![Martina Svobodova](https://profiles-cardiff.imgix.net/attachments/3660?w=200&h=200&auto=format&crop=faces&fit=crop&q=90")
Overview
I currently work as a Research Associate in the Centre for Trials Research. My main expertise lies in trial management with focus on setting up and managing phase II and phase III multicentre clinical trials. My research interests include promoting diversity and inclusion in research and public involvement as well as undertaking and improvement of the various clinical trial processes (particularly participant information sheet design) and exploring alternative ways of improving those via public involvement and art based approaches.
I am a study lead on the Talking Trials public involvement project exploring clinical trial perceptions amongst minority ethnic backgrounds with a current award funded by the ‘Rethinking public Dialogue UK Research Innovation experimentation fund. This project received high commendation in the Health and Care Research Wales Awards of 2021 (Public Involvement Award) and was a runner up for the same award in 2023.
I am also currently working on the PrinciPIL study looking at developing and testing participant information leaflets that inform and do not cause harm.
I chair the Centre for Trials Reseach Equality and Diversity committee and am a member of the CTR Public Involvement and Engagement Hub.
I also have a previous clinical experience in running Bipolar Education Programme Cymru (BEPC) groups. The development of the BEPC Programme included a high level of mental health service user and carers involvement.
Publication
2023
- Jacob, N. et al. 2023. Co-production of guidance and resources to implement principled participant information leaflets (PrinciPILs) [version 1; peer review: 2 approved with reservations]. NIHR Open Research 3 (10.3310/nihropenres.13423.1)
- Bridges, S. et al. 2023. Talking Trials: An arts‐based exploration of attitudes to clinical trials amongst minority ethnic members of the South Riverside Community of Cardiff. Health Expectations 26(3), pp. 1236-1245. (10.1111/hex.13740)
2022
- Svobodova, M. et al. 2022. Developing principles for sharing information about potential trial intervention benefits and harms with patients: report of a modified Delphi survey. Trials 23, article number: 863. (10.1186/s13063-022-06780-1)
2021
- Svobodova, M. et al. 2021. Developing core principles for sharing Information about potential intervention benefits and harms in patient information leaflets using a modified Delphi Survey. [Online]. OSF Preprints: OSF. (10.31219/osf.io/upnf4) Available at: https://osf.io/upnf4/
- Adamson, D. et al. 2021. Palliative radiotherapy after oesophageal cancer stenting (ROCS): a multicentre, open-label, phase 3 randomised controlled trial. Lancet Gastroenterology and Hepatology 6(4), pp. 292-303. (10.1016/S2468-1253(21)00004-2)
2018
- Sivarajasingam, V., Read, S., Svobodova, M., Wight, L. and Shepherd, J. 2018. Injury resulting from targeted violence: An emergency department perspective. Criminal Behaviour and Mental Health 28(3), pp. 295-308. (10.1002/cbm.2066)
2017
- Svobodova, M., Nixon, L. S., Blazeby, J., Byrne, A. and Adamson, D. 2017. Optimising trial recruitment with well-designed screening log: experiences from the ROCS study [Abstract]. Trials 18(S1), pp. 93-94. (10.1186/s13063-017-1902-y)
2015
- Amor, J. D., Svobodova, M., Jones, I. and James, C. J. 2015. Quantifying bipolar disorder for technology-assisted self-management. Presented at: World Congress on Medical Physics and Biomedical Engineering, Toronto, ON, Canada, 7-12 June 2015 Presented at Jaffray, D. A. ed.World Congress on Medical Physics and Biomedical Engineering, June 7-12, 2015, Toronto, Canada. IFMBE Proceedings, Vol. 51. Springer pp. 1397-1400., (10.1007/978-3-319-19387-8_340)
2013
- Tredget, J. and Svobodova, M. 2013. Group psycho-education for bipolar disorder. Nursing Times 109(5), pp. 21-23.
2010
- Sivarajasingam, V., Read, S. M., Svobodova, M., Wight, L. and Shepherd, J. P. 2010. Hate violence: emergency department perspective [Abstract]. Injury Prevention 16(Supp.1), pp. A151-A152. (10.1136/ip.2010.029215.543)
Articles
- Jacob, N. et al. 2023. Co-production of guidance and resources to implement principled participant information leaflets (PrinciPILs) [version 1; peer review: 2 approved with reservations]. NIHR Open Research 3 (10.3310/nihropenres.13423.1)
- Bridges, S. et al. 2023. Talking Trials: An arts‐based exploration of attitudes to clinical trials amongst minority ethnic members of the South Riverside Community of Cardiff. Health Expectations 26(3), pp. 1236-1245. (10.1111/hex.13740)
- Svobodova, M. et al. 2022. Developing principles for sharing information about potential trial intervention benefits and harms with patients: report of a modified Delphi survey. Trials 23, article number: 863. (10.1186/s13063-022-06780-1)
- Adamson, D. et al. 2021. Palliative radiotherapy after oesophageal cancer stenting (ROCS): a multicentre, open-label, phase 3 randomised controlled trial. Lancet Gastroenterology and Hepatology 6(4), pp. 292-303. (10.1016/S2468-1253(21)00004-2)
- Sivarajasingam, V., Read, S., Svobodova, M., Wight, L. and Shepherd, J. 2018. Injury resulting from targeted violence: An emergency department perspective. Criminal Behaviour and Mental Health 28(3), pp. 295-308. (10.1002/cbm.2066)
- Svobodova, M., Nixon, L. S., Blazeby, J., Byrne, A. and Adamson, D. 2017. Optimising trial recruitment with well-designed screening log: experiences from the ROCS study [Abstract]. Trials 18(S1), pp. 93-94. (10.1186/s13063-017-1902-y)
- Tredget, J. and Svobodova, M. 2013. Group psycho-education for bipolar disorder. Nursing Times 109(5), pp. 21-23.
- Sivarajasingam, V., Read, S. M., Svobodova, M., Wight, L. and Shepherd, J. P. 2010. Hate violence: emergency department perspective [Abstract]. Injury Prevention 16(Supp.1), pp. A151-A152. (10.1136/ip.2010.029215.543)
Conferences
- Amor, J. D., Svobodova, M., Jones, I. and James, C. J. 2015. Quantifying bipolar disorder for technology-assisted self-management. Presented at: World Congress on Medical Physics and Biomedical Engineering, Toronto, ON, Canada, 7-12 June 2015 Presented at Jaffray, D. A. ed.World Congress on Medical Physics and Biomedical Engineering, June 7-12, 2015, Toronto, Canada. IFMBE Proceedings, Vol. 51. Springer pp. 1397-1400., (10.1007/978-3-319-19387-8_340)
Websites
- Svobodova, M. et al. 2021. Developing core principles for sharing Information about potential intervention benefits and harms in patient information leaflets using a modified Delphi Survey. [Online]. OSF Preprints: OSF. (10.31219/osf.io/upnf4) Available at: https://osf.io/upnf4/
Research
My main research interest is addressing the ethical and methodological challenges around the inclusion of people from minority ethnic backgrounds in research. I currently lead on the Talking Trials project exploring how people from diverse ethnic communities can influence health research. Please get in touch if you wish to collaborate.
Project Grants
Talking Trials: participatory approaches to creating community dialogue (lead applicant, £59,880 Rethinking public dialogue: a UKRI experimentation fund)
Talking Trials: exploration of clinical trial perceptions amongst BAME communities (lead applicant, £7491.5, Wellcome Trust Institutional Strategic Support Fund Public Engagement Proof of Concept Award)
I have managed several cancer trials:
ROCS (Radiotherapy after Oesophageal Cancer Stenting) Study - Palliative radiotherapy in addition to self-expanding metal stent for improving dysphagia and survival in advanced oesophageal cancer -
CORINTH - Phase 1b/II trial of Checkpoint InhibitoR (Pembrolizumab an anti PD-1 antibody) plus standard IMRT in HPV induced stage III Squamous Cell carcinoma (SCC) of anus
PEARL - PET based adaptive radiotherapy in locally advance HPV positive oropharyngeal cancer
Biography
Education
2003: Master of Arts (Social Anthropology), University of West Bohemia, Faculty of Philosophy and Arts, The Czech Republic
2001: BA (Social Anthropology), University of West Bohemia, Faculty of Philosophy and Arts, The Czech Republic
Career overview
2015 - present: Trial Manager/Research Associate, Centre for Trials Research, Cardiff University
2011 - 2015: Bipolar Education Programme Cymru Project Coordinator, Cardiff University
2010 - 2011: Beacon for Wales Programme Officer, Cardiff University
2009 - 2010: Reseach Assistant (Applied Clinical Research and Public Health), Cardiff University
2007 - 2009 Volunteering Project Manager, BAWSO Women's Aid, Cardiff
Honours and awards
The Talking Trials project was received High commendation in the Health and Care Research Wales Awards of 2021 (Public Involvement Award).
Innnovation in Health Care Award for the Bipolar Education Programme Cymru at the 6th Annual British Medical Journal Awards 2014 (as a member of the Bipolar Education Programme team)
Research themes
Specialisms
- creative methods
- clinical trials
- equality
- public involvement