Dr Sofia Vougioukalou
(she/her)
- Available for postgraduate supervision
Teams and roles for Sofia Vougioukalou
Research Fellow, CARE
Overview
I am a Research Fellow at the Centre for Adult Social Care Research (CARE) and the Public Involvement and Engagement Lead for the Division of Population Health and Social Care at the Centre for Trials Research. Within CARE I am the academic lead for public involvement and I also lead the thematic group on dementia.
I am an associate editor at the Arts & Health journal, co-convenor of the Migration, Ethinicity and Diversity (MEAD) research group and sit on the leadership team of the Wellbeing Research Network of the Wales Institute for Social and Economic Research and Data (WISERD). I am also a member of the Health and Care Research Wales Equality Diversity and Inclusion Advisory Group and the All Wales Deaf Mental Health and Wellbeing working group. In 2021, I was the recipient of the Dementia Friendly Wales Diversity Award by the Alzheimer's Society Wales and the Public Involvement Award by Health and Care Research Wales. In 2022, I received the Celebrating Excellence Award in Civic Mission by Cardiff University. In 2023, I received a Highly Meritorious Award for my work in Science, Technology and Healthcare by the Ethnic Minority Welsh Women Achievement Association. In 2025 I was selected to be part of the GW4 Crucible cohort on Creative Societies and Cultures, Cultural and Public Good?
I have expertise in the following five areas:
- Health inequalities and engaging under-represented groups in research
- Public involvement and co-production
- Quality improvement in health and social care
- Ethnographic and participatory methodologies
- Arts and health and creative methodologies
Publication
2025
- Butcher, L. , Vougioukalou, S. and Clouston, T. 2025. Emotional intelligence and cognitive flexibility are key influences in enabling staff to uphold human rights values for people living with dementia in care homes. Dementia: The International Journal of Social Research and Practice (10.1177/14713012251392304)
- Garner, S. et al., 2025. Editorial: Migration, ethnicity, race and diversity in a post-Brexit and pandemic Britain. Frontiers in Sociology 10 1563314. (https://doi.org/10.3389/fsoc.2025.1563314)
- Holt, N. , Vougioukalou, S. and Chatterjee, H. 2025. The arts in social prescribing. In: Holt, N. et al., Routledge Handbook of Arts and Health. Routledge
- Tierney, S. et al., 2025. Digging for literature on tailoring cultural offers with and for older people from ethnic minority groups: A scoping review. Lifestyle Medicine 6 (1) e70004. (10.1002/lim2.70004)
2024
- Tseliou, F. et al. 2024. Engaging young carers in public health research through online lyric writing workshops during the COVID-19 pandemic. International Journal of Adolescence and Youth 29 (1) 2387102. (10.1080/02673843.2024.2387102)
2023
- Vougioukalou, S. 2023. Communicable disease service mapping for refugees and asylum seekers in Wales: An assessment of existing provision and identification of barriers to accessing services. Project Report.[Online].Cardiff: Cardiff University. Available at: https://blogs.cardiff.ac.uk/centre-for-trials-research/wp-content/uploads/sites/499/2024/06/RAS-CD-service-mapping_report_final.pdf.
2022
- Featherstone, K. et al., 2022. Understanding approaches to continence care for people living with dementia in acute hospital settings: an ethnographic study. Health and Social Care Delivery Research 10 14. (10.3310/QUVV2680)
- Vougioukalou, S. 2022. Research briefing on equality, diversity and inclusion in arts and health. Other. Cardiff: Cardiff University. Available at: https://ylab.wales/HARP/researchbriefings.
- Vougioukalou, S. 2022. Research briefing on social prescribing and arts and health. Other. Cardiff: Cardiff University. Available at: https://ylab.wales/sites/default/files/2022-10/HARP%20research%20briefing6_social%20prescribing%281%29.pdf.
- Vougioukalou, S. and Benson, J. 2022. Next of Kin: D/deaf communication, dementia care and family in hospital settings. [Video]. YouTube: Cardiff University. Available at: https://www.youtube.com/watch?v=RImvuBAcr0w&list=PLEPkwdTAlW1Hs7vaTZ7Fg4Y7MZKMQ3hiE&index=2.
2021
- Saltus, R. , Duval, S. and Vougioukalou, S. 2021. Leave no-one behind: Improving pathways to dementia information, early assessment, and support for older people from minoritised and racialised backgrounds in Wales. Working paper. Diverse Cymru. Available at: https://diversecymru.org.uk/wp-content/uploads/2023/02/Leave-No-one-Behind.pdf.
- Vougioukalou, S. and Benson, J. 2021. Back in the closet: Homophobia, human rights and organisational cultures of dementia care. [Video]. YouTube: Cardiff University. Available at: https://vimeo.com/524794178.
- Vougioukalou, S. and Benson, J. 2021. More time: Cultural competence and person-centred dementia care in community settings. [Video]. YouTube: Cardiff University and Higher Education Funding Council for Wales. Available at: https://www.youtube.com/watch?v=Tv0Jlu0o_30.
2019
- Jones, U. et al. 2019. Exploration of a co-production approach to developing a walking group with people with Huntington's Disease. Med One 4 e190022. (10.20900/mo.20190022)
- Vougioukalou, S. 2019. Illness narratives: collecting. In: Atkinson, P. et al., The SAGE Encyclopedia of Research Methods. SAGE
- Vougioukalou, S. et al. 2019. The contribution of ethnography to the evaluation of quality improvement in hospital settings: reflections on observing co-design in intensive care units and lung cancer pathways. Anthropology and Medicine 26 (1), pp.18-32. (10.1080/13648470.2018.1507104)
- Vougioukalou, S. et al. 2019. Wellbeing and integration through community music: the role of improvisation in a music group of refugees, asylum seekers and local community members. Contemporary Music Review 38 (5), pp.533-548. (10.1080/07494467.2019.1684075)
2018
- Kelly, D. et al. 2018. Heteronormativity and prostate cancer: a discursive paper. Journal of Clinical Nursing. 27 (1-2), pp.461-467. (10.1111/jocn.13844)
2017
- Cook, T. et al., 2017. Accessing participatory research impact and legacy: developing the evidence base for participatory approaches in health research. Educational Action Research 25 , pp.473-488. (10.1080/09650792.2017.1326964)
- Kelly, D. M. and Vougioukalou, S. 2017. The impact of cancer treatment on sexuality and relationships for teenage and young adult cancer survivors. In: Reisman, Y. and Gianotten, W. L. eds. Cancer, Intimacy and Sexuality: a Practical Approach. Springer. , pp.249-256.
2016
- Boaz, A. et al., 2016. What patients do and their impact on implementation. Journal of Health Organisation and Management 30 (2), pp.258-278. (10.1108/JHOM-02-2015-0027)
2015
- Jones, A. et al. 2015. Research into nurse staffing levels in Wales. Project Report.[Online].Cardiff: Welsh Government. Available at: http://gov.wales/statistics-and-research/research-into-nurse-staffing-levels-wales/?lang=en.
- Kelly, D. and Vougioukalou, S. 2015. Dying at the wrong age: professional's experiences of witnessing young people transitioning from curative to palliative care.. Presented at: Inaugural International Adolescent and Young Adult Oncology Congress Sydney, Australia 3-5 December 2015.
2014
- Locock, L. et al., 2014. Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement. Health Services and Delivery Research 2 (4), pp.1-69. (10.3310/hsdr02040)
- Locock, L. et al., 2014. Using a national archive of patient experience narratives to promote local patient-centered quality improvement: an ethnographic process evaluation of 'accelerated' experience-based co-design. Journal of Health Services Research and Policy 19 (4), pp.200-207. (10.1177/1355819614531565)
- Vougioukalou, S. et al. 2014. The contribution of ethnobiology to teaching plant sciences: student and faculty perspectives. In: Quave, C. L. ed. Innovative Strategies for Teaching in the Plant Sciences. New York, NY: Springer. , pp.33-45. (10.1007/978-1-4939-0422-8_3)
2013
- Vougioukalou, S. 2013. Local conservation at your doorstep: homegardens and family traditions. In: Larrue, S. , Graves, M. and Collectif, .. eds. Biodiversity and Societies in the Pacific Islands. Confluent des sciences, Série sciences d'aujourd'hui Aix-en Provence: Presses Universitaires de Provence. , pp.223-244.
2012
- Vougioukalou, S. 2012. An interview with Elisabeth Hsu on plants, health and healing: on the interface of ethnobotany and medical anthropology. Ethnobiology Letters 3 , pp.91-95. (10.14237/ebl.3.2012.55)
- Vougioukalou, S. and Hibberd, P. 2012. Flexible, immediate support and signposting. Journal of Dementia Care 20 (5), pp.12-13.
2010
- Vougioukalou, S. 2010. Responding to the 'big society': flexible curriculum development for the voluntary sector. Presented at: University Vocational Awards Council Annual Conference York, England 11-12 November 2010. Published in: University Vocational Awards Council, .. ed. The Future Agenda for Higher Level Skills and Work-Based Learning Seminar Papers from the University Vocational Awards Council Annual Conference. Bolton: University Vocational Awards Council. , pp.35-46.
Articles
- Boaz, A. et al., 2016. What patients do and their impact on implementation. Journal of Health Organisation and Management 30 (2), pp.258-278. (10.1108/JHOM-02-2015-0027)
- Butcher, L. , Vougioukalou, S. and Clouston, T. 2025. Emotional intelligence and cognitive flexibility are key influences in enabling staff to uphold human rights values for people living with dementia in care homes. Dementia: The International Journal of Social Research and Practice (10.1177/14713012251392304)
- Cook, T. et al., 2017. Accessing participatory research impact and legacy: developing the evidence base for participatory approaches in health research. Educational Action Research 25 , pp.473-488. (10.1080/09650792.2017.1326964)
- Featherstone, K. et al., 2022. Understanding approaches to continence care for people living with dementia in acute hospital settings: an ethnographic study. Health and Social Care Delivery Research 10 14. (10.3310/QUVV2680)
- Garner, S. et al., 2025. Editorial: Migration, ethnicity, race and diversity in a post-Brexit and pandemic Britain. Frontiers in Sociology 10 1563314. (https://doi.org/10.3389/fsoc.2025.1563314)
- Jones, U. et al. 2019. Exploration of a co-production approach to developing a walking group with people with Huntington's Disease. Med One 4 e190022. (10.20900/mo.20190022)
- Kelly, D. et al. 2018. Heteronormativity and prostate cancer: a discursive paper. Journal of Clinical Nursing. 27 (1-2), pp.461-467. (10.1111/jocn.13844)
- Locock, L. et al., 2014. Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement. Health Services and Delivery Research 2 (4), pp.1-69. (10.3310/hsdr02040)
- Locock, L. et al., 2014. Using a national archive of patient experience narratives to promote local patient-centered quality improvement: an ethnographic process evaluation of 'accelerated' experience-based co-design. Journal of Health Services Research and Policy 19 (4), pp.200-207. (10.1177/1355819614531565)
- Tierney, S. et al., 2025. Digging for literature on tailoring cultural offers with and for older people from ethnic minority groups: A scoping review. Lifestyle Medicine 6 (1) e70004. (10.1002/lim2.70004)
- Tseliou, F. et al. 2024. Engaging young carers in public health research through online lyric writing workshops during the COVID-19 pandemic. International Journal of Adolescence and Youth 29 (1) 2387102. (10.1080/02673843.2024.2387102)
- Vougioukalou, S. 2012. An interview with Elisabeth Hsu on plants, health and healing: on the interface of ethnobotany and medical anthropology. Ethnobiology Letters 3 , pp.91-95. (10.14237/ebl.3.2012.55)
- Vougioukalou, S. et al. 2019. The contribution of ethnography to the evaluation of quality improvement in hospital settings: reflections on observing co-design in intensive care units and lung cancer pathways. Anthropology and Medicine 26 (1), pp.18-32. (10.1080/13648470.2018.1507104)
- Vougioukalou, S. et al. 2019. Wellbeing and integration through community music: the role of improvisation in a music group of refugees, asylum seekers and local community members. Contemporary Music Review 38 (5), pp.533-548. (10.1080/07494467.2019.1684075)
- Vougioukalou, S. and Hibberd, P. 2012. Flexible, immediate support and signposting. Journal of Dementia Care 20 (5), pp.12-13.
Book sections
- Holt, N. , Vougioukalou, S. and Chatterjee, H. 2025. The arts in social prescribing. In: Holt, N. et al., Routledge Handbook of Arts and Health. Routledge
- Kelly, D. M. and Vougioukalou, S. 2017. The impact of cancer treatment on sexuality and relationships for teenage and young adult cancer survivors. In: Reisman, Y. and Gianotten, W. L. eds. Cancer, Intimacy and Sexuality: a Practical Approach. Springer. , pp.249-256.
- Vougioukalou, S. 2019. Illness narratives: collecting. In: Atkinson, P. et al., The SAGE Encyclopedia of Research Methods. SAGE
- Vougioukalou, S. 2013. Local conservation at your doorstep: homegardens and family traditions. In: Larrue, S. , Graves, M. and Collectif, .. eds. Biodiversity and Societies in the Pacific Islands. Confluent des sciences, Série sciences d'aujourd'hui Aix-en Provence: Presses Universitaires de Provence. , pp.223-244.
- Vougioukalou, S. et al. 2014. The contribution of ethnobiology to teaching plant sciences: student and faculty perspectives. In: Quave, C. L. ed. Innovative Strategies for Teaching in the Plant Sciences. New York, NY: Springer. , pp.33-45. (10.1007/978-1-4939-0422-8_3)
Conferences
- Kelly, D. and Vougioukalou, S. 2015. Dying at the wrong age: professional's experiences of witnessing young people transitioning from curative to palliative care.. Presented at: Inaugural International Adolescent and Young Adult Oncology Congress Sydney, Australia 3-5 December 2015.
- Vougioukalou, S. 2010. Responding to the 'big society': flexible curriculum development for the voluntary sector. Presented at: University Vocational Awards Council Annual Conference York, England 11-12 November 2010. Published in: University Vocational Awards Council, .. ed. The Future Agenda for Higher Level Skills and Work-Based Learning Seminar Papers from the University Vocational Awards Council Annual Conference. Bolton: University Vocational Awards Council. , pp.35-46.
Monographs
- Jones, A. et al. 2015. Research into nurse staffing levels in Wales. Project Report.[Online].Cardiff: Welsh Government. Available at: http://gov.wales/statistics-and-research/research-into-nurse-staffing-levels-wales/?lang=en.
- Saltus, R. , Duval, S. and Vougioukalou, S. 2021. Leave no-one behind: Improving pathways to dementia information, early assessment, and support for older people from minoritised and racialised backgrounds in Wales. Working paper. Diverse Cymru. Available at: https://diversecymru.org.uk/wp-content/uploads/2023/02/Leave-No-one-Behind.pdf.
- Vougioukalou, S. 2023. Communicable disease service mapping for refugees and asylum seekers in Wales: An assessment of existing provision and identification of barriers to accessing services. Project Report.[Online].Cardiff: Cardiff University. Available at: https://blogs.cardiff.ac.uk/centre-for-trials-research/wp-content/uploads/sites/499/2024/06/RAS-CD-service-mapping_report_final.pdf.
- Vougioukalou, S. 2022. Research briefing on equality, diversity and inclusion in arts and health. Other. Cardiff: Cardiff University. Available at: https://ylab.wales/HARP/researchbriefings.
- Vougioukalou, S. 2022. Research briefing on social prescribing and arts and health. Other. Cardiff: Cardiff University. Available at: https://ylab.wales/sites/default/files/2022-10/HARP%20research%20briefing6_social%20prescribing%281%29.pdf.
Videos
- Vougioukalou, S. and Benson, J. 2021. Back in the closet: Homophobia, human rights and organisational cultures of dementia care. [Video]. YouTube: Cardiff University. Available at: https://vimeo.com/524794178.
- Vougioukalou, S. and Benson, J. 2021. More time: Cultural competence and person-centred dementia care in community settings. [Video]. YouTube: Cardiff University and Higher Education Funding Council for Wales. Available at: https://www.youtube.com/watch?v=Tv0Jlu0o_30.
- Vougioukalou, S. and Benson, J. 2022. Next of Kin: D/deaf communication, dementia care and family in hospital settings. [Video]. YouTube: Cardiff University. Available at: https://www.youtube.com/watch?v=RImvuBAcr0w&list=PLEPkwdTAlW1Hs7vaTZ7Fg4Y7MZKMQ3hiE&index=2.
Research
Active studies
Co-investigator and public involvement lead for Tailoring cultural offers with and for diverse older users of social prescribing (TOUS): A realist evaluation, a UKRI MRC-funded study lead by the University of Oxford.
Co-lead for 'Innovating Assistive Tech for Dementia: Understanding and Empowering Underrepresented Communities in Social Care' project with Dr Roser Beneito-Montagut, funded by the Wales Innovation Network.
I have also completed dissemination work for a British Academy Innovation Fellowship exploring the policy links of creative social prescribing for older people experiencing dementia and social isolation.I was previously researching the processes of embedding innovation through creativity in health and social care settings as part of the Health Arts Research People (HARP) programme.
I was the lead researcher in Y Lab's Health, Arts, Research and People (HARP) programme. In this programme, I am researching the process and impact of embedding innovation within arts and health practice in 17 teams across Wales. I also convene the Public Involvement and Patient Experience in arts and health Research (PIPER) group which provides the service user voice of expertise to our research and innovation programme.
https://ylab.wales/HARP/researchbriefings
https://ylab.wales/new-public-involvement-group-arts-and-health-research
The Dementia and Diversity project was funded by HEFCW and looked at the dementia care experiences of under-represent groups in relation to ethnicity, disability and sexuality. Three performances were developed with public involvement input to communicate the dementia care experiences of D/deaf, ethnic minority and gay communities.
https://ylab.wales/research/dementia-and-diversity
https://ylab.wales/using-drama-improve-equalities-dementia-care
Teaching
I am currently in a research-only post and I deliver guest lectures on arts and health, dementia and health inequalities and social prescribing.
Biography
I have expertise in arts and health, health inequalities, chronic conditions, public involvement and co-production. I have a particular interest in the different ways that creative social prescribing can contribute to the wellbeing of older people from under-represented groups. I use ethnographic, participatory and creative methods (such as participant observation, Experience-based Co-design, Appreciative Enquiry, Liberating Structures, photo and video elicitation, collaging) to understand older people’s experiences of illness, treatment and wellbeing, e.g. cancer, dementia, Huntingdon’s Disease. I use public involvement and engagement to identify culturally-appropriate ways to enhance the engagement of service users in research and impact activities. My goal is to contribute to the delivery of speedier inexpensive innovation in older people’s health and social care services through engaged research.
I am currently developing new research bids in the field of adult social care with the aim to address the unmet needs of older people living with chronic conditions in the community and in care homes.
My PhD examined lay understandings of illness and medicinal plant use amongst patients receiving medical care within a range of cultures. I used an ethnobiological approach which is an interdisciplinary methodology combining anthropology and biology that seeks to bridge cultural and biomedical understandings of biological processes. My research programme builds on this and uses qualitative, quantitative and visual methodologies to understand how do patients, carers and healthcare professionals make sense of chronic illness and service provision in the NHS.
Honours and awards
Awards
2023: Highly Meritorious Contribution Award in Science, Healthcare and Technology, Ethnic Minority Welsh Women's Achievement Association
2022: Celebrating Excellence Award in Civic Mission, Cardiff University
2021: Public Invovement Award, Health and Care Research Wales
2021: Dementia Friendly Wales (2021) Diversity Award - Winner (individual category)
Grant funding
2023-2025: Tailoring cultural offers with and for diverse older users of social prescribing (TOUS): A realist evaluation. UKRI, UKRI, £396,427, co-applicant
2022-2023: Creative ageing and social prescribing: bridging the gap between diverse service users and policy makers. British Academy Innovation Fellowship, £80,000, PI working with Arts Council Wales
2022-2024: Understanding the everyday use of restrictive practices in the care of people living with dementia during a hospital admission: reducing inappropriate use, identifying good practice and alternative approaches to reduce risk and improve care. NIHR, £1M, co-applicant
2019- 2021: ‘Dementia care experiences – understanding diversity, implementing equality, creating shared learning ’, HEFCW, PI
Nov 2017- 2020: Understanding how to facilitate continence for people with dementia in acute hospital settings: raising awareness and improving care, NIHR (Researcher-led), £508,000, role: co-applicant with responsibility for patient, carer and public involvement and engagement
Dec 2016-Nov 2017: The human cost of cancer: addressing the unique physical, emotional and financial implications of facing cancer while living alone, Tenovus Cancer Care Innovation Grant, £29,700, PI
2016: Development of a self-sustaining community of Huntington’s disease walkers in Wales, Wellcome Trust ISSF – Public Engagement, £9,700, co-applicant
2012: Assessing participatory research impact and legacy, JISC, £25,000, role: CI with responsibility for health research impact analysis
Academic positions
2023- present: Research Fellow in Adult Social Care, Centre for Adult Social Care Research (CARE) & Centre for Trial Research, School of Medicine, Cardiff University
2022-2023: British Academy Innovation Fellow, Y Lab, School of Social Sciences, Cardiff University
2019-2022: Research Fellow in Arts and Health, Y Lab, School of Social Sciences, Cardiff University
2014- 2019: Research Associate in Health Services Research, School of Healthcare Sciences, Cardiff University
2013 - 2014: Public Engagement Associate for Health Research, Elizabeth Blackwell Institute (Wellcome Trust) & Integrative Epidemiology Unit (MRC), University of Bristol
2011- 2013: Research Associate and Research Design Service Advisor, Department of Primary Care and Public Health Sciences, King’s College London
2010- 2011: Senior Lecturer in Knowledge Transfer, Centre for Health and Social Care Research, Canterbury Christ Church University
2007-2009: Research and Evaluation Consultant, Department of Social Work, Health and Community, Canterbury Christ Church University
2008-2011: Associate Lecturer, Centre for Flexible Learning & School of Anthropology and Conservation, University of Kent
2004- 2010: Research and Teaching Assistant, School of Anthropology and Conservation, University of Kent
Committees and reviewing
Associate Editor for Arts and Health journal.
Manuscript reviewer for PLOS One, BMJ, Journal of Health Organisation and Management, Ethnography, European Journal of Cancer Care.
Expert reviewer on co-production for grant applications to the National Institute for Health Research and General Nursing Council Trust.
Expert reviewer on black, Asian and minority ethnic dementia care for Alzheimer's Society.
Supervisions
- Arts and health/creative methodologies
- Cross-cultural health and social care
- Social prescribing
- Dementia
Current supervision
Contact Details
+44 29208 79872
sbarc|spark, Room floor 2, Maindy Road, Cathays, Cardiff, CF24 4HQ
Research themes
Specialisms
- Dementia
- Social Prescribing
- Adult Social Care
- Migration
- Narrative and Creative research methods