. and Gray, J. 2006. Psychological distress in men with breast cancer. Journal of Clinical Oncology 24(1), pp. 95-101. (10.1200/JCO.2006.10.064)
- Brain, K. E. et al. 2005. An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clinical Genetics 68(3), pp. 255-261. (10.1111/j.1399-0004.2005.00491.x)
- Norman, P. and Brain, K. E. 2005. An application of an extended health belief model to the prediction of breast self-examination among women with a family history of breast cancer. British Journal of Health Psychology 10(1), pp. 1-16. (10.1348/135910704X24752)
- Brain, K. E., Gravell, C., France, E., Fiander, A. and Gray, J. 2004. An exploratory qualitative study of women's perceptions of risk management options for familial ovarian cancer: implications for informed decision making. Gynecologic Oncology 92(3), pp. 905-913. (10.1016/j.ygyno.2003.12.019)
- Cohen, D. A., Barton, G., Gray, J. and Brain, K. E. 2004. Health economics and genetic service development: a familial cancer genetic example. Familial Cancer -Dordrecht- 3(1), pp. 61-67. (10.1023/b:fame.0000026812.87551.bf)
- Iredale, R., Williams, B., Brain, K. E. and France, E. 2003. Breast cancer in men: group is exploring issues for men with breast cancer across the United Kingdom [Letter]. British Medical Journal 327(7420), pp. 930-931. (10.1136/bmj.327.7420.930-d)
- Brain, K. E., Soldan, J., Sampson, J. R. and Gray, J. 2003. Genetic counselling protocols for hereditary non-polyposis colorectal cancer: a survey of UK regional genetics centres.. Clinical Genetics 63(3), pp. 198-204. (10.1034/j.1399-0004.2003.00039.x)
- Williams, B. G., Iredale, R., Brain, K. E., France, E., Barrett-Lee, P. and Gray, J. 2003. Experiences of men with breast cancer: an exploratory focus group study. British Journal of Cancer 89(10), pp. 1834-1836. (10.1038/sj.bjc.6601305)
- Brain, K. E., Norman, P., Gray, J., Rogers, C., Mansel, R. E. and Harper, P. 2002. A randomized trial of specialist genetic assessment: psychological impact on women at different levels of familial breast cancer risk. British Journal of Cancer 86(2), pp. 233-238. (10.1038/sj.bjc.6600051)
- Brain, K. E. et al. 2000. Randomized trial of a specialist genetic assessment service for familial breast cancer. Journal of the National Cancer Institute 92(16), pp. 1345-1351. (10.1093/jnci/92.16.1345)
- Gray, J., Brain, K. E., Iredale, R., Alderman, J., France, E. and Hughes, H. 2000. A pilot study of telegenetics [Letter]. Journal of Telemedicine and Telecare 6(4), pp. 245-247. (10.1258/1357633001935329)
- Gray, J. et al. 2000. A model protocol evaluating the introduction of genetic assessment for women with a family history of breast cancer. Journal of Medical Genetics 37(3), pp. 192-196. (10.1136/jmg.37.3.192)
- Brain, K. E. et al. 2000. Why do women attend familial breast cancer clinics?. Journal of Medical Genetics 37(3), pp. 197-202. (10.1136/jmg.37.3.197)
- France, L. et al. 1999. Genetic testing considerations in breast cancer patients. Journal of Genetic Counselling 8(5), pp. 289-299. (10.1023/A:1022982232213)
- Brain, K. E. et al. 1999. Provision of specialist genetic services for familial breast cancer in Wales: findings from the TRACE project. Journal of Medical Genetics 36(supp1), pp. S65-S65.
- Brain, K. E., Norman, P., Gray, J. and Mansel, R. E. 1999. Anxiety and adherence to breast self-examination in women with a family history of breast cancer. Psychosomatic Medicine 61(2), pp. 181-187.
Book sections
- Brain, K. E. 2010. Screening and prevention. In: French, D. et al. eds. Health psychology. 2nd ed.. Oxford: Wiley Blackwell, pp. 220-232.
Conferences
- Mazzaschi, F., Sivell, S., Byrne, A., Brain, K. and Powell, J. 2022. 43 Cognitive changes experienced by patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022, Vol. 12. Vol. Supple. BMJ Publishing Group pp. A17-A18., (10.1136/spcare-2021-MCRC.43)
- Mazzaschi, F., Sivell, S., Byrne, A., Brain, K., Powell, J. and Nelson, A. 2021. Everyday memory and processing alteration in patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 17th World Congress of the European Association for Palliative Care (EAPC 2021), Virtual, 06-08 October 2021Abstracts from the 17th World Congress of the EAPC 2021, Vol. 35. Vol. Issue. SAGE Publications pp. 76-77., (10.1177/02692163211035909)
- McCutchan, G., Wood, F., Edwards, A., Smits, S. and Brain, K. 2017. Development of a lung cancer awareness intervention targeted at socioeconomically deprived communities in Wales, UK. Presented at: IASLC 17th World Conference on Lung Cancer, Vienna, Austria, 4-6 Dec 2016. , (10.1016/j.jtho.2016.11.1992)
Research
Current research projects and collaborations:
PRIME Centre Wales. This is a cross-Wales research infrastructure collaboration focusing on primary and emergency care, funded by Health and Care Research Wales .
Wales Cancer Research Centre. Funded by Health and Care Research Wales, we work with cancer patients and other partners to develop and deliver research excellence across Wales.
Supporting smokers attending for lung cancer screening in YORkshire to QUIT (YORQUIT). This is a cross-institution trial funded by Yorkshire Cancer Research and led by Nottingham University to test alternative ways of supporting smoking cessation among people taking part in lung cancer screening. Cardiff’s role in YORQUIT is to lead an embedded qualitative process evaluation study.
ThinkCancer! This is a cluster randomised controlled trial of a primary care intervention to support timely cancer diagnosis, led by the University of Bangor and funded by Cancer Research Wales.
PREPARE study. This is a CRUK-funded collaboration between researchers at Cardiff University, Queen Mary University of London, University of Southern Denmark and lay representatives exploring the communication and information needs of the public, patients, healthcare providers and policy makers regarding multi-cancer early detection (MCED) blood tests.
Teaching
I am responsible for delivering undergraduate medical education including MBBCh Case Based Learning, Personal Tutoring, Evidence Based Medicine tutorials, intercalated and Student Selected Component project supervision and assessment. I also deliver Masters in Public Health supervision and assessment.
Biography
I am experienced in leading and managing research teams, including screening, prevention and early diagnosis research spanning the Wales Cancer Research Centre and Primary and Emergency Care Research Centre. I chaired the Division’s EDI and Athena SWAN self-assessment team from 2017-20 and was Associate Director of the College of Biomedical and Life Science Population Health Research theme from 2020-23. Other senior roles include Cancer Research Strategy for Wales theme lead and Cardiff University Senate professorial membership (2021-25).
Committee and review work includes:
· Cancer Research UK Early Detection and Diagnosis Research Committee member since 2020
· UK Chair of the US/UK Multi-Cancer Early Detection Consortium Health Equity workgroup (2022-2025)
· European Code Against Cancer expert working group on Communication and Health Literacy, International Agency for Research in Cancer/World Health Organisation (2023-2024)
· Cancer Research Strategy for Wales theme lead
· NHS England Targeted Lung Health Check Programme Expert Advisory Group
· French National Cancer Institute Scientific Committee member
Professional memberships
- Full member of the British Psychological Society
- Chartered Health Psychologist and registered practitioner
- Qualification in Health Psychology (QHP) Stage II registered supervisor